{"id":11093,"date":"2020-09-11T10:37:15","date_gmt":"2020-09-11T14:37:15","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=11093"},"modified":"2023-06-21T11:30:15","modified_gmt":"2023-06-21T15:30:15","slug":"prf-family-quotes","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/it\/prf-family-quotes\/","title":{"rendered":"Citazioni della famiglia PRF"},"content":{"rendered":"

Italiano: [et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201doff|off|off\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|0px|0px|0|false|false\u201d border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header background_overlay_color=\u201drgba(0,0,0,0)\u201d _builder_version=\u201d4.16\u2033 title_font=\u201d||||||||\u201d dimensione_font_titolo=\u201d55\u2033 colore_sfondo=\u201d#29327a\u201d immagine_sfondo=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/bubbles-header.jpg\u201d posizione_sfondo=\u201din basso a destra\u201d riempimento_personalizzato=\u201d11.5vw||11.5vw||vero\u201d riempimento_personalizzato_tablet=\u201d\u201d riempimento_personalizzato_telefono=\u201d|56px||\u201d riempimento_personalizzato_ultimo_modificato=\u201dsu|desktop\u201d dimensione_font_titolo_tablet=\u201d45px\u201d dimensione_font_titolo_phone=\u201d40px\u201d dimensione_font_titolo_last_edited=\u201dsu|telefono\u201d z_index_tablet=\u201d500\u2033 elemento_css_principale=\u201dposizione-sfondo: centro !important;\u201d informazioni_colori_globali=\u201d{}\u201d]<\/p>\n

Citazioni della famiglia PRF<\/h1>\n

Italiano: [\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201don\u201d parallax_method=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row _builder_version=\u201d4.16\u2033 custom_margin=\u201d0px||0px||false|false\u201d custom_padding=\u201d0px||0px||false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_text _builder_version=\u201d4.16\u2033 text_font_size=\u201d20px\u201d header_3_text_align=\u201dright\u201d vertical_offset_tablet=\u201d0\u2033 Horizontal_offset_tablet=\u201d0\u2033 text_orientation=\u201dright\u201d z_index_tablet=\u201d500\u2033 text_text_shadow_horizontal_length_tablet=\u201d0px\u201d text_text_shadow_vertical_length_tablet=\u201d0px\u201d text_text_shadow_blur_strength_tablet=\u201d1px\u201d link_text_shadow_horizontal_length_tablet=\u201d0px\u201d link_text_shadow_vertical_length_tablet=\u201d0px\u201d link_text_shadow_blur_strength_tablet=\u201d1px\u201d ul_text_shadow_horizontal_length_tablet=\u201d0px\u201d Italiano: ul_text_shadow_vertical_length_tablet=\u201d0px\u201d ul_text_shadow_blur_strength_tablet=\u201d1px\u201d ol_text_shadow_horizontal_length_tablet=\u201d0px\u201d ol_text_shadow_vertical_length_tablet=\u201d0px\u201d ol_text_shadow_blur_strength_tablet=\u201d1px\u201d quote_text_shadow_horizontal_length_tablet=\u201d0px\u201d quote_text_shadow_vertical_length_tablet=\u201d0px\u201d quote_text_shadow_blur_strength_tablet=\u201d1px\u201d header_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_text_shadow_vertical_length_tablet=\u201d0px\u201d header_text_shadow_blur_strength_tablet=\u201d1px\u201d header_2_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_2_text_shadow_vertical_length_tablet=\u201d0px\u201d header_2_text_shadow_blur_strength_tablet=\u201d1px\u201d header_3_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_3_text_shadow_vertical_length_tablet=\u201d0px\u201d header_3_text_shadow_blur_strength_tablet=\u201d1px\u201d header_4_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_4_text_shadow_vertical_length_tablet=\u201d0px\u201d header_4_text_shadow_blur_strength_tablet=\u201d1px\u201d header_5_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_5_text_shadow_vertical_length_tablet=\u201d0px\u201d header_5_text_shadow_blur_strength_tablet=\u201d1px\u201d header_6_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_6_text_shadow_vertical_length_tablet=\u201d0px\u201d header_6_text_shadow_blur_strength_tablet=\u201d1px\u201d box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Alcune parole sulla PRF dalle famiglie della nostra comunit\u00e0<\/strong><\/span><\/h3>\n

Abbiamo chiesto ai genitori cosa ha significato per loro la PRF e siamo rimasti sbalorditi dalle loro risposte! <\/strong><\/span><\/p>\n

Ecco perch\u00e9 facciamo quello che facciamo<\/em>.<\/strong><\/span><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_sidebar area=\u201det_pb_widget_area_12\u2033 disabled_on=\u201don|on|off\u201d admin_label=\u201dIncontra i bambini barra laterale\u201d module_class=\u201dsubpage-sidebars sidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 animation_style=\u201dfade\u201d z_index_tablet=\u201d500\u2033 border_width_right=\u201d5px\u201d locked=\u201doff\u201d global_colors_info=\u201d{}\u201d] [\/et_pb_sidebar][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/08\/zach-e-tina.png\u201d title_text=\u201dzach-e-tina\u201d Italiano: admin_label=\u201dZach e Tina 2\u2033 _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d|0px|10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dDidascalia Z&T\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]Zach e sua madre, Tina; USA<\/strong> [\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitazione di Zach e Tina\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

"Entrare in contatto con PRF ci ha riempito di sollievo: c'era qualcuno l\u00e0 fuori che si prendeva cura di mio figlio, che stava lottando per una cura. Ci danno tranquillit\u00e0, sapere che ci sono ricercatori di fama mondiale al nostro fianco, che lavorano per curare questa malattia mortale. Sono cos\u00ec grata a PRF per aver lottato per Zach ogni giorno e per aver reso pi\u00f9 luminoso il futuro di Zach e della nostra famiglia".<\/p>\n

\u2013 Tina, la mamma di Zach<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Enzo-e-famiglia.png\u201d title_text=\u201dEnzo-e-famiglia\u201d admin_label=\u201dEnzo e famiglia\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dDidascalia Z&T\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|falso|falso\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Enzo e i suoi genitori; Australia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitazione di Enzo e Catherina\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Siamo cos\u00ec fortunati ad avere la Progeria Research Foundation: ci danno speranza... grazie a tutte le persone che ci sostengono, rendendo pi\u00f9 leggero il nostro viaggio con la Progeria."<\/p>\n

\u2013 Catherina, la mamma di Enzo<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Cam-e-Stephanie-OP-2020.png\u201d title_text=\u201dCam-e-Stephanie-OP-2020\u2033 admin_label=\u201dCam e mamma\u201d _builder_version=\u201d4.16\u2033 width=\u201d80%\u201d custom_padding=\u201d|20px||10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dDidascalia Cam e mamma\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|falso|falso\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Cam e sua madre; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitazione di Cam e Stephanie\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

"Non so come ringraziarti per tutto quello che fai e hai fatto per le famiglie affette da Progeria. Dico spesso alle persone che non conoscono la PRF quanto siamo fortunati ad averti ad aiutare i nostri bambini. Sappiate che avete fatto un'enorme differenza nelle nostre vite."<\/p>\n

\u2013 Stephanie, la mamma di Cam<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Meghan-and-family.png\u201d title_text=\u201dMeghan-and-family\u201d admin_label=\u201dMeghan e i suoi genitori\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dMeghan e didascalia dei genitori\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margine_personalizzato=\u201d0px||||falso|falso\u201d riempimento_personalizzato=\u201d0px||||10px|falso|falso\u201d hover_enabled=\u201d0\u2033 informazioni_colori_personalizzate=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n

Meghan e i suoi genitori; Stati Uniti<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitazione di Meghan e Bill\u201d _builder_version=\u201d4.21.0\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d hover_enabled=\u201d0\u2033 global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d sticky_enabled=\u201d0\u2033 larghezza__hover="100%"]<\/p>\n

"Quando abbiamo scoperto per la prima volta che Meghan aveva la progeria (all'et\u00e0 di 2 anni), l'aspettativa di vita media era di 13 anni... pensavamo che 13 anni fossero un lontano futuro, e invece sono arrivati cos\u00ec in fretta! E ora ha 19 anni, \u00e8 sana, \u00e8 forte, si mette in testa cosa vuole realizzare nella sua vita e ci prova e basta.<\/p>\n

Quando abbiamo trovato la Progeria Research Foundation, ho avuto un momento di estremo sollievo, confortato dal fatto che c'era qualcuno al nostro fianco che lavorava a questo problema. Si avvicinano alla risoluzione del problema con tale eccellenza che so che insieme TROVEREMMO la cura!\u201d<\/p>\n

\u2013 Bill, il pap\u00e0 di Meghan, 2021<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Terry-e-Zach.png\u201d title_text=\u201dTerry-e-Zach\u201d admin_label=\u201dZach e il suo amico, Terry\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZach e il suo amico, Terry didascalia\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margine_personalizzato=\u201d0px||||falso|falso\u201d riempimento_personalizzato=\u201d0px|||10px|falso|falso\u201d informazioni_colori_personalizzate=\u201d{}\u201d]<\/p>\n

Zach e il suo amico Terry; USA <\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitazione di Zach e Terry\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Sebbene avrei voluto che PRF esistesse per mia figlia Amy, scomparsa nel 1985, sono stato fortunato ad averla avuta, ed \u00e8 una benedizione che PRF sia ora qui per i bambini e i loro genitori".<\/p>\n

\u2013 Terry, la mamma di Amy<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 Italiano: _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Erin-e-Brennan-1.png\u201d title_text=\u201dErin-e-Brennan-(1)\u201d admin_label=\u201dErin e Brennan\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dBrennen e sua madre;USA\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margine_personalizzato=\u201d0px||||falso|falso\u201d riempimento_personalizzato=\u201d0px|||10px|falso|falso\u201d informazioni_colori_personalizzate=\u201d{}\u201d]<\/p>\n

Brennen e sua madre; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitazione di Brennan e Erin\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"PRF ci ha benedetti con il dono della speranza nella nostra lotta per trovare una cura per la Progeria. Quando a Brennen \u00e8 stata diagnosticata la prima volta, eravamo persi e sconvolti, non sapevamo a chi rivolgerci dopo, ma il personale premuroso e le famiglie amorevoli che abbiamo incontrato tramite PRF ci sono stati accanto a ogni passo del cammino. Abbiamo davvero guadagnato una famiglia della comunit\u00e0 Progeria".<\/p>\n

\u2013 Erin, la mamma di Brennen<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Alexandra-parents.png\u201d title_text=\u201dAlexandra\u2013genitori\u201d admin_label=\u201dAlexandra e i suoi genitori\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAlexandra e i suoi genitori; Spagna\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Alexandra e i suoi genitori; Spagna<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitazione di Zach e Tina\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Siamo eternamente grati a PRF per averci dato la luce e la speranza di cui avevamo bisogno quando abbiamo capito che la nostra bambina di 2 anni, Alexandra, era l'unico caso di Progeria in Spagna. Il meraviglioso team PRF e la sua rete di incredibili professionisti ci hanno accolto a braccia aperte: ci hanno dato tutto il loro amore e supporto e ci hanno accompagnato in questo duro viaggio, includendo Alexandra nei loro studi clinici, dandoci linee guida per migliorare la sua qualit\u00e0 di vita e indagando senza sosta per trovare una cura per nostra figlia. A coloro che hanno supportato PRF lungo il cammino, apprezziamo molto la vostra collaborazione con PRF affinch\u00e9 Alexandra e i suoi coetanei abbiano un futuro luminoso".<\/p>\n

\u2013 Cedric, il pap\u00e0 di Alexandra<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/kaylee-17th-bday-1.png\u201d title_text=\u201dkaylee-17th-bday-(1)\u201d admin_label=\u201dKaylee festeggia il suo 17\u00b0 compleanno\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dKaylee festeggia il suo 17\u00b0 compleanno;USA\u201d _builder_version=\u201d4.21.0\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d hover_enabled=\u201d0\u2033 global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n

Kaylee festeggia i suoi 17 anniil<\/sup> compleanno nel 2021; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dMarla, citazione della mamma di Kaylee\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Per me, la Progeria Research Foundation significa speranza e supporto. \u00c8 spaventoso avere a che fare con una malattia rara e so che se ho domande, faranno del loro meglio per aiutarmi. Hanno anche aiutato i genitori con la Progeria a mettersi in contatto per condividere le loro esperienze. So che stanno lavorando duramente per trovare nuovi trattamenti e una cura e non riesco a immaginare la vita senza la Progeria Research Foundation".<\/p>\n

\u2013 Marla, la mamma di Kaylee<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/shreyash-3.png\u201d title_text=\u201dshreyash-3\u2033 admin_label=\u201dShreyash e la sua famiglia; India\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dShreyash e la sua famiglia;India\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Shreyash e la sua famiglia; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dArvind, citazione del padre di Shreyash\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Nel 2017, abbiamo saputo di PRF e che nostro figlio, Shreyash, poteva essere curato. PRF \u00e8 stato un raggio di speranza e ci ha supportato in molti modi. Hanno considerato ogni singolo dettaglio durante il nostro viaggio a Boston in modo che fossimo a nostro agio, compresi gli alloggi e il viaggio, oltre a coprire il nostro viaggio di ritorno in India. Grazie a PRF, abbiamo speranza. Inoltre, l'amore che Shreyash riceve da PRF \u00e8 impeccabile. Non credo che nessuno abbia mai fatto cos\u00ec tanto".<\/p>\n

\u2013 Arvind, il padre di Shreyash<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zoey-family-.png\u201d title_text=\u201dZoey-family-\u201d admin_label=\u201dZoey e i suoi genitori; USA\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZoey e i suoi genitori;USA\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Zoey e i suoi genitori; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dLaura, citazione della mamma di Zoey\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"PRF \u00e8 la nostra ancora di salvezza... una famiglia... la nostra speranza per cose meravigliose a venire."<\/p>\n

\u2013 Laura, la mamma di Zoey<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Nathan-Bennett-and-fam.png\u201d title_text=\u201dNathan-&-Bennett-and-fam\u201d admin_label=\u201dNathan e Bennett e famiglia; USA\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dNathan, Bennett e famiglia;USA\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Nathan, Bennett e famiglia; Stati Uniti<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dLaura, citazione della mamma di Zoey\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Vogliamo la stessa cosa di tutti gli altri: vogliamo che i nostri ragazzi crescano... PRF \u00e8 la nostra speranza e ci fa andare avanti."\u00a0<\/p>\n

\u2013 Phyllis (mamma di Nathan e Bennett)<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Aahan.png\u201d title_text=\u201dAahan\u201d admin_label=\u201dAahan e i suoi genitori; India\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAahan e i suoi genitori;India\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Aahan e i suoi genitori; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dManish Maheshwari, il pap\u00e0 di Aahan\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"La Progeria Research Foundation e il suo team clinico stanno facendo un lavoro fantastico e hanno un ottimo senso del servizio. Hanno fatto molto per noi e porgiamo loro la nostra pi\u00f9 sincera gratitudine e i nostri migliori auguri".<\/p>\n

\u2013 Manish Maheshwari, il pap\u00e0 di Aahan<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Prachi-2.png\u201d title_text=\u201dPrachi-2\u2033 admin_label=\u201dPrachi e suo padre, India\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dPrachi e suo padre;India\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margine_personalizzato=\u201d0px||||falso|falso\u201d riempimento_personalizzato=\u201d0px|||10px|falso|falso\u201d informazioni_colori_personalizzate=\u201d{}\u201d]<\/p>\n

Prachi e suo padre; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitazione del padre di Bikash, Prachi\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Dopo aver visitato Mumbai per il controllo iniziale di Prachi, abbiamo sentito parlare per la prima volta della Progeria ed eravamo preoccupati. Ma quella chiamata tempestiva di PRF ci ha aiutato a essere in pace. Una volta che abbiamo visitato Boston (per la sperimentazione clinica di Prachi), ci siamo resi conto del lavoro fenomenale svolto da PRF, che nel corso degli anni \u00e8 diventato un forte sistema di supporto per noi. Sono loro grato e spero di vederli realizzare tutti i sogni di Prachi".\u00a0<\/p>\n

\u2013 Bikash, il pap\u00e0 di Prachi<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Sammy-e-genitori.gif\u201d title_text=\u201dSammy-e-genitori\u201d admin_label=\u201dSammy e i suoi genitori, Italia\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dSammy e i suoi genitori;Italia\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margine_personalizzato=\u201d0px||||falso|falso\u201d riempimento_personalizzato=\u201d0px|||10px|falso|falso\u201d informazioni_colori_personalizzate=\u201d{}\u201d]<\/p>\n

Sammy e i suoi genitori; Italia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dAmerigo e Laura, citazione del pap\u00e0 e della mamma di Sammy\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

<\/div>\n
"Quando i dottori hanno diagnosticato a Sammy la Progeria, non sapevamo nulla di questa malattia, quindi abbiamo cercato online e abbiamo trovato PRF. Abbiamo incontrato Audrey Gordon nel 2000, insieme a Leslie, Scott e Sam, e siamo diventati subito amici. Nel 2006, hanno invitato Sammy per i test clinici sulla Progeria, seguiti dal primo trial clinico sulla Progeria. \u00c8 stato come se una porta, piena di speranza, si stesse aprendo per noi...<\/div>\n
<\/div>\n
PRF ha fatto e sta facendo cose eccezionali. Sapevamo fin dall'inizio che mettevano cuore e anima nell'aiutare tutti gli adolescenti e i bambini con questa malattia. Abbiamo subito guadagnato una grande famiglia.<\/div>\n
<\/div>\n
Per noi, la PRF \u00e8 una vera ancora di salvezza\u2026 La PRF ci d\u00e0 una grande speranza. Quando veniamo a Boston, ci sentiamo al sicuro, non abbiamo paura per le sperimentazioni cliniche, n\u00e9 per i nuovi farmaci\u2026 perch\u00e9 sappiamo che stanno lavorando anche con il loro cuore, e questo \u00e8 molto importante per noi!<\/div>\n
<\/div>\n
-Amerigo e Laura, pap\u00e0 e mamma di Sammy<\/strong><\/div>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zein-con-la-mamma.png\u201d title_text=\u201dZein-con-la-mamma\u201d admin_label=\u201dZein e sua madre; Egitto\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZein e sua madre;Egitto\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Zein e sua madre; Egitto<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dDina, la citazione della mamma di Zein\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Non riesco a trovare le parole per descrivere quanto mi sono sentito felice durante questo viaggio [a Boston, per il trattamento con lonafarnib di Zein], con l'incoraggiamento e la speranza di ogni persona che ho incontrato. Vi ringrazio per averci dato il potere di combattere la Progeria."<\/p>\n

\u2013 Dina, la mamma di Zein<\/strong><\/p>\n

 <\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/aaditya.png\u201d title_text=\u201daaditya\u201d admin_label=\u201dAaditya e la sua famiglia; India\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAaditya e la sua famiglia;India\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Aaditya e la sua famiglia; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dDina, la citazione della mamma di Zein\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0"Abbiamo scoperto che Aaditya aveva la Progeria nel 2014. La Progeria Research Foundation \u00e8 stata una benedizione nella nostra vita. Con il loro aiuto, siamo stati in grado di fornire con successo a nostro figlio un'assistenza medica di cui non avremmo mai saputo nulla. Negli ultimi anni, il supporto della PRF lo ha aiutato fisicamente ed emotivamente. Siamo molto grati a loro. Mio figlio, Aaditya, continua a parlare del suo viaggio e porta con s\u00e9 bei ricordi degli Stati Uniti".<\/p>\n

\u2013 Uttam, il pap\u00e0 di Aaditya<\/strong><\/p>\n

Italiano: [\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dIscriviti ora\u201d admin_label=\u201dIscriviti alla newsletter\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii="on|25px|25px|25px|25px" global_colors_info="{}" button_bg_color__hover_enabled="on" button_bg_color__hover="#8fd2ed" button_border_color__hover_enabled="on"]<\/p>\n

Iscrizione<\/h2>\n

per il nostro<\/h2>\n

Iscriviti alla newsletter!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dFai una donazione ora\u201d admin_label=\u201dInsieme troveremo la cura!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d colore_bg_pulsante__hover=\u201d#8fd2ed\u201d colore_bordo_pulsante__hover_abilitato=\u201don\u201d]<\/p>\n

Insieme, noi<\/h2>\n

VOLERE<\/em><\/h2>\n

trova la cura!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column tipo=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 imbottitura_personalizzata=\u201d|||\u201d Italiano: global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/11\/footerstrip2022-1200-\u00d7-300-px-1.png\u201d title_text=\u201dfooterstrip2022 (1200 \u00d7 300 px) (1)\u201d _builder_version=\u201d4.18.1\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

Qualche parola sulla PRF dalle famiglie della nostra comunit\u00e0Abbiamo chiesto ai genitori cosa ha significato per loro la PRF e siamo rimasti sbalorditi dalle loro risposte!<\/p>","protected":false},"author":1,"featured_media":12103,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-11093","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nPRF Family Quotes | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"A few words on PRF from the families in our communityWe asked parents what PRF has meant to them, and were overwhelmed by their responses!\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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