{"id":12877,"date":"2022-11-15T11:20:35","date_gmt":"2022-11-15T16:20:35","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=12877"},"modified":"2026-04-13T16:57:30","modified_gmt":"2026-04-13T20:57:30","slug":"prfs-11th-international-scientific-workshop","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/it\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/","title":{"rendered":"L'11\u00b0 Workshop scientifico internazionale della PRF \u00e8 stato un successo!"},"content":{"rendered":"

[et_pb_section fb_built=”1″ fullwidth=”on” disabled_on=”off|off|off” _builder_version=”4.16″ border_width_bottom=”55px” border_color_bottom=”#29327a” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_fullwidth_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2021\/11\/2022-Banner-NewDates.jpg” title_text=”2022 Banner NewDates” _builder_version=”4.16″ custom_padding=”20px|||” z_index_tablet=”500″ global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|0px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_sidebar area=”et_pb_widget_area_24″ disabled_on=”on|on|off” admin_label=”Scientific meetings sidebar” module_class=”subpage-sidebars” _builder_version=”4.16″ text_orientation=”left” animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px|12px|false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

PRF Workshop scientifico internazionale PRF 2022<\/strong> \u2013 Corri Progeria alla cura,<\/em> \u00e8 stato un successo travolgente, riunendo 124 iscritti da 14 paesi<\/strong>Medici, ricercatori e famiglie con Progeria si sono incontrati a Boston, nel Massachusetts, per condividere le ultime scoperte nella ricerca sulla Progeria e gettare le basi per futuri sforzi volti a scoprire nuovi trattamenti e la cura per bambini e giovani adulti con Progeria.<\/p>\n

Abbiamo dato il via alla serata di apertura con il nostro il primo panel moderato da un adulto affetto da Progeria<\/strong>, Sammy Basso, 27 anni, di Tezze sul Brenta, Italia. Il panel ha visto la partecipazione anche di altre due persone affette da Progeria, Meg e Carlos, che hanno incantato il pubblico raccontando le nuove ed entusiasmanti attivit\u00e0 che hanno portato a termine nell'ultimo anno. Molto emozionante, Meg si \u00e8 laureata in anticipo, un mese dopo il workshop! La serata di apertura ha incluso anche un live zoom con bambini di tutto il mondo<\/strong>, seguito da una sorpresa esecuzione musicale del Dott. Francis Collins<\/strong>, consulente scientifico del Presidente degli Stati Uniti e il cui laboratorio ha guidato la scoperta del gene della Progeria. Il dott. Collins ha allietato il pubblico con diverse canzoni popolari con testi modificati sui progressi della PRF verso la cura. Che speciale!<\/p>\n

Progressi e collaborazioni cos\u00ec profondi possono verificarsi solo quando una comunit\u00e0 scientifica profondamente impegnata si unisce, come abbiamo fatto in 11 convegni internazionali.<\/strong><\/p>\n

L'amore e la passione nell'aiutare questi bambini e giovani adulti sono stati espressi in ogni presentazione e hanno gi\u00e0 dato vita a numerose collaborazioni intercontinentali per esplorare ulteriori trattamenti e percorsi verso una cura.<\/p>\n

Siamo entusiasti di condividere con voi questa prima serata.<\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/www.youtube.com\/watch?v=dkADdswqWN0″ button_text=”Click Here to Watch the Opening Night of the 2022 Workshop” admin_label=”wkshp video” _builder_version=”4.19.5″ _module_preset=”default” button_text_color=”#FFFFFF” button_bg_color=”#00B2E2″ button_border_width=”6px” button_border_color=”#00B2E2″ background_layout=”dark” custom_margin=”30px||30px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Il secondo e il terzo giorno del workshop si sono concentrati su 28 presentazioni scientifiche orali e 26 poster<\/strong>Abbiamo iniziato il terzo giorno con una nuova aggiunta al workshop: la Sunrise Session, che ha messo in contatto ricercatori junior con leader senior nel campo in un contesto di piccoli gruppi, stimolando un dialogo avvincente tra i vari gruppi di ricercatori.<\/p>\n

Riportando un altro dei preferiti del workshop, il nostro round lampo ha dato ai relatori dei poster una piattaforma per offrire ai loro colleghi un'anteprima dinamica dei poster che avrebbero presentato pi\u00f9 tardi quella sera. Queste presentazioni hanno evidenziato gli ultimi sviluppi nella ricerca clinica sulla Progeria, tra cui un'analisi approfondita progresso trasformativo della terapia dell'RNA e dell'editing genetico<\/strong> negli studi preclinici, cos\u00ec come un sessione cardiologica che ha evidenziato le strategie di intervento per la stenosi aortica critica<\/strong> nei giovani adulti con Progeria. Le presentazioni e i poster hanno descritto in dettaglio la profondit\u00e0 dei progressi con potenziali trattamenti per la Progeria e hanno ispirato la futura collaborazione tra la comunit\u00e0 medica e quella della ricerca.<\/p>\n

Inoltre, diversi partecipanti hanno usufruito dei crediti per l'educazione medica continua (ECM) offerti dall'ufficio CME del Lifespan Rhode Island Hospital.<\/p>\n

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Di seguito alcuni esempi di feedback del workshop:<\/strong><\/p>\n

[\/et_pb_text][et_pb_testimonial _builder_version=”4.18.1″ _module_preset=”default” background_color=”#8FD2ED” custom_padding=”||0px|||” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\"\"<\/p>\n

\u201cUn incontro fantastico. Ho pensato che mercoled\u00ec sera fosse fantastico. Leslie ha fatto un discorso fantastico. \u00c8 stato fantastico avere un paziente con progeria a guidare il panel. Il panel \u00e8 sempre un momento clou. Grazie per aver chiesto a Francis di tornare a cantare. Adoro anche quella parte! L'incontro \u00e8 stato cos\u00ec ben organizzato. Grazie!\u201d<\/strong><\/p>\n

"Non vedo l'ora di partecipare a questo incontro. Il [luogo del workshop] Royal Sonesta \u00e8 uno spazio eccezionale per l'incontro; ogni aspetto \u00e8 stato pianificato alla perfezione!"<\/strong><\/p>\n

\u201cOgni volta vedo miglioramenti\u2026 basta continuare cos\u00ec! \u00c8 stato davvero impressionante l'\u201catmosfera familiare\u201d in grado di rendere tutti pi\u00f9 rilassati e pi\u00f9 a loro agio nell'apprendere e fare domande. Divertente e istruttivo, una grande iniezione di speranza!\u201d<\/strong><\/p>\n

\u201cConferenza eccellente con relatori fenomenali!\u201d<\/strong><\/p>\n

"Come sempre, un workshop eccezionale, da non perdere!"<\/strong><\/p>\n

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Sammy e Carlos parlano prima di fare la loro presentazione al panel<\/strong><\/p>\n

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Francis Collins, MD, PhD esegue per il pubblico diverse canzoni popolari<\/strong><\/p>\n

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Ricercatori, clinici e famiglie affette da Progeria provenienti da tutto il mondo si sono riuniti all'11\u00b0 Congresso PRFil<\/sup> Workshop scientifico internazionale.<\/strong><\/p>\n

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Il Comitato volontario per la ricerca medica si \u00e8 riunito prima della conferenza per esaminare nuove e interessanti proposte di sovvenzioni.<\/strong><\/p>\n

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Grazie ai nostri sponsor:<\/h3>\n

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Grazie a tutti coloro che hanno partecipato all'11\u00b0 workshop scientifico internazionale della Progeria Research Foundation: RACE Progeria to the Cure!<\/p>","protected":false},"author":2,"featured_media":13885,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-12877","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"\nPRF\u2019s 11th International Scientific Workshop | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/it\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/\" 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