{"id":2025,"date":"2012-05-15T23:01:02","date_gmt":"2012-05-15T23:01:02","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=2025"},"modified":"2020-12-10T18:32:09","modified_gmt":"2020-12-10T23:32:09","slug":"number-of-children-identified-continues-to-soar","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/it\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/","title":{"rendered":"Il numero di bambini identificati continua a salire"},"content":{"rendered":"<p>Italiano: [et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201diniziale\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dripeti\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201diniziale\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dripeti\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n<p>Grazie a PRF <a href=\"https:\/\/www.progeriaresearch.org\/it\/find-the-children\/\">\u201cTrova gli altri 150\u201d <\/a>(ora Find the Children), la campagna globale per trovare tutti i bambini affetti da Progeria ha contribuito a raggiungere un sorprendente aumento di 85% tra quelli identificati. Ora pi\u00f9 bambini che mai possono ottenere il supporto di cui hanno bisogno.<\/p>\n<div id=\"secondary-header-content\">\n<p><strong>PRF ha portato la consapevolezza a nuove altezze e aree del mondo, con un sorprendente aumento di 46: da 54 a 100 bambini** in poco pi\u00f9 di tre anni. Prima della campagna, il numero di nuovi bambini identificati era inferiore a 3 all&#039;anno!!\u00a0<\/strong><\/p>\n<p>**10 dei 90 hanno laminopatie progeroidi non produttrici di progerina (Progerie che non producono progerina)<\/p>\n<p>Nell&#039;ottobre 2009, PRF ha lanciato il suo <a href=\"https:\/\/www.progeriaresearch.org\/it\/find-the-children\/\">\u201cTrova gli altri 150\u201d <\/a>(ora Trova i Bambini) campagna in collaborazione con <a href=\"https:\/\/www.globalhealthpr.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Salute GlobalePR<\/a>, un gruppo mondiale di comunicazioni sanitarie con sedi negli Stati Uniti, in Asia, in Europa occidentale e in America Latina. Il suo obiettivo: cercare a livello globale bambini affetti dalla malattia estremamente rara Progeria, in modo che possano ricevere le cure uniche di cui hanno bisogno e contribuire a far progredire la scienza clinica per la Progeria. Grazie a una sensibilizzazione proattiva e a un sito Web dedicato con informazioni in 20 lingue, questa campagna sta ottenendo risultati ben oltre le nostre aspettative!<\/p>\n<\/div>\n<blockquote>\n<p>Il numero totale di bambini viventi con Progeria conosciuti \u00e8 ora 100 in tutto il mondo. I bambini si estendono su cinque continenti e hanno un&#039;et\u00e0 compresa tra 8 mesi e 20 anni.<\/p>\n<\/blockquote>\n<div id=\"attachment_2026\" style=\"width: 585px\" class=\"wp-caption aligncenter\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-2026\" class=\"size-full wp-image-2026\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg\" alt=\"\" width=\"575\" height=\"356\" srcset=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg 575w, https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3-300x186.jpg 300w\" sizes=\"(max-width: 575px) 100vw, 575px\" \/><p id=\"caption-attachment-2026\" class=\"wp-caption-text\">Nonostante le barriere linguistiche e geografiche, i risultati ottenuti finora dalla campagna sono una vera e propria testimonianza del potere della collaborazione globale.<\/p><\/div>\n<p>&quot;Al lancio della campagna, abbiamo detto che trovare anche un solo bambino avrebbe reso la campagna un successo&quot;, ha affermato <a href=\"https:\/\/www.progeriaresearch.org\/it\/officers-and-staff\/\">Audrey Gordon<\/a>, Presidente e Direttore esecutivo, PRF. &quot;Ora sappiamo che attraverso i nostri continui sforzi globali, possiamo trovare ancora pi\u00f9 bambini con Progeria per fornire loro servizi e cure mediche uniche ed essenziali e proseguire significativamente la ricerca medica per sviluppare trattamenti e una cura&quot;.<\/p>\n<p>Manteniamo alto lo slancio! <strong>Come puoi contribuire a realizzare tutto questo?<\/strong><\/p>\n<p>\u2666 Incoraggia i tuoi amici, la tua famiglia, i tuoi colleghi di lavoro e tutti quelli presenti nella tua rubrica a farti visita <a href=\"https:\/\/www.progeriaresearch.org\/it\/find-the-children\/\">Trova gli altri 150 <\/a>(ora Trova i bambini) <a href=\"https:\/\/www.findtheother150.org\">,<\/a> dove sono incluse informazioni sulla malattia in diverse lingue.<\/p>\n<p>\u2666 Segui gli aggiornamenti da PRF tramite <a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" target=\"_blank\" rel=\"noopener noreferrer\">Fai clic su Mi Piace<\/a> E <a href=\"https:\/\/twitter.com\/progeria\" target=\"_blank\" rel=\"noopener noreferrer\">Cinguettio<\/a>e incoraggiare altri a utilizzare queste pagine per trovare maggiori informazioni.<\/p>\n<p>\u2666 Se avete contatti con i media in Cina, nell&#039;Europa orientale e in altri paesi in cui la comunicazione globale \u00e8 limitata, vi preghiamo di contattarci.<\/p>\n<p align=\"center\"><strong>Grazie a TUTTI per averci aiutato a trovare questi bambini speciali!<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033] Grazie all&#039;iniziativa \u201cFind the Other 150\u201d (ora Find the Children) di PRF, la campagna globale per trovare tutti i bambini affetti da Progeria ha contribuito a raggiungere un sorprendente aumento di 85% nel numero di quelli identificati. Ora pi\u00f9 bambini che mai possono ottenere [\u2026]<\/p>","protected":false},"author":1,"featured_media":2026,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p>Thanks to PRF's <a href=\"https:\/\/www.findtheother150.org\/\">\"Find the Other 150\" <\/a>initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. Now more children than ever can get the support they need.<\/p><div id=\"secondary-header-content\"><p><strong>PRF has brought awareness to new heights and areas of the world, resulting in an astonishing increase of 46:\u00a0 from 54 to 100 children** in just over three years. \u00a0Prior to the campaign, the number of new children identified was less than 3 per year!!\u00a0<\/strong><\/p><p>**10 of the 90 have non-progerin-producing progeroid laminopathies (Progerias that do not produce Progerin)<\/p><p>In October 2009, PRF launched its <a href=\"https:\/\/www.findtheother150.org\">\"Find the Other 150\" <\/a>campaign in partnership with <a href=\"https:\/\/www.globalhealthpr.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">GlobalHealthPR<\/a>, a worldwide health communications group with offices in the United States, Asia, Western Europe and Latin America. Its goal: search globally for children with the extremely rare disease Progeria, so they can receive the unique the care they need and help advance clinical science for Progeria. Through proactive outreach and a dedicated web site with information in 20 languages (<a href=\"https:\/\/www.findtheother150.org\/\">www.findtheother150.org<\/a>), this campaign is succeeding far beyond our expectations!<\/p><\/div><blockquote><p>The total number of known living children with Progeria is now 100 worldwide. The children span five continents, and range in age from 8 months to 20 years.<\/p><\/blockquote>[caption id=\"attachment_2026\" align=\"aligncenter\" width=\"575\"]<img class=\"size-full wp-image-2026\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg\" alt=\"\" width=\"575\" height=\"356\" \/> Stretching across language and geographic barriers, the campaign's results to date are a true testament to the power of global collaboration.[\/caption]<p>\"At the launch of the campaign, we said that finding even one child would make the campaign a success,\" said <a href=\"https:\/\/www.progeriaresearch.org\/officersandstaff.html\">Audrey Gordon<\/a>, President and Executive Director, PRF. \" We now know that through our continued global efforts, we can find even more children with Progeria to provide them with unique and essential medical services and care, and significantly further medical research to develop treatments and a cure.\"<\/p><p>Let's keep the momentum going! <strong>How can you help make this happen?<\/strong><\/p><p>\u2666 Encourage your friends, family, business colleagues and everyone in your address book to visit <a href=\"https:\/\/www.findtheother150.org\">www.findtheother150.org,<\/a> where information about the disease is included in several languages.<\/p><p>\u2666 Follow updates from PRF through <a href=\"https:\/\/www.causes.com\/causes\/183613?m=071cdb23\" target=\"_blank\" rel=\"noopener noreferrer\">Facebook<\/a> and <a href=\"https:\/\/twitter.com\/progeria\" target=\"_blank\" rel=\"noopener noreferrer\">Twitter<\/a>, and encourage others to use these pages to find out more information.<\/p><p>\u2666 If you have media contacts in China, Eastern Europe and other countries in which global communication is limited, please contact us.<\/p><p align=\"center\"><strong>Thank you ALL for helping us find these special children!<\/strong><\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2025","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Number of Children Identified Continues to Soar - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/it\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Number of Children Identified Continues to Soar - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.22&#8243;][et_pb_row _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.6.5&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;] Thanks to PRF&#8217;s &#8220;Find the Other 150&#8221; (now Find the Children) initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. Now more children than ever can get [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/it\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2012-05-15T23:01:02+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2020-12-10T23:32:09+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"575\" \/>\n\t<meta property=\"og:image:height\" content=\"356\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"gravoc\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@Progeria\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"gravoc\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minuti\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\"},\"author\":{\"name\":\"gravoc\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/person\/a3c935a81e92242c6a77ae0018542928\"},\"headline\":\"Number of Children Identified Continues to Soar\",\"datePublished\":\"2012-05-15T23:01:02+00:00\",\"dateModified\":\"2020-12-10T23:32:09+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\"},\"wordCount\":463,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg\",\"articleSection\":[\"News\"],\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\",\"name\":\"Number of Children Identified Continues to Soar - 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The Progeria Research Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.progeriaresearch.org\/it\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/","og_locale":"it_IT","og_type":"article","og_title":"Number of Children Identified Continues to Soar - The Progeria Research Foundation","og_description":"[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.22&#8243;][et_pb_row _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.6.5&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;] Thanks to PRF&#8217;s &#8220;Find the Other 150&#8221; (now Find the Children) initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. Now more children than ever can get [&hellip;]","og_url":"https:\/\/www.progeriaresearch.org\/it\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/","og_site_name":"The Progeria Research Foundation","article_publisher":"https:\/\/www.facebook.com\/ProgeriaResearch\/","article_published_time":"2012-05-15T23:01:02+00:00","article_modified_time":"2020-12-10T23:32:09+00:00","og_image":[{"width":575,"height":356,"url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg","type":"image\/jpeg"}],"author":"gravoc","twitter_card":"summary_large_image","twitter_creator":"@Progeria","twitter_site":"@Progeria","twitter_misc":{"Written by":"gravoc","Est. reading time":"2 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