{"id":2037,"date":"2012-09-24T12:11:18","date_gmt":"2012-09-24T12:11:18","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=2037"},"modified":"2020-12-11T11:41:51","modified_gmt":"2020-12-11T16:41:51","slug":"the-world-learns-of-progeria-treatment","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/it\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/","title":{"rendered":"Il mondo viene a conoscenza del trattamento della progeria"},"content":{"rendered":"

Italiano: [et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201diniziale\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dripeti\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201diniziale\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dripeti\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n

La notizia del primo trattamento in assoluto per la Progeria si sta diffondendo in tutto il mondo e decine di organi di informazione stanno riportando notizie su questo straordinario progresso. clicca qui<\/a> per leggere l'annuncio e vedere qui sotto i link a decine di articoli, clip radiofoniche e trasmissioni TV!<\/p>\n

clicca qui<\/a> per leggere la nostra newsletter speciale sui risultati. <\/b>Extra! Extra! Leggi tutto!<\/strong><\/p>\n

Il fascino del pubblico per la Progeria e la sua relazione con l'invecchiamento continua a crescere, mentre si diffonde la notizia del primo trattamento per bambini con Progeria. Date un'occhiata a queste storie online e in onda da emittenti di alto livello.\u00a0 Scoprilo per primo man mano che appariranno altre storie<\/strong>: 'mi piace' su di noi Fai clic su Mi Piace<\/a>, seguici su Cinguettio<\/a>, O inviaci il tuo indirizzo email<\/a>.<\/p>\n

\"\"

Devin dal Canada durante una visita al Boston Children's Hospital nel 2008 per la sperimentazione clinica del farmaco Progeria.<\/p><\/div>\n

Cosa dice la gente\u2026<\/p>\n

"il risultato di uno sprint scientifico<\/strong>\u201d \u2013 Robert Siegel, intervistatore<\/em><\/p>\n

"C'\u00e8 stato una ricompensa inaspettata per il resto dell'umanit\u00e0<\/strong>\u2026alcuni\u2026cercheranno modi per usare queste nuove informazioni per prevenire una serie di malattie associate all\u2019invecchiamento\u2026 forse la cosa pi\u00f9 notevole del nuovo trattamento \u00e8 la rapidit\u00e0 con cui \u00e8 stato sviluppato.\u201d \u2013 Jon Hamilton, giornalista televisivo<\/em><\/p>\n

\u201cAdesso non solo abbiamo il nostro primo trattamento, ma sappiamo per la prima volta che la Progeria pu\u00f2 essere migliorata, e questo ci ispira a lavorare di pi\u00f9 e pi\u00f9 velocemente<\/strong> verso ulteriori trattamenti che potrebbero funzionare insieme a Lonafarnib per fare la differenza nella salute dei bambini con Progeria.\u201d\u00a0 \u00a0<\/em>\u2013 Direttore medico della PRF Dott. Leslie Gordon, CNN Health<\/em><\/p>\n

"La prima volta che qualcuno ha fatto qualcosa che in qualsiasi modo, forma o aspetto ha alterato la storia naturale di questa malattia<\/strong>.\u201d \u2013 Dr. Mark Kieran, presidente della sperimentazione sul farmaco Progeria,<\/em> Il Boston Globe<\/em><\/p>\n

\u201c[Questi risultati] mostrano la dedizione che i genitori e le organizzazioni non profit hanno nella comunit\u00e0 delle malattie rare per fare le cose quando tutto sembra perduto\u2026 questo studio \u00e8 un ottimo esempio<\/strong> di come una piccola organizzazione non-profit possa contribuire a stimolare e tradurre la ricerca biomedica e genetica di base in un trattamento umano". \u2013 <\/em>Dott. James Radke<\/em>, Rapporto sulle malattie rare<\/em><\/p>\n

"\u00c8 enorme, \u00c8 un miracolo<\/strong>Devin ha nuove speranze, sogni, il suo detto \u00e8: "Sogna in grande o torna a casa" -Giammy,<\/em> Salute della CNN<\/em><\/p>\n

\u201cLa storia continua di la sconfitta della Progeria \u00e8 una gloriosa illustrazione del valore della ricerca di base nello scoprire come qualcosa accade <\/strong>\u2013 e questo \u00e8 il cuore e l'anima della scienza." \u2013 <\/em>Dott. Ricki Lewis, PLOS<\/em><\/a>\u00a0 COLLEGAMENTO: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>\n

\"\"

Frannie Marmorstein di Spectrum Health tiene in mano con entusiasmo l'edizione del 25 settembre 2012 del Wall Street Journal, mostrando l'articolo sui risultati della sperimentazione in alto nella prima pagina!<\/p><\/div>\n

Vedi gli articoli completi qui\u2026<\/strong><\/p>\n

\"\"<\/strong><\/p>\n

WBF 88.7 \u2013 NPR News \u2013 ASCOLTA l'intervista di Robert Siegel "All Things Considered" con il direttore medico della PRF e suo figlio Sam! (link non pi\u00f9 disponibile)<\/strong><\/p>\n

\"\"<\/p>\n

GUARDA il servizio giornalistico sulla filiale locale di Boston della ABC, WCVB-TV (link non pi\u00f9 disponibile)<\/strong><\/p>\n

\"\"<\/p>\n

Wall Street Journal \u2013 Market Watch (link non pi\u00f9 disponibile)<\/strong><\/p>\n

Primo-<\/strong>Ogni trattamento per una rara malattia dell'invecchiamento infantile mostra miglioramenti in tutti i partecipanti alla sperimentazione (link non pi\u00f9 disponibile)<\/strong><\/p>\n

Lo studio di una malattia rara aiuta a cercare indizi sull'invecchiamento \/ Il farmaco rallenta i danni nei bambini che sono anche collegati a problemi cardiaci in altri<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

Salute della CNN<\/a><\/strong><\/p>\n

Progressi nella cura delle malattie legate all'invecchiamento precoce dei bambini<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

Nuovo studio mirato alla malattia infantile dell'invecchiamento rapido (link non pi\u00f9 disponibile) <\/strong><\/p>\n

\"\"
<\/strong>Scienza quotidiana: <\/a><\/strong>Farmaco originariamente sviluppato per il cancro si dimostra efficace per i bambini affetti da progeria<\/strong><\/a><\/p>\n

\"\"
90.9 WBUR Salute comune: <\/strong>Trovata la prima cura per la malattia dell'invecchiamento rapido nei bambini (link non pi\u00f9 disponibile) <\/strong><\/p>\n\n\n\n
\n

Siamo eternamente grati al fantastico team di Spettro<\/a> per i loro instancabili sforzi nel diffondere la parola su Proger<\/strong>ia e PRF <\/strong>lavoro.\u00a0<\/strong><\/p>\n

\u00a0<\/strong>\"\"<\/a><\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

\u00a0<\/strong>\u00a0<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to read the announcement, and see below for links on dozens of articles, radio […]<\/p>","protected":false},"author":1,"featured_media":2039,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"

News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here<\/a> to read the announcement, and see below for links on dozens of articles, radio clips and TV airings!<\/p>

Click here<\/a> to read our special newsletter on the findings. <\/b>Extra! Extra! Read All About It!<\/strong><\/p>

The public\u2019s fascination with Progeria and its relation to aging continues to rise, as word of the first treatment for children with Progeria spreads. Check out these stories on-line and on-air from top-tier outlets.\u00a0 Be the first to know as more stories appear<\/strong>: 'like' us on Facebook<\/a>, follow us on Twitter<\/a>, or send us your email address<\/a>.<\/p>[caption id=\"attachment_2038\" align=\"alignleft\" width=\"225\"]\"\" Devin from Canada during a 2008 visit to Boston Children\u2019s Hospital for the Progeria clinical drug trial.[\/caption]

What people are saying\u2026<\/p>

\u201cthe result of a scientific sprint<\/strong>\u201d \u2013 Robert Siegel, NPR<\/em><\/p>

\u201cThere\u2019s been an unexpected payoff for the rest of humanity<\/strong>...some\u2026will be looking for ways to use this new information to ward off a range of diseases associated with aging\u2026 perhaps the most remarkable thing about the new treatment is how fast it was developed.\u201d\u00a0 \u2013 Jon Hamilton, NPR<\/em><\/p>

\u201cNow, we not only have our first treatment, but we know for the first time that Progeria can be improved, and this inspires us to work harder and faster<\/strong> toward additional treatments that could work in conjunction with Lonafarnib to make a difference in the health of children with Progeria.\u201d\u00a0 \u00a0<\/em>- PRF\u2019s Medical Director Dr. Leslie Gordon, CNN Health<\/em><\/p>

\"The first time anyone has done anything that in any way, shape or form altered the natural history of this disease<\/strong>.\" \u2013 Progeria Drug trial Chair Dr. Mark Kieran,<\/em> The Boston Globe<\/em><\/p>

\"[These results] show the dedication parents and non-profits have in the rare disease community to get things done when all seems lost\u2026 this study is a great example<\/strong> of how a small non-profit can help stimulate and translate basic biomedical and genetic research into a human treatment.\" \u2013 <\/em>James Radke PhD<\/em>, Rare Disease Report<\/em><\/p>

\"It\u2019s huge, It\u2019s a miracle<\/strong>. Devin has new hope, dreams, his saying is, \u201cDream big or go home\u201d \u2013 Jamie,<\/em> CNN Health<\/em><\/p>

\u201cThe continuing story of conquering Progeria is a glorious illustration of the value of basic research in discovering how something happens <\/strong>\u2013 and that\u2019s the heart and soul of science.\u201d \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>[caption id=\"attachment_2039\" align=\"aligncenter\" width=\"432\"]\"\" Spectrum Health's Frannie Marmorstein excitedly holds the Sept. 25, 2012 edition of the Wall Street Journal, showing the trial results article above the fold on the front page![\/caption]

See complete articles here\u2026<\/strong><\/p>

\"\"<\/strong><\/p>

WBF 88.7 \u2013 NPR News \u2013<\/a>LISTEN<\/a> to Robert Siegel\u2019s \u201cAll Things Considered\u201d interview with PRF\u2019s Medical Director and her son Sam!<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

\u00a0<\/p>

WATCH the news report on Boston\u2019s local abc affiliate, WCVB-TV<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

Wall Street<\/a> Journal - Market Watch<\/a><\/strong><\/p>

First-<\/strong><\/a>Ever Treatment For Rare Childhood Aging Disease Shows Improvement In All Trial Participant<\/strong><\/a><\/p>

Study of Rare Disease Helps in Search for Clues on Aging \/\u00a0 Drug Slows Damage in Children That Also Is Linked to Heart Problems in Others<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

\u00a0<\/p>

CNN Health<\/a><\/strong><\/p>

Advances in kids' early aging disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

WCVB.com<\/a><\/strong><\/p>

New trial targets rapid-aging childhood disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

Science Daily<\/a><\/strong><\/p>

Drug Originally Developed for Cancer Proves Effective for Children With Progeria<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/p>

90.9 WBUR CommonHealth<\/a><\/strong><\/p>

First Treatment Found For Rapid-Aging Disease In Children<\/strong><\/a><\/p>

\u00a0<\/p>

\u00a0<\/p>

We are eternally grateful to the fantastic team at Spectrum<\/a> for their tireless efforts to spread the word about Proger<\/strong>ia and PRF\u2019s <\/strong>work.\u00a0<\/strong><\/p>

\u00a0<\/strong>\"\"<\/a><\/p><\/td><\/tr><\/tbody><\/table>

\u00a0<\/strong>\u00a0<\/strong><\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2037","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"\nThe World Learns of Progeria Treatment - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/it\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The World Learns of Progeria Treatment - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. 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