Il 10 settembre 2010, il programma 20\/20 della ABC ha trasmesso un programma di 1 ora sulla Progeria intitolato, Quando sette anni sembrano settanta... Una corsa contro il tempo per tre giovani ragazze (non pi\u00f9 disponibile online).<\/em>Lo spettacolo \u00e8 stato un ritratto meraviglioso di Lindsay, Kaylee e Hayley e delle loro famiglie, e ringraziamo Barbara Walters e la produttrice Muriel Pearson per aver portato la Progeria nelle case di milioni di spettatori.<\/p>\n La Progeria Research Foundation apprezza ogni sforzo per sensibilizzare l'opinione pubblica sulla Progeria ed \u00e8 lieta che Barbara Walters e ABC riconoscano la natura unica e straordinaria di questi bambini speciali, nonch\u00e9 il legame della Progeria con il processo di invecchiamento che colpisce tutti noi.<\/p>\n Si prega di notare che qualsiasi informazione sugli effetti del farmaco\/dei farmaci utilizzati nella Progeria sperimentazioni cliniche sui farmaci<\/a> condiviso nel programma 20\/20 non \u00e8 stato fornito o approvato dalla Progeria Research Foundation.<\/em> Ci auguriamo che i risultati del primo trial farmacologico in assoluto vengano pubblicati nel prossimo futuro e che vengano condivisi pubblicamente al momento della pubblicazione. Per scoprire come puoi aiutare i bambini con la Progeria, clicca su Qui<\/a>.<\/p>\n Guarda l'intera trasmissione Qui<\/a>e leggi i quasi 500 commenti sullo show Qui<\/a>.<\/p>\n<\/div>\n<\/div>\n<\/div>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.6.5″ _module_preset=”default” min_height=”558px” custom_padding=”0px|||||”][et_pb_row column_structure=”1_2,1_2″ custom_padding_last_edited=”on|desktop” padding_left_right_link_1=”false” padding_left_right_link_2=”true” _builder_version=”3.25″ custom_margin=”-27px|auto||auto||” custom_padding=”39.0156px|0px|30px|0px|false|false” custom_padding_tablet=”0px|35px||35px” custom_padding_phone=”0px||0px” animation_direction=”right” locked=”off”][et_pb_column type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”3.25″ custom_padding=”|20px||” custom_padding_tablet=”|0px||0px” custom_padding_phone=”||30px” custom_padding_last_edited=”on|phone” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2010\/05\/HayleyCloser-crpd.jpg” align=”center” admin_label=”hayley” _builder_version=”4.6.5″ _module_preset=”default”][\/et_pb_image][et_pb_text _builder_version=”4.6.5″ _module_preset=”default” text_font=”|700|||||||” text_font_size=”12px” custom_margin=”-16px|||||”]<\/p>\n Hayley fa una dichiarazione conclusiva ai ricercatori al workshop del 2010 sulla Progeria: "Grazie per aver trovato una cura".<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”3.25″ custom_padding=”|20px|30px|20px” custom_padding_tablet=”|0px||0px” custom_padding_phone=”” custom_padding_last_edited=”on|desktop” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2010\/05\/LindsayKaylee-trophies-crp.jpg” align=”center” admin_label=”lindsayKaylee” _builder_version=”4.6.5″ _module_preset=”default” custom_margin=”||3px|||”][\/et_pb_image][et_pb_text _builder_version=”4.6.5″ _module_preset=”default” text_font=”|700|||||||” text_font_size=”12px”]<\/p>\n Lindsay e Kaylee, a Boston nel settembre 2009, per la loro ultima visita nel primo studio clinico (per il quale hanno ricevuto dei premi!) e per la loro prima visita per il nuovo studio clinico triplo.<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":" [et_pb_section fb_built=”1″ _builder_version=”3.22″ custom_padding=”||0px|||”][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-59px|auto||auto||”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”] Awareness of Progeria continues with the airing of a 20\/20 special featuring Lindsay, Kaylee and Hayley, three girls with Progeria On September 10, 2010, ABC’s 20\/20 aired a 1-hour program on Progeria entitled, When Seven Looks Like 70…A […]<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":" [vc_custom_heading text=\"Barbara Walters Reports on Progeria\" font_container=\"tag:h1|text_align:left\" use_theme_fonts=\"yes\"]<\/p> Awareness of Progeria continues with the airing of a 20\/20 special featuring Lindsay, Kaylee and Hayley, three girls with Progeria<\/p> On September 10, 2010, ABC's 20\/20 aired a 1-hour program on Progeria entitled, When Seven Looks Like 70...A Race Against Time for Three Young Girls<\/a>.<\/em> The show was a wonderful portrayal of Lindsay, Kaylee and Hayley and their families, and we thank Barbara Walters and producer Muriel Pearson for bringing Progeria into the homes of millions of viewers.<\/p> The Progeria Research Foundation appreciates every effort to raise awareness about Progeria, and is pleased that Barbara Walters and ABC recognize the unique and remarkable nature of these special children, as well as Progeria's connection to the aging process that affects us all.<\/p> Please note that any information about effects of the drug(s) used in Progeria clinical drug trials<\/a> that was shared on the 20\/20 program has not been provided by or approved by The Progeria Research Foundation.<\/em> We hope the results of the first-ever drug trial will be published in the near future, and will share those results publicly at the time of publication. To learn how you can help children with Progeria, click here<\/a>.<\/p> Watch the entire broadcast here<\/a>, and read the nearly 500 comments on the show here<\/a>.<\/p>[caption id=\"attachment_2075\" align=\"alignnone\" width=\"150\"]![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/HayleyCloser-crpd.jpg\")
Hayley makes a closing statement to the researchers at the 2010 workshop on Progeria, \"Thank you for finding a cure.\"[\/caption][caption id=\"attachment_2076\" align=\"alignnone\" width=\"250\"]![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/LindsayKaylee-trophies-crp.jpg\")
Lindsay and Kaylee, in Boston September 2009 for their final visit in the first clinical trial (for which they received
trophies!) and their 1st visit for the new, triple drug trial.[\/caption]<\/div><\/div><\/div>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2074","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"\n