{"id":8800,"date":"2019-09-30T16:22:23","date_gmt":"2019-09-30T16:22:23","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=8800"},"modified":"2020-12-13T17:44:07","modified_gmt":"2020-12-13T22:44:07","slug":"hot-off-the-press-prfs-2019-newsletter","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/it\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/","title":{"rendered":"Newsletter PRF 2019"},"content":{"rendered":"<p>Italiano: [et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201diniziale\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dripeti\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201diniziale\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dripeti\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p>\n<h3>Lanciato il programma di accesso gestito a Lonafarnib!<\/h3>\n<p>Per la maggior parte dei bambini non \u00e8 pi\u00f9 necessario partecipare alla sperimentazione n\u00e9 recarsi a Boston per accedere a questo trattamento.<\/p>\n<p><strong>Siamo entusiasti di annunciare <\/strong>che il programma di accesso gestito (MAP) al lonafarnib \u00e8 ora attivo e funzionante. PRF e il produttore del lonafarnib, Eiger BioPharmaceuticals, hanno collaborato per creare questo programma. Il MAP consente ai bambini e ai giovani adulti idonei affetti da Progeria di ottenere il farmaco lonafarnib tramite i loro medici locali nei paesi in cui \u00e8 consentito l&#039;offerta del MAP.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\">Visualizza il PDF completo qui sotto.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf&#8221; button_text=&#8221;Read More&#8221; button_alignment=&#8221;center&#8221; _builder_version=&#8221;4.6.5&#8243; _module_preset=&#8221;default&#8221; background_layout=&#8221;dark&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Ricevi aggiornamenti entusiasmanti sui nostri progressi dell&#039;ultimo anno, scopri perch\u00e9 ora chiamiamo la popolazione che serviamo bambini (e giovani adulti) affetti da Progeria, scopri le persone, la scienza e gli eventi che ci hanno portato dove siamo oggi e MOLTO ALTRO ANCORA!<\/p>","protected":false},"author":2,"featured_media":8806,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p><img class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p><h3>Lonafarnib Managed Access Program Launched!<\/h3><p>Trial participation and travel to Boston no longer required for most children in order to access this treatment.<\/p><p><strong>We are thrilled to announce <\/strong>that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and lonafarnib manufacturer, Eiger BioPharmaceuticals, have worked together to create this Program. The MAP enables eligible children and young adults with Progeria to obtain the drug lonafarnib through their local physicians in countries that allow the MAP to be offered.<\/p><p>Read more by viewing the full PDF below.<\/p><p>[button link=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf\" type=\"big\" color=\"orange\" newwindow=\"yes\"] Read More[\/button]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-8800","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>PRF&#039;s 2019 Newsletter - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/it\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PRF&#039;s 2019 Newsletter - 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