{"id":732,"date":"2017-02-25T21:00:58","date_gmt":"2017-02-25T21:00:58","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=732"},"modified":"2026-05-08T16:37:29","modified_gmt":"2026-05-08T20:37:29","slug":"quick-facts","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/kk\/quick-facts\/","title":{"rendered":"\u0416\u044b\u043b\u0434\u0430\u043c \u0444\u0430\u043a\u0442\u0456\u043b\u0435\u0440"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201doff|off|off\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d global_colors_info=\u201d{p}b _builder_version=\u201d4.16\u2033 title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/About-Header_position\u201d background_position\u201djp custom_padding=\u201d9vw||9vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201don|desktop\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201don|phone\u201d z_index_tablet=\u201d500\u2033 custom_css_main_round=\u201dTPCenter=\u201dbackg18- !\u043c\u0430\u04a3\u044b\u0437\u0434\u044b;\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h1>\u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f<\/h1>\n<h1>\u0416\u044b\u043b\u0434\u0430\u043c \u0444\u0430\u043a\u0442\u0456\u043b\u0435\u0440<\/h1>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 specialty=\u201don\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_left_2=\u201dpxding_\u201d0\u201d|\u201d| padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201d|\u0436\u04b1\u043c\u044b\u0441 \u04af\u0441\u0442\u0435\u043b\u0456\u043d\u0434\u0435\u201d module_class_1=\u201dsidebar-secondary-nav\u201d module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201don\u201d parallax_method=\u201doff\u201d inner_width=\u201d100%\u201d inner_max_width=\u201d100% \u00bb custom_padding=\u201d0|0px|54px|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d10px\u201d border_color_top=\u201d#8fd2ed\u201d use_custom_width=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201dTP10 global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_sidebar area=\u201det_pb_widget_area_16\u2033 disabled_on=\u201don|on|off\u201d module_class=\u201dsubpage-sidebars\u201d _builder_version=\u201d4.16\u2033style=\u201dfa z_index_tablet=\u201d500\u2033 border_width_right=\u201d5px\u201d global_colors_info=\u201d{}\u201d]<br \/>\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;PRF BY THE NUMBERS &#8221; _builder_version=&#8221;4.27.5&#8243; header_4_font_size=&#8221;24px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>\u0421\u0410\u041d\u0414\u0410\u0420 \u0411\u041e\u0419\u042b\u041d\u0428\u0410 PRF\u00a0<\/strong><\/h4>\n<p><em>As of March 31, 2026<\/em><\/p>\n<ul>\n<li>Identified children\/young adults living with Progeria and Progeroid Laminopathies: 216* in 52 countries<\/li>\n<li>*\u041e\u0441\u044b \u0431\u0430\u043b\u0430\u043b\u0430\u0440\u0434\u044b\u04a3\/\u0436\u0430\u0441\u04e9\u0441\u043f\u0456\u0440\u0456\u043c\u0434\u0435\u0440\u0434\u0456\u04a3 155-\u0456\u043d\u0434\u0435 \u0425\u0430\u0442\u0447\u0438\u043d\u0441\u043e\u043d-\u0413\u0438\u043b\u0444\u043e\u0440\u0434 \u043f\u0440\u043e\u0433\u0435\u0440\u0438\u044f \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u044b (HGPS \u043d\u0435\u043c\u0435\u0441\u0435 Progeria) \u0431\u0430\u0440, \u0430\u043b \u049b\u0430\u043b\u0493\u0430\u043d 58-\u0456\u043d\u0434\u0435 \u043f\u0440\u043e\u0433\u0435\u0440\u043e\u0438\u0434\u0442\u044b \u043b\u0430\u043c\u0438\u043d\u043e\u043f\u0430\u0442\u0438\u044f \u0431\u0430\u0440.<\/li>\n<li>PRF \u049b\u0430\u0440\u0436\u044b\u043b\u0430\u043d\u0434\u044b\u0440\u0430\u0442\u044b\u043d Progeria \u043f\u0440\u0435\u043f\u0430\u0440\u0430\u0442\u044b\u043d\u044b\u04a3 \u043a\u043b\u0438\u043d\u0438\u043a\u0430\u043b\u044b\u049b \u0441\u044b\u043d\u0430\u049b\u0442\u0430\u0440\u044b: 5<\/li>\n<li>\u049a\u0430\u0440\u0436\u044b\u043b\u0430\u043d\u0434\u044b\u0440\u044b\u043b\u0493\u0430\u043d \u0433\u0440\u0430\u043d\u0442\u0442\u0430\u0440: 85, \u0436\u0430\u043b\u043f\u044b \u0441\u043e\u043c\u0430\u0441\u044b $9,3 \u043c\u043b\u043d<\/li>\n<li>PRF Cell &amp; Tissue \u0431\u0430\u043d\u043a\u0456\u043d\u0434\u0435\u0433\u0456 \u0436\u0430\u0441\u0443\u0448\u0430 \u0436\u0435\u043b\u0456\u043b\u0435\u0440\u0456: 211<\/li>\n<li>PRF \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0430\u043b\u044b\u049b \u0436\u04d9\u043d\u0435 \u0437\u0435\u0440\u0442\u0442\u0435\u0443 \u0434\u0435\u0440\u0435\u043a\u049b\u043e\u0440\u044b\u043d\u0434\u0430\u0493\u044b \u0431\u0430\u043b\u0430\u043b\u0430\u0440: 224<\/li>\n<li>\u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f \u0431\u043e\u0439\u044b\u043d\u0448\u0430 \u0445\u0430\u043b\u044b\u049b\u0430\u0440\u0430\u043b\u044b\u049b \u0493\u044b\u043b\u044b\u043c\u0438 \u043a\u0435\u0437\u0434\u0435\u0441\u0443\u043b\u0435\u0440: 15<\/li>\n<li>PRF \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u0441\u044b \u043c\u0435\u043d \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0430\u043b\u044b\u049b \u043a\u04e9\u043c\u0435\u043a \u043c\u0430\u0442\u0435\u0440\u0438\u0430\u043b\u0434\u0430\u0440\u044b \u0430\u0443\u0434\u0430\u0440\u044b\u043b\u0430\u0442\u044b\u043d \u0442\u0456\u043b\u0434\u0435\u0440 \u0441\u0430\u043d\u044b: 38<\/li>\n<\/ul>\n<p>*157 of these children\/young adults have Hutchinson-Gilford Progeria Syndrome (HGPS or Progeria) and the other 59 have Progeroid Laminopathies.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; 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hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>\u0425\u0430\u0442\u0447\u0438\u043d\u0441\u043e\u043d-\u0413\u0438\u043b\u0444\u043e\u0440\u0434 \u043f\u0440\u043e\u0433\u0435\u0440\u0438\u044f\u0441\u044b\u043d \u0436\u04d9\u043d\u0435 \u043e\u043d\u044b\u04a3 \u049b\u0430\u0440\u0442\u0430\u044e\u0493\u0430 \u0431\u0430\u0439\u043b\u0430\u043d\u044b\u0441\u0442\u044b \u0431\u04b1\u0437\u044b\u043b\u044b\u0441\u0442\u0430\u0440\u044b\u043d, \u0441\u043e\u043d\u044b\u04a3 \u0456\u0448\u0456\u043d\u0434\u0435 \u0436\u04af\u0440\u0435\u043a \u0430\u0443\u0440\u0443\u044b\u043d \u0435\u043c\u0434\u0435\u0443 \u0436\u04d9\u043d\u0435 \u0435\u043c\u0434\u0435\u0443 \u04d9\u0434\u0456\u0441\u0442\u0435\u0440\u0456\u043d \u0430\u0448\u0443.<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_cta][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|35px|35px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;What is Progeria? &#8221; _builder_version=&#8221;4.27.5&#8243; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;30px||30px||true&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>\u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f \u0434\u0435\u0433\u0435\u043d\u0456\u043c\u0456\u0437 \u043d\u0435?\u00a0<\/strong><\/h4>\n<p>Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. <span>Without treatment, c<\/span>hildren with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14.5 years. Remarkably, their intellect is unaffected, and despite significant physical changes in their young bodies, these extraordinary children are intelligent, courageous, and full of life.<\/p>\n<p>Progeria \u0441\u0435\u0431\u0435\u0431\u0456 \u0442\u0443\u0440\u0430\u043b\u044b \u049b\u043e\u0441\u044b\u043c\u0448\u0430 \u0430\u049b\u043f\u0430\u0440\u0430\u0442 \u0430\u043b\u0443 \u04af\u0448\u0456\u043d \u0431\u0430\u0441\u044b\u04a3\u044b\u0437 <a href=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/02\/What-is-Progeria-from-LATS.mp4\" target=\"_blank\" rel=\"noopener noreferrer\">\u041c\u04b1\u043d\u0434\u0430<\/a> \u0414\u043e\u043a\u0442\u043e\u0440 \u041b\u0435\u0441\u043b\u0438 \u0413\u043e\u0440\u0434\u043e\u043d \u0431\u0430\u044f\u043d\u0434\u0430\u0493\u0430\u043d \u049b\u044b\u0441\u049b\u0430\u0448\u0430 \u0448\u043e\u043b\u0443 \u0431\u0435\u0439\u043d\u0435\u0441\u0456\u043d \u043a\u04e9\u0440\u0443 \u04af\u0448\u0456\u043d <em>\u0421\u044d\u043c \u0431\u043e\u0439\u044b\u043d\u0448\u0430 \u04e9\u043c\u0456\u0440<\/em> (2013).<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.5&#8243; header_font=&#8221;||||||||&#8221; header_4_font=&#8221;||||||||&#8221; header_4_font_size=&#8221;24px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>PRF \u0442\u0443\u0440\u0430\u043b\u044b<\/strong><\/h4>\n<p>The Progeria Research Foundation (PRF) is the driving force behind the global effort to understand, treat and ultimately cure Hutchinson-Gilford Progeria Syndrome (Progeria), a rare and fatal genetic disease that causes rapid aging in children. Founded by the family of Sam Berns after his diagnosis in 1999, PRF has enabled or led every major scientific breakthrough in the field, from discovery of the gene that causes the disease to the first FDA-approved treatment, lonafarnib, to the advancement of gene-editing approaches now in development. Through rigorous science, global research infrastructure and close partnership with the worldwide patient community, PRF is advancing next-generation therapies, expanding diagnosis and care, and leading the Path to Cure Progeria program to determine whether a one-time gene-editing therapy can offer a durable, potentially curative treatment.<o:p><\/o:p><\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px|50px|35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;Total Dollars Raised&#8221; _builder_version=&#8221;4.16&#8243; header_text_align=&#8221;center&#8221; header_font_size=&#8221;41px&#8221; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>\u0416\u0430\u043b\u043f\u044b \u0442\u0430\u0431\u044b\u0441<\/h1>\n<p>[\/et_pb_text][et_pb_number_counter title=&#8221;1999 through March 31, 2026&#8243; number=&#8221;100,293,936&#8243; percent_sign=&#8221;off&#8221; disabled_on=&#8221;on|on|off&#8221; admin_label=&#8221;Number Counter&#8221; module_class=&#8221;dollar&#8221; _builder_version=&#8221;4.27.5&#8243; title_level=&#8221;h5&#8243; number_font_size=&#8221;65px&#8221; custom_margin=&#8221;36px||36px||true&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<br \/>\n[\/et_pb_number_counter][et_pb_number_counter title=&#8221;1999 through March 31, 2026&#8243; number=&#8221;100,293,936&#8243; percent_sign=&#8221;off&#8221; disabled_on=&#8221;off|off|on&#8221; module_class=&#8221;dollar&#8221; _builder_version=&#8221;4.27.5&#8243; title_level=&#8221;h5&#8243; title_font=&#8221;||||||||&#8221; number_font=&#8221;||||||||&#8221; number_font_size=&#8221;60px&#8221; custom_margin=&#8221;36px||36px||true&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<br \/>\n[\/et_pb_number_counter][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>PRF \u0436\u044b\u043b\u0434\u044b\u049b \u0448\u044b\u0493\u044b\u043d\u0434\u0430\u0440\u044b\u043d\u044b\u04a3 80%-\u0434\u0435\u043d \u0430\u0441\u0442\u0430\u043c\u044b \u043e\u043d\u044b\u04a3 \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u043b\u0430\u0440\u044b \u043c\u0435\u043d \u049b\u044b\u0437\u043c\u0435\u0442\u0442\u0435\u0440\u0456\u043d\u0435 \u0442\u04b1\u0440\u0430\u049b\u0442\u044b \u0442\u04af\u0440\u0434\u0435 \u0430\u0440\u043d\u0430\u043b\u0430\u0434\u044b \u2013 \u0431\u04b1\u043b Charity Navigator-\u0442\u0435\u043d \u043e\u043d \u0436\u044b\u043b \u049b\u0430\u0442\u0430\u0440\u044b\u043d\u0430\u043d 4 \u0436\u04b1\u043b\u0434\u044b\u0437\u0434\u044b \u0440\u0435\u0439\u0442\u0438\u043d\u0433\u043a\u0435 \u049b\u043e\u043b \u0436\u0435\u0442\u043a\u0456\u0437\u0443\u0434\u0456\u04a3 \u0431\u0456\u0440 \u0444\u0430\u043a\u0442\u043e\u0440\u044b.<\/p>\n<p>\u0411\u0456\u0437 \u0430\u043b\u0493\u0430\u043d \u049b\u043e\u043b\u0434\u0430\u0443 Progeria \u0433\u0435\u043d\u0456\u043d\u0456\u04a3 \u0430\u0448\u044b\u043b\u0443\u044b\u043d, Progeria \u043a\u043b\u0438\u043d\u0438\u043a\u0430\u043b\u044b\u049b \u0441\u044b\u043d\u0430\u049b\u0442\u0430\u0440\u044b\u043d \u0436\u04d9\u043d\u0435 \u0431\u0430\u0441\u049b\u0430 \u0434\u0430 \u043a\u0435\u0440\u0435\u043c\u0435\u0442 \u0436\u0435\u0442\u0456\u0441\u0442\u0456\u043a\u0442\u0435\u0440\u0456\u043c\u0456\u0437\u0434\u0456 \u043c\u04af\u043c\u043a\u0456\u043d \u0435\u0442\u0442\u0456. \u049a\u0430\u0437\u0456\u0440\u0433\u0456 \u0436\u04d9\u043d\u0435 \u0436\u0430\u04a3\u0430 \u049b\u043e\u043b\u0434\u0430\u0443\u0448\u044b\u043b\u0430\u0440\u0434\u044b\u04a3 \u043a\u04e9\u043c\u0435\u0433\u0456\u043c\u0435\u043d \u0431\u0456\u0437\u00a0<em>\u0435\u0440\u0456\u043a<\/em>\u00a0\u0431\u04b1\u043b \u0436\u0430\u0440\u044b\u0441\u0442\u044b \u0443\u0430\u049b\u044b\u0442\u043f\u0435\u043d \u0436\u0435\u04a3\u0456\u043f, \u043e\u0441\u044b \u0435\u0440\u0435\u043a\u0448\u0435 \u0431\u0430\u043b\u0430\u043b\u0430\u0440\u0434\u044b \u0435\u043c\u0434\u0435\u0443 \u043c\u0435\u043d \u0435\u043c\u0434\u0435\u0443\u0434\u0456 \u0442\u0430\u0431\u044b\u04a3\u044b\u0437. \u0421\u043e\u043d\u044b\u043c\u0435\u043d \u049b\u0430\u0442\u0430\u0440, Progeria \u0435\u043c\u0434\u0435\u0443 \u0436\u0430\u04a3\u0430\u043b\u044b\u049b\u0442\u0430\u0440\u044b \u0436\u04af\u0440\u0435\u043a \u0430\u0443\u0440\u0443\u044b \u0431\u0430\u0440 \u043c\u0438\u043b\u043b\u0438\u043e\u043d\u0434\u0430\u0493\u0430\u043d \u0430\u0434\u0430\u043c\u0434\u0430\u0440\u0493\u0430 \u0436\u04d9\u043d\u0435 \u0431\u04af\u043a\u0456\u043b \u049b\u0430\u0440\u0442\u0430\u044e\u0493\u0430 \u043a\u04e9\u043c\u0435\u043a\u0442\u0435\u0441\u0443\u0456 \u043c\u04af\u043c\u043a\u0456\u043d.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; background_color=&#8221;#29327a&#8221; custom_margin=&#8221;41px||&#8221; custom_margin_tablet=&#8221;0px||&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;39.4375px|20px|35px|20px|false|true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;right&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_bottom=&#8221;10px&#8221; border_color_bottom=&#8221;#8fd2ed&#8221; box_shadow_style=&#8221;preset1&#8243; box_shadow_blur=&#8221;38px&#8221; box_shadow_spread=&#8221;-12px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;PRF\u2019S Programs &#038; Services&#8221; _builder_version=&#8221;4.16&#8243; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; custom_padding=&#8221;|10px||10px||true&#8221; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1 data-fontsize=\"34\" data-lineheight=\"48\">PRF&#039;S \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u043b\u0430\u0440\u044b \u043c\u0435\u043d \u049b\u044b\u0437\u043c\u0435\u0442\u0442\u0435\u0440\u0456<\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;First-Ever Progeria Clinical Drug Trials and Treatment&#8221; _builder_version=&#8221;4.27.5&#8243; link_text_color=&#8221;#00b2e2&#8243; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;|||&#8221; custom_padding_tablet=&#8221;||35px&#8221; custom_padding_phone=&#8221;&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>\u0411\u0456\u0440\u0456\u043d\u0448\u0456 \u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f\u00a0<a href=\"https:\/\/www.progeriaresearch.org\/kk\/clinical-trials\/\">\u0414\u04d9\u0440\u0456\u043b\u0456\u043a \u0437\u0430\u0442\u0442\u0430\u0440\u0434\u044b\u04a3 \u043a\u043b\u0438\u043d\u0438\u043a\u0430\u043b\u044b\u049b \u0441\u044b\u043d\u0430\u049b\u0442\u0430\u0440\u044b<\/a><\/strong>\u00a0<strong>\u0436\u04d9\u043d\u0435 \u0415\u043c\u0434\u0435\u0443<\/strong><\/h4>\n<p>PRF \u0434\u0435\u043c\u0435\u0443\u0448\u0456\u043b\u0456\u043a \u0435\u0442\u0435\u0442\u0456\u043d \u0434\u04d9\u0440\u0456\u043b\u0456\u043a \u043f\u0440\u0435\u043f\u0430\u0440\u0430\u0442\u0442\u0430\u0440\u0434\u044b\u04a3 \u043a\u043b\u0438\u043d\u0438\u043a\u0430\u043b\u044b\u049b \u0441\u044b\u043d\u0430\u049b\u0442\u0430\u0440\u044b \u0431\u04af\u043a\u0456\u043b \u04d9\u043b\u0435\u043c\u043d\u0435\u043d \u0431\u0430\u043b\u0430\u043b\u0430\u0440\u0434\u044b \u0430\u0443\u0440\u0443\u0434\u044b \u0436\u0430\u049b\u0441\u0430\u0440\u0442\u0443\u0493\u0430 \u0436\u04d9\u043d\u0435 \u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f\u0441\u044b \u0431\u0430\u0440 \u0431\u0430\u043b\u0430\u043b\u0430\u0440\u0434\u044b\u04a3 \u04e9\u043c\u0456\u0440\u0456\u043d \u04b1\u0437\u0430\u0440\u0442\u0443\u0493\u0430 \u043a\u04e9\u043c\u0435\u043a\u0442\u0435\u0441\u0435\u0442\u0456\u043d \u043f\u0435\u0440\u0441\u043f\u0435\u043a\u0442\u0438\u0432\u0430\u043b\u044b \u0435\u043c\u0434\u0435\u0443 \u04d9\u0434\u0456\u0441\u0442\u0435\u0440\u0456\u043d\u0435 \u04d9\u043a\u0435\u043b\u0435\u0434\u0456. <strong><em>In 2020, history was made with the United States Food and Drug Administration (FDA) approval of lonafarnib (trade name Zokinvy<\/em><\/strong><strong><em>\u2122), a farnesyltransferase inhibitor, as the first-ever treatment for Progeria and Progeroid Laminopathies<\/em><\/strong>.\u00a0 Lonafarnib has been shown to improve many aspects of the disease including the vital vascular system and <span>a 30% <\/span><span>average <\/span>increase <span>\u0436\u044b\u043b\u044b <\/span><span>lifesp<\/span><span>\u0430<\/span><span>n<\/span><span> with long-term treatment<\/span><span>. For more information on this exciting news, click <a href=\"https:\/\/www.progeriaresearch.org\/kk\/2023\/03\/15\/progerinbiomarker\/\">\u041c\u04b1\u043d\u0434\u0430<\/a>. <\/span><strong><em><span>PRF is now developing <\/span><span>\u0430\u00a0<\/span><\/em><\/strong><span style=\"box-sizing: border-box; margin: 0px; padding: 0px;\"><em><strong>gene-editing drug designed to correct the mutation that causes Progeria<\/strong><\/em><\/span><span>\u00a0and advancing this <\/span><span>\u0433\u0435\u043d <\/span><span>therapy toward clinical trials. <\/span><span>\u00a0<\/span><strong><em> \u0411\u04b1\u043b \u0435\u043c\u0434\u0435\u0443\u0433\u0435 \u04b1\u043c\u0442\u044b\u043b\u0443 \u0436\u043e\u043b\u044b\u043d\u0434\u0430\u0493\u044b \u0442\u0430\u043c\u0430\u0448\u0430 \u049b\u0430\u0434\u0430\u043c\u0434\u0430\u0440.\u00a0<\/em><\/strong><i><\/i><\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_cta title=&#8221;Let&#8217;s Find the Cure!&#8221; button_url=&#8221;https:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR&#8221; button_text=&#8221;Donate Now&#8221; _builder_version=&#8221;4.16&#8243; header_font=&#8221;||||||||&#8221; background_color=&#8221;#00b2e2&#8243; custom_button=&#8221;on&#8221; button_text_color=&#8221;#ffffff&#8221; button_font=&#8221;||||||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div id=\"pastingspan1\">\n<article>\u0421\u0456\u0437\u0434\u0456\u04a3 \u049b\u0430\u0439\u044b\u0440\u044b\u04a3\u044b\u0437 Progeria \u0437\u0435\u0440\u0442\u0442\u0435\u0443 \u049b\u043e\u0440\u044b\u043d\u0430 \u043a\u04e9\u043c\u0435\u043a\u0442\u0435\u0441\u0435\u0434\u0456\u00a0<\/article>\n<article><em><strong>\u0435\u043c\u0434\u0435\u0443<\/strong><\/em>\u00a0\u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f\u0441\u044b \u0431\u0430\u0440 \u0431\u0430\u043b\u0430\u043b\u0430\u0440 \u0431\u04af\u0433\u0456\u043d\u0433\u0456 \u043a\u04af\u043d\u0456<\/article>\n<\/div>\n<div>\u0436\u04d9\u043d\u0435\u00a0<em><strong>\u0435\u043c\u0434\u0435\u0443<\/strong><\/em><strong>\u00a0<\/strong>\u043e\u043b\u0430\u0440 \u0431\u043e\u043b\u0430\u0448\u0430\u049b\u0442\u0430.<\/div>\n<p>[\/et_pb_cta][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_toggle title=&#8221;International Progeria Registry &#8221; open=&#8221;on&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;International Progeria Registry &#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>\u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f\u043c\u0435\u043d \u04e9\u043c\u0456\u0440 \u0441\u04af\u0440\u0435\u0442\u0456\u043d \u0431\u0430\u043b\u0430\u043b\u0430\u0440 \u043c\u0435\u043d \u043e\u0442\u0431\u0430\u0441\u044b\u043b\u0430\u0440 \u0442\u0443\u0440\u0430\u043b\u044b \u043e\u0440\u0442\u0430\u043b\u044b\u049b\u0442\u0430\u043d\u0434\u044b\u0440\u044b\u043b\u0493\u0430\u043d \u0430\u049b\u043f\u0430\u0440\u0430\u0442\u0442\u044b \u0441\u0430\u049b\u0442\u0430\u0439\u0434\u044b. \u0411\u04b1\u043b \u0431\u0430\u043b\u0430\u043b\u0430\u0440\u0493\u0430 \u043f\u0430\u0439\u0434\u0430\u043b\u044b \u0431\u043e\u043b\u0443\u044b \u043c\u04af\u043c\u043a\u0456\u043d \u043a\u0435\u0437 \u043a\u0435\u043b\u0433\u0435\u043d \u0436\u0430\u04a3\u0430 \u0430\u049b\u043f\u0430\u0440\u0430\u0442\u0442\u044b \u0436\u044b\u043b\u0434\u0430\u043c \u0442\u0430\u0440\u0430\u0442\u0443\u0434\u044b \u049b\u0430\u043c\u0442\u0430\u043c\u0430\u0441\u044b\u0437 \u0435\u0442\u0435\u0434\u0456.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/kk\/international-registry\/\" target=\"_blank\" rel=\"noopener noreferrer\">\u041a\u04e9\u0431\u0456\u0440\u0435\u043a \u0431\u0456\u043b\u0443 \u04af\u0448\u0456\u043d<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Cell &#038; Tissue Bank&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Cell &#038; Tissue Bank&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>PRF \u0431\u0430\u043d\u043a\u0456 \u0437\u0435\u0440\u0442\u0442\u0435\u0443\u0448\u0456\u043b\u0435\u0440\u0433\u0435 \u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f \u043f\u0430\u0446\u0438\u0435\u043d\u0442\u0442\u0435\u0440\u0456 \u043c\u0435\u043d \u043e\u043b\u0430\u0440\u0434\u044b\u04a3 \u043e\u0442\u0431\u0430\u0441\u044b\u043b\u0430\u0440\u044b\u043d\u044b\u04a3 \u0433\u0435\u043d\u0435\u0442\u0438\u043a\u0430\u043b\u044b\u049b \u0436\u04d9\u043d\u0435 \u0431\u0438\u043e\u043b\u043e\u0433\u0438\u044f\u043b\u044b\u049b \u043c\u0430\u0442\u0435\u0440\u0438\u0430\u043b\u0434\u0430\u0440\u044b\u043d \u04b1\u0441\u044b\u043d\u0430\u0434\u044b, \u043e\u0441\u044b\u043b\u0430\u0439\u0448\u0430 \u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f \u0436\u04d9\u043d\u0435 \u0431\u0430\u0441\u049b\u0430 \u0434\u0430 \u049b\u0430\u0440\u0442\u0430\u044e\u0493\u0430 \u0431\u0430\u0439\u043b\u0430\u043d\u044b\u0441\u0442\u044b \u0430\u0443\u0440\u0443\u043b\u0430\u0440\u0434\u044b \u0437\u0435\u0440\u0442\u0442\u0435\u0443 \u0431\u0456\u0437\u0434\u0456 \u0435\u043c\u0434\u0435\u0443\u0433\u0435 \u0436\u0430\u049b\u044b\u043d\u0434\u0430\u0442\u0443\u0493\u0430 \u043c\u04af\u043c\u043a\u0456\u043d\u0434\u0456\u043a \u0431\u0435\u0440\u0435\u0434\u0456. PRF \u0431\u04af\u043a\u0456\u043b \u04d9\u043b\u0435\u043c \u0431\u043e\u0439\u044b\u043d\u0448\u0430 \u0437\u0430\u0440\u0434\u0430\u043f \u0448\u0435\u043a\u043a\u0435\u043d \u0431\u0430\u043b\u0430\u043b\u0430\u0440 \u043c\u0435\u043d \u043e\u043b\u0430\u0440\u0434\u044b\u04a3 \u043e\u0442\u0431\u0430\u0441\u044b \u043c\u04af\u0448\u0435\u043b\u0435\u0440\u0456\u043d\u0435\u043d \u04d9\u0441\u0435\u0440\u043b\u0456 214 \u0436\u0430\u0441\u0443\u0448\u0430 \u043b\u0438\u043d\u0438\u044f\u0441\u044b\u043d \u0436\u0438\u043d\u0430\u0434\u044b, \u043e\u043d\u044b\u04a3 \u0456\u0448\u0456\u043d\u0434\u0435 10 \u0438\u043d\u0434\u0443\u043a\u0446\u0438\u044f\u043b\u0430\u043d\u0493\u0430\u043d \u043f\u043b\u044e\u0440\u0438\u043f\u043e\u0442\u0435\u043d\u0442\u0442\u0456 \u0434\u0456\u04a3 \u0436\u0430\u0441\u0443\u0448\u0430\u043b\u0430\u0440\u044b (iPSC) \u0436\u0435\u043b\u0456\u0441\u0456.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/kk\/cell-and-tissue-bank\/\">\u041a\u04e9\u0431\u0456\u0440\u0435\u043a \u0431\u0456\u043b\u0443 \u04af\u0448\u0456\u043d<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Medical &#038; Research Database&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Medical &#038; Research Database&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>The Database is a centralized collection of medical information from Progeria patients worldwide.\u00a0 The data is rigorously analyzed to help us understand more about Progeria and devise treatment recommendations. In 2010, this analysis contributed to PRF\u2019s comprehensive healthcare Handbook on Progeria aimed at optimizing quality of life. The <span>2019, 2<sup>nd<\/sup> Edition of the <\/span>Handbook is available in English, Spanish and Portuguese, Russian &amp; Italian.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/kk\/medical-database\/\">\u041a\u04e9\u0431\u0456\u0440\u0435\u043a \u0431\u0456\u043b\u0443 \u04af\u0448\u0456\u043d<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Diagnostic Testing&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Diagnostic Testing&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>\u0411\u04b1\u043b \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430 2003 \u0436\u044b\u043b\u044b \u0433\u0435\u043d\u043d\u0456\u04a3 \u0430\u0448\u044b\u043b\u0443\u044b\u043d\u0430\u043d \u043a\u0435\u0439\u0456\u043d \u0431\u0430\u043b\u0430\u043b\u0430\u0440, \u043e\u043b\u0430\u0440\u0434\u044b\u04a3 \u043e\u0442\u0431\u0430\u0441\u044b\u043b\u0430\u0440\u044b \u0436\u04d9\u043d\u0435 \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0430\u043b\u044b\u049b \u049b\u044b\u0437\u043c\u0435\u0442\u043a\u0435\u0440\u043b\u0435\u0440 \u043d\u0430\u049b\u0442\u044b, \u0493\u044b\u043b\u044b\u043c\u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0437\u0434\u044b \u0430\u043b\u0443\u044b \u04af\u0448\u0456\u043d \u04d9\u0437\u0456\u0440\u043b\u0435\u043d\u0434\u0456. \u0411\u04b1\u043b \u0435\u0440\u0442\u0435 \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u043a\u0430\u0493\u0430, \u049b\u0430\u0442\u0435 \u0434\u0438\u0430\u0433\u043d\u043e\u0437\u0434\u0430\u0440\u0434\u044b\u04a3 \u0430\u0437\u0430\u044e\u044b\u043d\u0430 \u0436\u04d9\u043d\u0435 \u0431\u0430\u043b\u0430\u043b\u0430\u0440\u0434\u044b\u04a3 \u04e9\u043c\u0456\u0440 \u0441\u04af\u0440\u0443 \u0441\u0430\u043f\u0430\u0441\u044b\u043d \u0436\u0430\u049b\u0441\u0430\u0440\u0442\u0443 \u04af\u0448\u0456\u043d \u0435\u0440\u0442\u0435 \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0430\u043b\u044b\u049b \u0430\u0440\u0430\u043b\u0430\u0441\u0443\u0493\u0430 \u0430\u0439\u043d\u0430\u043b\u0443\u044b \u043c\u04af\u043c\u043a\u0456\u043d.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/kk\/the-prf-diagnostic-testing-program\/\">\u041a\u04e9\u0431\u0456\u0440\u0435\u043a \u0431\u0456\u043b\u0443 \u04af\u0448\u0456\u043d<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Scientific Workshops on Progeria&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Scientific Workshops on Progeria&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<ul>\n<li>PRF has organized 15 scientific conferences that have brought together scientists and clinicians from all over the world to share their expertise and cutting-edge scientific data.\u00a0 These workshops foster collaboration in the fight against this devastating disease.<\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/kk\/scientific-meetings\/\">\u041a\u04e9\u0431\u0456\u0440\u0435\u043a \u0431\u0456\u043b\u0443 \u04af\u0448\u0456\u043d<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Research Grants&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Research Grants&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Through peer review by our volunteer Medical Research Committee, PRF has funded projects throughout the world that have led to important discoveries about Progeria, heart disease, and <span>This <\/span>program <span>w<\/span>as updated <span>\u0436\u044b\u043b\u044b <\/span><span>December<\/span> <span>2024 <\/span>to reflect current research needs<span>;<\/span> <span>There <\/span><span>\u0431\u043e\u043b\u044b\u043f \u0442\u0430\u0431\u044b\u043b\u0430\u0434\u044b <\/span><span>now<\/span> <span> a proactive pathway, in which PRF identifies research needs and engages laboratories best suited to address them, and an investigator-driven pathway, in which PRF reviews investigator-initiated proposals.<\/span><\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/kk\/grants-funded\/\">\u041a\u04e9\u0431\u0456\u0440\u0435\u043a \u0431\u0456\u043b\u0443 \u04af\u0448\u0456\u043d<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Publications &#038; Research&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Publications &#038; Research&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>\u041a\u043b\u0438\u043d\u0438\u043a\u0430\u043b\u044b\u049b \u0436\u04d9\u043d\u0435 \u043d\u0435\u0433\u0456\u0437\u0433\u0456 \u0493\u0430\u043b\u044b\u043c\u0434\u0430\u0440 PRF \u0433\u0440\u0430\u043d\u0442\u0442\u0430\u0440\u044b\u043d, \u0436\u0430\u0441\u0443\u0448\u0430\u043b\u0430\u0440 \u043c\u0435\u043d \u0442\u0456\u043d\u0434\u0435\u0440\u0434\u0456 \u0436\u04d9\u043d\u0435 \u0434\u0435\u0440\u0435\u043a\u049b\u043e\u0440\u0434\u044b \u043f\u0430\u0439\u0434\u0430\u043b\u0430\u043d\u0434\u044b; \u043e\u043b\u0430\u0440\u0434\u044b\u04a3 \u0436\u0430\u04a3\u0430\u043b\u044b\u049b\u0442\u0430\u0440\u044b \u0430\u043b\u0434\u044b\u04a3\u0493\u044b \u049b\u0430\u0442\u0430\u0440\u043b\u044b \u0493\u044b\u043b\u044b\u043c\u0438 \u0436\u0443\u0440\u043d\u0430\u043b\u0434\u0430\u0440\u0434\u0430 \u0436\u0430\u0440\u0438\u044f\u043b\u0430\u043d\u0430\u0434\u044b. 2002 \u0436\u044b\u043b\u0434\u0430\u043d \u0431\u0435\u0440\u0456 Progeria \u0442\u0443\u0440\u0430\u043b\u044b \u0493\u044b\u043b\u044b\u043c\u0438 \u0436\u0430\u0440\u0438\u044f\u043b\u0430\u043d\u044b\u043c\u0434\u0430\u0440\u0434\u044b\u04a3 \u043e\u0440\u0442\u0430\u0448\u0430 \u0436\u044b\u043b\u0434\u044b\u049b \u0441\u0430\u043d\u044b \u0430\u043b\u0434\u044b\u04a3\u0493\u044b 50 \u0436\u044b\u043b\u043c\u0435\u043d \u0441\u0430\u043b\u044b\u0441\u0442\u044b\u0440\u0493\u0430\u043d\u0434\u0430 20 \u0435\u0441\u0435\u0434\u0435\u043d \u0430\u0441\u0442\u0430\u043c!<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/kk\/scientific-publications\/\">\u041a\u04e9\u0431\u0456\u0440\u0435\u043a \u0431\u0456\u043b\u0443 \u04af\u0448\u0456\u043d<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;PRF Translation Program&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;PRF Translation Program&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p><strong><em>\u04d8\u043b\u0435\u043c\u043c\u0435\u043d \u0431\u0430\u0439\u043b\u0430\u043d\u044b\u0441\u0442\u0430<\/em><\/strong>. \u041a\u04e9\u0440\u043d\u0435\u043a\u0442\u0456 \u0436\u0430\u04bb\u0430\u043d\u0434\u044b\u049b \u049b\u0430\u0442\u044b\u0441\u0443\u043c\u0435\u043d PRF \u0431\u04af\u043a\u0456\u043b \u04d9\u043b\u0435\u043c\u043d\u0435\u043d \u043f\u0430\u0446\u0438\u0435\u043d\u0442\u0442\u0435\u0440 \u043c\u0435\u043d \u043e\u043b\u0430\u0440\u0434\u044b\u04a3 \u043e\u0442\u0431\u0430\u0441\u044b\u043b\u0430\u0440\u044b \u04af\u0448\u0456\u043d \u049b\u0430\u0440\u044b\u043c-\u049b\u0430\u0442\u044b\u043d\u0430\u0441\u0442\u0430\u0493\u044b \u043a\u0435\u0434\u0435\u0440\u0433\u0456\u043b\u0435\u0440\u0434\u0456 \u0436\u043e\u044f\u0434\u044b. \u0411\u04b1\u043b \u0431\u0430\u0441\u0442\u0430\u043c\u0430 PRF \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u0441\u044b \u043c\u0435\u043d \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0430\u043b\u044b\u049b \u043a\u04e9\u043c\u0435\u043a \u043c\u0430\u0442\u0435\u0440\u0438\u0430\u043b\u0434\u0430\u0440\u044b\u043d 38 \u0442\u0456\u043b\u0433\u0435 \u0430\u0443\u0434\u0430\u0440\u0434\u044b.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/kk\/translators-needed\/\">\u041a\u04e9\u0431\u0456\u0440\u0435\u043a \u0431\u0456\u043b\u0443 \u04af\u0448\u0456\u043d<\/a><\/p>\n<p>[\/et_pb_toggle][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; 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saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; custom_css_main_element=&#8221;width: 70% !important;&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.27.5&#8243; text_font=&#8221;||||||||&#8221; link_font=&#8221;||||||||&#8221; link_text_color=&#8221;#00b2e2&#8243; header_font=&#8221;||||||||&#8221; header_4_font=&#8221;||||||||&#8221; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;|||&#8221; custom_margin_tablet=&#8221;|||25px&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;||50px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4>\u049a\u043e\u0493\u0430\u043c\u0434\u044b\u049b \u0430\u049b\u043f\u0430\u0440\u0430\u0442\u0442\u0430\u043d\u0434\u044b\u0440\u0443<\/h4>\n<p>\u0411\u0456\u0437\u0434\u0456\u04a3 \u0432\u0435\u0431-\u0441\u0430\u0439\u0442 Progeria \u0437\u0435\u0440\u0442\u0442\u0435\u0443\u043b\u0435\u0440\u0456 \u0436\u04d9\u043d\u0435 \u043e\u0442\u0431\u0430\u0441\u044b\u043b\u0430\u0440\u0493\u0430 \u049b\u043e\u043b\u0434\u0430\u0443 \u043a\u04e9\u0440\u0441\u0435\u0442\u0443 \u0442\u0443\u0440\u0430\u043b\u044b \u0441\u043e\u04a3\u0493\u044b \u0430\u049b\u043f\u0430\u0440\u0430\u0442\u049b\u0430 \u049b\u043e\u043b \u0436\u0435\u0442\u043a\u0456\u0437\u0443\u0433\u0435 \u043c\u04af\u043c\u043a\u0456\u043d\u0434\u0456\u043a \u0431\u0435\u0440\u0435\u0434\u0456. \u0430\u0440\u049b\u044b\u043b\u044b <strong><a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\">Facebook<\/a>,\u00a0<a href=\"https:\/\/www.tiktok.com\/@progeriaresearch\">TikTok, <\/a><a href=\"https:\/\/www.instagram.com\/progeriaresearch\/\">Instagram<\/a>, <a href=\"http:\/\/www.youtube.com\/progeriaresearchorg\">YouTube<\/a>, <a href=\"https:\/\/www.linkedin.com\/company\/3520192\">LinkedIn<\/a>, <\/strong>\u0436\u04d9\u043d\u0435 \u0431\u0430\u0441\u049b\u0430 \u0434\u0430 \u043e\u0440\u0442\u0430\u043b\u0430\u0440\u0434\u0430, PRF-\u0442\u0456\u04a3 \u0442\u0456\u043a\u0435\u043b\u0435\u0439 \u04d9\u043b\u0435\u0443\u043c\u0435\u0442\u0442\u0456\u043a \u043c\u0435\u0434\u0438\u0430 \u049b\u043e\u043b\u0436\u0435\u0442\u0456\u043c\u0434\u0456\u043b\u0456\u0433\u0456 1 \u043c\u0438\u043b\u043b\u0438\u043e\u043d\u043d\u0430\u043d \u0430\u0441\u0430\u0434\u044b. PRF-\u0442\u0456\u04a3 \u04d9\u04a3\u0433\u0456\u043c\u0435\u0441\u0456 CNN, ABC News, Primetime, Dateline, The Katie Couric Show, NPR, The Associated Press \u0436\u04d9\u043d\u0435 The Today Show, Time and People \u0436\u0443\u0440\u043d\u0430\u043b\u0434\u0430\u0440\u044b\u043d\u0434\u0430, The New York Times, The Wall Street Journal \u0436\u04d9\u043d\u0435 \u0431\u0430\u0441\u049b\u0430 \u0434\u0430 \u043a\u0435\u04a3 \u043a\u04e9\u043b\u0435\u043c\u0434\u0435 \u0436\u0430\u0440\u0438\u044f\u043b\u0430\u043d\u0434\u044b. \u0431\u04b1\u049b\u0430\u0440\u0430\u043b\u044b\u049b \u0430\u049b\u043f\u0430\u0440\u0430\u0442 \u049b\u04b1\u0440\u0430\u043b\u0434\u0430\u0440\u044b\u043d \u043e\u049b\u044b\u04a3\u044b\u0437. \u0421\u043e\u043d\u044b\u043c\u0435\u043d \u049b\u0430\u0442\u0430\u0440, 2013 \u0436\u044b\u043b\u0493\u044b HBO \u0444\u0438\u043b\u044c\u043c\u0456\u043d\u0456\u04a3 \u0436\u04af\u043b\u0434\u0435\u0433\u0435\u0440\u0456 <a href=\"https:\/\/www.progeriaresearch.org\/kk\/life-according-to-sam\/\"><strong><em>\u0421\u044d\u043c \u0431\u043e\u0439\u044b\u043d\u0448\u0430 \u04e9\u043c\u0456\u0440<\/em><\/strong><\/a> \u0431\u0456\u0440\u0435\u0433\u0435\u0439 \u0436\u04d9\u043d\u0435 \u0448\u0430\u0431\u044b\u0442\u0442\u0430\u043d\u0434\u044b\u0440\u0430\u0442\u044b\u043d \u0436\u043e\u043b\u043c\u0435\u043d \u0445\u0430\u0431\u0430\u0440\u0434\u0430\u0440\u043b\u044b\u049b\u0442\u044b \u0430\u0440\u0442\u0442\u044b\u0440\u0434\u044b. PRF \u0434\u0430 \u0431\u0430\u0441\u049b\u0430\u0440\u0430\u0434\u044b\u00a0<strong><a href=\"https:\/\/www.progeriaresearch.org\/kk\/find-the-children\/\" target=\"_blank\" rel=\"noopener noreferrer\">\u0411\u0430\u043b\u0430\u043b\u0430\u0440\u0434\u044b \u0442\u0430\u043f<\/a><\/strong>, \u0431\u04af\u043a\u0456\u043b \u04d9\u043b\u0435\u043c \u0431\u043e\u0439\u044b\u043d\u0448\u0430 \u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f\u0441\u044b \u0431\u0430\u0440 \u0431\u0430\u043b\u0430\u043b\u0430\u0440\u0434\u044b \u0442\u0430\u0431\u0443\u0493\u0430 \u0430\u0440\u043d\u0430\u043b\u0493\u0430\u043d \u0436\u0430\u04bb\u0430\u043d\u0434\u044b\u049b \u0445\u0430\u0431\u0430\u0440\u0434\u0430\u0440 \u0435\u0442\u0443 \u043d\u0430\u0443\u049b\u0430\u043d\u044b, \u0441\u043e\u043d\u0434\u044b\u049b\u0442\u0430\u043d \u043e\u043b\u0430\u0440 \u04e9\u0437\u0434\u0435\u0440\u0456\u043d\u0435 \u049b\u0430\u0436\u0435\u0442 \u0431\u0456\u0440\u0435\u0433\u0435\u0439 \u043a\u04e9\u043c\u0435\u043a\u0442\u0456 \u0430\u043b\u0430 \u0430\u043b\u0430\u0434\u044b.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; 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custom_padding=&#8221;|10px||10px||true&#8221; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1 data-fontsize=\"34\" data-lineheight=\"48\">PRF-\u0434\u0435 \u043a\u0456\u043c \u043a\u0456\u043c?<\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_team_member name=&#8221; Audrey Gordon, Esq.&#8221; position=&#8221;President and Executive Director&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Audrey-gala-09-square.jpg&#8221; admin_label=&#8221; Audrey Gordon, Esq.&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.16&#8243; custom_margin=&#8221;||45px&#8221; link_option_url=&#8221;mailto:agordon@progeriaresearch.org&#8221; link_option_url_new_window=&#8221;on&#8221; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>\u0414\u0438\u0440\u0435\u043a\u0442\u043e\u0440\u043b\u0430\u0440 \u043a\u0435\u04a3\u0435\u0441\u0456\u043c\u0435\u043d, \u043e\u0444\u0438\u0446\u0435\u0440\u043b\u0435\u0440\u043c\u0435\u043d, \u049b\u044b\u0437\u043c\u0435\u0442\u043a\u0435\u0440\u043b\u0435\u0440\u043c\u0435\u043d \u0436\u04d9\u043d\u0435 \u0435\u0440\u0456\u043a\u0442\u0456\u043b\u0435\u0440\u043c\u0435\u043d \u0442\u044b\u0493\u044b\u0437 \u0436\u04b1\u043c\u044b\u0441 \u0436\u0430\u0441\u0430\u0439 \u043e\u0442\u044b\u0440\u044b\u043f, \u0413\u043e\u0440\u0434\u043e\u043d \u0445\u0430\u043d\u044b\u043c \u043a\u04af\u043d\u0434\u0435\u043b\u0456\u043a\u0442\u0456 \u0431\u0430\u0441\u049b\u0430\u0440\u0443\u0493\u0430 \u0436\u04d9\u043d\u0435 Progeria \u0437\u0435\u0440\u0442\u0442\u0435\u0443 \u049b\u043e\u0440\u044b\u043d\u044b\u04a3 \u049b\u0430\u0440\u0436\u044b\u043b\u044b\u049b \u04e9\u0441\u0443\u0456 \u043c\u0435\u043d \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u0441\u044b\u043d\u044b\u04a3 \u0434\u0430\u043c\u0443\u044b\u043d \u049b\u0430\u043c\u0442\u0430\u043c\u0430\u0441\u044b\u0437 \u0435\u0442\u0443\u0433\u0435 \u0436\u0430\u0443\u0430\u043f\u0442\u044b.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Leslie Gordon, MD, PhD&#8221; position=&#8221;Medical Director&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Lelsiesp.jpg&#8221; admin_label=&#8221;Leslie Gordon, MD, PhD&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.16&#8243; custom_margin=&#8221;||45px&#8221; link_option_url=&#8221;mailto:Leslie_Gordon@brown.edu&#8221; link_option_url_new_window=&#8221;on&#8221; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>\u0414\u043e\u043a\u0442\u043e\u0440 \u0413\u043e\u0440\u0434\u043e\u043d \u043e\u043d\u044b\u04a3 \u04b1\u043b\u044b \u0421\u044d\u043c\u0433\u0435 \u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f \u0434\u0438\u0430\u0433\u043d\u043e\u0437\u044b \u049b\u043e\u0439\u044b\u043b\u0493\u0430\u043d\u043d\u0430\u043d \u043a\u0435\u0439\u0456\u043d \u0434\u043e\u0441\u0442\u0430\u0440\u044b\u043c\u0435\u043d \u0436\u04d9\u043d\u0435 \u043e\u0442\u0431\u0430\u0441\u044b\u043c\u0435\u043d \u0431\u0456\u0440\u0433\u0435 PRF \u043d\u0435\u0433\u0456\u0437\u0456\u043d \u049b\u0430\u043b\u0430\u0434\u044b. \u0414\u043e\u043a\u0442\u043e\u0440 \u0413\u043e\u0440\u0434\u043e\u043d PRF \u0437\u0435\u0440\u0442\u0442\u0435\u0443\u0433\u0435 \u049b\u0430\u0442\u044b\u0441\u0442\u044b \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u043b\u0430\u0440\u044b\u043d \u049b\u0430\u0434\u0430\u0493\u0430\u043b\u0430\u0439\u0434\u044b \u0436\u04d9\u043d\u0435 Progeria \u043f\u0440\u0435\u043f\u0430\u0440\u0430\u0442\u0442\u0430\u0440\u044b\u043d\u044b\u04a3 \u043a\u043b\u0438\u043d\u0438\u043a\u0430\u043b\u044b\u049b \u0441\u044b\u043d\u0430\u049b\u0442\u0430\u0440\u044b\u043d\u044b\u04a3 \u0442\u0435\u04a3 \u0442\u04e9\u0440\u0430\u0493\u0430\u0441\u044b \u0431\u043e\u043b\u044b\u043f \u0442\u0430\u0431\u044b\u043b\u0430\u0434\u044b. \u041e\u043b \u0411\u0440\u0430\u0443\u043d \u0443\u043d\u0438\u0432\u0435\u0440\u0441\u0438\u0442\u0435\u0442\u0456\u043d\u0456\u04a3 \u0423\u043e\u0440\u0440\u0435\u043d \u0410\u043b\u044c\u043f\u0435\u0440\u0442 \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0430\u043b\u044b\u049b \u043c\u0435\u043a\u0442\u0435\u0431\u0456\u043d\u0456\u04a3 \u0436\u04d9\u043d\u0435 \u041f\u0440\u043e\u0432\u0438\u0434\u0435\u043d\u0441\u0442\u0435\u0433\u0456 \u0425\u0430\u0441\u0431\u0440\u043e \u0431\u0430\u043b\u0430\u043b\u0430\u0440 \u0430\u0443\u0440\u0443\u0445\u0430\u043d\u0430\u0441\u044b\u043d\u044b\u04a3 \u043f\u0435\u0434\u0438\u0430\u0442\u0440\u0438\u044f \u0437\u0435\u0440\u0442\u0442\u0435\u0443\u043b\u0435\u0440\u0456\u043d\u0456\u04a3 \u0434\u043e\u0446\u0435\u043d\u0442\u0456, \u0411\u043e\u0441\u0442\u043e\u043d \u0431\u0430\u043b\u0430\u043b\u0430\u0440 \u0430\u0443\u0440\u0443\u0445\u0430\u043d\u0430\u0441\u044b \u043c\u0435\u043d \u0413\u0430\u0440\u0432\u0430\u0440\u0434 \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0430\u043b\u044b\u049b \u043c\u0435\u043a\u0442\u0435\u0431\u0456\u043d\u0456\u04a3 \u049b\u044b\u0437\u043c\u0435\u0442\u043a\u0435\u0440\u0456.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Scott D. Berns, MD, MPH, FAAP&#8221; position=&#8221;Chair, Board of Directors&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Scott-Berns.jpg&#8221; admin_label=&#8221;Scott D. Berns, MD, MPH, FAAP&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.27.4&#8243; custom_margin=&#8221;||45px&#8221; link_option_url=&#8221;mailto:sberns@progeriaresearch.org&#8221; link_option_url_new_window=&#8221;on&#8221; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>\u0421\u044d\u043c\u043d\u0456\u04a3 \u04d9\u043a\u0435\u0441\u0456 \u0434\u043e\u043a\u0442\u043e\u0440 \u0411\u0435\u0440\u043d\u0441 \u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f \u0437\u0435\u0440\u0442\u0442\u0435\u0443 \u049b\u043e\u0440\u044b\u043d\u044b\u04a3 \u043d\u0435\u0433\u0456\u0437\u0456\u043d \u049b\u0430\u043b\u0430\u0443\u0448\u044b\u043b\u0430\u0440\u0434\u044b\u04a3 \u0431\u0456\u0440\u0456 \u0436\u04d9\u043d\u0435 \u0431\u0430\u0441\u049b\u0430\u0440\u043c\u0430 \u0442\u04e9\u0440\u0430\u0493\u0430\u0441\u044b \u049b\u044b\u0437\u043c\u0435\u0442\u0456\u043d \u0430\u0442\u049b\u0430\u0440\u0430\u0434\u044b. 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style=\"text-align: left;\" align=\"center\"><strong><img class=\"alignnone size-full wp-image-1469\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/04\/iconPDF.gif\" alt=\"\" width=\"34\" height=\"20\" \/> <a href=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/3REVISED-PRF-QUICKFACTS-as-of-April-1-2019.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">QUICK FACTS<\/a><\/strong><\/p><p style=\"text-align: left;\" align=\"center\"><strong>MISSION: <\/strong>To Discover Treatments and the Cure for Hutchinson-Gilford Progeria Syndrome and its Aging-related Disorders, Including Heart Disease.<\/p><p><strong>PRF BY THE NUMBERS\u00a0<\/strong>as of April 1, 2019<\/p><ul><li>Identified children living with Progeria: 157* in 49 countries<\/li><li>PRF-sponsored Progeria Clinical Drug Trials: 5<\/li><li>Grants funded: 70, totaling $7.7 million<\/li><li>Cell lines in the PRF Cell & Tissue Bank: 212<\/li><li>Children in PRF\u2019s Medical & Research Database:\u00a0 178<\/li><li>International Scientific Meetings on Progeria: 11<\/li><li>Number of languages into which PRF\u2019s program and medical care materials are translated: 38<\/li><\/ul><p>*Includes 37 children in the Progeroid Laminopathy category who have\u00a0a mutation in the Lamin pathway, but do not produce progerin.[\/vc_column_text][vc_column_text]<\/p><h1>What is Progeria?<\/h1><p>Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. Children with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14 years. Remarkably, their intellect is unaffected, and despite significant physical changes in their young bodies, these extraordinary children are intelligent, courageous, and full of life.[\/vc_column_text][vc_column_text]<\/p><h1>About PRF<\/h1><p>The Progeria Research Foundation (PRF) was established in 1999 by\u00a0<a href=\"mailto:lgordon@progeriaresearch.org\">Drs. Leslie Gordon<\/a> and Scott Berns,\u00a0the parents of a child with Progeria,\u00a0along with many dedicated friends and family who saw the need for a medical research resource for the doctors, patients, and families of those with Progeria.\u00a0 Since that time, PRF has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. PRF has developed programs and services to aid those affected by Progeria and the scientists who conduct Progeria research.\u00a0 Today, PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria. PRF is hailed as a prime example of a successful translational research organization, moving from creation, to gene discovery, to first-ever drug treatment in just 13 years.[\/vc_column_text][vc_column_text]<\/p><h1>Total Dollars Raised<\/h1><p style=\"text-align: left;\" align=\"center\"><em>1999 through December 31, 2018<\/em>: <strong>$29,821,446<\/strong><\/p><p>More than 80% of PRF\u2019s annual expenses are consistently dedicated to its programs and services - one factor in our achieving a coveted 4-star rating from Charity Navigator five years in a row.<\/p><p>The support we have received made the Progeria gene discovery, the Progeria clinical trials and all of our other extraordinary progress possible.\u00a0 With the help of current and new supporters, we <em>will<\/em> win this race against time and find treatments and the cure for these special children. Moreover, Progeria treatment discoveries may also help millions with heart disease and the entire aging population.[\/vc_column_text][vc_column_text css=\".vc_custom_1549556944835{background-color: #ffffff !important;}\"]<\/p><h1>PRF\u2019S PROGRAMS & SERVICES<\/h1><ul><li><strong>First-Ever Progeria <a href=\"https:\/\/www.progeriaresearch.org\/clinical-trials\/\">Clinical Drug Trials<\/a><\/strong> <strong>and Treatment<\/strong><strong>:<\/strong>\u00a0 PRF-Sponsored Clinical Drug Trials bring children from around the world for promising treatments that may help to improve disease and extend the lives of children with Progeria. \u00a0<i>In 2012, history was made with the discovery that lonafarnib, a farnesyltransferase inhibitor, or FTI, is the first-ever treatment for Progeria, improving many aspects of the disease including the vital vascular system . More recent studies conclude that lonafarnib extends estimated lifespan. <\/i>In 2016, PRF initiated a two-drug trial, adding Everolimus, with the hope that the two drugs together will be even more effective than lonafarnib alone.\u00a0<i>These are remarkable steps forward in the pursuit of a cure.\u00a0<\/i><\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/international-progeria-registry\/\"><strong>International Progeria Registry<\/strong>\u00a0<\/a> maintains centralized information on children and families living with Progeria.\u00a0 This assures rapid distribution of any new information that may benefit the children.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/cell-and-tissue-bank\/\">Cell & Tissue Bank:<\/a> <\/strong>PRF\u2019s Bank provides researchers with genetic and biological material from Progeria patients and their families so research on Progeria and other aging-related diseases can be performed to bring us closer to the cure.\u00a0 PRF has collected an impressive 212 cell lines from affected children and their family members worldwide including 10 Induced Pluripotent Stem Cell (iPSC) lines.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/medical-database\/\">Medical & Research Database:<\/a> <\/strong>The Database is a centralized collection of medical information from Progeria patients worldwide.\u00a0 The data is rigorously analyzed to help us understand more about Progeria and devise treatment recommendations. In 2010, this analysis contributed to PRF\u2019s comprehensive healthcare Handbook on Progeria aimed at optimizing quality of life. The Handbook is available in English, Spanish and Portuguese, Russian & Italian.<\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/the-prf-diagnostic-testing-program\/\"><strong>Diagnostic Testing<\/strong>:<\/a> This program was developed in the wake of the 2003 gene discovery so that children, their families and medical caretakers can get a definitive, scientific diagnosis.\u00a0 This can translate into earlier diagnosis, fewer misdiagnoses and early medical intervention to ensure a better quality of life for the children.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/scientific_meetings\/\">Scientific Workshops on Progeria:<\/a> <\/strong>PRF has organized 12 scientific conferences that have brought together scientists and clinicians from all over the world to share their expertise and cutting edge scientific data. \u00a0These workshops foster collaboration in the fight against this devastating disease. \u00a0The\u00a0next meeting is September 20-22, 2018 in Boston, MA.<\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/grants-funded\/\"><strong>Research Grants:<\/strong><\/a>\u00a0Through peer review by our volunteer Medical Research Committee, PRF has funded projects throughout the world that have led to important discoveries about Progeria, heart disease and aging. PRF\u2019s research program has been updated as of September 2018 to reflect current research needs within the fields of Progeria, aging and heart disease.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/scientific-publications\/\">Publications and Research:<\/a> <\/strong>Both clinical and basic scientists have utilized the PRF grants, cells and tissues, and database; their discoveries are published in top-notch scientific journals.\u00a0 The average annual number of scientific publications on Progeria since 2002 is more than 20 times that of the previous 50 years!<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/translators-needed\/\">PRF Translation Program:<\/a> <\/strong><strong><em>In touch with the world<\/em><\/strong>.\u00a0 With a prominent global presence, PRF eliminates barriers to communication for patients and their families, from around the world.\u00a0 This initiative has succeeded in translating PRF program and medical care materials into 38 languages.<\/li><\/ul><ul><li><strong>Public Awareness:<\/strong>\u00a0progeriaresearch.org provides access to the latest information on Progeria research and support for families. \u00a0Through <strong><a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\">Facebook<\/a>, <a href=\"https:\/\/twitter.com\/Progeria\">Twitter<\/a><\/strong> and other mediums, PRF\u2019s direct social media reach is over 1 million. PRF\u2019s story has appeared on CNN, ABC News, Primetime, Dateline, The Katie Couric Show, and The Today Show, in Time and People magazines, The New York Times, The Wall Street Journal and many other widely-read media outlets. In addition, the award-winning 2013 HBO film <a href=\"https:\/\/www.progeriaresearch.org\/life-according-to-sam\/\"><strong><em>Life According to Sam<\/em><\/strong><\/a>\u00a0has raised awareness in a unique and inspiring way.\u00a0\u00a0PRF also manages\u00a0<strong><a href=\"https:\/\/www.findtheother150.org\/\">Find the Other 150<\/a><\/strong>,\u00a0a global awareness campaign to find children with Progeria worldwide, so they can get the unique help they need.<\/li><\/ul><p>[\/vc_column_text][vc_column_text]<\/p><h1>WHO\u2019S WHO AT PRF?<\/h1><p><strong><a href=\"mailto:agordon@progeriaresearch.org\">Audrey Gordon, Esq., President and Executive <b>Director<\/b><\/a><br \/><\/strong>Working closely with the Board of Directors, officers, staff, and volunteers, Ms. Gordon is responsible for day-to-day management and for ensuring The Progeria Research Foundation's financial growth and program development.<\/p><p><a href=\"mailto:Leslie_Gordon@brown.edu\"><strong>Leslie B. Gordon, MD, PhD, Medical Director, Co-Founder<\/strong><\/a><br \/>Dr. Gordon co-founded PRF with friends and family after her son, Sam, was diagnosed with Progeria. Dr. Gordon oversees PRF\u2019s research-related programs, and is a co-chair for the Progeria clinical drug trials.\u00a0 She is an Associate Professor of Pediatrics Research at the Warren Alpert Medical School of Brown University and Hasbro Children\u2019s Hospital in Providence, RI, and a Staff Scientist at Boston Children\u2019s Hospital and Harvard Medical School.<\/p><p><a href=\"mailto:sberns@progeriaresearch.org\"><strong>Scott D. Berns, MD, MPH, FAAP, PRF Chairman of the Board, Co-Founder<\/strong><\/a><br \/>Dr. Berns, Sam\u2019s father, is a co-founder of The Progeria Research Foundation and serves as Chairman of the Board.\u00a0 He is a Board Certified Pediatrician and Clinical Professor of Pediatrics at the Alpert Medical School of Brown University. He is also President and CEO of the National Institute for Children\u2019s Health Quality, an independent, nonprofit organization working to improve children\u2019s health.<\/p><p><b>Meghan Waldron, PRF\u2019s Youth Ambassador<br \/><\/b>Meghan serves as a spokesperson for PRF, from the perspective of a youth with Progeria. Accomplished cellist and violinist, high school cross country and track team athlete, published poet \u2013 Meghan is a talented and busy 18-year-old living in Massachusetts.[\/vc_column_text][\/vc_column][\/vc_row]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-732","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Quick Facts | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. 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