{"id":7752,"date":"2019-08-19T19:57:56","date_gmt":"2019-08-19T19:57:56","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=7752"},"modified":"2023-09-22T10:11:48","modified_gmt":"2023-09-22T14:11:48","slug":"workshop2018","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/kk\/workshop2018\/","title":{"rendered":"2018 \u0436\u044b\u043b\u0434\u044b\u04a3 \u049b\u044b\u0440\u043a\u04af\u0439\u0435\u0433\u0456 \u041a\u0435\u043c\u0431\u0440\u0438\u0434\u0436\u0434\u0435, MA: PRF 9-\u0448\u044b \u0445\u0430\u043b\u044b\u049b\u0430\u0440\u0430\u043b\u044b\u049b \u0493\u044b\u043b\u044b\u043c\u0438 \u0441\u0435\u043c\u0438\u043d\u0430\u0440\u044b, \u00ab\u041a\u04e8\u041f \u0416\u041e\u041b\u0414\u0410\u0420, \u0411\u0406\u0420 \u041c\u0410\u049a\u0421\u0410\u0422\u00bb"},"content":{"rendered":"

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\n[\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|54px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_sidebar area=”et_pb_widget_area_24″ disabled_on=”on|on|off” admin_label=”Scientific meetings sidebar” module_class=”subpage-sidebars” _builder_version=”4.16″ text_orientation=”left” animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” global_colors_info=”{}”][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/PRF_Group_photo_2018-2.jpg” align=”center” admin_label=”group” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

Scientists, clinicians, and Progeria families from around the world convened at PRF\u2019s September 2018 Workshop.<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ text_text_color=”#000000″ header_font=”||on||||||” header_text_color=”#29327a” background_size=”initial” background_position=”top_left” background_repeat=”repeat” z_index_tablet=”500″ global_colors_info=”{}”]<\/p>\n

The 2018 PRF International Scientific Workshop was an overwhelming success, with 163 registrants from 14 different countries. Leading physicians, scientists and preclinical investigators, joined by families of children with Progeria, came together to share the most current information on Progeria research and set the stage for future efforts to find new treatments and the cure for children with Progeria.<\/p>\n

Presentations included a discussion of the perspective of children and parents living with Progeria, 28 oral presentations and 52 posters (an all-time high!). The presentations and posters showcased important scientific findings, presented the progress in identifying potential therapeutic treatments, and inspired future collaborations between the research and medical communities.<\/p>\n

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The workshop began with a Family Panel session focused on creating an in-person connection between families living with Progeria and the research community. The scientific presentations then highlighted the latest developments in biological and clinical research on Progeria, including essential research tools such as biomarkers, as well as new data on potential treatments with small molecules, RNA therapeutics and gene editing.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
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For the first time, there were \u201clightening round\u201d 1- minute presentations by poster presenters which gave them the opportunity to introduce themselves and experience the challenge of attracting workshop attendees to their posters for in-depth discussions. In addition, several attendees took advantage of the continuing medical education (CME) credits offered through Brown University\u2019s CME office.Perhaps the best gauge of the workshop\u2019s success is measurable evaluation by its participants. \u00a0We are proud to share some evaluation highlights:<\/p>\n

    \n
  • 99%\u00a0<\/strong>rated the meeting Excellent (82%) or Very Good (17%)<\/li>\n
  • Similar ratings for registration process, venue, conference materials, meeting format, and the lightening round session<\/li>\n<\/ul>\n

    Select typical comments:<\/p>\n

      \n
    • A very well-planned and executed \u00a0workshop. \u00a0Very motivating!<\/li>\n
    • Excellent meeting, with high level information, collaborative environment<\/li>\n
    • Extremely well and professionally organized with fantastic talks, exciting and stimulating exchange between clinicians and basic researchers<\/li>\n<\/ul>\n

      We are deeply grateful to everyone who participated in this workshop. The support and interest in Progeria grows each year, and we look forward to the next phases of progress towards a cure, together, at the next PRF workshop.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

      [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=”1_2,1_2″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/02\/DSC_7210-300×214.jpg” align=”center” admin_label=”Podium Meghan” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      PRF\u2019s Youth Ambassador Meghan Waldron addresses participants during the captivating Family Panel session.<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Poster-Room-3-1.jpg” align=”center” admin_label=”poster” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      Posters on display for in-depth discussions<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=”1_2,1_2″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Collins-1.jpg” align=”center” admin_label=”Collins” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      Speaker Dr. Francis Collins, Director for the National Institutes of Health, plays the guitar for Alptug, 2 and Meghan, 17, before taking the stage on the first night of the conference.<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Lander.jpg” align=”center” admin_label=”Landers” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      Eric S. Lander \u2013 Broad Institute of Harvard and MIT, MIT, Harvard Medical School presents \u201cNew genomic approaches for understanding disease\u201d<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Meeting-Room-1.jpg” align=”center” admin_label=”meeting room” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      The presentations were outstanding and informative<\/strong><\/p>\n

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      Scientists, clinicians, and Progeria families from around the world convened at PRF\u2019s September 2018 Workshop.The 2018 PRF International Scientific Workshop was an overwhelming success, with 163 registrants from 14 different countries. 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