{"id":8800,"date":"2019-09-30T16:22:23","date_gmt":"2019-09-30T16:22:23","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=8800"},"modified":"2020-12-13T17:44:07","modified_gmt":"2020-12-13T22:44:07","slug":"hot-off-the-press-prfs-2019-newsletter","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/kk\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/","title":{"rendered":"PRF 2019 \u0430\u049b\u043f\u0430\u0440\u0430\u0442\u0442\u044b\u049b \u0431\u044e\u043b\u043b\u0435\u0442\u0435\u043d\u044c"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201d\u049b\u0430\u0439\u0442\u0430\u043b\u0430\u0443\u201d][et_pb_co-4\u201d][et_pb_row\u201d _builder_version=\u201d3,25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p>\n<h3>Lonafarnib \u0431\u0430\u0441\u049b\u0430\u0440\u044b\u043b\u0430\u0442\u044b\u043d \u049b\u043e\u043b \u0436\u0435\u0442\u043a\u0456\u0437\u0443 \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u0441\u044b \u0456\u0441\u043a\u0435 \u049b\u043e\u0441\u044b\u043b\u0434\u044b!<\/h3>\n<p>\u0411\u04b1\u043b \u0435\u043c\u0434\u0435\u043b\u0443\u0433\u0435 \u049b\u043e\u043b \u0436\u0435\u0442\u043a\u0456\u0437\u0443 \u04af\u0448\u0456\u043d \u0431\u0430\u043b\u0430\u043b\u0430\u0440\u0434\u044b\u04a3 \u043a\u04e9\u043f\u0448\u0456\u043b\u0456\u0433\u0456 \u04af\u0448\u0456\u043d \u0441\u044b\u043d\u0430\u049b\u049b\u0430 \u049b\u0430\u0442\u044b\u0441\u0443 \u0436\u04d9\u043d\u0435 \u0411\u043e\u0441\u0442\u043e\u043d\u0493\u0430 \u0441\u0430\u044f\u0445\u0430\u0442 \u0435\u043d\u0434\u0456 \u049b\u0430\u0436\u0435\u0442 \u0435\u043c\u0435\u0441.<\/p>\n<p><strong>\u0411\u0456\u0437 \u0445\u0430\u0431\u0430\u0440\u043b\u0430\u0443\u0493\u0430 \u049b\u0443\u0430\u043d\u044b\u0448\u0442\u044b\u043c\u044b\u0437 <\/strong>lonafarnib \u0431\u0430\u0441\u049b\u0430\u0440\u044b\u043b\u0430\u0442\u044b\u043d \u049b\u043e\u043b \u0436\u0435\u0442\u043a\u0456\u0437\u0443 \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u0441\u044b (MAP) \u049b\u0430\u0437\u0456\u0440 \u0436\u04b1\u043c\u044b\u0441 \u0456\u0441\u0442\u0435\u043f \u0442\u04b1\u0440. PRF \u0436\u04d9\u043d\u0435 \u043b\u043e\u043d\u0430\u0444\u0430\u0440\u043d\u0438\u0431 \u04e9\u043d\u0434\u0456\u0440\u0443\u0448\u0456\u0441\u0456, Eiger BioPharmaceuticals \u043e\u0441\u044b \u0431\u0430\u0493\u0434\u0430\u0440\u043b\u0430\u043c\u0430\u043d\u044b \u0436\u0430\u0441\u0430\u0443 \u04af\u0448\u0456\u043d \u0431\u0456\u0440\u0433\u0435 \u0436\u04b1\u043c\u044b\u0441 \u0456\u0441\u0442\u0435\u0434\u0456. MAP \u0440\u04b1\u049b\u0441\u0430\u0442\u044b \u0431\u0430\u0440 \u0431\u0430\u043b\u0430\u043b\u0430\u0440 \u043c\u0435\u043d \u041f\u0440\u043e\u0433\u0435\u0440\u0438\u044f\u0441\u044b \u0431\u0430\u0440 \u0436\u0430\u0441 \u0435\u0440\u0435\u0441\u0435\u043a\u0442\u0435\u0440\u0433\u0435 MAP \u04b1\u0441\u044b\u043d\u0443\u0493\u0430 \u043c\u04af\u043c\u043a\u0456\u043d\u0434\u0456\u043a \u0431\u0435\u0440\u0435\u0442\u0456\u043d \u0435\u043b\u0434\u0435\u0440\u0434\u0435\u0433\u0456 \u0436\u0435\u0440\u0433\u0456\u043b\u0456\u043a\u0442\u0456 \u0434\u04d9\u0440\u0456\u0433\u0435\u0440\u043b\u0435\u0440\u0456 \u0430\u0440\u049b\u044b\u043b\u044b \u043b\u043e\u043d\u0430\u0444\u0430\u0440\u043d\u0438\u0431 \u043f\u0440\u0435\u043f\u0430\u0440\u0430\u0442\u044b\u043d \u0430\u043b\u0443\u0493\u0430 \u043c\u04af\u043c\u043a\u0456\u043d\u0434\u0456\u043a \u0431\u0435\u0440\u0435\u0434\u0456.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\">\u0422\u04e9\u043c\u0435\u043d\u0434\u0435\u0433\u0456 \u0442\u043e\u043b\u044b\u049b PDF \u0444\u0430\u0439\u043b\u044b\u043d \u049b\u0430\u0440\u0430\u04a3\u044b\u0437.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf\u201d button_text=\u201d\u0422\u043e\u043b\u044b\u0493\u044b\u0440\u0430\u049b \u043e\u049b\u0443\u201d button_alignment=\u201dcenter\u201d _builder_version=\u201d4.6.5\u2033 _module_preset=\u201d\u04d9\u0434\u0435\u043f\u043a\u0456\u201d background_layout=\u201d\u049b\u0430\u0440\u0430\u04a3\u0493\u044b\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>\u04e8\u0442\u043a\u0435\u043d \u0436\u044b\u043b\u0434\u0430\u0493\u044b \u0436\u0435\u0442\u0456\u0441\u0442\u0456\u043a\u0442\u0435\u0440\u0456\u043c\u0456\u0437 \u0442\u0443\u0440\u0430\u043b\u044b \u049b\u044b\u0437\u044b\u049b\u0442\u044b \u0436\u0430\u04a3\u0430\u0440\u0442\u0443\u043b\u0430\u0440\u0434\u044b \u0430\u043b\u044b\u04a3\u044b\u0437, \u043d\u0435\u0433\u0435 \u0431\u0456\u0437 \u049b\u0430\u0437\u0456\u0440 \u0431\u0430\u043b\u0430\u043b\u0430\u0440 \u0440\u0435\u0442\u0456\u043d\u0434\u0435 \u049b\u044b\u0437\u043c\u0435\u0442 \u0435\u0442\u0435\u0442\u0456\u043d \u0445\u0430\u043b\u044b\u049b\u0442\u044b \u0436\u04d9\u043d\u0435 \u0436\u0430\u0441 \u0435\u0440\u0435\u0441\u0435\u043a\u0442\u0435\u0440\u0434\u0456 - Progeria \u0430\u0440\u049b\u044b\u043b\u044b \u0430\u0442\u0430\u0439\u0442\u044b\u043d\u044b\u043c\u044b\u0437\u0434\u044b \u0431\u0456\u043b\u0456\u04a3\u0456\u0437, \u0430\u0434\u0430\u043c\u0434\u0430\u0440\u0434\u044b, \u0493\u044b\u043b\u044b\u043c\u0434\u044b \u0436\u04d9\u043d\u0435 \u0431\u0456\u0437\u0434\u0456 \u0431\u04af\u0433\u0456\u043d\u0433\u0456 \u043a\u04af\u043d\u0433\u0435 \u0436\u0435\u0442\u043a\u0456\u0437\u0433\u0435\u043d \u043e\u049b\u0438\u0493\u0430\u043b\u0430\u0440\u0434\u044b \u0442\u0435\u043a\u0441\u0435\u0440\u0456\u04a3\u0456\u0437, \u0436\u04d9\u043d\u0435 \u0431\u04b1\u0434\u0430\u043d \u0434\u0430 \u043a\u04e9\u043f!<\/p>","protected":false},"author":2,"featured_media":8806,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p><img class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p><h3>Lonafarnib Managed Access Program Launched!<\/h3><p>Trial participation and travel to Boston no longer required for most children in order to access this treatment.<\/p><p><strong>We are thrilled to announce <\/strong>that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and lonafarnib manufacturer, Eiger BioPharmaceuticals, have worked together to create this Program. The MAP enables eligible children and young adults with Progeria to obtain the drug lonafarnib through their local physicians in countries that allow the MAP to be offered.<\/p><p>Read more by viewing the full PDF below.<\/p><p>[button link=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf\" type=\"big\" color=\"orange\" newwindow=\"yes\"] Read More[\/button]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-8800","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>PRF&#039;s 2019 Newsletter - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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