\uc5ec\uae30<\/a>.<\/p>\n2. \uadc0\ud558\uc758 \uc815\ubcf4\uac00 \uc5b4\ub514\uc5d0\uc11c \uc654\ub294\uc9c0, \uadc0\ud558\uc758 \uc815\ubcf4\uac00 \uc5b4\ub5bb\uac8c \uc0ac\uc6a9\ub418\ub294\uc9c0:
<\/strong>PRF\uac00 PC \ud50c\ub7ab\ud3fc\uc5d0 \ub300\ud574 \uc218\uc9d1\ud558\ub294 \uc815\ubcf4\ub294 \uc804\uc801\uc73c\ub85c \uadc0\ud558\uac00 \ud50c\ub7ab\ud3fc\uc744 \ud1b5\ud574 \uc81c\uacf5\ud558\ub294 \uc815\ubcf4\uc785\ub2c8\ub2e4. \uc774 \uac1c\uc778 \uc815\ubcf4\ub294 \uc8fc\ub85c PRF \ubc0f\/\ub610\ub294 Sciensus\uac00 \uc704\uc5d0 \uc124\uba85\ub41c \uac01\uc790\uc758 \uc5ed\ud560\uc5d0 \ub530\ub77c \ub2e4\uc74c\uacfc \uac19\uc740 \ubc29\uc2dd\uc73c\ub85c \uc0ac\uc6a9\ud569\ub2c8\ub2e4.<\/p>\n\n- \n
\n- \ud50c\ub7ab\ud3fc\uc5d0 \ub300\ud55c \ud504\ub85c\ud544 \uae30\ub85d\uc744 \uc0dd\uc131\ud558\uace0 \uc720\uc9c0\ud558\ub824\uba74<\/li>\n
- \uc0ac\uc6a9\uc790 \uacbd\ud5d8\uc744 \ud5a5\uc0c1\uc2dc\ud0a4\uae30 \uc704\ud574 \ud50c\ub7ab\ud3fc\uc758 \uc131\ub2a5\uc744 \uac1c\uc120\ud558\uace0 \ucd5c\uc801\ud654\ud569\ub2c8\ub2e4.<\/li>\n
- \ud68c\uc6d0 \ucee4\ubba4\ub2c8\ucf00\uc774\uc158\uc744 \ubc30\ud3ec\ud558\uace0 \ud0c0\uac9f\ud305\ud558\ub824\uba74<\/li>\n
- \ud50c\ub7ab\ud3fc\uc758 \uc548\uc804\uacfc \ubcf4\uc548\uc744 \ubcf4\uc7a5\ud558\uae30 \uc704\ud574 \ud50c\ub7ab\ud3fc\uc744 \uc870\uc815\ud569\ub2c8\ub2e4.<\/li>\n
- \ud1b5\uacc4 \ubc0f \ubaa8\ub2c8\ud130\ub9c1 \ubaa9\uc801<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n
3. Sciensus\uac00 \uadc0\ud558\uc758 \uc815\ubcf4\ub97c \uc548\uc804\ud558\uac8c \ubcf4\ud638\ud558\ub294 \ubc29\ubc95:
<\/strong>Progeria Connect\uc758 \ud68c\uc6d0\uc73c\ub85c\uc11c, \uadc0\ud558\uc758 \uac1c\uc778 \ubc0f \ubbfc\uac10\ud55c \uc815\ubcf4\uac00 \uc218\uc9d1\ub429\ub2c8\ub2e4. \uadc0\ud558\uc758 \ub370\uc774\ud130\uac00 \uc548\uc804\ud558\uac8c \ubcf4\ud638\ub418\ub3c4\ub85d Sciensus\ub294 \uc804\ubb38\uac00 \ud300\uacfc \ub192\uc740 \uc218\uc900\uc758 \uc815\ubcf4 \ubcf4\uc548 \uad00\ub9ac \uc2dc\uc2a4\ud15c\uc744 \uac16\ucd94\uace0 \uc788\uc5b4 \uadc0\ud558\uc758 \ub370\uc774\ud130\uac00 \uc2b9\uc778\ub418\uc9c0 \uc54a\uc740 \uc81c3\uc790\ub85c\ubd80\ud130 \uc801\uc808\ud558\uace0 \uc548\uc804\ud558\uac8c \ucc98\ub9ac\ub418\ub3c4\ub85d \ud569\ub2c8\ub2e4. \uc774\ub97c \ub2ec\uc131\ud558\uae30 \uc704\ud574 Sciensus\ub294 \uc5ec\ub7ec \uae30\uc220 \uc2dc\uc2a4\ud15c\uc744 \uc0ac\uc6a9\ud558\uc5ec \uadc0\ud558\uc758 \ub370\uc774\ud130\uc5d0 \uc561\uc138\uc2a4\ud558\uace0 \ubcf4\ud638\ud558\ub294 \ubc29\ubc95\uc744 \uc81c\uc5b4\ud569\ub2c8\ub2e4. \uadf8\ub4e4\uc758 \uae30\uc220\uc740 \uc5ec\ub7ec \uc218\uc900\uc758 \uc2dc\uc2a4\ud15c\uc744 \ud3ec\uad04\ud558\uc5ec \uc885\ub2e8 \uac04\uc5d0 \uadc0\ud558\uc758 \ub370\uc774\ud130\ub97c \uc81c\uc5b4\ud560 \uc218 \uc788\ub3c4\ub85d \ud569\ub2c8\ub2e4. \ubaa8\ub4e0 \uc0ac\uc6a9\uc790\ub294 \uac1c\uc778 \ub370\uc774\ud130\uc640 \uae30\ubc00\uc744 \ucc98\ub9ac\ud558\ub294 \uac00\uc7a5 \uc88b\uc740 \ubc29\ubc95\uc5d0 \ub300\ud55c \uad50\uc721\uc744 \ubc1b\uc558\uc73c\uba70, \uc5c4\uaca9\ud55c \uc815\ucc45\uacfc \uc808\ucc28\ub97c \ub530\ub77c \ubcf4\uc548\uc744 \ub192\uc740 \uc218\uc900\uc73c\ub85c \uc720\uc9c0\ud569\ub2c8\ub2e4. Sciensus\ub294 \ub2e4\uc74c\uc744 \uc218\ud589\ud569\ub2c8\ub2e4.<\/p>\n\n- \n
\n- \uadc0\ud558\uc758 \uc815\ubcf4\ub97c \ube44\ubc00\ub85c \uc720\uc9c0\ud558\uc138\uc694<\/li>\n
- \ud569\ubc95\uc801\uc774\uace0 \uacf5\uc815\ud558\uba70 \ud22c\uba85\ud55c \ubc29\uc2dd\uc73c\ub85c \uc0ac\uc6a9\ud558\uc138\uc694.<\/li>\n
- \ub370\uc774\ud130\ub97c \ubcf4\ud638\ud558\uace0 \uc548\uc804\ud558\uac8c \ubcf4\uad00\ud558\uc138\uc694<\/li>\n
- \uadc0\ud558\uc758 \uac1c\uc778 \uc815\ubcf4\ub97c \ub300\uc2e0 \ucc98\ub9ac\ud558\uae30 \uc704\ud574 \uc81c3\uc790\uc5d0\uac8c \uae30\ub2a5\uc744 \uc544\uc6c3\uc18c\uc2f1\ud558\ub294 \uacbd\uc6b0 \ub370\uc774\ud130 \uad00\ub9ac \ubc0f \ubcf4\ud638\uc5d0 \ub300\ud55c \uacc4\uc57d\uc0c1\uc758 \uc758\ubb34\uac00 \uc788\uc2b5\ub2c8\ub2e4.<\/li>\n
- \uc8fc\uae30\uc801 \ubcf4\uc548 \ubc0f \uc0ac\uc774\ubc84 \ubcf4\uc548 \uc810\uac80 \uc218\ud589<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n
\uc758\uc2ec\uc758 \uc5ec\uc9c0\ub97c \uc5c6\uc560\uae30 \uc704\ud574 \ub9d0\uc500\ub4dc\ub9ac\uc790\uba74, Sciensus\ub294 \uadc0\ud558\uc758 \uba85\uc2dc\uc801\uc774\uace0 \ubd84\uba85\ud55c \uc11c\uba74 \ub3d9\uc758\ub97c \uba3c\uc800 \uad6c\ud558\uc9c0 \uc54a\uace0\ub294 \uadc0\ud558\uc758 \uac1c\uc778 \uc2dd\ubcc4 \uc815\ubcf4\ub97c PC \ud50c\ub7ab\ud3fc \uc678\ubd80\uc5d0\uc11c \uc0ac\uc6a9\ud558\uac70\ub098 \uacf5\uc720\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4.<\/p>\n
4. Sciensus\uac00 \uadc0\ud558\uc758 \uc815\ubcf4\ub97c \uacf5\uc720\ud558\ub294 \ub300\uc0c1:
<\/strong>Sciensus\ub294 \uadc0\ud558\uc758 \uc2e0\ub8b0\ub97c \uc720\uc9c0\ud558\uace0 \uadc0\ud558\uc758 \uac1c\uc778 \uc815\ubcf4\ub97c \ubcf4\ud638\ud558\uace0\uc790 \ud558\uba70, Sciensus\uac00 \uadc0\ud558\uc758 \uac1c\uc778 \uc815\ubcf4\ub97c \uc81c3\uc790\uc640 \uacf5\uc720\ud558\ub294 \uc81c\ud55c\ub41c \uc0c1\ud669\uc5d0\uc11c, Sciensus\uac00 \uadc0\ud558\uc5d0\uac8c \uae30\uc220 \ud50c\ub7ab\ud3fc \uc11c\ube44\uc2a4\ub97c \uc81c\uacf5\ud558\ub294 \ub370 \ud544\uc218\uc801\uc774\uae30 \ub54c\ubb38\uc5d0 \uadf8\ub807\uac8c \ud569\ub2c8\ub2e4. \uc774\ub7ec\ud55c \uc81c3\uc790\ub294 \ub2e4\uc74c\uacfc \uac19\uc2b5\ub2c8\ub2e4.<\/p>\n\n- \n
\n- Sciensus\ub97c \ub300\uc2e0\ud558\uc5ec \uc5c5\ubb34\ub97c \uc218\ud589\ud558\ub294 Sciensus \uadf8\ub8f9 \ub0b4 \ud68c\uc0ac\uc785\ub2c8\ub2e4.<\/li>\n
- \ud50c\ub7ab\ud3fc\uc744 \uc6b4\uc601\ud558\ub294 \ub370 \ub3c4\uc6c0\uc774 \ub418\ub294 Sciensus\uc758 \uc804\ubb38 IT \uc11c\ube44\uc2a4 \uc81c\uacf5\uc790 \ubc0f \uc6f9\uc0ac\uc774\ud2b8 \ud638\uc2a4\ud2b8<\/li>\n
- \ud50c\ub7ab\ud3fc\uc744 \uad00\ub9ac\ud558\ub294 \uc81c3\uc790 \ud504\ub85c\uc138\uc11c "Hivebrite"<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n
5. PRF \ub610\ub294 Sciensus\uac00 \uadc0\ud558\uc758 \uc815\ubcf4\ub97c \uacf5\uc720\ud560 \uc218 \uc788\ub294 \ub300\uc0c1:
<\/strong>\uadc0\ud558\ub294 PRF\uc640 Sciensus\uac00 \uacf5\uc720\ud558\ub294 \ub370 \ub3d9\uc758\ud569\ub2c8\ub2e4. \uadc0\ud558\uc758 \ube44\uc2dd\ubcc4 \ubc0f \uc775\uba85\ud654<\/em> Progeria Connect \ud504\ub85c\uadf8\ub7a8 \ud64d\ubcf4\ub97c \ubaa9\uc801\uc73c\ub85c \uc81c3\uc790\uc640 \ub370\uc774\ud130\ub97c \uacf5\uc720\ud569\ub2c8\ub2e4. \uc608\ub97c \ub4e4\uc5b4, PRF\ub294 PC\uc5d0 \ub300\ud55c \ub274\uc2a4\ub808\ud130\uc5d0 PC \ud68c\uc6d0 \uc218\uc640 \ud50c\ub7ab\ud3fc \ud65c\ub3d9\uc5d0 \ub300\ud55c \uc77c\ubc18\uc801\uc778 \uc124\uba85\uc744 \ud3ec\ud568\ud558\ub294 \uacf5\uc9c0\ub97c \ud3ec\ud568\ud560 \uc218 \uc788\uc73c\uba70, Sciensus\ub294 \ub2e4\ub978 \ud76c\uadc0 \uc9c8\ubcd1 \uc5f0\uad6c \uae30\uad00\uc744 \uc704\ud55c \uc720\uc0ac\ud55c \uc0ac\uc774\ud2b8\ub97c \ub9cc\ub4e4\uae30 \uc704\ud574 PC \ud50c\ub7ab\ud3fc\uc744 \ub9c8\ucf00\ud305\ud560 \uc218 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\nPRF \ub610\ub294 Sciensus\uac00 \ud30c\ud2b8\ub108 \uae30\uad00\uacfc \ud611\ub825\ud558\ub294 \uacbd\uc6b0, \ub370\uc774\ud130\ub294 \uadc0\ud558\ub098 \uc0ac\uc774\ud2b8\uc758 \ud68c\uc6d0\uc744 \uc2dd\ubcc4\ud558\uc9c0 \uc54a\ub294 \ubc29\uc2dd\uc73c\ub85c \uacf5\uc720\ub418\uba70, \ud30c\ud2b8\ub108\ub294 \uacc4\uc57d\uc0c1 \ub370\uc774\ud130\ub97c \uc7ac\uc2dd\ubcc4\ud558\ub824\ub294 \uc2dc\ub3c4\ub97c \ud558\ub294 \uac83\uc774 \uae08\uc9c0\ub418\uc5b4 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n
PRF \ub610\ub294 Sciensus\uac00 \uadc0\ud558\ub97c \uc2dd\ubcc4\ud560 \uc218 \uc788\uac70\ub098 \uc2dd\ubcc4\ud560 \uac00\ub2a5\uc131\uc774 \uc788\ub294 \ub370\uc774\ud130\ub97c \uacf5\uc720\ud558\uace0\uc790 \ud558\ub294 \uacbd\uc6b0 PRF\ub294 \uad6c\uccb4\uc801\uc778 \ubaa9\uc801\uc744 \uc704\ud574 \ud2b9\uc815 \ud30c\ud2b8\ub108\uc640 \ud574\ub2f9 \ub370\uc774\ud130\ub97c \uacf5\uc720\ud558\ub3c4\ub85d \uadc0\ud558\uc758 \uba85\uc2dc\uc801\uc774\uace0 \ubd84\uba85\ud55c \uc11c\uba74 \ub3d9\uc758\ub97c \uad6c\ud560 \uac83\uc785\ub2c8\ub2e4.<\/p>\n
6. \uadc0\ud558\uc758 \uc815\ubcf4\uac00 \ubcf4\uad00\ub418\ub294 \uae30\uac04:
<\/strong>PRF\uc640 Sciensus\ub294 \uac01\uc790\uac00 \uadc0\ud558\uc640 Progeria \ucee4\ubba4\ub2c8\ud2f0\uc5d0 \uac01\uc790\uc758 \uc11c\ube44\uc2a4\ub97c \uc81c\uacf5\ud558\ub294 \ub370 \ud544\uc694\ud55c \uae30\uac04 \ub3d9\uc548\ub9cc \uadc0\ud558\uc758 \uc815\ubcf4\ub97c \ubcf4\uad00\ud569\ub2c8\ub2e4. \uadc0\ud558\uc758 \uac1c\uc778 \uc815\ubcf4\ub294 \ud50c\ub7ab\ud3fc\uc5d0 \ubcf4\uad00\ub418\uba70 \uc694\uccad \ub610\ub294 \uacc4\uc815 \ud3d0\uc1c4 \uc2dc \uc989\uc2dc \uc0ad\uc81c\ub429\ub2c8\ub2e4. PRF \ubc0f\/\ub610\ub294 Sciensus\ub294 \ub2e4\uc74c\uacfc \uac19\uc740 \uc774\uc720\ub85c \uadc0\ud558\uc758 \ub370\uc774\ud130\ub97c \ub354 \uc624\ub7ab\ub3d9\uc548 \ubcf4\uad00\ud560 \uc218 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n\n- \n
\n- \ubc95\uc801 \ub610\ub294 \uaddc\uc81c \uc694\uad6c \uc0ac\ud56d\uc744 \ucda9\uc871\ud558\ub294 \ub370 \ud544\uc694\ud558\uac70\ub098 \uc694\uad6c\ub429\ub2c8\ub2e4.<\/li>\n
- \ubd84\uc7c1\uc744 \ud574\uacb0\ud558\ub824\uba74<\/li>\n
- \uc0ac\uae30 \ubc0f \ub0a8\uc6a9\uc744 \ubc29\uc9c0\ud558\ub824\uba74<\/li>\n
- \uc774\uc6a9\uc57d\uad00\uc744 \uc2dc\ud589\ud558\ub824\uba74<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n
PRF \ubc0f\/\ub610\ub294 Sciensus\ub294 \ud1b5\uacc4, \uc5f0\uad6c \ubc0f \ubd84\uc11d \ubaa9\uc801\uc73c\ub85c \ub354 \uc774\uc0c1 \uadc0\ud558\ub97c \uc2dd\ubcc4\ud560 \uc218 \uc5c6\ub294 \uc775\uba85\ud654\ub41c \ud615\ud0dc\uc758 \uac1c\uc778 \ub370\uc774\ud130\ub97c \ubcf4\uad00\ud560 \uc218 \uc788\uc73c\uba70, \uc774\ub294 PRF \ub610\ub294 Sciensus\uac00 \uadf8\ub807\uac8c \ud558\ub294 \ub370 \ud569\ubc95\uc801\uc774\uace0 \uc801\ubc95\ud55c \uc774\uc775\uc774 \uc788\ub294 \ubc94\uc704 \ub0b4\uc5d0\uc11c \uc2dc\uac04 \uc81c\ud55c \uc5c6\uc774 \ubcf4\uad00\ub429\ub2c8\ub2e4.<\/p>\n
7. \uadc0\ud558\uc758 \uad8c\ub9ac:<\/strong>
\uadc0\ud558\ub294 \uadc0\ud558\uc758 \uac1c\uc778 \ub370\uc774\ud130\ub97c \uc18c\uc720\ud558\uace0 \uc788\uc73c\uba70, PRF \ubc0f Sciensus\uac00 \uadc0\ud558\uc758 \ub370\uc774\ud130\ub97c \uc0ac\uc6a9\ud558\ub294 \ubc29\ubc95\uacfc \uad00\ub828\ud558\uc5ec \ub2e4\uc74c\uacfc \uac19\uc740 \uad8c\ub9ac\ub97c \uac16\uc2b5\ub2c8\ub2e4.<\/p>\n\n- \n
\n- \ubcf4\uad00 \uc911\uc778 \uac1c\uc778 \uc815\ubcf4 \uc0ac\ubcf8\uc744 \uc694\uccad\ud558\uc5ec \ub370\uc774\ud130\uc5d0 \uc561\uc138\uc2a4\ud558\uc138\uc694.<\/li>\n
- \uadc0\ud558\uc758 \uac1c\uc778\uc815\ubcf4 \uc804\uccb4 \ub610\ub294 \uc77c\ubd80\ub97c \uc0ad\uc81c\ud569\ub2c8\ub2e4<\/li>\n
- \ud45c\uc900 PC \ud504\ub85c\ud1a0\ucf5c\uc744 \ub118\uc5b4\uc11c \uac1c\uc778 \uc815\ubcf4\uc5d0 \ub300\ud55c \uc561\uc138\uc2a4\ub97c \uc81c\ud55c\ud569\ub2c8\ub2e4.<\/li>\n
- \uadc0\ud558\uac00 \uc6d0\ud558\ub294 \ub300\ub85c \uc0ac\uc774\ud2b8\uc5d0 \uadc0\ud558\uc5d0 \ub300\ud55c \uc815\ubcf4\ub97c \ub9ce\uc774 \ub610\ub294 \uc801\uac8c \uacf5\uc720\ud558\uc138\uc694.<\/li>\n
- \ubd80\uc815\ud655\ud558\uac70\ub098 \ubd88\uc644\uc804\ud558\ub2e4\uace0 \uc0dd\uac01\ub418\ub294 \uc815\ubcf4\ub97c \uc218\uc815\ud558\uac70\ub098 \uc218\uc815\ud558\uc2ed\uc2dc\uc624.<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n
\uc5b8\uc81c\ub4e0\uc9c0 \uc774\ub7ec\ud55c \uad8c\ub9ac\ub97c \ud589\uc0ac\ud558\uac70\ub098 \ubd88\ub9cc\uc774 \uc788\uac70\ub098 \uc9c8\ubb38\uc774 \uc788\ub294 \uacbd\uc6b0 Progeria Connect \uad00\ub9ac\uc790 Marianna Castro Florez\uc5d0\uac8c \ubb38\uc758\ud558\uc138\uc694. PC@\ud504\ub85c\uac8c\ub9ac\uc544\ub9ac\uc11c\uce58.org<\/a><\/p>\n\ubcf8 \uac1c\uc778\uc815\ubcf4 \ubcf4\ud638\uc815\ucc45\uc740 2023\ub144 1\uc6d4 4\uc77c\uc5d0 \uc791\uc131\ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n
[\/et_pb_text][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-privacy-notice-1.22.2023.pdf” button_text=”Progeria Connect Privacy Notice” admin_label=”privacy pdf” _builder_version=”4.19.4″ _module_preset=”default” background_layout=”dark” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”footer” _builder_version=”4.3.4″ background_color=”#29327a” custom_margin=”25px|||||” custom_padding=”0|0px|0|0px|false|false” z_index_tablet=”500″ border_width_top=”12px” border_color_top=”#00b2e2″ global_module=”133″ locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_4,1_4,1_2″ make_equal=”on” module_class=” et_pb_row_fullwidth” _builder_version=”4.16″ width=”89%” width_tablet=”80%” width_phone=”” width_last_edited=”on|desktop” max_width=”89%” max_width_tablet=”80%” max_width_phone=”” max_width_last_edited=”on|desktop” z_index_tablet=”500″ make_fullwidth=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta button_url=”https:\/\/www.progeriaresearch.org\/newsletter-signup\/” button_text=”Sign Up Now” admin_label=”Sign Up for Newsletter” module_class=”sign-btn” _builder_version=”4.16″ header_font_size=”25px” background_color=”#29327a” animation_style=”slide” animation_direction=”left” animation_intensity_slide=”25%” header_font_size_tablet=”” header_font_size_phone=”30px” header_font_size_last_edited=”on|desktop” z_index_tablet=”500″ border_radii=”on|25px|25px|25px|25px” global_colors_info=”{}” button_bg_color__hover_enabled=”on” button_bg_color__hover=”#8fd2ed” button_border_color__hover_enabled=”on”]<\/p>\n
\uac00\uc785\ud558\uae30<\/h2>\n\uc6b0\ub9ac\ub97c \uc704\ud574<\/h2>\n\ud68c\ub78c \uc2e0\ubb38!<\/h2>\n
[\/et_pb_cta][\/et_pb_column][et_pb_column type="1_4" _builder_version="4.16" custom_padding="|||" global_colors_info="{}" custom_padding__hover="|||"][et_pb_cta button_url="https:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR" button_text="\uc9c0\uae08 \uae30\ubd80\ud558\uae30" admin_label="\ud568\uaed8\ub77c\uba74 \uc6b0\ub9ac\ub294 \uce58\ub8cc\ubc95\uc744 \ucc3e\uc744 \uac83\uc785\ub2c8\ub2e4!" module_class="sign-btn" _builder_version="4.16" header_font_size="25px" background_color="#29327a" animation_style="slide" animation_direction="left" animation_intensity_slide="25%" header_font_size_tablet="" header_font_size_phone="30px" header_font_size_last_edited="on|desktop" body_font_size_tablet="" body_font_size_phone="" body_font_size_last_edited="on|desktop" z_index_tablet="500" border_radii="on|25px|25px|25px|25px" global_colors_info="{}" button_bg_color__hover_enabled="on" \ubc84\ud2bc_bg_color__hover="#8fd2ed" \ubc84\ud2bc_\ud14c\ub450\ub9ac_\uc0c9\uc0c1__hover_\ud65c\uc131\ud654="\ucf1c\uc9d0"]<\/p>\n
\uc6b0\ub9ac\ub294 \ud568\uaed8<\/h2>\n\ud560 \uac83\uc774\ub2e4<\/em><\/h2>\n\uce58\ub8cc\ubc95\uc744 \ucc3e\uc544\ub77c!<\/h2>\n
[\/et_pb_cta][\/et_pb_column][et_pb_column type="1_2" _builder_version="4.16" custom_padding="|||" global_colors_info="{}" \uc0ac\uc6a9\uc790 \uc815\uc758_\ud328\ub529__\ud638\ubc84="|||"][et_pb_image src="https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/11\/footerstrip2022-1200-\u00d7-300-px-1.png" title_text="footerstrip2022 (1200 \u00d7 300 px) (1)" _builder_version="4.18.1" _module_preset="\uae30\ubcf8\uac12" \uc0ac\uc6a9\uc790 \uc815\uc758_\ub9c8\uc9c4="35px||||false|false" global_colors_info="{}"][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"
\u00a0 Progeria Connect Progeria Connect Privacy Notice Introduction Progeria Connect (PC) is a new and exciting Progeria Research Foundation (PRF) program, created in partnership with Sciensus Pharma Services Ltd. (Sciensus). PC provides\u00a0 a private platform for families, caregivers, clinicians, researchers, and children and young adults with Progeria (\u201cPC members\u201d) to communicate without language barriers, and […]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-16357","page","type-page","status-publish","hentry"],"yoast_head":"\n
Progeria Connect | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/ko\/pcprivacy\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Progeria Connect | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"\u00a0 Progeria Connect Progeria Connect Privacy Notice Introduction Progeria Connect (PC) is a new and exciting Progeria Research Foundation (PRF) program, created in partnership with Sciensus Pharma Services Ltd. (Sciensus). PC provides\u00a0 a private platform for families, caregivers, clinicians, researchers, and children and young adults with Progeria (\u201cPC members\u201d) to communicate without language barriers, and […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/ko\/pcprivacy\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:modified_time\" content=\"2023-01-24T13:24:25+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"7\ubd84\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/\",\"name\":\"Progeria Connect | The Progeria Research Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png\",\"datePublished\":\"2023-01-22T13:38:52+00:00\",\"dateModified\":\"2023-01-24T13:24:25+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#breadcrumb\"},\"inLanguage\":\"ko-KR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"ko-KR\",\"@id\":\"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#primaryimage\",\"url\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png\",\"contentUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.progeriaresearch.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Progeria Connect Privacy Notice\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#website\",\"url\":\"https:\/\/www.progeriaresearch.org\/ta\/\",\"name\":\"The Progeria Research Foundation\",\"description\":\"For the Children \u2665 For the Cure\",\"publisher\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.progeriaresearch.org\/ta\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"ko-KR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\",\"name\":\"The Progeria Research Foundation\",\"url\":\"https:\/\/www.progeriaresearch.org\/ta\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"ko-KR\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png\",\"contentUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png\",\"width\":300,\"height\":86,\"caption\":\"The Progeria Research Foundation\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/ProgeriaResearch\/\",\"https:\/\/x.com\/Progeria\",\"https:\/\/www.instagram.com\/progeriaresearch\/\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Progeria Connect | The Progeria Research Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.progeriaresearch.org\/ko\/pcprivacy\/","og_locale":"ko_KR","og_type":"article","og_title":"Progeria Connect | The Progeria Research Foundation","og_description":"\u00a0 Progeria Connect Progeria Connect Privacy Notice Introduction Progeria Connect (PC) is a new and exciting Progeria Research Foundation (PRF) program, created in partnership with Sciensus Pharma Services Ltd. (Sciensus). PC provides\u00a0 a private platform for families, caregivers, clinicians, researchers, and children and young adults with Progeria (\u201cPC members\u201d) to communicate without language barriers, and […]","og_url":"https:\/\/www.progeriaresearch.org\/ko\/pcprivacy\/","og_site_name":"The Progeria Research Foundation","article_publisher":"https:\/\/www.facebook.com\/ProgeriaResearch\/","article_modified_time":"2023-01-24T13:24:25+00:00","og_image":[{"url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png","type":"","width":"","height":""}],"twitter_card":"summary_large_image","twitter_site":"@Progeria","twitter_misc":{"Est. reading time":"7\ubd84"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/","url":"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/","name":"Progeria Connect | The Progeria Research Foundation","isPartOf":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#primaryimage"},"image":{"@id":"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#primaryimage"},"thumbnailUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png","datePublished":"2023-01-22T13:38:52+00:00","dateModified":"2023-01-24T13:24:25+00:00","breadcrumb":{"@id":"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#breadcrumb"},"inLanguage":"ko-KR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/"]}]},{"@type":"ImageObject","inLanguage":"ko-KR","@id":"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#primaryimage","url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png","contentUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png"},{"@type":"BreadcrumbList","@id":"https:\/\/www.progeriaresearch.org\/es\/pcprivacy\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.progeriaresearch.org\/"},{"@type":"ListItem","position":2,"name":"Progeria Connect Privacy Notice"}]},{"@type":"WebSite","@id":"https:\/\/www.progeriaresearch.org\/ta\/#website","url":"https:\/\/www.progeriaresearch.org\/ta\/","name":"\ud504\ub85c\uac8c\ub9ac\uc544 \uc5f0\uad6c \uc7ac\ub2e8","description":"\uc544\uc774\ub4e4\uc744 \uc704\ud574 \u2665 \uce58\ub8cc\ub97c \uc704\ud574","publisher":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.progeriaresearch.org\/ta\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"ko-KR"},{"@type":"Organization","@id":"https:\/\/www.progeriaresearch.org\/ta\/#organization","name":"\ud504\ub85c\uac8c\ub9ac\uc544 \uc5f0\uad6c \uc7ac\ub2e8","url":"https:\/\/www.progeriaresearch.org\/ta\/","logo":{"@type":"ImageObject","inLanguage":"ko-KR","@id":"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/","url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png","contentUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png","width":300,"height":86,"caption":"The Progeria Research Foundation"},"image":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/ProgeriaResearch\/","https:\/\/x.com\/Progeria","https:\/\/www.instagram.com\/progeriaresearch\/"]}]}},"_links":{"self":[{"href":"https:\/\/www.progeriaresearch.org\/ko\/wp-json\/wp\/v2\/pages\/16357","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.progeriaresearch.org\/ko\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.progeriaresearch.org\/ko\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.progeriaresearch.org\/ko\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.progeriaresearch.org\/ko\/wp-json\/wp\/v2\/comments?post=16357"}],"version-history":[{"count":0,"href":"https:\/\/www.progeriaresearch.org\/ko\/wp-json\/wp\/v2\/pages\/16357\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.progeriaresearch.org\/ko\/wp-json\/wp\/v2\/media?parent=16357"}],"curies":[{"name":"\uc6cc\ub4dc\ud504\ub808\uc2a4","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/PC-logo-300x219.png\"){kind=logo}
Progeria Connect \uac1c\uc778\uc815\ubcf4 \ubcf4\ud638 \uace0\uc9c0 <\/strong><\/h3>\n