{"id":355,"date":"2019-04-15T13:54:51","date_gmt":"2019-04-15T13:54:51","guid":{"rendered":"http:\/\/beta.progeriaresearch.org.php72-4.lan3-1.websitetestlink.com\/?page_id=355"},"modified":"2025-10-09T09:22:51","modified_gmt":"2025-10-09T13:22:51","slug":"our-story","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/ko\/our-story\/","title":{"rendered":"\uc6b0\ub9ac\uc758 \uc774\uc57c\uae30"},"content":{"rendered":"<p>[et_pb_section fb_built=&quot;1&quot; \uc804\uccb4 \ub108\ube44=&quot;\ucf1c\uae30&quot; \ube44\ud65c\uc131\ud654\ub428=&quot;\uaebc\uc9d0|\uaebc\uc9d0|\uaebc\uc9d0&quot; _\ube4c\ub354_\ubc84\uc804=&quot;4.16&quot; \ud14c\ub450\ub9ac_\ub108\ube44_\uc544\ub798=&quot;55px&quot; \ud14c\ub450\ub9ac_\uc0c9\uc0c1_\uc544\ub798=&quot;#29327a&quot; \uae00\ub85c\ubc8c_\uc0c9\uc0c1_\uc815\ubcf4=&quot;{}&quot;][et_pb_\uc804\uccb4 \ub108\ube44_\ud5e4\ub354 _\ube4c\ub354_\ubc84\uc804=&quot;4.16&quot; \uc81c\ubaa9_\uae00\uaf34_\ud06c\uae30=&quot;55&quot; \ubc30\uacbd_\uc0c9\uc0c1=&quot;#29327a&quot; 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Sam\uc758 \ubd80\ubaa8\ub294 Progeria\uc5d0 \uc804\ub150\ud558\ub294 \uc758\ub8cc \uc815\ubcf4\uc640 \ub9ac\uc18c\uc2a4\uac00 \uc5c4\uccad\ub098\uac8c \ubd80\uc871\ud558\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uae08\uc138 \uc54c\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8\ub4e4\uc740 \uc774 \uc544\uc774\ub4e4\uc774 \uc758\ub8cc\uc801 \ub3c4\uc6c0\uc744 \ubc1b\uc744 \uacf3\uc774 \uc5c6\uace0, \ubd80\ubaa8\ub098 \uc758\uc0ac\uac00 \uc815\ubcf4\ub97c \uc5bb\uc744 \uacf3\uc774 \uc5c6\uc73c\uba70, Progeria \uc5f0\uad6c\ub97c \ud558\ub824\ub294 \uc5f0\uad6c\uc790\ub4e4\uc5d0\uac8c \uc790\uae08\uc744 \uc9c0\uc6d0\ud560 \uacf3\uc774 \uc5c6\ub2e4\ub294 \uac83\uc744 \uae68\ub2ec\uc558\uc2b5\ub2c8\ub2e4. \uac00\uc871\ub4e4\uc5d0\uac8c \uc81c\uacf5\ub418\ub294 \uc815\ubcf4\uc758 \ubd80\uc871\uacfc \uc5f0\uad6c \ubc0f \uc5f0\uad6c \uc790\uae08 \uc9c0\uc6d0 \uae30\ud68c\uc758 \ubd80\uc871\uc774 \ud569\uccd0\uc838 Sam\uc758 \uac00\uc871\uc740 \uce5c\uad6c \ubc0f \ub3d9\ub8cc\uc640 \ud568\uaed8 Progeria \uc5f0\uad6c\uc5d0 \uc804\ub150\ud558\ub294 \uc138\uacc4 \uc720\uc77c\uc758 \ube44\uc601\ub9ac \uae30\uad00\uc778 The Progeria Research Foundation, Inc.(&quot;PRF&quot;)\ub97c \uc124\ub9bd\ud558\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p>\uc0d8\uc740 2014\ub144 1\uc6d4 10\uc77c\uc5d0 \uc138\uc0c1\uc744 \ub5a0\ub0ac\uc9c0\ub9cc, \uadf8\uc758 \uc720\uc0b0\uc740 PRF\uc640 \uadf8 \uc9c0\uc9c0\uc790\ub4e4\uc774 \uadf8 \uc5b4\ub290 \ub54c\ubcf4\ub2e4 \ub354 \ud070 \uacb0\uc758\ub85c \uce58\ub8cc\ubc95\uc744 \ucc3e\uae30 \uc704\ud55c \ud0d0\uad6c\ub97c \uacc4\uc18d\ud558\ub3c4\ub85d \ud558\ub294 \uc6d0\ub3d9\ub825\uc774 \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][et_pb_button button_url=\u201dhttps:\/\/www.progeriaresearch.org\/meet-the-kids\u201d button_text=\u201d\uc0d8\uc758 \uc774\uc57c\uae30\uc5d0 \ub300\ud574 \uc790\uc138\ud788 \uc54c\uc544\ubcf4\uc138\uc694\u201d button_alignment=\u201dcenter\u201d _builder_version=\u201d4.16\u2033 background_layout=\u201ddark\u201d custom_margin=\u201d35px||\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>[\/et_pb_button][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&quot;1_2,1_2&quot; 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\uc560\ub2c8\uba54\uc774\uc158_\uc2a4\ud0c0\uc77c=&quot;\uc2ac\ub77c\uc774\ub4dc&quot; \uc560\ub2c8\uba54\uc774\uc158_\ubc29\ud5a5=&quot;\uc624\ub978\ucabd&quot; \uc560\ub2c8\uba54\uc774\uc158_\uac15\ub3c4_\uc2ac\ub77c\uc774\ub4dc=&quot;25%&quot; \ud14c\ub450\ub9ac_\ub108\ube44_\uc544\ub798=&quot;10px&quot; \ud14c\ub450\ub9ac_\uc0c9\uc0c1_\uc544\ub798=&quot;#8fd2ed&quot; \uae00\ub85c\ubc8c_\uc0c9\uc0c1_\uc815\ubcf4=&quot;{}&quot;][et_pb_column_inner \uc800\uc7a5\ub41c_\ud2b9\uc218_\uc5f4_\uc720\ud615=&quot;3_4&quot; _\ube4c\ub354_\ubc84\uc804=&quot;4.16&quot; \uc0ac\uc6a9\uc790 \uc815\uc758_\ud328\ub529=&quot;|||&quot; global_colors_info=&quot;{}&quot; custom_padding__hover=&quot;|||&quot;][et_pb_text _builder_version=&quot;4.16&quot; header_font=&quot;|||||||||&quot; header_text_align=&quot;center&quot; header_text_color=&quot;#ffffff&quot; animation_style=&quot;fade&quot; global_colors_info=&quot;{}&quot;]<\/p>\n<h1 style=\"text-align: center;\"><b>\uc54c\uace0 \uacc4\uc168\ub098\uc694?<\/b><\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|35px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; custom_padding=&#8221;||26px|||&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>\uc9c1\uc6d0\uc744 \uc81c\uc678\ud558\uace0 PRF\uc5d0 \ucc38\uc5ec\ud558\ub294 \ubaa8\ub4e0 \uc0ac\ub78c\uc740 \uc790\uc6d0\ubd09\uc0ac\uc790\uc785\ub2c8\ub2e4! \uc774\uc0ac\ud68c, \uc11c\uae30, \uc7ac\ubb34, \uc704\uc6d0\ud68c \uc704\uc6d0, \ud1b5\uc5ed\uac00, \uae30\uae08 \ubaa8\uae08\uc790 \ub4f1\uc740 \ubaa8\ub450 \uae09\uc5ec \uc5c6\uc774 \uc6b0\ub9ac\uc758 \uc0ac\uba85\uc744 \ucd94\uc9c4\ud558\ub294 \ub370 \uc2dc\uac04, \uc5d0\ub108\uc9c0, \uc7ac\ub2a5\uc744 \ubc14\uce69\ub2c8\ub2e4. \uadf8 \uacb0\uacfc, \uc6b0\ub9ac\uc758 \ud589\uc815 \ube44\uc6a9\uc740 \ub9e4\uc6b0 \ub0ae\uc2b5\ub2c8\ub2e4. \uc774\ub294 \uc758\ud559 \uc5f0\uad6c\uc640 \ub300\uc911 \uc778\uc2dd \uc81c\uace0\uc5d0 \ub354 \ub9ce\uc740 \ub3c8\uc744 \ud22c\uc790\ud560 \uc218 \uc788\uac8c \ud574\uc8fc\uace0, \uad81\uadf9\uc801\uc73c\ub85c \ud504\ub85c\uac8c\ub9ac\uc544 \uce58\ub8cc\ubc95\uc744 \ucc3e\ub294 \ub370 \ub3c4\uc6c0\uc774 \ub429\ub2c8\ub2e4.<\/p>\n<p class=\"\">Leslie B. Gordon, MD, PhD\ub294 PRF\uc758 \uc758\ub8cc \ucc45\uc784\uc790\uc785\ub2c8\ub2e4. \uadf8\ub140\ub294 \ub610\ud55c PRF\uc758 \uc5f0\uad6c \uad00\ub828 \ud504\ub85c\uadf8\ub7a8\uc778 PRF International Registry, Cell &amp; Tissue Bank, Medical &amp; Research Database, Diagnostics Testing Program\uc758 \uc218\uc11d \uc5f0\uad6c\uc790\uc774\uba70, \uc5ed\uc0ac\uc801\uc778 Progeria \uc720\uc804\uc790 \ubc1c\uacac \ubc0f \uce58\ub8cc\ubc95 \ubc1c\uacac\uc5d0 \ub300\ud55c \uacf5\ub3d9 \uc800\uc790\uc785\ub2c8\ub2e4*.<\/p>\n<p class=\"\">* PRF\uc758 \ub178\ub825 \ub355\ubd84\uc5d0 2003\ub144 4\uc6d4 PRF\uc640 \uad6d\ub9bd\ubcf4\uac74\uc6d0\uc740 \ub2e4\uc74c\uacfc \uac19\uc774 \ubc1c\ud45c\ud588\uc2b5\ub2c8\ub2e4.<span>\u00a0<\/span><a href=\"https:\/\/www.progeriaresearch.org\/ko\/identification-of-gene-gives-hope-to-children-with-progeria\/\">LMNA \uc720\uc804\uc790 \ub3cc\uc5f0\ubcc0\uc774\ub85c \uc778\ud55c \ud504\ub85c\uac8c\ub9ac\uc544 \uc6d0\uc778 \ubc1c\uacac<\/a>, \uadf8\ub9ac\uace0 2012\ub144 9\uc6d4,<span>\u00a0<\/span><a href=\"https:\/\/www.progeriaresearch.org\/ko\/first-ever-progeria-treatment\/\">\ucd5c\ucd08\uc758 \uce58\ub8cc\ubc95\uc774 \ubc1c\uacac\ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/a><\/p>\n<p>\ud574\uc57c \ud560 \uc77c\uc774 \ub9ce\uace0 \uadf8\ub807\uac8c \ud560 \uc218 \uc788\ub294 \uc790\uc6d0\uc740 \uac70\uc758 \uc5c6\uc2b5\ub2c8\ub2e4. \uc6b0\ub9ac\ub294 \ud63c\uc790\uc11c\ub294 \ud560 \uc218 \uc5c6\uc2b5\ub2c8\ub2e4. \uc5ec\ub7ec\ubd84\uc758 \uc9c0\uc6d0\uc73c\ub85c \uc774 \ud6cc\ub96d\ud55c \uc544\uc774\ub4e4\uc744 \uc704\ud55c \uce58\ub8cc\ubc95\uc774 \ubc1c\uacac\ub420 \uac83\uc785\ub2c8\ub2e4.<\/p>\n<h3><em><\/em><\/h3>\n<h3><em><\/em><\/h3>\n<h3><em><\/em><\/h3>\n<h3>\uc6b0\ub9ac\ub294 \ud568\uaed8 <em>\ud560 \uac83\uc774\ub2e4<\/em> \uce58\ub8cc\ubc95\uc744 \ucc3e\uc544\ub77c!<\/h3>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&quot;1_2&quot; 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