{"id":8800,"date":"2019-09-30T16:22:23","date_gmt":"2019-09-30T16:22:23","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=8800"},"modified":"2020-12-13T17:44:07","modified_gmt":"2020-12-13T22:44:07","slug":"hot-off-the-press-prfs-2019-newsletter","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/ko\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/","title":{"rendered":"PRF 2019 \ub274\uc2a4\ub808\ud130"},"content":{"rendered":"<p>[et_pb_section fb_built=&quot;1&quot; _\ube4c\ub354_\ubc84\uc804=&quot;3.22&quot;][et_pb_row _\ube4c\ub354_\ubc84\uc804=&quot;3.25&quot; \ubc30\uacbd_\ud06c\uae30=&quot;\ucd08\uae30&quot; \ubc30\uacbd_\uc704\uce58=&quot;\uc67c\ucabd_\uc704&quot; \ubc30\uacbd_\ubc18\ubcf5=&quot;\ubc18\ubcf5&quot;][et_pb_\uc5f4 \uc720\ud615=&quot;4_4&quot; _\ube4c\ub354_\ubc84\uc804=&quot;3.25&quot; \uc0ac\uc6a9\uc790 \uc9c0\uc815_\ud328\ub529=&quot;|||&quot; \uc0ac\uc6a9\uc790 \uc9c0\uc815_\ud328\ub529__\ud638\ubc84=&quot;|||&quot;][et_pb_text _\ube4c\ub354_\ubc84\uc804=&quot;4.6.5&quot; \ubc30\uacbd_\ud06c\uae30=&quot;\ucd08\uae30&quot; \ubc30\uacbd_\uc704\uce58=&quot;\uc67c\ucabd_\uc704&quot; \ubc30\uacbd_\ubc18\ubcf5=&quot;\ubc18\ubcf5&quot; \ud638\ubc84_\ud65c\uc131\ud654=&quot;0&quot; \uc2a4\ud2f0\ud0a4_\ud65c\uc131\ud654=&quot;0&quot;]<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p>\n<h3>\ub85c\ub098\ud30c\ub2d9 \uad00\ub9ac\ud615 \uc811\uadfc \ud504\ub85c\uadf8\ub7a8 \ucd9c\uc2dc!<\/h3>\n<p>\ub300\ubd80\ubd84\uc758 \uc5b4\ub9b0\uc774\ub294 \uce58\ub8cc\ub97c \ubc1b\uae30 \uc704\ud574 \uc2e4\ud5d8 \ucc38\uc5ec\uc640 \ubcf4\uc2a4\ud134\uc73c\ub85c\uc758 \uc5ec\ud589\uc774 \ub354 \uc774\uc0c1 \ud544\uc694\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\ubc1c\ud45c\ud558\uac8c \ub418\uc5b4 \ub9e4\uc6b0 \uae30\uc069\ub2c8\ub2e4. <\/strong>\ub85c\ub098\ud30c\ub2d9 \uad00\ub9ac \uc561\uc138\uc2a4 \ud504\ub85c\uadf8\ub7a8(MAP)\uc774 \uc774\uc81c \uac00\ub3d9\ub418\uace0 \uc788\uc2b5\ub2c8\ub2e4. PRF\uc640 \ub85c\ub098\ud30c\ub2d9 \uc81c\uc870\uc5c5\uccb4\uc778 Eiger BioPharmaceuticals\uac00 \ud611\ub825\ud558\uc5ec \uc774 \ud504\ub85c\uadf8\ub7a8\uc744 \ub9cc\ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. MAP\uc740 \ud504\ub85c\uac8c\ub9ac\uc544\ub97c \uc553\uace0 \uc788\ub294 \uc801\uaca9 \uc544\ub3d9\uacfc \uccad\uc18c\ub144\uc774 MAP \uc81c\uacf5\uc744 \ud5c8\uc6a9\ud558\ub294 \uad6d\uac00\uc758 \uc9c0\uc5ed \uc758\uc0ac\ub97c \ud1b5\ud574 \ub85c\ub098\ud30c\ub2d9 \uc57d\ubb3c\uc744 \uc5bb\uc744 \uc218 \uc788\ub3c4\ub85d \ud569\ub2c8\ub2e4.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\">\uc544\ub798\uc5d0\uc11c \uc804\uccb4 PDF\ub97c \ud655\uc778\ud558\uc138\uc694.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf\u201d button_text=\u201d\ub354 \uc77d\uc5b4\ubcf4\uae30\u201d button_alignment=\u201dcenter\u201d _builder_version=\u201d4.6.5\u2033 _module_preset=\u201ddefault\u201d background_layout=\u201ddark\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>\uc9c0\ub09c 1\ub144 \ub3d9\uc548\uc758 \uc9c4\ud589 \uc0c1\ud669\uc5d0 \ub300\ud55c \ud765\ubbf8\ub85c\uc6b4 \uc5c5\ub370\uc774\ud2b8\ub97c \ubc1b\uc544\ubcf4\uc138\uc694. \uadf8\ub9ac\uace0 \uc65c \uc6b0\ub9ac\uac00 \uc9c0\uae08 \uc11c\ube44\uc2a4\ub97c \uc81c\uacf5\ud558\ub294 \uc0ac\ub78c\ub4e4\uc744 \ud504\ub85c\uac8c\ub9ac\uc544\ub97c \uc553\uace0 \uc788\ub294 \uc5b4\ub9b0\uc774\uc640 \uccad\uc18c\ub144\uc774\ub77c\uace0 \ubd80\ub974\ub294\uc9c0 \uc54c\uc544\ubcf4\uc138\uc694. \uadf8\ub9ac\uace0 \uc624\ub298\ub0a0\uc758 \uc6b0\ub9ac\ub97c \uc788\uac8c \ud55c \uc0ac\ub78c\ub4e4, \uacfc\ud559, \uadf8\ub9ac\uace0 \uc0ac\uac74\ub4e4\uc744 \ud655\uc778\ud574 \ubcf4\uc138\uc694. \uadf8\ub9ac\uace0 \ud6e8\uc52c \ub354 \ub9ce\uc740 \uc815\ubcf4\ub97c \ubc1b\uc544\ubcf4\uc138\uc694!<\/p>","protected":false},"author":2,"featured_media":8806,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p><img class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p><h3>Lonafarnib Managed Access Program Launched!<\/h3><p>Trial participation and travel to Boston no longer required for most children in order to access this treatment.<\/p><p><strong>We are thrilled to announce <\/strong>that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and lonafarnib manufacturer, Eiger BioPharmaceuticals, have worked together to create this Program. The MAP enables eligible children and young adults with Progeria to obtain the drug lonafarnib through their local physicians in countries that allow the MAP to be offered.<\/p><p>Read more by viewing the full PDF below.<\/p><p>[button link=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf\" type=\"big\" color=\"orange\" newwindow=\"yes\"] Read More[\/button]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-8800","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>PRF&#039;s 2019 Newsletter - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/ko\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PRF&#039;s 2019 Newsletter - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Get exciting updates on our progress over the past year, learn why we now refer to the population we serve as children \u2013 and young adults \u2013 with Progeria, check out the people, the science, and the events that got us where we are today, and SO MUCH MORE!\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/ko\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" 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