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PRESS RELEASES

Media Contact:
Tracy Lessor
[email protected]

The following press releases chronicle PRF's record-breaking pace of progress in Progeria research:

October 7, 2026: Progeria Research Foundation to Honor Gene-Editing Pioneer David R. Liu, Ph.D., and Peabody Philanthropists Cathy and Dave Gravel at 2026 Night of Wonder Gala

June 30, 2026: The Progeria Research Foundation Celebrates 25 Years of Racing Toward a Cure

April 7, 2026: Puresyn and The Progeria Research Foundation Announce Manufacturing Partnership to Advance Therapies for Children and Young Adults with Progeria

March 3, 2026: The Progeria Research Foundation and Forge Biologics Announce Manufacturing Partnership to Advance Gene Therapy for Children with Progeria

September, 30, 2024: OctoberBIG NEWS: Announcing the launch of a brand-new clinical drug trial!

March 26, 2024: The Progeria Research Foundation Selected as an Official Charity Partner in 2024 Boston Marathon

January 20, 2024: First-Ever Treatment for Ultra-Rare Rapid-Aging Disease Progeria Receives Approval in Japan

March 15, 2023: New Progerin Biomarker Predicts Survival Benefits of Treatment in Children with Progeria

January 6, 2021: Breakthrough Study Supports Genetic Editing as a Potential Treatment for Rare Rapid-Aging Disease Progeria

November 20, 2020: First-Ever Treatment for Rare Rapid-Aging Disease Progeria Receives U.S. FDA Approval

March 23, 2020: FDA Submission Completed for First-Ever Treatment for Rapid-Aging Disease Progeria

December 17, 2019: First-ever treatment for rare, rapid-aging disease Progeria submitted in New Drug Application to the FDA

September 18, 2019: ‘Find the Children – 60 in India with Progeria’ Campaign Re-Ignites the Search for Children with Progeria in India

May 16, 2018: On the Heels of the JAMA study, PRF and Eiger Biopharmaceuticals Partner to Pursue FDA Approval of Lonafarnib

April 24 2018: BREAKING NEWS! Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria

April, 2017 Teachers and Students: Curriculum based on HBO’s Life According to Sam and Sam’s TEDx talk now available.

November 10, 2016: Carly Cares partners with The Progeria Research Foundation to fund a progeria research grant

July 11, 2016: Results of Triple Drug Trial for Progeria Published

June 2015: Foundation’s Search for Children with Progeria Extends to China

June 15, 2015: Search begins for approximately 60 unidentified Progeria children in India

May 6, 2014: BREAKING NEWS! Study Finds Trial Medications Increase Lifespan in Children With Progeria

September 24, 2012: First-Ever Treatment for Progeria Discovered

October 25, 2010: PRF Celebrates the 1-Year Anniversary of the Find the Other 150 Campaign!

October 25, 2009: PRF Launches Global Campaign to Find All Children with Progeria

February 7, 2008: Study published in the New England Journal of Medicine Provides Insight into HGPS, General Aging Process

June 2006: Actors Mary Steenburgen and Ted Danson Join the Fight against Progeria with National Public Education Campaign

February 16, 2006: UCLA Finds Cancer Drug May Improve Progeria; Genetic Disease Causes Accelerated Aging in Children

August 29, 2005: Blocking a Premature Aging Syndrome with Anticancer Drugs

April 16, 2003: Identification of Gene Gives Hope to Children with Progeria; May Shed Light on Phenomenon of Aging

NEWSLETTERS

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