{"id":11093,"date":"2020-09-11T10:37:15","date_gmt":"2020-09-11T14:37:15","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=11093"},"modified":"2023-06-21T11:30:15","modified_gmt":"2023-06-21T15:30:15","slug":"prf-family-quotes","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/nl\/prf-family-quotes\/","title":{"rendered":"PRF Familie Citaten"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201daan\u201d disabled_on=\u201duit|uit|uit\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|0px|0px|0|false|false\u201d border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d locked=\u201duit\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header background_overlay_color=\u201drgba(0,0,0,0)\u201d _builder_version=\u201d4.16\u2033 title_font=\u201d||||||||\u201d title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/bubbles-header.jpg\u201d background_position=\u201dbottom_right\u201d custom_padding=\u201d11.5vw||11.5vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201dop|desktop\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201dop|telefoon\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dbackground-position: center !important;\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h1>PRF Familie Citaten<\/h1>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201daan\u201d parallax_method=\u201duit\u201d global_colors_info=\u201d{}\u201d][et_pb_row _builder_version=\u201d4.16\u2033 custom_margin=\u201d0px||0px||false|false\u201d custom_padding=\u201d0px||0px||false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_text _builder_version=\u201d4.16\u2033 text_font_size=\u201d20px\u201d header_3_text_align=\u201drechts\u201d vertical_offset_tablet=\u201d0\u2033 horizontal_offset_tablet=\u201d0\u2033 text_orientation=\u201drechts\u201d z_index_tablet=\u201d500\u2033 text_text_shadow_horizontal_length_tablet=\u201d0px\u201d text_text_shadow_vertical_length_tablet=\u201d0px\u201d text_text_shadow_blur_strength_tablet=\u201d1px\u201d link_text_shadow_horizontal_length_tablet=\u201d0px\u201d link_text_shadow_vertical_length_tablet=\u201d0px\u201d link_text_shadow_blur_strength_tablet=\u201d1px\u201d ul_text_shadow_horizontal_length_tablet=\u201d0px\u201d ul_text_shadow_vertical_length_tablet=\u201d0px\u201d ul_text_shadow_blur_strength_tablet=\u201d1px\u201d ol_text_shadow_horizontal_length_tablet=\u201d0px\u201d ol_text_shadow_vertical_length_tablet=\u201d0px\u201d ol_text_shadow_blur_strength_tablet=\u201d1px\u201d quote_text_shadow_horizontal_length_tablet=\u201d0px\u201d quote_text_shadow_vertical_length_tablet=\u201d0px\u201d quote_text_shadow_blur_strength_tablet=\u201d1px\u201d header_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_text_shadow_vertical_length_tablet=\u201d0px\u201d header_text_shadow_blur_strength_tablet=\u201d1px\u201d header_2_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_2_text_shadow_vertical_length_tablet=\u201d0px\u201d header_2_text_shadow_blur_strength_tablet=\u201d1px\u201d header_3_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_3_text_shadow_vertical_length_tablet=\u201d0px\u201d header_3_text_shadow_blur_strength_tablet=\u201d1px\u201d header_4_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_4_text_shadow_vertical_length_tablet=\u201d0px\u201d header_4_text_shadow_blur_strength_tablet=\u201d1px\u201d header_5_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_5_text_shadow_vertical_length_tablet=\u201d0px\u201d header_5_text_shadow_blur_strength_tablet=\u201d1px\u201d header_6_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_6_text_shadow_vertical_length_tablet=\u201d0px\u201d header_6_text_shadow_blur_strength_tablet=\u201d1px\u201d box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h3 style=\"text-align: center;\"><span style=\"color: #000080;\"><strong>Een paar woorden over PRF van de families in onze gemeenschap<\/strong><\/span><\/h3>\n<p style=\"text-align: center;\"><span style=\"color: #000080;\"><strong>We hebben ouders gevraagd wat PRF voor hen heeft betekend en we waren overweldigd door hun reacties! <\/strong><\/span><\/p>\n<p style=\"text-align: center;\"><span style=\"color: #000080;\"><strong><em>Dit is waarom we doen wat we doen<\/em>.<\/strong><\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_sidebar area=\u201det_pb_widget_area_12\u2033 disabled_on=\u201don|on|off\u201d admin_label=\u201dMaak kennis met de kinderzijbalk\u201d module_class=\u201dsubpage-sidebars sidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 animation_style=\u201dfade\u201d z_index_tablet=\u201d500\u2033 border_width_right=\u201d5px\u201d locked=\u201doff\u201d global_colors_info=\u201d{}\u201d] [\/et_pb_sidebar][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/08\/zach-and-tina.png\u201d title_text=\u201dzach-and-tina\u201d admin_label=\u201dZach &amp; Tina 2\u2033 _builder_version=\u201d4.16\u2033 breedte=\u201d75%\u201d custom_margin=\u201d|0px|10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZ&amp;T-bijschrift\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<strong>Zach en zijn moeder, Tina; VS<\/strong> [\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dZach &amp; Tina citaat\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u201cContact leggen met PRF gaf ons zoveel opluchting \u2013 er was iemand die om mijn zoon gaf, die vocht voor een remedie. Ze geven ons gemoedsrust, wetende dat er onderzoekers van wereldklasse in onze hoek zitten, die werken aan het genezen van deze dodelijke ziekte. Ik ben PRF zo dankbaar dat ze elke dag voor Zach vechten en de toekomst van Zach en onze familie rooskleuriger maken.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Tina, Zachs moeder<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Enzo-and-family.png\u201d title_text=\u201dEnzo-and-family\u201d admin_label=\u201dEnzo &amp; Familie\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZ&amp;T Bijschrift\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Enzo &amp; zijn ouders; Australi\u00eb<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dEnzo &amp; Catherina citaat\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cWe zijn zo blij dat we The Progeria Research Foundation hebben \u2013 ze geven ons hoop\u2026 bedankt aan alle mensen die ons steunen en onze reis met Progeria lichter maken.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Catherina, Enzo&#039;s moeder<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Cam-and-Stephanie-OP-2020.png\u201d title_text=\u201dCam-and-Stephanie-OP-2020\u2033 admin_label=\u201dCam &amp; Moeder\u201d _builder_version=\u201d4.16\u2033 width=\u201d80%\u201d custom_padding=\u201d|20px||10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dCam&amp;Mom Bijschrift\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Cam en zijn moeder; VS<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitaat van Cam &amp; Stephanie\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u201cIk weet niet hoe ik je moet bedanken voor alles wat je doet en hebt gedaan voor Progeria-families. Ik vertel mensen die PRF niet kennen vaak hoe gelukkig we zijn dat jij onze kinderen helpt. Weet alsjeblieft dat je een enorm verschil hebt gemaakt in ons leven.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Stephanie, Cams moeder<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Meghan-and-family.png\u201d title_text=\u201dMeghan-and-family\u201d admin_label=\u201dMeghan en haar ouders\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dMeghan en ouder bijschrift\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d hover_enabled=\u201d0\u2033 global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n<p><strong>Meghan en haar ouders; VS<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCitaat van Meghan en Bill\u201d _builder_version=\u201d4.21.0\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d hover_enabled=\u201d0\u2033 global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d sticky_enabled=\u201d0\u2033 breedte__hover=\u201d100%\u201d]<\/p>\n<p>&quot;Toen we er voor het eerst achter kwamen dat Meghan Progeria had (op 2-jarige leeftijd), was de gemiddelde levensverwachting 13 jaar... we dachten dat 13 jaar nog ver weg was, en het ging zo snel! En nu is ze 19, ze is gezond, ze is sterk, ze zet haar zinnen op wat ze wil bereiken in haar leven en ze gaat er gewoon voor.<\/p>\n<p>Toen we The Progeria Research Foundation vonden, had ik een extreem moment van opluchting, getroost door het feit dat er iemand in onze hoek was die aan dit probleem werkte. Ze pakken het probleem zo goed aan dat ik weet dat we samen de remedie ZULLEN vinden!\u201d<\/p>\n<p style=\"text-align: right;\"><strong> \u2013 Bill, Meghans vader, 2021<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Terry-and-Zach.png\u201d title_text=\u201dTerry-and-Zach\u201d admin_label=\u201dZach en zijn vriend, Terry\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZach en zijn vriend, Terry caption\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Zach en zijn vriend, Terry; VS <\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dZach &amp; Terry citaat\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0&quot;Hoewel ik wenste dat PRF er was geweest voor mijn dochter Amy, die in 1985 overleed, was ik gezegend dat ik haar had. Het is een zegen dat PRF er nu is voor de kinderen en hun ouders.&quot;<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Terry, Amy&#039;s moeder<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Erin-and-Brennan-1.png\u201d title_text=\u201dErin-en-Brennan-(1)\u201d admin_label=\u201dErin en Brennan\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dBrennen &amp; zijn moeder; VS\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Brennen &amp; zijn moeder; VS<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dBrennan &amp; Erin citaat\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cPRF heeft ons gezegend met het geschenk van hoop in onze strijd om een remedie voor Progeria te vinden. Toen Brennen voor het eerst de diagnose kreeg, waren we verloren en overstuur, niet wetende waar we ons vervolgens tot moesten wenden, maar de zorgzame staf en liefdevolle families die we via PRF hebben ontmoet, hebben ons bij elke stap van de weg bijgestaan. We hebben echt een Progeria-gemeenschapsfamilie gewonnen.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Erin, Brennens moeder<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Alexandra-parents.png\u201d title_text=\u201dAlexandra\u2013ouders\u201d admin_label=\u201dAlexandra en haar ouders\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAlexandra en haar ouders; Spanje\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Alexandra en haar ouders; Spanje<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dZach &amp; Tina citaat\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cWe zijn PRF eeuwig dankbaar voor het geven van het licht en de hoop die we nodig hadden toen we ons realiseerden dat onze 2-jarige dochter, Alexandra, het enige geval van Progeria in Spanje was. Het geweldige PRF-team en hun netwerk van ongelooflijke professionals verwelkomden ons met open armen \u2013 ze gaven ons allemaal hun liefde en steun en hebben ons vergezeld op deze moeilijke reis, inclusief Alexandra in hun klinische onderzoeken, ons richtlijnen gegeven om haar kwaliteit van leven te verbeteren en zonder rust te onderzoeken om een remedie voor onze dochter te vinden. Voor degenen die PRF onderweg hebben gesteund, we waarderen uw samenwerking met PRF enorm, zodat Alexandra en haar leeftijdsgenoten een mooie toekomst hebben.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Cedric, de vader van Alexandra<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/kaylee-17th-bday-1.png\u201d title_text=\u201dkaylee-17th-bday-(1)\u201d admin_label=\u201dKaylee viert haar 17e verjaardag\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dKaylee viert haar 17e verjaardag;USA\u201d _builder_version=\u201d4.21.0\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d hover_enabled=\u201d0\u2033 global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n<p><strong>Kaylee viert haar 17e verjaardag<sup>e<\/sup> verjaardag in 2021; VS<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dMarla, Kaylee&#039;s moedercitaat\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cVoor mij betekent The Progeria Research Foundation hoop en steun. Het is eng om met een zeldzame ziekte om te gaan, en ik weet dat als ik vragen heb, ze hun best zullen doen om te helpen. Ze hebben ook ouders met Progeria geholpen om contact te leggen en hun ervaringen te delen. Ik weet dat ze hard werken om nieuwe behandelingen en een remedie te vinden, en ik kan me het leven zonder The Progeria Research Foundation niet voorstellen.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Marla, Kaylee&#039;s moeder<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/shreyash-3.png\u201d title_text=\u201dshreyash-3\u2033 admin_label=\u201dShreyash en zijn familie; India\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dShreyash &amp; zijn familie; India\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Shreyash en zijn familie; India<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dArvind, citaat van Shreyash\u2019s vader\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cIn 2017 hoorden we over PRF en dat onze zoon, Shreyash, behandeld kon worden. PRF was een sprankje hoop en heeft ons op zoveel manieren gesteund. Ze hebben elk detail overwogen tijdens onze reis naar Boston, zodat we ons op ons gemak voelden, inclusief accommodaties en reizen, en ook onze reis terug naar India. Dankzij PRF hebben we hoop. Ook is de liefde die Shreyash van PRF krijgt onberispelijk. Ik denk niet dat iemand ooit zoveel heeft gedaan.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Arvind, de vader van Shreyash<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zoey-family-.png\u201d title_text=\u201dZoey-family-\u201d admin_label=\u201dZoey en haar ouders; VS\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZoey &amp; haar ouders; VS\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Zoey en haar ouders; VS<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dLaura, citaat van Zoey\u2019s moeder\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cPRF is onze levenslijn\u2026 een familie\u2026 onze hoop op geweldige dingen die nog komen gaan.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Laura, Zoey&#039;s moeder<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Nathan-Bennett-and-fam.png\u201d title_text=\u201dNathan-&amp;-Bennett-and-fam\u201d admin_label=\u201dNathan en Bennett en familie; VS\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dNathan, Bennett &amp; familie; VS\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Nathan, Bennett &amp; familie; VS<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dLaura, citaat van Zoey\u2019s moeder\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cWij willen hetzelfde als iedereen \u2013 we willen dat onze jongens opgroeien\u2026 PRF is onze hoop en houdt ons gaande.\u201d\u00a0<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Phyllis (moeder van Nathan en Bennett)<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Aahan.png\u201d title_text=\u201dAahan\u201d admin_label=\u201dAahan en zijn ouders; India\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAahan &amp; zijn ouders; India\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Aahan en zijn ouders; India<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dManish Maheshwari, Aahan&#039;s vader\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cDe Progeria Research Foundation en hun klinische team doen geweldig werk en ze hebben een heel goed gevoel voor service. Ze hebben veel voor ons gedaan en we betuigen hen onze oprechte dank en beste wensen.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Manish Maheshwari, de vader van Aahan<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Prachi-2.png\u201d title_text=\u201dPrachi-2\u2033 admin_label=\u201dPrachi en haar vader, India\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dPrachi en haar vader; India\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Prachi en haar vader; India<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dBikash, citaat van Prachi\u2019s vader\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cNadat we Mumbai voor Prachi&#039;s controle hadden bezocht, hoorden we voor het eerst over Progeria en we maakten ons zorgen. Maar dat tijdige telefoontje van PRF hielp ons om in vrede te zijn. Toen we eenmaal Boston bezochten (voor Prachi&#039;s klinische proef), realiseerden we ons het fenomenale werk dat PRF heeft gedaan, die in de loop der jaren een sterk ondersteunend systeem voor ons is geworden. Ik ben hen dankbaar en hoop dat ze al Prachi&#039;s dromen waarmaken.\u201d\u00a0<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Bikash, Prachi&#039;s vader<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Sammy-and-parents.gif\u201d title_text=\u201dSammy-and-parents\u201d admin_label=\u201dSammy en zijn ouders, Itali\u00eb\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dSammy en zijn ouders; Itali\u00eb\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Sammy en zijn ouders; Itali\u00eb<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dAmerigo en Laura, citaat van Sammy\u2019s vader en moeder\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<div><\/div>\n<div>\u201cToen de artsen Sammy met Progeria diagnosticeerden, wisten we niets over deze ziekte, dus zochten we online en vonden we PRF. We ontmoetten Audrey Gordon in 2000, samen met Leslie, Scott en Sam, en we werden snel vrienden. In 2006 nodigden ze Sammy uit voor een klinische Progeria-test, gevolgd door de eerste klinische Progeria-proef. Het was alsof er een deur, vol hoop, voor ons openging\u2026<\/div>\n<div><\/div>\n<div>PRF deed en doet uitzonderlijke dingen. We wisten vanaf het begin dat ze hun hart en ziel in het helpen van alle tieners en kinderen met deze ziekte staken. We kregen er meteen een geweldig gezin bij.<\/div>\n<div><\/div>\n<div>Voor ons is PRF zo&#039;n levenslijn... PRF geeft ons veel hoop. Als we naar Boston komen, voelen we ons veilig, we hebben geen angst voor de klinische proeven, noch voor de nieuwe medicijnen... omdat we weten dat ze ook met hun eigen hart werken, en dat is heel belangrijk voor ons!<\/div>\n<div><\/div>\n<div style=\"text-align: right;\"><strong>-Amerigo en Laura, Sammy&#039;s vader en moeder<\/strong><\/div>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zein-with-his-mom.png\u201d title_text=\u201dZein-with-his-mom\u201d admin_label=\u201dZein en zijn moeder; Egypte\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZein &amp; zijn moeder; Egypte\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Zein en zijn moeder; Egypte<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dDina, Zeins moedercitaat\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cIk kan geen woorden vinden om te beschrijven hoe gelukkig ik me voelde tijdens deze reis [naar Boston, voor Zeins lonafarnib-behandeling], met de aanmoediging en hoop van iedereen die ik ontmoette. Ik dank jullie voor het geven van de kracht om Progeria te bestrijden.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Dina, de moeder van Zein<\/strong><\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/aaditya.png\u201d title_text=\u201daaditya\u201d admin_label=\u201dAaditya en zijn familie; India\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAaditya &amp; zijn familie; India\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong>Aaditya en zijn familie; India<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dDina, Zeins moedercitaat\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n<p>\u00a0\u201cWe hoorden in 2014 dat Aaditya Progeria had. De Progeria Research Foundation was een zegen in ons leven. Met hun hulp hebben we ons kind succesvol medische hulp kunnen bieden waar we nooit van hadden geweten. De afgelopen jaren heeft de steun van PRF hem zowel fysiek als emotioneel geholpen. We zijn ze erg dankbaar. Mijn zoon, Aaditya, blijft maar praten over zijn reis en heeft goede herinneringen aan de VS.\u201d<\/p>\n<p style=\"text-align: right;\"><strong>\u2013 Uttam, de vader van Aaditya<\/strong><\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201duit\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201daan\u201d module_class=\u201det_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201daan|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201dop|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201daan\u201d width_unit=\u201duit\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dMeld u nu aan\u201d admin_label=\u201dMeld u aan voor de nieuwsbrief\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201daan|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201daan\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201daan\u201d]<\/p>\n<h2>Aanmelden<\/h2>\n<h2>voor onze<\/h2>\n<h2>Nieuwsbrief!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoneer nu\u201d admin_label=\u201dSamen vinden we de remedie!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201dop|bureaublad\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201dop|bureaublad\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dop|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201daan\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201daan\u201d]<\/p>\n<h2>Samen, wij<\/h2>\n<h2><em>ZULLEN<\/em><\/h2>\n<h2>vind de remedie!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/11\/footerstrip2022-1200-\u00d7-300-px-1.png\u201d title_text=\u201dfooterstrip2022 (1200 \u00d7 300 px) (1)\u201d _builder_version=\u201d4.18.1\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Een paar woorden over PRF van gezinnen uit onze gemeenschapWe hebben ouders gevraagd wat PRF voor hen heeft betekend en waren overweldigd door hun reacties!<\/p>","protected":false},"author":1,"featured_media":12103,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-11093","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ 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