{"id":7752,"date":"2019-08-19T19:57:56","date_gmt":"2019-08-19T19:57:56","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=7752"},"modified":"2023-09-22T10:11:48","modified_gmt":"2023-09-22T14:11:48","slug":"workshop2018","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/nl\/workshop2018\/","title":{"rendered":"September 2018 in Cambridge, MA: PRF's 9e internationale wetenschappelijke workshop, "VEEL PADEN, \u00c9\u00c9N DOEL""},"content":{"rendered":"

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Wetenschappers, clinici en Progeria-families van over de hele wereld kwamen bijeen tijdens de PRF-workshop in september 2018.<\/strong><\/p>\n

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De PRF International Scientific Workshop van 2018 was een overweldigend succes, met 163 deelnemers uit 14 verschillende landen. Vooraanstaande artsen, wetenschappers en preklinische onderzoekers, vergezeld door families van kinderen met Progeria, kwamen bijeen om de meest recente informatie over Progeria-onderzoek te delen en de weg vrij te maken voor toekomstige inspanningen om nieuwe behandelingen en de genezing voor kinderen met Progeria te vinden.<\/p>\n

Presentaties omvatten een discussie over het perspectief van kinderen en ouders die leven met Progeria, 28 mondelinge presentaties en 52 posters (een record!). De presentaties en posters lieten belangrijke wetenschappelijke bevindingen zien, presenteerden de voortgang in het identificeren van potenti\u00eble therapeutische behandelingen en inspireerden toekomstige samenwerkingen tussen de onderzoeks- en medische gemeenschappen.<\/p>\n

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De workshop begon met een Family Panel-sessie gericht op het cre\u00ebren van een persoonlijke verbinding tussen families die met Progeria leven en de onderzoeksgemeenschap. De wetenschappelijke presentaties belichtten vervolgens de laatste ontwikkelingen in biologisch en klinisch onderzoek naar Progeria, inclusief essenti\u00eble onderzoekstools zoals biomarkers, evenals nieuwe gegevens over mogelijke behandelingen met kleine moleculen, RNA-therapie\u00ebn en genbewerking.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
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Voor het eerst waren er "lightening round" presentaties van 1 minuut door posterpresentatoren, die hen de kans gaven om zichzelf voor te stellen en de uitdaging te ervaren om workshopdeelnemers naar hun posters te lokken voor diepgaande discussies. Daarnaast maakten verschillende deelnemers gebruik van de permanente medische educatie (CME) credits die werden aangeboden via het CME-kantoor van Brown University. Misschien is de beste graadmeter voor het succes van de workshop wel de meetbare evaluatie door de deelnemers. We zijn er trots op om enkele evaluatiehoogtepunten te delen:<\/p>\n

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  • 99%\u00a0<\/strong>beoordeelde de vergadering als Uitstekend (82%) of Zeer Goed (17%)<\/li>\n
  • Vergelijkbare beoordelingen voor registratieproces, locatie, conferentiemateriaal, vergaderformat en de bliksemrondesessie<\/li>\n<\/ul>\n

    Selecteer typische opmerkingen:<\/p>\n

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    • Een zeer goed geplande en uitgevoerde workshop. Zeer motiverend!<\/li>\n
    • Uitstekende bijeenkomst, met informatie op hoog niveau, collaboratieve omgeving<\/li>\n
    • Uiterst goed en professioneel georganiseerd met fantastische lezingen, opwindende en stimulerende uitwisseling tussen clinici en fundamentele onderzoekers<\/li>\n<\/ul>\n

      We zijn iedereen die aan deze workshop heeft deelgenomen, enorm dankbaar. De steun en interesse in Progeria groeit elk jaar en we kijken uit naar de volgende fasen van vooruitgang richting een genezing, samen, tijdens de volgende PRF-workshop.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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      Meghan Waldron, jeugdambassadeur bij PRF, spreekt de deelnemers toe tijdens de boeiende Family Panel-sessie.<\/strong><\/p>\n

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      Posters ter inzage voor diepgaande discussies<\/strong><\/p>\n

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      Spreker Dr. Francis Collins, directeur van de National Institutes of Health, bespeelt gitaar voor Alptug, 2, en Meghan, 17, voordat hij op de eerste avond van de conferentie het podium betreedt.<\/strong><\/p>\n

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      Eric S. Lander \u2013 Broad Institute of Harvard en MIT, MIT, Harvard Medical School presenteert \u201cNieuwe genomische benaderingen voor het begrijpen van ziekten\u201d<\/strong><\/p>\n

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      De presentaties waren uitstekend en informatief<\/strong><\/p>\n

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      Aanmelden<\/h2>\n

      voor onze<\/h2>\n

      Nieuwsbrief!<\/h2>\n

      [\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoneer nu\u201d admin_label=\u201dSamen vinden we de remedie!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201dop|bureaublad\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201dop|bureaublad\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dop|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201daan\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201daan\u201d]<\/p>\n

      Samen, wij<\/h2>\n

      ZULLEN<\/em><\/h2>\n

      vind de remedie!<\/h2>\n

      [\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/06\/2023-footer-strip-5.png\u201d title_text=\u201d2023 voettekststrook 5\u2033 _builder_version=\u201d4.21.0\u2033 _module_preset=\u201dstandaard\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

      Scientists, clinicians, and Progeria families from around the world convened at PRF\u2019s September 2018 Workshop.The 2018 PRF International Scientific Workshop was an overwhelming success, with 163 registrants from 14 different countries. Leading physicians, scientists and preclinical investigators, joined by families of children with Progeria, came together to share the most current information on Progeria research […]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-7752","page","type-page","status-publish","hentry"],"yoast_head":"\n2018 workshop | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/nl\/workshop2018\/\" \/>\n<meta property=\"og:locale\" content=\"nl_NL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"2018 workshop | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Scientists, clinicians, and Progeria families from around the world convened at PRF\u2019s September 2018 Workshop.The 2018 PRF International Scientific Workshop was an overwhelming success, with 163 registrants from 14 different countries. 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