{"id":8682,"date":"2019-09-17T22:46:47","date_gmt":"2019-09-17T22:46:47","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=8682"},"modified":"2026-03-27T08:23:42","modified_gmt":"2026-03-27T12:23:42","slug":"find-the-children","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/nl\/find-the-children\/","title":{"rendered":"Vind de kinderen"},"content":{"rendered":"

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Vind de kinderen<\/h1>\n

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\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=\u201d3_4\u2033 specialty_columns=\u201d3\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_row_inner column_structure=\u201dundefined\u201d _builder_version=\u201d4.16\u2033 background_color=\u201d#00b2e2\u2033 custom_margin=\u201d41px||\u201d custom_margin_tablet=\u201d0px||\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201dop|telefoon\u201d custom_padding=\u201d39.4375px|20px|35px|20px|false|true\u201d animation_style=\u201dslide\u201d animation_direction=\u201dtop\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 box_shadow_style=\u201dpreset1\u2033 box_shadow_blur=\u201d38px\u201d box_shadow_spread=\u201d-12px\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner type=\u201dundefined\u201d saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dWat is de campagne \u201cVind de kinderen\u201d?\u201d _builder_version=\u201d4.16\u2033 header_2_line_height=\u201d1.2em\u201d background_layout=\u201ddark\u201d custom_margin=\u201d||\u201d custom_padding=\u201d|||\u201d custom_padding_tablet=\u201d|50px||50px||true\u201d custom_padding_phone=\u201d\u201d custom_padding_last_edited=\u201dop|bureaublad\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d\u201d header_font_size_last_edited=\u201dop|bureaublad\u201d header_2_font_size_tablet=\u201d25px\u201d header_2_font_size_phone=\u201d\u201d header_2_font_size_last_edited=\u201dop|tablet\u201d header_4_font_size_tablet=\u201d\u201d header_4_font_size_phone=\u201d19px\u201d header_4_font_size_last_edited=\u201dop|telefoon\u201d header_4_line_height_tablet=\u201d\u201d header_4_line_height_phone=\u201d1.2em\u201d header_4_line_height_last_edited=\u201dop|telefoon\u201d z_index_tablet=\u201d500\u2033 box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Wat is de campagne \u201cVind de kinderen\u201d?<\/h2>\n

[\/et_pb_text][et_pb_testimonial author=\u201dDr. Leslie Gordon\u201d job_title=\u201dMedisch directeur\u201d company_name=\u201dThe Progeria Research Foundation\u201d quote_icon_color=\u201d#00b2e2\u2033 portrait_width=\u201d140px\u201d portrait_height=\u201d140px\u201d _builder_version=\u201d4.24.3\u2033 body_font_size=\u201d19px\u201d background_color=\u201d#f7f7f7\u2033 custom_margin=\u201d|||-35px\u201d custom_margin_tablet=\u201d\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201don|desktop\u201d child_filter_hue_rotate=\u201d70deg\u201d z_index_tablet=\u201d500\u2033 custom_css_testimonial_author=\u201dcolor: #00b2e2;||font-size: 19px !belangrijk;||lettergewicht: 700;\u201d custom_css_testimonial_meta=\u201dlettertypestijl: italic;||lettergewicht: 700;\u201d auteur_text_shadow_horizontal_length_tablet=\u201d0px\u201d auteur_text_shadow_vertical_length_tablet=\u201d0px\u201d auteur_text_shadow_blur_strength_tablet=\u201d1px\u201d positie_text_shadow_horizontal_length_tablet=\u201d0px\u201d positie_text_shadow_vertical_length_tablet=\u201d0px\u201d positie_text_shadow_blur_strength_tablet=\u201d1px\u201d bedrijf_text_shadow_horizontal_length_tablet=\u201d0px\u201d bedrijf_text_shadow_vertical_length_tablet=\u201d0px\u201d bedrijf_text_shadow_blur_strength_tablet=\u201d1px\u201d body_link_text_shadow_horizontal_length_tablet=\u201d0px\u201d body_link_text_shadow_vertical_length_tablet=\u201d0px\u201d body_link_text_shadow_blur_strength_tablet=\u201d1px\u201d body_ul_text_shadow_horizontal_length_tablet=\u201d0px\u201d body_ul_text_shadow_vertical_length_tablet=\u201d0px\u201d body_ul_text_shadow_blur_strength_tablet=\u201d1px\u201d body_ol_text_shadow_horizontal_length_tablet=\u201d0px\u201d body_ol_text_shadow_vertical_length_tablet=\u201d0px\u201d body_ol_text_shadow_blur_strength_tablet=\u201d1px\u201d body_quote_text_shadow_horizontal_length_tablet=\u201d0px\u201d body_quote_text_shadow_vertical_length_tablet=\u201d0px\u201d body_quote_text_shadow_blur_strength_tablet=\u201d1px\u201d border_width_all=\u201d4px\u201d border_width_all_portrait=\u201d3px\u201d border_color_all_portrait=\u201d#330c0c\u201d border_style_all_portrait=\u201dgestreept\u201d box_shadow_style=\u201dpreset1\u2033 box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_style_image=\u201dpreset5\u2033 text_shadow_horizontal_length_tablet=\u201d0px\u201d text_shadow_vertical_length_tablet=\u201d0px\u201d text_shadow_blur_strength_tablet=\u201d1px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

\u201cDe campagne 'Find the Children' van PRF is onze wereldwijde zoektocht naar kinderen met Progeria. Als we de kinderen kunnen VINDEN, kunnen we de kinderen HELPEN door ze een levensverlengende behandeling te bieden, toegang tot toekomstige klinische onderzoeken en connecties met andere families van kinderen met Progeria.\u201d<\/p>\n

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\"\"Het is van cruciaal belang dat het publiek bewust wordt van een uiterst zeldzame ziekte als Progeria. Zo kunnen artsen, families, onderzoekers en het grote publiek meer te weten komen over de ziekte en de missie van PRF.<\/p>\n

PRF's 'Vind de<\/em>e Kinderen<\/em>' campagne is een strategisch bewustwordingsinitiatief gericht op het vinden van kinderen in gebieden van de wereld waarvan wij denken dat er veel leven \u2013 ongediagnosticeerd en onbehandeld. Maar om hulp<\/strong> de kinderen, wij moeten vinden<\/strong> de kinderen.<\/p>\n

Om die reden hebben we informatiemateriaal gemaakt over Progeria en de opwindende vooruitgang van PRF om het bewustzijn te vergroten, families, hun artsen, onderzoekers en het publiek te informeren en te helpen over het Hutchinson-Gilford Progeria Syndroom \u2013 hieronder beschikbaar in vele talen. U kunt een infographic over Progeria en PRF's onderzoeksgerelateerde programma's bekijken en downloaden, evenals een uitgebreider dubbelzijdig informatieblad (om af te drukken).<\/p>\n

Help ons het verschil te maken!<\/strong> Deel deze alstublieft breed om de mensen in uw land of regio te informeren over onze essenti\u00eble missie om alle kinderen over de hele wereld met Progeria te helpen. Hoewel we geweldige vooruitgang hebben geboekt met het vinden, diagnosticeren en behandelen van veel kinderen, zijn er nog steeds naar schatting 150 - 250 kinderen over de hele wereld met Progeria die gevonden, behandeld en op een dag genezen moeten worden. Met jouw hulp gaan we door tot we ze allemaal gevonden hebben!<\/strong><\/p>\n

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Engels<\/h3>\n

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Amhaars\/\u12a0\u121b\u122d\u129b<\/h3>\n

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Arabisch\/Arabisch<\/h3>\n

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Bengaals\/\u09ac\u09be\u0982\u09b2\u09be<\/h3>\n

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Chinees\/\u4e2d\u570b\u4eba<\/h3>\n

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Farsi\/Perzisch \u0641\u0627\u0631\u0633\u06cc\/\u0641\u0627\u0631\u0633\u06cc<\/h3>\n

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Frans\/Frans<\/h3>\n

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Hindi\/Chinees<\/h3>\n

[\/et_pb_text][et_pb_button button_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/Hindi-Infographic.pdf\u201d button_text=\u201dInfographic\u201d button_alignment=\u201dleft\u201d admin_label=\u201dHindi Infographic\u201d _builder_version=\u201d4.24.3\u2033 _module_preset=\u201ddefault\u201d button_text_color=\u201d#FFFFFF\u201d button_bg_color=\u201d#00B2E2\u2033 button_border_color=\u201d#29327A\u201d custom_margin=\u201d||13px|15px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_button][et_pb_button button_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/Hindi-dubbelzijdig-infoblad.pdf\u201d button_text=\u201dDubbelzijdig infoblad\u201d admin_label=\u201dHindi Dubbelzijdig infoblad\u201d _builder_version=\u201d4.24.3\u2033 _module_preset=\u201dstandaard\u201d button_text_color=\u201d#FFFFFF\u201d button_bg_color=\u201d#00B2E2\u2033 button_border_color=\u201d#29327A\u201d custom_margin=\u201d|||15px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_button][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_3\u2033 opgeslagen_specialiteit_kolom_type=\u201d3_4\u2033 _builder_version=\u201d4.24.3\u2033 _module_preset=\u201dstandaard\u201d global_colors_info=\u201d{}\u201d][et_pb_text admin_label=\u201dIndonesisch\u201d _builder_version=\u201d4.24.3\u2033 _module_preset=\u201dstandaard\u201d custom_margin=\u201d||0px||false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Indonesisch\/bahasa Indonesia<\/h3>\n

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Japans\/\u65e5\u672c\u8a9e<\/h3>\n

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Portugees\/Portugees<\/h3>\n

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Russisch\/Russisch<\/h3>\n

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Spaans\/Espa\u00f1ola<\/h3>\n

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Tagalog<\/h3>\n

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Urdu\/Arabisch<\/h3>\n

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Vietnamees\/Ti\u1ebfng Vi\u1ec7t<\/h3>\n

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In maart 2026 wonen hier de 157 kinderen en jongvolwassenen met het Hutchinson-Gilford-progeriasyndroom (HGPS), die allemaal een progerineproducerende mutatie in het LMNA-gen hebben; en 84 mensen in de categorie progero\u00efde laminopathie (PL), die mutaties in de lamineroute hebben maar geen progerine produceren; in totaal 52 landen.<\/p>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/03\/March-2026-Map.jpg” title_text=”March 2026 Map” align=”center” admin_label=”Map” _builder_version=”4.27.5″ vertical_offset_tablet=”0″ horizontal_offset_tablet=”0″ width=”100%” min_height=”602px” custom_margin=”0px||20px||false|false” custom_padding=”0px||20px||false|false” hover_enabled=”0″ z_index_tablet=”0″ box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_image][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=”1_2,1_2″ custom_padding_last_edited=”on|tablet” padding_left_right_link_1=”false” padding_left_right_link_2=”true” _builder_version=”4.16″ custom_padding=”0|35px|16px||false|false” custom_padding_tablet=”||0px|35px||false” custom_padding_phone=”||0px|20px||false” animation_direction=”right” global_colors_info=”{}”][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” custom_padding_tablet=”” custom_padding_phone=”||30px” custom_padding_last_edited=”on|desktop” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta title=”What Can You Do?” button_url=”mailto:info@progeriaresearch.org” button_text=”Contact Us” admin_label=”What Can You Do?” _builder_version=”4.16″ background_color=”#00b2e2″ max_width=”95%” z_index_tablet=”500″ global_colors_info=”{}”]<\/p>\n

Als iemand die u kent of een pati\u00ebnt die u behandelt Progeria-achtige kenmerken heeft, neem dan contact met ons op via\u00a0info@progeriaresearch.org<\/a>.<\/p>\n

[\/et_pb_cta][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|20px|30px|20px\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d||30px\u201d custom_padding_last_edited=\u201don|desktop\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dLees spannende campagne-updates\u201d _builder_version=\u201d4.24.3\u2033 z_index_tablet=\u201d500\u2033 box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Lees spannende campagne-updates<\/strong><\/h4>\n

Onze vorige campagnes \u201cFind the Other 150 \/ Find the Children\u201d (2009, 2015 en 2019) waren enorm succesvol. Bekijk de onderstaande links voor meer informatie.<\/p>\n

September 2019 \u2013 Campagne \u2018Vind de kinderen \u2013 60 in India met progeria\u2019 brengt de zoektocht naar kinderen met progeria in India weer op gang (The Week)<\/a><\/p>\n

November 2016 \u2013 'Finding the other 60', bewustwordingscampagne in India wint aan kracht (Hindustan Times)<\/a><\/p>\n

November 2012 \u2013 Het aantal ge\u00efdentificeerde kinderen blijft stijgen, nu we de 100 hebben bereikt<\/a><\/p>\n

Augustus 2011 \u2013 NHL-hockeyspelers van de Boston Bruins breiden ons bereik uit naar hun thuislanden<\/a><\/p>\n

 <\/p>\n

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Aanmelden<\/h2>\n

voor onze<\/h2>\n

Updates!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoneer nu\u201d admin_label=\u201dSamen vinden we de remedie!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201dop|bureaublad\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201dop|bureaublad\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dop|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201daan\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201daan\u201d]<\/p>\n

Samen, wij<\/h2>\n

ZULLEN<\/em><\/h2>\n

vind de remedie!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/03\/2026-footer-image-copy.png” title_text=”2026 footer image copy” _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”35px||||false|false” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

De campagne \u201cFind the Children\u201d is bedoeld om wereldwijd te zoeken naar niet-gediagnosticeerde kinderen met Progeria <\/p>","protected":false},"author":2,"featured_media":12087,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-8682","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nFind the Children | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"The \u201cFind the Children\u201d campaign is designed to search globally for the undiagnosed children with Progeria\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/nl\/find-the-children\/\" \/>\n<meta property=\"og:locale\" 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