Gefeliciteerd aan onze Amy Award-winnaars van 2024, Kevin Tierney en North Shore Bank!<\/span><\/b><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/Kevin-amy-award.png\")
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In 2024 reikte PRF de Amy Award uit aan de eerste combinatie van een individu en een bedrijf: North Shore Bank (NSB) en haar CEO Kevin Tierney.<\/p>\n
Kevin werd ge\u00eberd voor zijn eindeloze vrijgevigheid, toewijding, medeleven en algehele buitengewone steun aan PRF's missie, zowel persoonlijk als in zijn leiderschapscapaciteit bij NSB. De bank werd ook erkend voor hun diepe bedrijfsmatige toewijding aan PRF.<\/span><\/p>\nKevin en NSB zijn al meer dan 20 jaar trouwe en genereuze supporters van PRF, waaronder het sponsoren van elk lokaal speciaal PRF-evenement. Onder Kevins leiderschap heeft NSB alleen al in 2023 meer dan 200 goede doelen gesteund, plus vrijwilligerswerk van werknemers bij tientallen andere. NSB omarmt echt een diepgewortelde cultuur van het geven van hun tijd, talent en geld, het teruggeven aan de lokale gemeenschappen waarin ze actief zijn, en we danken hen in het bijzonder voor hun toewijding aan de Progeria-gemeenschap over de hele wereld.<\/p>\n
[\/et_pb_text][et_pb_text admin_label=\u201dRobyn en Tom Milbury\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dalles\u201d global_colors_info=\u201d{}\u201d]<\/p>\n
Robyn en Tom Milbury ontvangen de Amy Award 2022!<\/b><\/h4>\n
![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/05\/Robyn-and-Tom-1-150x150.jpg\")
In 2022 werd de Amy Award uitgereikt aan het eerste koppel: Robyn en Tom. Ze zijn al 25 jaar betrokken bij PRF en hebben onvermoeibaar en onbaatzuchtig hun tijd, talent en geld besteed aan het bevorderen van onze missie. Samen hebben ze in de loop der jaren 9 gala's, 3 golftoernooien, een dozijn races en vele andere zeer succesvolle evenementen georganiseerd - WOW! Ze inspireren nu de volgende generatie Milburys om zich bij hen aan te sluiten in hun eindeloze vrijgevigheid, toewijding en liefde voor deze buitengewone kinderen.<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dop|telefoon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d39.4375px|35px|35px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dJodi Mitchell\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dalles\u201d global_colors_info=\u201d{}\u201d]<\/p>\n
Jodi Mitchell is onze Amy Award-winnaar van 2018!<\/strong><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/05\/JMitchell-Amy-award-300x200.jpg\")
Jodi is sinds 2004 betrokken bij PRF, toen ze meedeed aan een van onze eerste wegwedstrijden. Daarna was ze verkocht. Sindsdien heeft ze een dozijn fondsenwervers georganiseerd bij Champions Pub en elders, het grootste team bijeengebracht om onze jaarlijkse Race for Research te runnen, de Falmouth Road Race gelopen met TEAM PRF, is ze regelmatig vrijwilliger op ons kantoor en zegt ze eigenlijk tegen ons: "Wat kan ik doen om te helpen?". Alles wat Jodi voor PRF doet, wordt gedaan met enthousiasme, vriendelijkheid en liefde, wat haar de perfecte keuze maakt voor de prijs van dit jaar.<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dop|telefoon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|35px|35px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dBob Morrison\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
Bob Morrison \u2013 die PRF al vanaf dag 1 steunt \u2013 is onze Amy Award-winnaar van 2016!\u00a0<\/strong><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Bob-M-2.jpg\")
Bob was een van de oprichters van het bestuur (hij zat van 1999 tot 2007 in de raad van bestuur van PRF). Hij bracht een slimme zakelijke visie mee naar het bestuur, waardoor PRF kon profiteren van zijn expertise. Een van zijn laatste stemmingen als bestuurslid was of hij de eerste klinische medicijnproef zou financieren - een historisch en bepalend moment voor PRF, omdat de proef een grote stap voorwaarts was in onze missie, maar we hadden op dat moment niet het geld om deze volledig te financieren. Er was een kort moment van stilte na de presentatie over de proef, terwijl we wachtten tot iemand een motie zou indienen en Bob zei: "Nou, is dit niet waarvoor we hier zijn? We moeten deze proef laten gebeuren." De stemming volgde onmiddellijk en was unaniem. Bob blijft zichzelf beschikbaar stellen om advies te geven over verschillende zakelijke kwesties en is er buitengewoon trots op PRF te steunen, en voegt er nederig aan toe dat hij blij is om "een kleine rol" te spelen. Voor zijn eindeloze vrijgevigheid, medeleven en bescheidenheid ontving hij de Amy Award 2016.<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dop|telefoon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|35px|35px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dKevin King\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
Kevin King \u2013 de winnaar van 2013 \u2013 Aandrijvingen<\/em>\u00a0de ondersteuning voor kinderen met progeria<\/strong><\/h4>\n![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/KevinChipZachon-car-2013-crop.jpg\")
<\/strong>Sinds 2005 steunen Kevin en zijn team bij YearOne, samen met Amy's broer Chip Foose, PRF via een jaarlijkse "Braselton Bash"-autoshow in Georgia. Het hele personeel werkt onvermoeibaar om een succesvol weekend te garanderen. Ze doen allemaal met plezier vrijwilligerswerk. Dit soort houding komt van bovenaf - van Kevin - die zich volledig inzet om kinderen met Progeria zoveel mogelijk te helpen, voor zover hij en YearOne dat kunnen. Het is een waar werk van liefde en hij voelt zich net zo vereerd om te kunnen helpen als wij ons voelen om hem in ons team te hebben. Kevin is een voorbeeld van het soort onvermoeibare toewijding dat zeker de weg vrij zal maken voor de genezing van Progeria.<\/p>\n[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dop|telefoon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|35px|35px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dMaura Smith\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
Maura Smith is de winnaar van de Amy Award 2011<\/strong><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/events_images\/Amy-Award-winner-and-family.jpg\")
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De ultieme vrijwilliger, Maura is een integraal onderdeel van elk Night of Wonder-comit\u00e9, heeft de PRF's Texas Hold 'Em-evenementen voorgezeten en helpt bij evenementen en kantoorwerk wanneer dat nodig is. Maar ze stopt daar niet: Maura heeft haar hele familie en tientallen vrienden gerekruteerd om ook kinderen met Progeria te ondersteunen. Haar aangename persoonlijkheid en vriendelijke aard maakten haar de perfecte keuze voor dit jaar!<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dop|telefoon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|35px|35px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dDebbie Ponn\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/DebbieBernsEdit2.jpg\")
We maken Debbie Ponn bekend als onze Amy Award-winnaar van 2009!<\/strong><\/h4>\nDebbie raakte voor het eerst betrokken bij PRF toen ze naar Night of Wonder (NOW) 2003 kwam als gast van trouwe supporters Robyn en Tom Milbury. Aan het einde van de avond benaderde ze de directeur van PRF, Audrey Gordon, en zei: "Als je ooit hulp nodig hebt met iets, bel me dan." Ze hadden geen idee hoeveel invloed dat aanbod zou hebben op het leven van kinderen met Progeria. Sindsdien was Debbie medevoorzitter van NOWs 2005, 2007 en 2011, was ze medeorganisator van het evenement in Chicago in juni 2009 en blijft ze PRF op veel andere manieren helpen. Ze is ALTIJD beschikbaar om te helpen, zoals Amy dat was voor haar vrienden en familie.<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dop|telefoon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|35px|35px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dJulie Pritchard\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
Gefeliciteerd Julie Pritchard, de winnaar van de Amy Award 2007!<\/strong><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/Rickers.jpg\")
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Julie is een grafisch ontwerper die zich sinds de oprichting in 1998 onvermoeibaar inzet voor PRF. Ze heeft de brochures, posters, t-shirts en vele andere uitingen van PRF ontworpen waarmee we onze boodschap kunnen overbrengen.<\/p>\n
"Wat ik het meest fascinerend vind aan Julie", zegt Leslie Gordon, die de prijs uitreikte op Night of Wonder 2007, "is dat, vanaf de eerste 1000 keer dat ze zei 'Oh, kan ik dat voor je doen?', haar filantropie echt een werk van liefde is geweest. Ze voelt zich net zo vereerd om te kunnen helpen als wij ons voelen om haar in ons team te hebben. Julie, jij bent wat Amy belichaamde - liefde, moed en het soort onvermoeibare toewijding dat zeker de genezing van Progeria zal bewerkstelligen."<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dop|telefoon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|35px|35px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dChip Foose en Kim Paratore\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d custom_margin=\u201d||50px\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
2005: Chip Foose en Kim Paratore ontvangen onze eerste Amy Award<\/strong><\/h4>\n![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/meet_kids_images\/ChipKim05.jpg\")
PRF en het Night of Wonder 2005 Committee reikten de eerste Amy Award uit aan onze eregast, Chip Foose, Amy's broer. Chip wordt snel niet alleen internationaal erkend in de autowereld, maar ook woordvoerder van PRF, waarbij hij de producer van zijn show "Overhaulin'" en vele anderen inschakelt om PRF te steunen.<\/p>\n
Chip zegt: "Mensen vragen me voortdurend hoe ik het volhoud met zo weinig rust en zo positief blijf. Ik antwoord ze door te zeggen: 'Ik heb mijn zus Amy zien gaan en gaan en gaan zonder ooit een klacht te horen. Zij is mijn constante inspiratie en kracht.'"<\/p>\n
Ook Kim Paratore, nu lid van PRF's Board of Directors, kreeg de Amy Award op de Night of Wonder van 2005. Kim is sinds de oprichting betrokken als PRF-vrijwilliger en heeft de eerste drie Night of Wonder-gala's en talloze andere PRF-fondsenwervende evenementen voorgezeten.<\/p>\n
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Winnaars worden gekozen door een commissie bestaande uit Amy's moeder Terry Foose, PRF's Executive Director en Medical Director, en eerdere prijswinnaars. Ze worden bekendgemaakt tijdens PRF's Night of Wonder Gala, dat elke 2 jaar wordt gehouden.<\/em><\/p>\n[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201duit\u201d global_colors_info=\u201d{}\u201d][et_pb_row_inner column_structure=\u201d1_3,1_3,1_3\u2033 disabled_on=\u201daan|aan|aan\u201d admin_label=\u201dRij\u201d _builder_version=\u201d4.21.0\u2033 _module_preset=\u201dstandaard\u201d min_height=\u201d277px\u201d custom_margin=\u201d|20px|30px||false|false\u201d custom_padding=\u201d0px|30px|0px||false|false\u201d disabled=\u201daan\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner type=\u201d1_3\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.21.0\u2033 _module_preset=\u201dstandaard\u201d global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/08\/Startbanner-1.png\u201d title_text=\u201dStartbanner\u201d url=\u201dhttps:\/\/www.gravoc.com\/\u201d align=\u201drechts\u201d _builder_version=\u201d4.21.0\u2033 _module_preset=\u201dstandaard\u201d custom_margin=\u201d|-50px||20px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_3\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.21.0\u2033 _module_preset=\u201dstandaard\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_3\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.21.0\u2033 _module_preset=\u201dstandaard\u201d global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/07\/RFRFinish.png\u201d title_text=\u201dRFRFinish\u201d _builder_version=\u201d4.21.0\u2033 _module_preset=\u201dstandaard\u201d custom_margin=\u201d|20px||-50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201det_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201dop|bureaublad\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201dop|bureaublad\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201daan\u201d width_unit=\u201duit\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dMeld u nu aan\u201d admin_label=\u201dMeld u aan voor de nieuwsbrief\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201daan|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201daan\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201daan\u201d]<\/p>\n
Aanmelden<\/h2>\nvoor onze<\/h2>\nNieuwsbrief!<\/h2>\n
[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoneer nu\u201d admin_label=\u201dSamen vinden we de remedie!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201dop|bureaublad\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201dop|bureaublad\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dop|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201daan\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201daan\u201d]<\/p>\n
Samen, wij<\/h2>\nZULLEN<\/em><\/h2>\nvind de remedie!<\/h2>\n
[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/08\/2024-strip-footer-strip-copy.png\u201d title_text=\u201d2024 strip footer strip copy\u201d _builder_version=\u201d4.27.0\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"
[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201duit|uit|uit\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.27.0\u2033 title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/About-Header.jpg\u201d background_position=\u201dcenter_left\u201d custom_padding=\u201d9vw||9vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201dop|bureaublad\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201dop|telefoon\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dachtergrondpositie: midden 18% !belangrijk;\u201d global_colors_info=\u201d{}\u201d] Winnaars van de SAM & Amy Award [\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 specialty=\u201don\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_2_tablet=\u201d|||0px\u201d padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201don|desktop\u201d module_class_1=\u201dsidebar-secondary-nav\u201d module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201daan\u201d parallax_method=\u201duit\u201d inner_width=\u201d100%\u201d inner_max_width=\u201d100%\u201d custom_padding=\u201d0|0px|54px|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d10px\u201d border_color_top=\u201d#8fd2ed\u201d use_custom_width=\u201daan\u201d width_unit=\u201duit\u201d [\u2026]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\t\t\t\t[vc_row][vc_column][vc_custom_heading text=\"Amy Award Winners\" font_container=\"tag:h1|text_align:center\" use_theme_fonts=\"yes\"][vc_column_text]\r\n
The Progeria Research Foundation Presents:\u00a0The Amy Award<\/h1>\r\n[caption id=\"\" align=\"alignright\" width=\"168\"]![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/meet_kids_images\/amy20.jpg\")
Amy Foose: 9\/12\/69 \u2013 12\/19\/85.[\/caption]\r\n\r\nThe Progeria Research Foundation announces the creation of The Amy Award. Dedicated to Amy Foose, whose sunny personality and love of life continue to inspire all those that knew her, this award is for the PRF supporter who meets the following criteria, of which Amy is most remembered for:\r\n<\/b>\r\n\r\n\u2022 A role model for how to live a life of joy and optimism;\r\n\u2022 A good friend, sibling, and daughter\/son;\r\n\u2022 A person with a sense of humor and positive attitude;\r\n\u2022 Someone who strives to make the most out of every situation and takes on challenges with grace, hope and determination; and\r\n\u2022 an individual who has applied the above qualities by tirelessly devoting time, talent and energy to advancing PRF's mission.[\/vc_column_text][vc_column_text]\r\n
Jodi Mitchell is our 2018 Amy Award recipient!<\/strong><\/p>\r\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/05\/JMitchell-Amy-award.jpg\")
Jodi has been involved with PRF since 2004 when she ran in one of our first road races.\u00a0 After that, she was hooked. Since then, she\u2019s organized a dozen fundraisers at Champions Pub and elsewhere, gotten the biggest team together to run our annual Race for Research, run the Falmouth Road Race on TEAM PRF, volunteers regularly at our office, and basically says to us, \u201cwhat can I do to help?\u201d.\u00a0 Everything Jodi does for PRF is done with enthusiasm, kindness, and love which makes her the perfect choice for this year\u2019s award.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space][vc_column_text]Bob Morrison \u2013 Supporting PRF Since Day 1 - is our\u00a02016 Amy Award winner!\u00a0![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/Bob-M-2.jpg\")
<\/strong>\r\n\r\nBob was a founding board member (serving on PRF\u2019s Board of Directors from 1999-2007). He brought a savvy business outlook to the board, giving PRF the benefit of his expertise. One of his last votes as a board member was whether or not to fund the first clinical drug trial \u2013 an historic and defining moment for PRF because the trial was a big step forward in our mission, but we didn\u2019t have the money to fully fund it at the time. There was a short moment of silence after the presentation on the trial, while we waited for someone to make a motion and Bob said \u201cWell, isn\u2019t this what we\u2019re here for? We\u2019ve got to make this trial happen.\u201d The vote immediately followed, and it was unanimous. Bob continues to make himself available to give advice on a variety of business matters, and is extremely proud to support PRF, humbly adding that he\u2019s glad to \u201cplay a small part\u201d in it. For his never-ending generosity, compassion and modesty, he received the 2016 Amy Award.\r\n\r\n\u00a0\r\n\r\n[\/vc_column_text][vc_empty_space][vc_row_inner][vc_column_inner][vc_column_text]\r\nKevin King \u2013 the 2013 winner - Drives<\/em> the Support for Children with Progeria<\/strong>\r\n\r\nSince 2005, Kevin and his team at YearOne, together with Amy\u2019s brother Chip Foose, have supported PRF through an annual \u201cBraselton Bash\u201d car show in Georgia. The entire staff works tirelessly to ensure a successful weekend. They all happily volunteer their time. This kind of attitude comes from the top \u2013 from Kevin \u2013 who is totally committed to helping children with Progeria as much as he and YearOne possibly can. It is a true labor of love, and he feels as honored to be able to help as we feel to have him on our team. Kevin exemplifies the kind of tireless dedication that will surely drive the cure for Progeria.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_empty_space][vc_row_inner][vc_column_inner][vc_column_text]\r\nMaura Smith is the 2011 Amy Award winner<\/strong>\r\n\r\n[caption id=\"\" align=\"alignright\" width=\"350\"] Maura Smith, with daughters Amanda and Holly, and husband Robert.[\/caption]\r\n\r\nThe ultimate volunteer, Maura has been an integral part of every Night of Wonder committee, chaired PRF\u2019s Texas Hold \u2018Em events, and assists with events and office work whenever needed. But she doesn\u2019t stop there: Maura has recruited her entire family and dozens of friends to support children with Progeria as well. Her pleasant personality and kind disposition made her the perfect choice for this year!\r\n\r\n[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]\r\n\r\n\r\nAnnouncing Debbie Ponn as our 2009 Amy Award winner!<\/strong><\/p>\r\nDebbie first became involved with PRF when she came to Night of Wonder (NOW) 2003 as the guest of long-time supporters Robyn and Tom M<\/p>\r\n
ilbury. At the end of the night, she approached PRF\u2019s director Audrey Gordon and said, \u201cIf you ever need help with anything, please call me\u201d. Little did either of them know how much that offer would affect the lives of children with Progeria. Since that time Debbie co-chaired NOWs 2005, 2007 and 2011, co-organized the Chicago event in June 2009, and continues to help PRF in many other ways. She is ALWAYS there to help, as Amy was for her friends and family.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space][vc_column_text]Congratulations to Julie Pritchard, the 2007 Amy Award winner!<\/strong>\r\n\r\n[caption id=\"\" align=\"alignright\" width=\"250\"] Julie (top row, 2nd from left) and five of her sisters are all smiles at the Night of Wonder 2007.[\/caption]\r\n\r\nJulie is a graphic designer who has been volunteering tirelessly for PRF since its inception in 1998. She created PRF\u2019s brochures, posters, t-shirts and many other pieces that allow us to reach out and deliver our message.\r\n\r\n\u201cThe thing I find most fascinating about Julie\u201d, says Leslie Gordon, who presented the award at Night of Wonder 2007, \u201cis that, from the first 1000 times that she said \u2018Oh, can I do that for you?\u2019, her philanthropy has truly been a labor of love. She feels as honored to be able to help as we feel to have her on our team. Julie, you are what Amy exemplified \u2013 love, courage, and the kind of tireless dedication that will surely drive the cure for Progeria.\u201d[\/vc_column_text][\/vc_column][vc_column][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]2005: Chip Foose and Kim Paratore receive our first Amy Award<\/strong>\r\n\r\nPRF and The Night of Wonder 2005 Committee presented the first Amy Award to our honored guest, Chip Foose, Amy\u2019s brother. Chip is fast becoming not only internationally recognized in the auto world, but also a\r\n\r\n\r\n\r\nspokesman for PRF, engaging the producer of his show \u201cOverhaulin\u2019\u201d and many others to support PRF.\r\n\r\nChip says, \u201cPeople constantly ask me how I keep going with so little rest and stay so positive. I answer them by saying, \u2018I watched my sister Amy go and go and go without ever hearing a single complaint. She is my constant inspiration and strength.\u2019\u201d\r\n\r\nAlso given the Amy Award at the 2005 Night of Wonder was Kim Paratore, now a member of PRF\u2019s Board of Directors. Kim has been involved as a PRF volunteer since its inception, having chaired the first three Night of Wonder galas, and numerous other PRF fundraising events.\r\n\r\n
\r\n\r\nWinners are chosen by a committee comprised of Amy\u2019s mother Terry Foose, PRF\u2019s Executive Director and Medical Director, and past awardees. They are announced at PRF\u2019s Night of Wonder Gala, held every 2 years.<\/em>[\/vc_column_text][\/vc_column][\/vc_row]\t\t","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-966","page","type-page","status-publish","hentry"],"yoast_head":"\nAmy Award | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"Amy Award Winners are for supporters that win the Amy Award dedicated to Amy Foose, whose sunny personality and love of life continue to inspire all those that knew her.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/nl\/amy-award-winners\/\" \/>\n<meta property=\"og:locale\" content=\"nl_NL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Amy Award | The Progeria Research Foundation\" \/>\n<meta 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![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Sammy-Basso-accepts-SAM-Award_cropped-171x300.jpg\")
PRF-ambassadeur Sammy Basso, die goede vrienden was met Sam Berns, kreeg een daverend staande ovatie toen hij de meest recente SAM-award in ontvangst nam. Sammy, een inwoner van Tezze sul Brenta, Itali\u00eb, kreeg op tweejarige leeftijd de diagnose Progeria en werd woordvoerder van de Sammy Basso Italian Association for Progeria (AIPro.SB) toen hij pas 10 jaar oud was. Hij was een van de eersten die meedeed aan de klinische proeven van PRF, waarbij hij het nu door de FDA goedgekeurde medicijn lonafarnib testte, de allereerste behandeling voor Progeria.<\/p>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/SamSammy-wine-2-300x180.jpg\")
![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/t_mathers_12-221x300.jpg\")
<\/p>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/JSeng-and-Sam-151x300.jpg\")
<\/p>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Monica-Sam-June07-v2-300x287.jpg\")
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Progeria Clinical Drug trial. Mark was directeur van Pediatric Medical Neuro-Oncology bij het Dana Farber Cancer Institute en leidde een lonafarnib-onderzoek voor jonge kankerpati\u00ebnten. Zijn uitgebreide ervaring met lonafarnib maakte hem de ideale leider van deze inspanning in samenwerking met PRF en Boston Children's Hospital, en toen hem werd gevraagd, zei deze ongelooflijk drukke persoon meteen "ja"!<\/p>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Sam-and-Francis-Collins-300x280.jpg\")
begin, werd hij goede vrienden met Sam Berns en zijn familie en speelde hij een cruciale rol in PRF's snelle vooruitgang. Toen hij directeur was van het National Human Genome Research Institute (NHGRI), leidde zijn lab de ontdekking van het Progeria-gen in 2003.<\/p>\n