{"id":12877,"date":"2022-11-15T11:20:35","date_gmt":"2022-11-15T16:20:35","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=12877"},"modified":"2026-04-13T16:57:30","modified_gmt":"2026-04-13T20:57:30","slug":"prfs-11th-international-scientific-workshop","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/nl\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/","title":{"rendered":"De 11e Internationale Wetenschappelijke Workshop van PRF was een succes!"},"content":{"rendered":"

[et_pb_section fb_built=”1″ fullwidth=”on” disabled_on=”off|off|off” _builder_version=”4.16″ border_width_bottom=”55px” border_color_bottom=”#29327a” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_fullwidth_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2021\/11\/2022-Banner-NewDates.jpg” title_text=”2022 Banner NewDates” _builder_version=”4.16″ custom_padding=”20px|||” z_index_tablet=”500″ global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|0px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_sidebar area=”et_pb_widget_area_24″ disabled_on=”on|on|off” admin_label=”Scientific meetings sidebar” module_class=”subpage-sidebars” _builder_version=”4.16″ text_orientation=”left” animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px|12px|false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

PRF's 2022 PRF Internationale Wetenschappelijke Workshop<\/strong> \u2013 Ras Progeria naar de genezing,<\/em> was een overweldigend succes, waarbij 124 geregistreerden uit 14 landen<\/strong>Vooraanstaande artsen, onderzoekers en families met Progeria kwamen in Boston, MA, bijeen om de nieuwste bevindingen in Progeria-onderzoek te delen en de weg vrij te maken voor toekomstige inspanningen om nieuwe behandelingen en de genezing voor kinderen en jongvolwassenen met Progeria te ontdekken.<\/p>\n

We hebben de openingsavond afgetrapt met onze allereerste panel gemodereerd door een volwassene met Progeria<\/strong>, 27-jarige Sammy Basso, uit Tezze sul Brenta, Itali\u00eb. Het panel bestond ook uit twee anderen die met Progeria leven, Meg en Carlos, die het publiek boeiden door de nieuwe en opwindende activiteiten te delen die ze het afgelopen jaar hebben ondernomen. Heel opwindend is dat Meg eerder is afgestudeerd, een maand na de workshop! De openingsavond omvatte ook een live zoom met kinderen over de hele wereld<\/strong>, gevolgd door een verrassing muzikale uitvoering door Dr. Francis Collins<\/strong>, Wetenschappelijk adviseur van de president van de VS en wiens lab de ontdekking van het Progeria-gen leidde. Dr. Collins bracht het publiek een serenade met verschillende populaire liedjes met aangepaste teksten over PRF's voortgang richting de remedie. Hoe bijzonder!<\/p>\n

Diepgaande vooruitgang en samenwerking als deze kunnen alleen plaatsvinden als een zeer betrokken wetenschappelijke gemeenschap samenkomt, zoals we dat hebben gedaan bij 11 internationale bijeenkomsten.<\/strong><\/p>\n

De liefde en passie om deze kinderen en jongvolwassenen te helpen, kwam in elke presentatie tot uiting en heeft al geresulteerd in vele samenwerkingen op internationaal niveau om aanvullende behandelingen en wegen naar genezing te onderzoeken.<\/p>\n

Wij zijn ontzettend blij dat we deze eerste nacht met jullie kunnen delen.<\/p>\n

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De tweede en derde dag van de workshop stonden in het teken van 28 mondelinge wetenschappelijke presentaties en 26 posters<\/strong>. We begonnen dag drie met een nieuwe toevoeging aan de workshop: de Sunrise Session, die junior onderzoekers in contact bracht met senior leiders in het veld in een kleine groep, wat een boeiende dialoog op gang bracht tussen de verschillende groepen onderzoekers.<\/p>\n

Een andere favoriet van de workshop werd teruggebracht door onze bliksemronde, die posterpresentatoren een platform gaf om hun collega's een dynamische teaser te geven van de posters die ze later die avond zouden presenteren. Deze presentaties belichtten de laatste ontwikkelingen in klinisch onderzoek naar Progeria, inclusief een diepgaande duik in de Transformatieve vooruitgang van RNA-therapie en genbewerking<\/strong> in preklinische studies, evenals een Cardiale sessie waarin interventiestrategie\u00ebn voor kritieke aortaklepstenose werden benadrukt<\/strong> bij jongvolwassenen met Progeria. De presentaties en posters gaven een gedetailleerd beeld van de voortgang met mogelijke Progeria-behandelingen en inspireerden toekomstige samenwerking tussen de onderzoeks- en medische gemeenschappen.<\/p>\n

Daarnaast maakten diverse deelnemers gebruik van de studiepunten voor permanente medische educatie (CME) die het CME-kantoor van Lifespan Rhode Island Hospital aanbiedt.<\/p>\n

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Hieronder volgen enkele voorbeelden van feedback op de workshop:<\/strong><\/p>\n

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\"\"<\/p>\n

\u201cGeweldige bijeenkomst. Ik vond woensdagavond fantastisch. Leslie gaf een geweldige lezing. Het was geweldig dat een progeriapati\u00ebnt het panel leidde. Panel is altijd een hoogtepunt. Bedankt dat je Francis hebt gevraagd om terug te komen zingen. Ik vind dat ook geweldig! De bijeenkomst was zo goed georganiseerd. Bedankt!\u201d<\/strong><\/p>\n

\u201cIk kijk altijd uit naar deze bijeenkomst. De [workshoplocatie] Royal Sonesta is een uitzonderlijke ruimte voor de bijeenkomst; elk aspect was perfect gepland!\u201d<\/strong><\/p>\n

\u201cElke keer zie ik verbetering\u2026 ga gewoon zo door! Het was erg indrukwekkend hoe de \u201cfamiliesfeer\u201d ervoor zorgde dat iedereen meer ontspannen was en meer op zijn gemak om te leren en vragen te stellen. Leuk en leerzaam, zo\u2019n geweldige injectie van hoop!\u201d<\/strong><\/p>\n

\u201cUitstekende conferentie met fenomenale sprekers!\u201d<\/strong><\/p>\n

\u201cZoals altijd, een geweldige workshop, die je niet mag missen!\u201d<\/strong><\/p>\n

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Sammy en Carlos praten voordat ze hun panelpresentatie geven<\/strong><\/p>\n

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Francis Collins, MD, PhD, zingt voor het publiek verschillende populaire liedjes<\/strong><\/p>\n

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Onderzoekers, clinici en Progeria-families van over de hele wereld kwamen bijeen op de 11e bijeenkomst van PRFe<\/sup> Internationale wetenschappelijke workshop.<\/strong><\/p>\n

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Het vrijwillige Medisch Onderzoekscomit\u00e9 kwam v\u00f3\u00f3r de conferentie bijeen om nieuwe en interessante subsidieaanvragen te beoordelen.<\/strong><\/p>\n

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Hartelijk dank aan onze sponsors:<\/h3>\n

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Hartelijk dank aan iedereen die aanwezig was bij de 11e internationale wetenschappelijke workshop van The Progeria Research Foundation \u2013 RACE Progeria to the Cure!<\/p>","protected":false},"author":2,"featured_media":13885,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-12877","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"\nPRF\u2019s 11th International Scientific Workshop | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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