{"id":17925,"date":"2023-10-23T08:29:01","date_gmt":"2023-10-23T12:29:01","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=17925"},"modified":"2025-02-15T17:43:00","modified_gmt":"2025-02-15T22:43:00","slug":"global-launch-pc","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/nl\/2023\/10\/23\/global-launch-pc\/","title":{"rendered":"Wereldwijde lancering van PRF&#039;s gloednieuwe platform voor familiebetrokkenheid, Progeria Connect!"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 admin_label=\u201dsection\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|||||\u201d global_colors_info=\u201d{}\u201d][et_pb_row admin_label=\u201drow\u201d _builder_version=\u201d4.16\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/Screenshot-2023-10-20-122807.png\u201d title_text=\u201dScreenshot 2023-10-20 122807\u2033 align=\u201dcenter\u201d _builder_version=\u201d4.22.1\u2033 _module_preset=\u201ddefault\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text _builder_version=\u201d4.22.1\u2033 _module_preset=\u201ddefault\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>In samenwerking met Sciensus lanceert de Progeria Research Foundation (PRF) officieel <em>Progeria-verbinding<\/em> naar onze <strong>volledige wereldwijde gemeenschap<\/strong> van families. We hebben dit platform gecre\u00eberd om onze kleine maar diverse gemeenschap te helpen persoonlijke connecties te maken, toegang te hebben tot het laatste onderzoeksnieuws en levenslange banden op te bouwen tijdens hun reis met Progeria.<\/p>\n<p><strong><span style=\"color: #800080;\"><em>Progeria-verbinding<\/em><\/span><\/strong> stelt u en uw gezin in staat om eenvoudig en veilig te communiceren met PRF en anderen over de hele wereld die mogelijk vergelijkbare ervaringen hebben, ongeacht uw taal of locatie.<\/p>\n<p><strong>Omdat dit een werkelijk priv\u00e9site is, nodigen wij alleen de volgende groepen uit om zich te registreren:<\/strong><\/p>\n<ul>\n<li>Ouders\/wettelijke voogden van personen met Progeria;<\/li>\n<li>Broers of zussen;<\/li>\n<li>Grootouders;<\/li>\n<\/ul>\n<p><strong>Voordelen van het platform zijn onder meer:<\/strong><\/p>\n<ul>\n<li>Priv\u00e9groepen om idee\u00ebn en verhalen te delen, waaronder tieners met progeria, jongvolwassenen van 18 jaar en ouder en ouders van kinderen met progeria;<\/li>\n<li>Regelmatige updates over klinische onderzoeken en de nieuwste onderzoeksresultaten;<\/li>\n<li>Priv\u00e9berichten naar andere leden van <em>Progeria-verbinding<\/em>;<\/li>\n<li>Informatie over evenementen en fondsenwervingen;<\/li>\n<li>Live Zoom-videochatfunctie, inclusief realtime testvertalingen voor meertalige gesprekken;<\/li>\n<li>Onze eigen <em>Progeria-verbinding<\/em> mobiele app \u2013 beschikbaar in zowel de App Store als de Google Store om onderweg contact te houden met uw community!<\/li>\n<\/ul>\n<p><strong>Registreer hier voor uw gratis account: <\/strong><a href=\"http:\/\/www.progeriaconnect.sciensus.com\"><strong>www.progeriaconnect.sciensus.com<\/strong><\/a><\/p>\n<p><em>Nadat u zich heeft geregistreerd, ontvangt u binnen 5 dagen bericht van ons, zodat wij uw account kunnen bevestigen voor dit exclusieve netwerk, uitsluitend voor families en verzorgers. <\/em><\/p>\n<p>[\/et_pb_text][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/Progeria-Connect-Launch-ph.1B-Flyer-791\u00d71024.jpg\u201d title_text=\u201dProgeria Connect Launch ph.1B Flyer\u201d align=\u201dcenter\u201d _builder_version=\u201d4.22.1\u2033 _module_preset=\u201ddefault\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Oproep aan alle families die getroffen zijn door Progeria! Het is tijd om verbinding te maken \u2013 om van elkaar en van PRF te leren, bronnen en ervaringen te delen en te floreren als een gemeenschap, ongeacht waar ter wereld je woont. <\/p>","protected":false},"author":2,"featured_media":17934,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-17925","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Progeria Connect | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/nl\/2023\/10\/23\/global-launch-pc\/\" \/>\n<meta property=\"og:locale\" content=\"nl_NL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Progeria Connect | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Calling all families impacted by Progeria! It\u2019s time to get connected \u2013 to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/nl\/2023\/10\/23\/global-launch-pc\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-10-23T12:29:01+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-15T22:43:00+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/PCpostteaser-copy.png\" \/>\n\t<meta property=\"og:image:width\" content=\"800\" \/>\n\t<meta property=\"og:image:height\" content=\"800\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" 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