{"id":2037,"date":"2012-09-24T12:11:18","date_gmt":"2012-09-24T12:11:18","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=2037"},"modified":"2020-12-11T11:41:51","modified_gmt":"2020-12-11T16:41:51","slug":"the-world-learns-of-progeria-treatment","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/nl\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/","title":{"rendered":"De wereld leert over de behandeling van progeria"},"content":{"rendered":"

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Het nieuws over de allereerste behandeling voor Progeria verspreidt zich over de hele wereld en tientallen media berichten over deze opmerkelijke vooruitgang. Klik hier<\/a> om de aankondiging te lezen en zie hieronder links naar tientallen artikelen, radiofragmenten en tv-uitzendingen!<\/p>\n

Klik hier<\/a> om onze speciale nieuwsbrief over de bevindingen te lezen. <\/b>Extra! Extra! Lees er alles over!<\/strong><\/p>\n

De fascinatie van het publiek voor Progeria en de relatie ervan met veroudering blijft toenemen, nu het nieuws over de eerste behandeling voor kinderen met Progeria zich verspreidt. Bekijk deze verhalen online en op de radio via topkanalen.\u00a0 Wees de eerste die op de hoogte is als er meer verhalen verschijnen<\/strong>: 'vind ons leuk' op Facebook<\/a>, volg ons op Twitter<\/a>, of Stuur ons uw e-mailadres<\/a>.<\/p>\n

\"\"

Devin uit Canada tijdens een bezoek in 2008 aan het Boston Children's Hospital voor het klinische medicijnonderzoek naar Progeria.<\/p><\/div>\n

Wat mensen zeggen\u2026<\/p>\n

\u201chet resultaat van een wetenschappelijke sprint<\/strong>\u201d \u2013 Robert Siegel, NPR<\/em><\/p>\n

\u201cEr is geweest een onverwachte beloning voor de rest van de mensheid<\/strong>\u2026sommigen\u2026zullen op zoek gaan naar manieren om deze nieuwe informatie te gebruiken om een reeks ziekten die met veroudering samenhangen af te wenden\u2026misschien is het meest opmerkelijke aan de nieuwe behandeling hoe snel deze is ontwikkeld.\u201d \u2013 Jon Hamilton, NPR<\/em><\/p>\n

\u201cNu hebben we niet alleen onze eerste behandeling, maar weten we voor het eerst dat Progeria verbeterd kan worden, en dit inspireert ons om harder en sneller te werken<\/strong> naar aanvullende behandelingen die in combinatie met Lonafarnib een verschil kunnen maken in de gezondheid van kinderen met Progeria.\u201d\u00a0 \u00a0<\/em>\u2013 Dr. Leslie Gordon, medisch directeur van PRF, CNN Health<\/em><\/p>\n

\u201cDe eerste keer dat iemand iets heeft gedaan dat op welke manier dan ook, veranderde de natuurlijke geschiedenis van deze ziekte<\/strong>."\u201d \u2013 Voorzitter van het Progeria-geneesmiddelenonderzoek Dr. Mark Kieran,<\/em> De Boston Globe<\/em><\/p>\n

\u201c[Deze resultaten] tonen de toewijding aan die ouders en non-profitorganisaties hebben in de gemeenschap van mensen met zeldzame ziekten om dingen gedaan te krijgen als alles verloren lijkt\u2026 deze studie is een geweldig voorbeeld<\/strong> over hoe een kleine non-profitorganisatie kan helpen om fundamenteel biomedisch en genetisch onderzoek te stimuleren en te vertalen naar een menselijke behandeling.\u201d \u2013 <\/em>James Radke PhD<\/em>, Rapport over zeldzame ziekten<\/em><\/p>\n

\u201cHet is enormHet is een wonder<\/strong>Devin heeft nieuwe hoop, dromen, zijn gezegde is: "Droom groot of ga naar huis" \u2013Jamie,<\/em> CNN Gezondheid<\/em><\/p>\n

\u201cHet voortdurende verhaal van Het overwinnen van Progeria is een glorieuze illustratie van de waarde van fundamenteel onderzoek bij het ontdekken hoe iets gebeurt <\/strong>\u2013 en dat is het hart en de ziel van de wetenschap.\u201d \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>\n

\"\"

Frannie Marmorstein van Spectrum Health houdt opgewonden de editie van 25 september 2012 van de Wall Street Journal vast, met het artikel met de onderzoeksresultaten boven de vouw op de voorpagina!<\/p><\/div>\n

Bekijk hier de volledige artikelen\u2026<\/strong><\/p>\n

\"\"<\/strong><\/p>\n

WBF 88.7 \u2013 NPR News \u2013 LUISTER naar Robert Siegel's \u201cAll Things Considered\u201d interview met PRF's medisch directeur en haar zoon Sam! (link niet langer beschikbaar)<\/strong><\/p>\n

\"\"<\/p>\n

KIJK naar het nieuwsverslag van Boston's lokale ABC-filiaal, WCVB-TV (link niet meer beschikbaar)<\/strong><\/p>\n

\"\"<\/p>\n

Wall Street Journal \u2013 Market Watch (link niet meer beschikbaar)<\/strong><\/p>\n

Eerst-<\/strong>Everbehandeling voor zeldzame kinderverouderingsziekte laat verbetering zien bij alle deelnemers aan het onderzoek (link niet meer beschikbaar)<\/strong><\/p>\n

Onderzoek naar zeldzame ziekte helpt bij zoektocht naar aanwijzingen over veroudering \/ Medicijn vertraagt schade bij kinderen die ook verband houdt met hartproblemen bij anderen<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

CNN Gezondheid<\/a><\/strong><\/p>\n

Vooruitgang in vroegtijdige verouderingsziekten bij kinderen<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

Nieuw onderzoek richt zich op snel verouderende kinderziekte (link niet meer beschikbaar) <\/strong><\/p>\n

\"\"
<\/strong>Wetenschap dagelijks: <\/a><\/strong>Medicijn oorspronkelijk ontwikkeld voor kanker blijkt effectief voor kinderen met progeria<\/strong><\/a><\/p>\n

\"\"
90.9 WBUR CommonHealth: <\/strong>Eerste behandeling gevonden voor snel verouderingsproces bij kinderen (link niet meer beschikbaar) <\/strong><\/p>\n\n\n\n
\n

Wij zijn het fantastische team van Spectrum<\/a> voor hun onvermoeibare inspanningen om het woord over Proger te verspreiden<\/strong>ia en PRF's <\/strong>werk.\u00a0<\/strong><\/p>\n

\u00a0<\/strong>\"\"<\/a><\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

\u00a0<\/strong>\u00a0<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to read the announcement, and see below for links on dozens of articles, radio […]<\/p>","protected":false},"author":1,"featured_media":2039,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"

News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here<\/a> to read the announcement, and see below for links on dozens of articles, radio clips and TV airings!<\/p>

Click here<\/a> to read our special newsletter on the findings. <\/b>Extra! Extra! Read All About It!<\/strong><\/p>

The public\u2019s fascination with Progeria and its relation to aging continues to rise, as word of the first treatment for children with Progeria spreads. Check out these stories on-line and on-air from top-tier outlets.\u00a0 Be the first to know as more stories appear<\/strong>: 'like' us on Facebook<\/a>, follow us on Twitter<\/a>, or send us your email address<\/a>.<\/p>[caption id=\"attachment_2038\" align=\"alignleft\" width=\"225\"]\"\" Devin from Canada during a 2008 visit to Boston Children\u2019s Hospital for the Progeria clinical drug trial.[\/caption]

What people are saying\u2026<\/p>

\u201cthe result of a scientific sprint<\/strong>\u201d \u2013 Robert Siegel, NPR<\/em><\/p>

\u201cThere\u2019s been an unexpected payoff for the rest of humanity<\/strong>...some\u2026will be looking for ways to use this new information to ward off a range of diseases associated with aging\u2026 perhaps the most remarkable thing about the new treatment is how fast it was developed.\u201d\u00a0 \u2013 Jon Hamilton, NPR<\/em><\/p>

\u201cNow, we not only have our first treatment, but we know for the first time that Progeria can be improved, and this inspires us to work harder and faster<\/strong> toward additional treatments that could work in conjunction with Lonafarnib to make a difference in the health of children with Progeria.\u201d\u00a0 \u00a0<\/em>- PRF\u2019s Medical Director Dr. Leslie Gordon, CNN Health<\/em><\/p>

\"The first time anyone has done anything that in any way, shape or form altered the natural history of this disease<\/strong>.\" \u2013 Progeria Drug trial Chair Dr. Mark Kieran,<\/em> The Boston Globe<\/em><\/p>

\"[These results] show the dedication parents and non-profits have in the rare disease community to get things done when all seems lost\u2026 this study is a great example<\/strong> of how a small non-profit can help stimulate and translate basic biomedical and genetic research into a human treatment.\" \u2013 <\/em>James Radke PhD<\/em>, Rare Disease Report<\/em><\/p>

\"It\u2019s huge, It\u2019s a miracle<\/strong>. Devin has new hope, dreams, his saying is, \u201cDream big or go home\u201d \u2013 Jamie,<\/em> CNN Health<\/em><\/p>

\u201cThe continuing story of conquering Progeria is a glorious illustration of the value of basic research in discovering how something happens <\/strong>\u2013 and that\u2019s the heart and soul of science.\u201d \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>[caption id=\"attachment_2039\" align=\"aligncenter\" width=\"432\"]\"\" Spectrum Health's Frannie Marmorstein excitedly holds the Sept. 25, 2012 edition of the Wall Street Journal, showing the trial results article above the fold on the front page![\/caption]

See complete articles here\u2026<\/strong><\/p>

\"\"<\/strong><\/p>

WBF 88.7 \u2013 NPR News \u2013<\/a>LISTEN<\/a> to Robert Siegel\u2019s \u201cAll Things Considered\u201d interview with PRF\u2019s Medical Director and her son Sam!<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

\u00a0<\/p>

WATCH the news report on Boston\u2019s local abc affiliate, WCVB-TV<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

Wall Street<\/a> Journal - Market Watch<\/a><\/strong><\/p>

First-<\/strong><\/a>Ever Treatment For Rare Childhood Aging Disease Shows Improvement In All Trial Participant<\/strong><\/a><\/p>

Study of Rare Disease Helps in Search for Clues on Aging \/\u00a0 Drug Slows Damage in Children That Also Is Linked to Heart Problems in Others<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

\u00a0<\/p>

CNN Health<\/a><\/strong><\/p>

Advances in kids' early aging disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

WCVB.com<\/a><\/strong><\/p>

New trial targets rapid-aging childhood disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

Science Daily<\/a><\/strong><\/p>

Drug Originally Developed for Cancer Proves Effective for Children With Progeria<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/p>

90.9 WBUR CommonHealth<\/a><\/strong><\/p>

First Treatment Found For Rapid-Aging Disease In Children<\/strong><\/a><\/p>

\u00a0<\/p>

\u00a0<\/p>

We are eternally grateful to the fantastic team at Spectrum<\/a> for their tireless efforts to spread the word about Proger<\/strong>ia and PRF\u2019s <\/strong>work.\u00a0<\/strong><\/p>

\u00a0<\/strong>\"\"<\/a><\/p><\/td><\/tr><\/tbody><\/table>

\u00a0<\/strong>\u00a0<\/strong><\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2037","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"\nThe World Learns of Progeria Treatment - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/nl\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\" \/>\n<meta property=\"og:locale\" content=\"nl_NL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The World Learns of Progeria Treatment - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. 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