{"id":8800,"date":"2019-09-30T16:22:23","date_gmt":"2019-09-30T16:22:23","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=8800"},"modified":"2020-12-13T17:44:07","modified_gmt":"2020-12-13T22:44:07","slug":"hot-off-the-press-prfs-2019-newsletter","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/nl\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/","title":{"rendered":"PRF Nieuwsbrief 2019"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dherhalen\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p>\n<h3>Lonafarnib Managed Access-programma gelanceerd!<\/h3>\n<p>Voor de meeste kinderen is deelname aan het onderzoek en reizen naar Boston niet langer nodig om deze behandeling te kunnen ondergaan.<\/p>\n<p><strong>Wij zijn verheugd om aan te kondigen <\/strong>dat het lonafarnib Managed Access Program (MAP) nu operationeel is. PRF en lonafarnib-fabrikant Eiger BioPharmaceuticals hebben samengewerkt om dit programma te cre\u00ebren. Het MAP stelt in aanmerking komende kinderen en jongvolwassenen met Progeria in staat om het medicijn lonafarnib te verkrijgen via hun lokale artsen in landen die het aanbieden van het MAP toestaan.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\">Bekijk hieronder de volledige PDF.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf&#8221; button_text=&#8221;Read More&#8221; button_alignment=&#8221;center&#8221; _builder_version=&#8221;4.6.5&#8243; _module_preset=&#8221;default&#8221; background_layout=&#8221;dark&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Ontvang spannende updates over onze voortgang in het afgelopen jaar, ontdek waarom we de bevolkingsgroep die we bedienen nu kinderen \u2013 en jongvolwassenen \u2013 met Progeria noemen, bekijk de mensen, de wetenschap en de gebeurtenissen die ons hebben gebracht waar we nu zijn, en VEEL MEER!<\/p>","protected":false},"author":2,"featured_media":8806,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p><img class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p><h3>Lonafarnib Managed Access Program Launched!<\/h3><p>Trial participation and travel to Boston no longer required for most children in order to access this treatment.<\/p><p><strong>We are thrilled to announce <\/strong>that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and lonafarnib manufacturer, Eiger BioPharmaceuticals, have worked together to create this Program. The MAP enables eligible children and young adults with Progeria to obtain the drug lonafarnib through their local physicians in countries that allow the MAP to be offered.<\/p><p>Read more by viewing the full PDF below.<\/p><p>[button link=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf\" type=\"big\" color=\"orange\" newwindow=\"yes\"] Read More[\/button]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-8800","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>PRF&#039;s 2019 Newsletter - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/nl\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/\" \/>\n<meta property=\"og:locale\" content=\"nl_NL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PRF&#039;s 2019 Newsletter - 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