Progeria Clinical
Care Handbook
Published by PRF and written by leading Progeria experts, the Clinical Care Handbook is a comprehensive guide for families and healthcare providers, covering everything from daily care and basic health facts to cardiovascular treatment, genetic counseling, and quality of life recommendations.
First published in 2010 and fully updated in 2019, the second edition reflects the latest findings from the global Progeria research community, including new guidance on cardiovascular, neurovascular, and endocrine care.
When citing this resource please include the following:
Source: The Progeria Clinical Care Handbook; A Guide for Families and Health Care Providers of Children with Progeria. Copyright 2019 by The Progeria Research Foundation. All rights reserved.
We will continue to update this handbook as new research emerges. For specific medical questions, contact us at [email protected] or (978) 535-2594.
The global reach of this handbook is made possible by an extraordinary network of volunteer translators, physicians, and advocates.
A special thanks to Dr. Muneaki Matsuo for organizing the translation of the 2nd Edition – Japanese Handbook; to Dr. Tadashi Satoh and medical staff of Pediatrics in Saga University for their help with the translation; and to Professor Kenji Ihara, Oita University, and Dr. Rika Kozaki, National Center for Child Health and Development, for proofreading.
Our sincere thanks to Dr. Daniel Tanure and Dr. Laura Cheib for the time and energy they devoted to the Portuguese translation of The Progeria Handbook – 2nd Edition.
We are grateful to Sammy Basso and the Associazione Italiana Progeria Sammy Basso for organizing and funding the Italian translation of The Progeria Clinical Care Handbook – 2nd Edition, and to Elise Treggia for the time and effort she devoted to the translation.
Many thanks to Jieun Lee, MD, PhD, and the staff at Inha University Hospital in Incheon, South Korea, who prepared the Korean translation with support from the Korea Ministry of Health and Welfare and the Korea Health Industry Development Institute.
Many thanks to Dr. Yulia Viktorovna Tikhonovich, MD, PhD, of the Sechenov Center for Maternal and Child Health, I.M. Sechenov First Moscow State Medical University, for her time, expertise, and dedication in preparing the Russian translation of The Progeria Clinical Care Handbook – 2nd Edition.
