Vision
Our vision is a world in which every child with Progeria is cured.
Mission
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.
Vision
Our vision is a world in which every child with Progeria is cured.
Mission
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.
Progeria is an ultra-rare, fatal, “rapid-aging” disease that afflicts children who, without the FDA-approved treatment lonafarnib, die of heart disease at an average age of 14.5 years. PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria, and is making phenomenal progress toward that goal.
News
We’re Hiring!
Join us in achieving our mission and exemplifying PRF’s core values, while making a difference in the lives of children and young adults living with Progeria around the world!
We did it – A decade of top Charity Navigator Ratings!
For the 10th straight year, PRF has earned the highest possible rating by the nation’s most trusted charity evaluator.
Global launch of PRF’s brand-new family engagement platform, Progeria Connect!
Calling all families impacted by Progeria! It’s time to get connected – to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.
EXCITING NEWS – Sam Berns’ TEDx Talk Hits 100 Million Cross-Platform Views!
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times!
PRF co-founder serves as thought leader in rare disease drug development
Hear PRF co-founder and Medical Director, Dr. Leslie Gordon, along with long-time colleague Dr. Francis Collins, share their journey in rare disease drug development for NORD educational series.
Get Involved
Our lonafarnib clinical trials enrolled 100 children from 40 different countries to test this now-FDA-approved treatment. Because of your support, these children and young adults are living longer, healthier lives.
About PRF
Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.
Meet the Kids
We hope their stories inspire you to support PRF, so those dreams can come true.
Events
April 15, 2024, Team PRF Boston Marathon!
PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program.
Our 2024 team of 10 is now full, but runners, please keep us in mind for 2025!
Team PRF Runs the Falmouth Road Race
August 18, 2024, Falmouth, MA
Details coming soon!
PRF’s 23rd Annual International Race for Research
September 14, 2024, Peabody, MA
Details coming soon!
April 15, 2024, Team PRF Boston Marathon!
PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program.
Our 2024 team of 10 is now full, but runners, please keep us in mind for 2025!
Team PRF Runs the Falmouth Road Race
August 18, 2024, Falmouth, MA
Details coming soon!
PRF’s 23rd Annual International Race for Research
September 14, 2024, Peabody, MA
Details coming soon!