{"id":11093,"date":"2020-09-11T10:37:15","date_gmt":"2020-09-11T14:37:15","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=11093"},"modified":"2023-06-21T11:30:15","modified_gmt":"2023-06-21T15:30:15","slug":"prf-family-quotes","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/pt\/prf-family-quotes\/","title":{"rendered":"Cita\u00e7\u00f5es da fam\u00edlia PRF"},"content":{"rendered":"

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Cita\u00e7\u00f5es da fam\u00edlia PRF<\/h1>\n

[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201don\u201d parallax_method=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row _builder_version=\u201d4.16\u2033 custom_margin=\u201d0px||0px||false|false\u201d custom_padding=\u201d0px||0px||false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_text _builder_version=\u201d4.16\u2033 text_font_size=\u201d20px\u201d header_3_text_align=\u201ddireita\u201d vertical_offset_tablet=\u201d0\u2033 horizontal_offset_tablet=\u201d0\u2033 text_orientation=\u201ddireita\u201d z_index_tablet=\u201d500\u2033 text_text_shadow_horizontal_length_tablet=\u201d0px\u201d text_text_shadow_vertical_length_tablet=\u201d0px\u201d text_text_shadow_blur_strength_tablet=\u201d1px\u201d link_text_shadow_horizontal_length_tablet=\u201d0px\u201d link_text_shadow_vertical_length_tablet=\u201d0px\u201d link_text_shadow_blur_strength_tablet=\u201d1px\u201d ul_text_shadow_horizontal_length_tablet=\u201d0px\u201d ul_text_shadow_vertical_length_tablet=\u201d0px\u201d ul_text_shadow_blur_strength_tablet=\u201d1px\u201d ol_text_shadow_horizontal_length_tablet=\u201d0px\u201d ol_text_shadow_vertical_length_tablet=\u201d0px\u201d ol_text_shadow_blur_strength_tablet=\u201d1px\u201d quote_text_shadow_horizontal_length_tablet=\u201d0px\u201d quote_text_shadow_vertical_length_tablet=\u201d0px\u201d quote_text_shadow_blur_strength_tablet=\u201d1px\u201d header_text_shadow_horizontal_length_tablet=\u201d0px\u201d header_text_shadow_vertical_length_tablet=\u201d0px\u201d header_text_shadow_blur_strength_tablet=\u201d1px\u201d cabe\u00e7alho_2_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d cabe\u00e7alho_2_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d cabe\u00e7alho_2_texto_sombra_for\u00e7a_desfocada_tablet=\u201d1px\u201d cabe\u00e7alho_3_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d cabe\u00e7alho_3_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d cabe\u00e7alho_3_texto_sombra_comprimento_vertical_tablet=\u201d1px\u201d cabe\u00e7alho_4_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d cabe\u00e7alho_4_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d cabe\u00e7alho_4_texto_sombra_for\u00e7a_desfocada_tablet=\u201d1px\u201d cabe\u00e7alho_5_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d cabe\u00e7alho_5_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d cabe\u00e7alho_5_texto_sombra_desfoque_for\u00e7a_tablet=\u201d1px\u201d cabe\u00e7alho_6_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d cabe\u00e7alho_6_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d cabe\u00e7alho_6_texto_sombra_desfoque_for\u00e7a_tablet=\u201d1px\u201d caixa_sombra_horizontal_tablet=\u201d0px\u201d caixa_sombra_vertical_tablet=\u201d0px\u201d caixa_sombra_desfoque_tablet=\u201d40px\u201d caixa_sombra_espalhada_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Algumas palavras sobre a PRF das fam\u00edlias da nossa comunidade<\/strong><\/span><\/h3>\n

Perguntamos aos pais o que o PRF significou para eles e ficamos impressionados com as respostas! <\/strong><\/span><\/p>\n

\u00c9 por isso que fazemos o que fazemos<\/em>.<\/strong><\/span><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_sidebar area=\u201det_pb_widget_area_12\u2033 disabled_on=\u201don|on|off\u201d admin_label=\u201dConhe\u00e7a as crian\u00e7as barra lateral\u201d module_class=\u201dsubpage-sidebars sidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 animation_style=\u201dfade\u201d z_index_tablet=\u201d500\u2033 border_width_right=\u201d5px\u201d locked=\u201doff\u201d global_colors_info=\u201d{}\u201d] [\/et_pb_sidebar][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/08\/zach-and-tina.png\u201d title_text=\u201dzach-and-tina\u201d admin_label=\u201dZach e Tina 2\u2033 _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d|0px|10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dLegenda Z&T\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]Zach e sua m\u00e3e, Tina; EUA<\/strong> [\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o de Zach e Tina\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u201cConectar-se com a PRF nos encheu de tanto al\u00edvio \u2013 havia algu\u00e9m l\u00e1 que se importava com meu filho, que estava lutando por uma cura. Eles nos d\u00e3o paz de esp\u00edrito, sabendo que h\u00e1 pesquisadores de classe mundial do nosso lado, trabalhando para curar essa doen\u00e7a fatal. Sou muito grata \u00e0 PRF por lutar por Zach todos os dias e por tornar o futuro de Zach e da nossa fam\u00edlia mais brilhante.\u201d<\/p>\n

\u2013 Tina, m\u00e3e de Zach<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Enzo-and-family.png\u201d title_text=\u201dEnzo-and-family\u201d admin_label=\u201dEnzo e fam\u00edlia\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dLegenda Z&T\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margem_personalizada=\u201d0px||||falso|falso\u201d preenchimento_personalizado=\u201d0px|||10px|falso|falso\u201d informa\u00e7\u00f5es_de_cores_global=\u201d{}\u201d]<\/p>\n

Enzo e seus pais; Austr\u00e1lia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o de Enzo e Catherina\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cTemos muita sorte de ter a The Progeria Research Foundation \u2013 eles nos d\u00e3o esperan\u00e7a\u2026 obrigado a todas as pessoas que nos apoiam, tornando nossa jornada com a Progeria mais leve.\u201d<\/p>\n

\u2013 Catherina, m\u00e3e de Enzo<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Cam-and-Stephanie-OP-2020.png\u201d title_text=\u201dCam-and-Stephanie-OP-2020\u2033 admin_label=\u201dCam e m\u00e3e\u201d _builder_version=\u201d4.16\u2033 width=\u201d80%\u201d custom_padding=\u201d|20px||10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dLegenda de Cam e m\u00e3e\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margem_personalizada=\u201d0px||||falso|falso\u201d preenchimento_personalizado=\u201d0px|||10px|falso|falso\u201d informa\u00e7\u00f5es_de_cores_global=\u201d{}\u201d]<\/p>\n

Cam e sua m\u00e3e; EUA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o de Cam e Stephanie\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||50px||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u201cN\u00e3o sei como agradecer por tudo o que voc\u00ea faz e fez pelas fam\u00edlias de Progeria. Frequentemente digo \u00e0s pessoas que n\u00e3o conhecem a PRF o qu\u00e3o sortudos somos por ter voc\u00ea ajudando nossas crian\u00e7as. Por favor, saiba que voc\u00ea fez uma grande diferen\u00e7a em nossas vidas.\u201d<\/p>\n

\u2013 Stephanie, m\u00e3e de Cam<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Meghan-and-family.png\u201d title_text=\u201dMeghan-and-family\u201d admin_label=\u201dMeghan e seus pais\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dLegenda de Meghan e seus pais\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margem_personalizada=\u201d0px||||falso|falso\u201d preenchimento_personalizado=\u201d0px|||10px|falso|falso\u201d hover_enabled=\u201d0\u2033 global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n

Meghan e seus pais; EUA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o de Meghan e Bill\u201d _builder_version=\u201d4.21.0\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d hover_enabled=\u201d0\u2033 global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d sticky_enabled=\u201d0\u2033 largura__hover=\u201d100%\u201d]<\/p>\n

"Quando descobrimos que Meghan tinha Progeria (aos 2 anos), a expectativa m\u00e9dia de vida era de 13 anos... achamos que 13 anos era muito tempo, e chegou t\u00e3o r\u00e1pido! E agora ela tem 19 anos, ela \u00e9 saud\u00e1vel, ela \u00e9 forte, ela coloca sua mente no que ela quer realizar em sua vida e ela simplesmente vai em frente.<\/p>\n

Quando encontramos a The Progeria Research Foundation, tive um momento extremo de al\u00edvio, confortado pelo fato de que havia algu\u00e9m do nosso lado trabalhando neste problema. Eles abordam a solu\u00e7\u00e3o do problema com tanta excel\u00eancia que sei que juntos VAMOS encontrar a cura!\u201d<\/p>\n

\u2013 Bill, pai de Meghan, 2021<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Terry-and-Zach.png\u201d title_text=\u201dTerry-and-Zach\u201d admin_label=\u201dZach e seu amigo, Terry\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZach e seu amigo, Terry caption\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margem_personalizada=\u201d0px||||falso|falso\u201d preenchimento_personalizado=\u201d0px|||10px|falso|falso\u201d informa\u00e7\u00f5es_de_cores_global=\u201d{}\u201d]<\/p>\n

Zach e seu amigo, Terry; EUA <\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o de Zach e Terry\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cEmbora eu desejasse que a PRF existisse para minha filha Amy, que faleceu em 1985, fui aben\u00e7oado por t\u00ea-la, e \u00e9 uma b\u00ean\u00e7\u00e3o que a PRF esteja aqui agora para as crian\u00e7as e seus pais.\u201d<\/p>\n

\u2013 Terry, m\u00e3e de Amy<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Erin-and-Brennan-1.png\u201d title_text=\u201dErin-and-Brennan-(1)\u201d admin_label=\u201dErin e Brennan\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dBrennen e sua m\u00e3e; EUA\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Brennen e sua m\u00e3e; EUA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o de Brennan e Erin\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cA PRF nos aben\u00e7oou com o presente da esperan\u00e7a em nossa luta para encontrar uma cura para a Progeria. Quando Brennen foi diagnosticado pela primeira vez, est\u00e1vamos perdidos e perturbados, sem saber para onde ir em seguida, mas a equipe atenciosa e as fam\u00edlias amorosas que conhecemos por meio da PRF ficaram ao nosso lado em cada passo do caminho. N\u00f3s realmente ganhamos uma fam\u00edlia da comunidade Progeria.\u201d<\/p>\n

\u2013 Erin, m\u00e3e de Brennen<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Alexandra-parents.png\u201d title_text=\u201dAlexandra\u2013pais\u201d admin_label=\u201dAlexandra e seus pais\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d||0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAlexandra e seus pais; Espanha\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Alexandra e seus pais; Espanha<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o de Zach e Tina\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cSomos eternamente gratos \u00e0 PRF por nos dar a luz e a esperan\u00e7a de que precis\u00e1vamos quando percebemos que nossa filha de 2 anos, Alexandra, era o \u00fanico caso de Progeria na Espanha. A maravilhosa equipe da PRF e sua rede de profissionais incr\u00edveis nos receberam de bra\u00e7os abertos \u2013 eles nos deram todo seu amor e apoio e nos acompanharam nesta dif\u00edcil jornada, incluindo Alexandra em seus ensaios cl\u00ednicos, nos dando diretrizes para melhorar sua qualidade de vida e investigando sem descanso para encontrar uma cura para nossa filha. Para aqueles que apoiaram a PRF ao longo do caminho, agradecemos muito sua colabora\u00e7\u00e3o com a PRF para que Alexandra e seus colegas tenham um futuro brilhante.\u201d<\/p>\n

\u2013 Cedric, pai de Alexandra<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/kaylee-17th-bday-1.png\u201d title_text=\u201dkaylee-17th-bday-(1)\u201d admin_label=\u201dKaylee comemora seu 17\u00ba anivers\u00e1rio\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dKaylee comemora seu 17\u00ba anivers\u00e1rio; EUA\u201d _builder_version=\u201d4.21.0\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d hover_enabled=\u201d0\u2033 global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n

Kaylee comemora seus 17 anoso<\/sup> anivers\u00e1rio em 2021; EUA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dMarla, cita\u00e7\u00e3o da m\u00e3e de Kaylee\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cPara mim, a Progeria Research Foundation significa esperan\u00e7a e apoio. \u00c9 assustador lidar com uma doen\u00e7a rara, e sei que se eu tiver alguma d\u00favida, eles far\u00e3o o melhor para ajudar. Eles tamb\u00e9m ajudaram pais com Progeria a se conectarem para compartilhar suas experi\u00eancias. Sei que eles est\u00e3o trabalhando duro para encontrar novos tratamentos e uma cura, e n\u00e3o consigo imaginar a vida sem a Progeria Research Foundation.\u201d<\/p>\n

\u2013 Marla, m\u00e3e de Kaylee<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/shreyash-3.png\u201d title_text=\u201dshreyash-3\u2033 admin_label=\u201dShreyash e sua fam\u00edlia; \u00cdndia\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dShreyash e sua fam\u00edlia;\u00cdndia\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Shreyash e sua fam\u00edlia; \u00cdndia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dArvind, cita\u00e7\u00e3o do pai de Shreyash\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cEm 2017, soubemos sobre a PRF e que nosso filho, Shreyash, poderia ser tratado. A PRF veio como um raio de esperan\u00e7a e nos apoiou de muitas maneiras. Eles consideraram cada detalhe durante nossa viagem a Boston para que estiv\u00e9ssemos confort\u00e1veis, incluindo acomoda\u00e7\u00f5es e viagens, al\u00e9m de cobrir nossa viagem de volta \u00e0 \u00cdndia. Por causa da PRF, temos esperan\u00e7a. Al\u00e9m disso, o amor que Shreyash recebe da PRF \u00e9 impec\u00e1vel. Acho que ningu\u00e9m nunca fez tanto.\u201d<\/p>\n

\u2013 Arvind, pai de Shreyash<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zoey-family-.png\u201d title_text=\u201dZoey-family-\u201d admin_label=\u201dZoey e seus pais; EUA\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZoey e seus pais; EUA\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Zoey e seus pais; EUA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dLaura, cita\u00e7\u00e3o da m\u00e3e de Zoey\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cA PRF \u00e9 nossa t\u00e1bua de salva\u00e7\u00e3o\u2026 uma fam\u00edlia\u2026 nossa esperan\u00e7a de que coisas incr\u00edveis venham.\u201d<\/p>\n

\u2013 Laura, m\u00e3e de Zoey<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Nathan-Bennett-and-fam.png\u201d title_text=\u201dNathan-&-Bennett-and-fam\u201d admin_label=\u201dNathan e Bennett e fam\u00edlia; EUA\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dNathan, Bennett e fam\u00edlia; EUA\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Nathan, Bennett e fam\u00edlia; EUA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dLaura, cita\u00e7\u00e3o da m\u00e3e de Zoey\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cQueremos o mesmo que todos os outros \u2013 queremos que nossos meninos cres\u00e7am\u2026 A PRF \u00e9 nossa esperan\u00e7a e nos mant\u00e9m firmes.\u201d\u00a0<\/p>\n

\u2013 Phyllis (m\u00e3e de Nathan e Bennett)<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Aahan.png\u201d title_text=\u201dAahan\u201d admin_label=\u201dAahan e seus pais; \u00cdndia\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAahan e seus pais;\u00cdndia\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Aahan e seus pais; \u00cdndia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dManish Maheshwari, pai de Aahan\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d largura__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cA Progeria Research Foundation e sua equipe cl\u00ednica est\u00e3o fazendo um trabalho fant\u00e1stico e t\u00eam um \u00f3timo senso de servi\u00e7o. Eles fizeram muito por n\u00f3s e estendemos nossa sincera gratid\u00e3o e os melhores desejos a eles.\u201d<\/p>\n

\u2013 Manish Maheshwari, pai de Aahan<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Prachi-2.png\u201d title_text=\u201dPrachi-2\u2033 admin_label=\u201dPrachi e seu pai, \u00cdndia\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dPrachi e seu pai; \u00cdndia\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margem_personalizada=\u201d0px||||falso|falso\u201d preenchimento_personalizado=\u201d0px|||10px|falso|falso\u201d informa\u00e7\u00f5es_de_cores_global=\u201d{}\u201d]<\/p>\n

Prachi e seu pai; \u00cdndia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dBikash, cita\u00e7\u00e3o do pai de Prachi\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cDepois de visitar Mumbai para o check-up de Prachi inicialmente, primeiro aprendemos sobre a Progeria e ficamos preocupados. Mas aquela liga\u00e7\u00e3o oportuna da PRF nos ajudou a ficar em paz. Quando visitamos Boston (para o teste cl\u00ednico de Prachi), percebemos o trabalho fenomenal feito pela PRF, que ao longo dos anos se tornou um forte sistema de apoio para n\u00f3s. Sou grato a eles e espero v\u00ea-los realizar todos os sonhos de Prachi.\u201d\u00a0<\/p>\n

\u2013 Bikash, pai de Prachi<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Sammy-and-parents.gif\u201d title_text=\u201dSammy-and-parents\u201d admin_label=\u201dSammy e seus pais, It\u00e1lia\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dSammy e seus pais; It\u00e1lia\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d margem_personalizada=\u201d0px||||falso|falso\u201d preenchimento_personalizado=\u201d0px|||10px|falso|falso\u201d informa\u00e7\u00f5es_de_cores_global=\u201d{}\u201d]<\/p>\n

Sammy e seus pais; It\u00e1lia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dAmerigo e Laura, cita\u00e7\u00e3o do pai e da m\u00e3e de Sammy\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d largura__hover=\u201d100%\u201d]<\/p>\n

<\/div>\n
\u201cQuando os m\u00e9dicos diagnosticaram Sammy com Progeria, n\u00e3o sab\u00edamos nada sobre essa doen\u00e7a, ent\u00e3o pesquisamos online e encontramos PRF. Conhecemos Audrey Gordon em 2000, junto com Leslie, Scott e Sam, e nos tornamos amigos rapidamente. Em 2006, eles convidaram Sammy para testes cl\u00ednicos de Progeria, seguidos pelo primeiro teste cl\u00ednico de Progeria. Foi como se uma porta, cheia de esperan\u00e7a, estivesse se abrindo para n\u00f3s\u2026<\/div>\n
<\/div>\n
A PRF fez e est\u00e1 fazendo coisas excepcionais. Sab\u00edamos desde o come\u00e7o que eles colocavam o cora\u00e7\u00e3o e a alma para ajudar todos os adolescentes e crian\u00e7as com essa doen\u00e7a. N\u00f3s imediatamente ganhamos uma \u00f3tima fam\u00edlia.<\/div>\n
<\/div>\n
Para n\u00f3s, a PRF \u00e9 uma t\u00e1bua de salva\u00e7\u00e3o\u2026 A PRF nos d\u00e1 muita esperan\u00e7a. Quando viemos para Boston, nos sentimos seguros, n\u00e3o temos medo dos ensaios cl\u00ednicos, nem dos novos medicamentos\u2026 porque sabemos que eles est\u00e3o trabalhando tamb\u00e9m com seus pr\u00f3prios cora\u00e7\u00f5es, e isso \u00e9 muito importante para n\u00f3s!<\/div>\n
<\/div>\n
-Amerigo e Laura, pai e m\u00e3e de Sammy<\/strong><\/div>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zein-com-sua-mae.png\u201d title_text=\u201dZein-com-sua-mae\u201d admin_label=\u201dZein e sua m\u00e3e; Egito\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dZein e sua m\u00e3e; Egito\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Zein e sua m\u00e3e; Egito<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o da m\u00e3e de Dina, Zein\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cN\u00e3o consigo encontrar palavras para descrever o qu\u00e3o feliz me senti durante esta viagem [a Boston, para o tratamento de lonafarnib de Zein], com o encorajamento e a esperan\u00e7a de cada pessoa que conheci. Agrade\u00e7o por nos dar o poder de lutar contra a Prog\u00e9ria.\u201d<\/p>\n

\u2013 Dina, m\u00e3e de Zein<\/strong><\/p>\n

 <\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 make_equal=\u201don\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d2560px\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 module_class=\u201dsidebar-secondary-nav\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/aaditya.png\u201d title_text=\u201daaditya\u201d admin_label=\u201dAaditya e sua fam\u00edlia; \u00cdndia\u201d _builder_version=\u201d4.16\u2033 width=\u201d75%\u201d custom_margin=\u201d||10px||false|false\u201d custom_padding=\u201d|0px|0px|10px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text admin_label=\u201dAaditya e sua fam\u00edlia;\u00cdndia\u201d _builder_version=\u201d4.16\u2033 text_font_size=\u201d12px\u201d custom_margin=\u201d0px||||false|false\u201d custom_padding=\u201d0px|||10px|false|false\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Aaditya e sua fam\u00edlia; \u00cdndia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|50px||0px|false|false\u201d global_colors_info=\u201d{}\u201d][et_pb_testimonial admin_label=\u201dCita\u00e7\u00e3o da m\u00e3e de Dina, Zein\u201d _builder_version=\u201d4.16\u2033 width=\u201d100%\u201d max_width=\u201d100%\u201d module_alignment=\u201dright\u201d custom_margin=\u201d||||false|false\u201d custom_padding=\u201d50px||||false|false\u201d global_colors_info=\u201d{}\u201d width__hover_enabled=\u201don|desktop\u201d width__hover=\u201d100%\u201d]<\/p>\n

\u00a0\u201cSoubemos que Aaditya tinha Progeria em 2014. A Progeria Research Foundation foi uma b\u00ean\u00e7\u00e3o ao entrar em nossa vida. Com a ajuda deles, conseguimos fornecer com sucesso ao nosso filho assist\u00eancia m\u00e9dica que nunca ter\u00edamos conhecido. Nos \u00faltimos anos, o apoio da PRF o ajudou f\u00edsica e emocionalmente. Somos muito gratos a eles. Meu filho, Aaditya, continua falando sobre sua viagem e carrega boas lembran\u00e7as dos EUA.\u201d<\/p>\n

\u2013 Uttam, pai de Aaditya<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dInscreva-se agora\u201d admin_label=\u201dInscreva-se para receber o boletim informativo\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dligado|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201dligado\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201dligado\u201d]<\/p>\n

Inscrever-se<\/h2>\n

para o nosso<\/h2>\n

Boletim informativo!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoe agora\u201d admin_label=\u201dJuntos, encontraremos a cura!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bot\u00e3o_bg_color__hover=\u201d#8fd2ed\u201d bot\u00e3o_border_color__hover_enabled=\u201don\u201d]<\/p>\n

Juntos, n\u00f3s<\/h2>\n

VAI<\/em><\/h2>\n

encontre a cura!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column tipo=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/11\/footerstrip2022-1200-\u00d7-300-px-1.png\u201d title_text=\u201dfooterstrip2022 (1200 \u00d7 300 px) (1)\u201d _builder_version=\u201d4.18.1\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

Algumas palavras sobre a PRF das fam\u00edlias da nossa comunidadePerguntamos aos pais o que a PRF significou para eles e ficamos impressionados com as respostas!<\/p>","protected":false},"author":1,"featured_media":12103,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-11093","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nPRF Family Quotes | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"A few words on PRF from the families in our communityWe asked parents what PRF has meant to them, and were overwhelmed by their responses!\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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