Em outubro de 2025, 118<\/strong> m\u00e9dicos, cientistas e defensores de 12<\/strong> Diversos pa\u00edses se reuniram em Boston para o 12\u00ba Workshop Cient\u00edfico Internacional da Funda\u00e7\u00e3o de Pesquisa da Progeria \u2014 dois dias e meio de ci\u00eancia inovadora, fortes conex\u00f5es humanas e um renovado compromisso com a busca da cura.<\/p>\n A ci\u00eancia encontra a humanidade<\/strong> O workshop come\u00e7ou com um feito hist\u00f3rico: um painel de pacientes composto inteiramente por jovens adultos que vivem com Progeria. Merlin, Kaylee, Amber e Michiel compartilharam experi\u00eancias valiosas sobre a participa\u00e7\u00e3o em ensaios cl\u00ednicos e sobre como lidar com a Progeria desde a inf\u00e2ncia at\u00e9 a vida adulta. A conversa franca entre eles cativou a aten\u00e7\u00e3o, emocionou e inspirou todos os presentes. Os participantes tamb\u00e9m se emocionaram com uma homenagem a Sammy Basso, paciente e defensor da causa, cujas palavras foram compartilhadas em um filme criado por seu melhor amigo, Riccardo. A noite terminou com uma apresenta\u00e7\u00e3o musical do Dr. Francis Collins, ex-diretor do NIH e colaborador de 20 anos na pesquisa sobre Progeria.<\/p>\n [\/et_pb_text][et_pb_button button_url=”https:\/\/youtu.be\/ImBKc6uCnk8″ button_text=”View the the panel discussion and musical performance here” _builder_version=”4.27.5″ _module_preset=”default” button_text_size=”18px” button_bg_color=”#00B2E2″ button_border_color=”#8FD2ED” background_layout=”dark” global_colors_info=”{}”][\/et_pb_button][et_pb_text disabled_on=”off|off|off” admin_label=”cutting edge” _builder_version=”4.27.5″ text_text_color=”#000000″ header_font=”||on||||||” header_text_color=”#00b2e2″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”|20px|||false|false” hover_enabled=”0″ z_index_tablet=”500″ border_color_bottom=”#8FD2ED” global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n Pesquisa de ponta em exibi\u00e7\u00e3o<\/strong> Mais de 50 apresenta\u00e7\u00f5es cient\u00edficas abordaram tratamentos atuais, doen\u00e7as cardiovasculares e as \u00faltimas novidades em terapia g\u00eanica e edi\u00e7\u00e3o gen\u00e9tica. Um dos destaques foi a introdu\u00e7\u00e3o de SamPro-2<\/strong>, uma terapia de edi\u00e7\u00e3o gen\u00e9tica de pr\u00f3xima gera\u00e7\u00e3o em desenvolvimento para um futuro ensaio cl\u00ednico e um passo significativo rumo a uma poss\u00edvel cura.<\/span><\/p>\n Constru\u00eddo com base na colabora\u00e7\u00e3o<\/strong> Desde sess\u00f5es de mentoria para jovens pesquisadores at\u00e9 discuss\u00f5es animadas sobre p\u00f4steres, o workshop fomentou parcerias que aceleram o avan\u00e7o da ci\u00eancia. Ele se encerrou em um ciclo, literalmente, com uma conversa aberta e reflexiva sobre os pr\u00f3ximos passos da \u00e1rea. Momentos como esse s\u00e3o o que tornam os workshops da PRF t\u00e3o especiais. Eles criam espa\u00e7o para abertura, colabora\u00e7\u00e3o e um compromisso compartilhado de fazer a ci\u00eancia avan\u00e7ar, JUNTOS!<\/span><\/p>\n [\/et_pb_text][et_pb_testimonial quote_icon_color=”#FFFFFF” quote_icon_background_color=”#00B2E2″ _builder_version=”4.27.5″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|30px|30px|30px|30px” border_width_all=”2px” border_color_all=”#00B2E2″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n O que os participantes est\u00e3o dizendo<\/u><\/strong><\/span><\/p>\n [\/et_pb_testimonial][et_pb_text disabled_on=”off|off|off” admin_label=”Survey Highlights” _builder_version=”4.27.5″ text_text_color=”#000000″ header_font=”||on||||||” header_text_color=”#00b2e2″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”|20px|30px||false|false” z_index_tablet=”500″ border_width_bottom=”3px” border_color_bottom=”#8FD2ED” global_colors_info=”{}”]<\/p>\n Principais destaques da pesquisa<\/u><\/strong><\/p>\n [\/et_pb_text][et_pb_text disabled_on=”off|off|off” admin_label=”Sponsor TY” _builder_version=”4.27.5″ text_text_color=”#000000″ header_font=”||on||||||” header_text_color=”#00b2e2″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”|20px|30px||false|false” hover_enabled=”0″ z_index_tablet=”500″ border_width_bottom=”3px” border_color_bottom=”#8FD2ED” global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n Agradecemos aos nossos patrocinadores.<\/u><\/strong><\/p>\n Os Workshops Cient\u00edficos Internacionais da PRF s\u00f3 s\u00e3o poss\u00edveis gra\u00e7as \u00e0 generosidade de parceiros comprometidos que acreditam no poder da ci\u00eancia para transformar vidas.<\/p>\n Agradecemos profundamente o apoio de A Associazione Italiana Prog\u00e9ria Sammy Basso<\/a>.<\/p>\n Fiquem atentos ao 13\u00ba Workshop Cient\u00edfico Anual da PRF. Juntos, n\u00f3s<\/em> vai<\/em><\/strong> encontre a cura.<\/em><\/p>\n <\/em><\/p>\n [\/et_pb_text][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/2025registration\/” button_text=”Registration” button_alignment=”left” disabled_on=”on|on|on” admin_label=”registration” _builder_version=”4.27.0″ _module_preset=”default” button_bg_color=”#00B2E2″ button_border_width=”0px” background_layout=”dark” custom_margin=”||15px|||” disabled=”on” global_colors_info=”{}”][\/et_pb_button][et_pb_text admin_label=”presenting sponsors” _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”||1px|||” global_colors_info=”{}”]<\/p>\n <\/p>\n [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d button_text=\u201dInscreva-se agora\u201d admin_label=\u201dInscreva-se para receber atualiza\u00e7\u00f5es\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.27.4\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d link_option_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201dem|\u00e1rea de trabalho\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dem|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201dem\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201dem\u201d]<\/p>\n [\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoe agora\u201d admin_label=\u201dJuntos, encontraremos a cura!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bot\u00e3o_bg_color__hover=\u201d#8fd2ed\u201d bot\u00e3o_border_color__hover_enabled=\u201don\u201d]<\/p>\n [\/et_pb_cta][\/et_pb_column][et_pb_column tipo=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/05\/2025-strip-for-website-footer-no-years.png\u201d title_text=\u201dFaixa de rodap\u00e9 de site de 2025 sem anos\u201d _builder_version=\u201d4.27.4\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":" Um sucesso estrondoso!\n
\n
Apresentando patrocinadores<\/h3>\n
![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/05\/APS-ONLUS-LOGO-1024x372.png\"){kind=logo}
<\/a> ![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/09\/NIH_NIA_Master_Logo_2Color_8c3db02c789aac09497d19c3bbf7ce48.png\"){kind=logo}
<\/a><\/p>\nInscrever-se<\/h2>\n
para o nosso<\/h2>\n
Atualiza\u00e7\u00f5es!<\/h2>\n
Juntos, n\u00f3s<\/h2>\n
VAI<\/em><\/h2>\n
encontre a cura!<\/h2>\n
\nMais de 120 cientistas se reuniram recentemente em Boston para um dos workshops cient\u00edficos mais envolventes e empolgantes que j\u00e1 realizamos! <\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-18292","page","type-page","status-publish","hentry"],"yoast_head":"\n