{"id":8682,"date":"2019-09-17T22:46:47","date_gmt":"2019-09-17T22:46:47","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=8682"},"modified":"2026-03-27T08:23:42","modified_gmt":"2026-03-27T12:23:42","slug":"find-the-children","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/pt\/find-the-children\/","title":{"rendered":"Encontre as crian\u00e7as"},"content":{"rendered":"

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Encontre as crian\u00e7as<\/h1>\n

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\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column tipo=\u201d3_4\u2033 colunas_de_especialidade=\u201d3\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d preenchimento_personalizado__hover=\u201d|||\u201d][et_pb_row_inner estrutura_de_coluna=\u201dindefinido\u201d _builder_version=\u201d4.16\u2033 cor_de_fundo=\u201d#00b2e2\u2033 margem_personalizada=\u201d41px||\u201d margem_personalizada_tablet=\u201d0px||\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201don|phone\u201d custom_padding=\u201d39.4375px|20px|35px|20px|false|true\u201d animation_style=\u201dslide\u201d animation_direction=\u201dtop\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 box_shadow_style=\u201dpreset1\u2033 box_shadow_blur=\u201d38px\u201d box_shadow_spread=\u201d-12px\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner type=\u201dundefined\u201d saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dO que \u00e9 a campanha \u201cEncontre as crian\u00e7as\u201d?\u201d _builder_version=\u201d4.16\u2033 header_2_line_height=\u201d1.2em\u201d background_layout=\u201ddark\u201d custom_margin=\u201d||\u201d custom_padding=\u201d|||\u201d custom_padding_tablet=\u201d|50px||50px||true\u201d custom_padding_phone=\u201d\u201d custom_padding_last_edited=\u201dno|desktop\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d\u201d header_font_size_last_edited=\u201dno|desktop\u201d header_2_font_size_tablet=\u201d25px\u201d header_2_font_size_phone=\u201d\u201d header_2_font_size_last_edited=\u201dno|tablet\u201d header_4_font_size_tablet=\u201d\u201d header_4_font_size_phone=\u201d19px\u201d header_4_font_size_last_edited=\u201dno|telefone\u201d header_4_line_height_tablet=\u201d\u201d header_4_line_height_phone=\u201d1.2em\u201d header_4_line_height_last_edited=\u201dno|telefone\u201d z_index_tablet=\u201d500\u2033 box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

O que \u00e9 a campanha \u201cEncontre as Crian\u00e7as\u201d?<\/h2>\n

[\/et_pb_text][et_pb_testimonial author=\u201dDr. Leslie Gordon\u201d job_title=\u201dDiretora M\u00e9dica\u201d company_name=\u201dThe Progeria Research Foundation \u201d quote_icon_color=\u201d#00b2e2\u2033 portrait_width=\u201d140px\u201d portrait_height=\u201d140px\u201d _builder_version=\u201d4.24.3\u2033 body_font_size=\u201d19px\u201d background_color=\u201d#f7f7f7\u2033 custom_margin=\u201d|||-35px\u201d custom_margin_tablet=\u201d\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201don|desktop\u201d child_filter_hue_rotate=\u201d70deg\u201d z_index_tablet=\u201d500\u2033 custom_css_testimonial_author=\u201dcolor: #00b2e2;||font-size: 19px !importante;||espessura da fonte: 700;\u201d custom_css_testimonial_meta=\u201destilo da fonte: it\u00e1lico;||espessura da fonte: 700;\u201d autor_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d autor_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d autor_texto_sombra_for\u00e7a_desfocar_tablet=\u201d1px\u201d posi\u00e7\u00e3o_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d posi\u00e7\u00e3o_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d posi\u00e7\u00e3o_texto_sombra_for\u00e7a_desfocar_tablet=\u201d1px\u201d empresa_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d empresa_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d empresa_texto_sombra_for\u00e7a_desfocar_tablet=\u201d1px\u201d corpo_link_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d corpo_link_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d corpo_link_texto_sombra_for\u00e7a_desfocar_tablet=\u201d1px\u201d corpo_ul_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d corpo_ul_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d corpo_ul_texto_sombra_for\u00e7a_desfocar_tablet=\u201d1px\u201d corpo_ol_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d corpo_ol_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d corpo_ol_texto_sombra_for\u00e7a_desfocar_tablet=\u201d1px\u201d corpo_cita\u00e7\u00e3o_texto_sombra_comprimento_horizontal_tablet=\u201d0px\u201d corpo_cita\u00e7\u00e3o_texto_sombra_comprimento_vertical_tablet=\u201d0px\u201d corpo_cita\u00e7\u00e3o_texto_sombra_for\u00e7a_desfocar_tablet=\u201d1px\u201d largura_da_borda_tudo=\u201d4px\u201d largura_da_borda_tudo_retrato=\u201d3px\u201d cor_da_borda_tudo_retrato=\u201d#330c0c\u201d border_style_all_portrait=\u201dtracejado\u201d box_shadow_style=\u201dpreset1\u2033 box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_style_image=\u201dpreset5\u2033 text_shadow_horizontal_length_tablet=\u201d0px\u201d text_shadow_vertical_length_tablet=\u201d0px\u201d text_shadow_blur_strength_tablet=\u201d1px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

\u201cA campanha 'Find the Children' da PRF \u00e9 nossa busca global por crian\u00e7as com Progeria. Se pudermos ENCONTRAR as crian\u00e7as, podemos AJUD\u00c1-las, fornecendo a elas um tratamento que prolongue a vida, acesso a futuros ensaios cl\u00ednicos e conex\u00f5es com outras fam\u00edlias de crian\u00e7as com Progeria.\u201d<\/p>\n

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\"\"A conscientiza\u00e7\u00e3o p\u00fablica sobre uma doen\u00e7a ultrarrara como a Prog\u00e9ria \u00e9 fundamental para educar m\u00e9dicos, fam\u00edlias, pesquisadores e o p\u00fablico em geral sobre a doen\u00e7a e a miss\u00e3o da PRF.<\/p>\n

PRF's 'Encontre o<\/em>e Crian\u00e7as<\/em>' campanha \u00e9 uma iniciativa estrat\u00e9gica de conscientiza\u00e7\u00e3o focada em encontrar crian\u00e7as em \u00e1reas do mundo onde acreditamos que muitas est\u00e3o vivendo - sem diagn\u00f3stico e sem tratamento. Mas, para ajuda<\/strong> as crian\u00e7as, devemos encontrar<\/strong> as crian\u00e7as.<\/p>\n

Para esse fim, criamos materiais informativos sobre a Progeria e o progresso empolgante da PRF para conscientizar, educar e ajudar as fam\u00edlias, seus m\u00e9dicos, pesquisadores e o p\u00fablico sobre a S\u00edndrome de Progeria de Hutchinson-Gilford \u2013 dispon\u00edvel em v\u00e1rios idiomas abaixo. Voc\u00ea pode visualizar e baixar um infogr\u00e1fico sobre a Progeria e os programas relacionados \u00e0 pesquisa da PRF, bem como uma folha de informa\u00e7\u00f5es frente e verso mais abrangente (para impress\u00e3o).<\/p>\n

Ajude-nos a causar impacto!<\/strong> Por favor, compartilhe-os amplamente para informar aqueles em seu pa\u00eds ou regi\u00e3o sobre nossa miss\u00e3o vital de ajudar todas as crian\u00e7as ao redor do mundo com Progeria. Embora tenhamos feito um progresso incr\u00edvel encontrando, diagnosticando e tratando muitas crian\u00e7as, ainda h\u00e1 uma estimativa de 150 a 250 crian\u00e7as ao redor do mundo com Progeria para serem encontradas, tratadas e, um dia, curadas. Com a sua ajuda, seguiremos em frente at\u00e9 encontrar todos eles!<\/strong><\/p>\n

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Ingl\u00eas<\/h3>\n

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Am\u00e1rico\/\u12a0\u121b\u122d\u129b<\/h3>\n

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\u00c1rabe\/\u0639\u0631\u0628\u064a<\/h3>\n

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Bengali\/\u09ac\u09be\u0982\u09b2\u09be<\/h3>\n

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Chin\u00eas\/\u4e2d\u570b\u4eba<\/h3>\n

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Farsi\/Persa \u0641\u0627\u0631\u0633\u06cc\/\u0641\u0627\u0631\u0633\u06cc<\/h3>\n

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Franc\u00eas\/Franc\u00eas<\/h3>\n

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Hindi\/\u0939\u093f\u0902\u0926\u0940<\/h3>\n

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Indon\u00e9sio\/bahasa Indon\u00e9sia<\/h3>\n

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Japon\u00eas\/\u65e5\u672c\u8a9e<\/h3>\n

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Portugu\u00eas\/Portugu\u00eas<\/h3>\n

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Russo\/Russo<\/h3>\n

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Espanhol\/Espanhola<\/h3>\n

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Tagalo<\/h3>\n

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Urdu\/Ar\u00e1bico<\/h3>\n

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Vietnamita\/Ti\u1ebfng Vi\u1ec7t<\/h3>\n

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Em mar\u00e7o de 2026, estes eram os locais onde viviam 157 crian\u00e7as e jovens adultos com S\u00edndrome de Progeria de Hutchinson-Gilford (HGPS), todos com uma muta\u00e7\u00e3o produtora de progerina no gene LMNA; e 84 pessoas na categoria de laminopatia progeroide (PL), que t\u00eam muta\u00e7\u00f5es na via da lamina, mas n\u00e3o produzem progerina; num total de 52 pa\u00edses.<\/p>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/03\/March-2026-Map.jpg” title_text=”March 2026 Map” align=”center” admin_label=”Map” _builder_version=”4.27.5″ vertical_offset_tablet=”0″ horizontal_offset_tablet=”0″ width=”100%” min_height=”602px” custom_margin=”0px||20px||false|false” custom_padding=”0px||20px||false|false” hover_enabled=”0″ z_index_tablet=”0″ box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_image][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=”1_2,1_2″ custom_padding_last_edited=”on|tablet” padding_left_right_link_1=”false” padding_left_right_link_2=”true” _builder_version=”4.16″ custom_padding=”0|35px|16px||false|false” custom_padding_tablet=”||0px|35px||false” custom_padding_phone=”||0px|20px||false” animation_direction=”right” global_colors_info=”{}”][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” custom_padding_tablet=”” custom_padding_phone=”||30px” custom_padding_last_edited=”on|desktop” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta title=”What Can You Do?” button_url=”mailto:info@progeriaresearch.org” button_text=”Contact Us” admin_label=”What Can You Do?” _builder_version=”4.16″ background_color=”#00b2e2″ max_width=”95%” z_index_tablet=”500″ global_colors_info=”{}”]<\/p>\n

Se algu\u00e9m que voc\u00ea conhece ou um paciente que voc\u00ea trata tem caracter\u00edsticas semelhantes \u00e0 Prog\u00e9ria, entre em contato conosco em\u00a0info@progeriaresearch.org<\/a>.<\/p>\n

[\/et_pb_cta][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|20px|30px|20px\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d||30px\u201d custom_padding_last_edited=\u201don|desktop\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dLeia atualiza\u00e7\u00f5es emocionantes da campanha\u201d _builder_version=\u201d4.24.3\u2033 z_index_tablet=\u201d500\u2033 box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Leia atualiza\u00e7\u00f5es emocionantes da campanha<\/strong><\/h4>\n

Nossas campanhas anteriores \u201cFind the Other 150 \/ Find the Children\u201d (2009, 2015 e 2019) foram tremendamente bem-sucedidas. Confira os links abaixo para mais detalhes.<\/p>\n

Setembro de 2019 \u2013 Campanha 'Encontre as crian\u00e7as - 60 na \u00cdndia com progeria' reacende a busca por crian\u00e7as com progeria na \u00cdndia (The Week)<\/a><\/p>\n

Novembro de 2016 \u2013 Campanha de conscientiza\u00e7\u00e3o 'Encontrando os outros 60' ganha for\u00e7a na \u00cdndia (Hindustan Times)<\/a><\/p>\n

Novembro de 2012 \u2013 N\u00famero de crian\u00e7as identificadas continua a aumentar, chegando a 100<\/a><\/p>\n

Agosto de 2011 \u2013 Jogadores de h\u00f3quei da NHL do Boston Bruins expandem nosso alcance para seus pa\u00edses de origem<\/a><\/p>\n

 <\/p>\n

[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d button_text=\u201dInscreva-se agora\u201d admin_label=\u201dInscreva-se para receber atualiza\u00e7\u00f5es\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.27.4\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d link_option_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201dem|\u00e1rea de trabalho\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dem|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201dem\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201dem\u201d]<\/p>\n

Inscrever-se<\/h2>\n

para o nosso<\/h2>\n

Atualiza\u00e7\u00f5es!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoe agora\u201d admin_label=\u201dJuntos, encontraremos a cura!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bot\u00e3o_bg_color__hover=\u201d#8fd2ed\u201d bot\u00e3o_border_color__hover_enabled=\u201don\u201d]<\/p>\n

Juntos, n\u00f3s<\/h2>\n

VAI<\/em><\/h2>\n

encontre a cura!<\/h2>\n

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A campanha \u201cFind the Children\u201d foi criada para procurar globalmente crian\u00e7as n\u00e3o diagnosticadas com Progeria <\/p>","protected":false},"author":2,"featured_media":12087,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-8682","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nFind the Children | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"The \u201cFind the Children\u201d campaign is designed to search globally for the undiagnosed children with Progeria\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/pt\/find-the-children\/\" \/>\n<meta property=\"og:locale\" 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