{"id":9181,"date":"2019-12-24T19:32:53","date_gmt":"2019-12-24T19:32:53","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=9181"},"modified":"2024-04-22T09:35:55","modified_gmt":"2024-04-22T13:35:55","slug":"international-registry-2","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/pt\/international-registry-2\/","title":{"rendered":"Programa de Registro Internacional"},"content":{"rendered":"

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A PRF <\/span><\/span><\/h1>\n

Internacional <\/span><\/span><\/h1>\n

Paciente com Prog\u00e9ria <\/span><\/span><\/h1>\n

Registro<\/span><\/span><\/span><\/h1>\n

<\/span><\/span><\/p>\n

 <\/p>\n

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\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=\u201d3_4\u2033 specialty_columns=\u201d3\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_row_inner custom_padding_last_edited=\u201don|phone\u201d disabled_on=\u201don|on|\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d39.4375px|35px|0px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dINTRODU\u00c7\u00c3O \u00c0 P\u00c1GINA DE PROGRAMAS DE PESQUISA\u201d _builder_version=\u201d4.24.3\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d hover_enabled=\u201d0\u2033 z_index_tablet=\u201d500\u2033 box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n

A Progeria Research Foundation \u00e9 o recurso global para pesquisa e educa\u00e7\u00e3o sobre Progeria. Progeria \u00e9 uma condi\u00e7\u00e3o ultrarrara. Para entender melhor a patologia e o curso natural da s\u00edndrome, estabelecemos um Programa de Registro Internacional.<\/p>\n

O Registro fornece recursos para o estudo da Prog\u00e9ria e mant\u00e9m um banco de dados centralizado sobre crian\u00e7as com Prog\u00e9ria do mundo todo, al\u00e9m de servir para melhorar a comunica\u00e7\u00e3o de ideias entre pesquisadores, para garantir a distribui\u00e7\u00e3o r\u00e1pida de qualquer nova informa\u00e7\u00e3o que possa beneficiar os pacientes e suas fam\u00edlias.<\/p>\n

O Registro pode ser auditado por ag\u00eancias governamentais, como a Food and Drug Administration dos EUA, em situa\u00e7\u00f5es como desenvolvimento de medicamentos.<\/p>\n

Sua coopera\u00e7\u00e3o no registro e em ajudar a contribuir com informa\u00e7\u00f5es sobre crian\u00e7as com Progeria para o Registro \u00e9 muito apreciada. Se voc\u00ea for pai, m\u00e9dico ou outro representante de uma crian\u00e7a com Progeria, preencha um Formul\u00e1rio de Registro e envie-o para\u00a0<\/span>info@progeriaresearch.org<\/a>.<\/strong><\/p>\n

Agradecemos antecipadamente por participar Registro Internacional de Pacientes com Prog\u00e9ria da PRF<\/span>.<\/p>\n

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custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dInscreva-se agora\u201d admin_label=\u201dInscreva-se para receber o boletim informativo\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dligado|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201dligado\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201dligado\u201d]<\/p>\n

Inscrever-se<\/h2>\n

para o nosso<\/h2>\n

Boletim informativo!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoe agora\u201d admin_label=\u201dJuntos, encontraremos a cura!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bot\u00e3o_bg_color__hover=\u201d#8fd2ed\u201d bot\u00e3o_border_color__hover_enabled=\u201don\u201d]<\/p>\n

Juntos, n\u00f3s<\/h2>\n

VAI<\/em><\/h2>\n

encontre a cura!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column tipo=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/02\/2024-strip-footer-strip-.png\u201d title_text=\u201d2024 faixa de rodap\u00e9\u201d _builder_version=\u201d4.24.0\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

O PRF International Progeria Patient Registry A Progeria Research Foundation \u00e9 o recurso global para pesquisa e educa\u00e7\u00e3o sobre Progeria. A Progeria \u00e9 uma condi\u00e7\u00e3o ultrarrara. Para entender melhor a patologia e o curso natural da s\u00edndrome, estabelecemos um Programa de Registro Internacional. O Registro fornece recursos para o estudo da Progeria e mant\u00e9m [\u2026]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-9181","page","type-page","status-publish","hentry"],"yoast_head":"\nInternational registry | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/pt\/international-registry-2\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"International registry | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"The PRF International Progeria Patient Registry   The Progeria Research Foundation is the global resource for Progeria research and education. Progeria is an ultra-rare condition. In order to better understand the pathology and natural course of the syndrome, we established an International Registry Program. 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