{"id":966,"date":"2017-02-27T19:09:19","date_gmt":"2017-02-27T19:09:19","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=966"},"modified":"2024-10-09T11:29:09","modified_gmt":"2024-10-09T15:29:09","slug":"amy-award-winners","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/pt\/amy-award-winners\/","title":{"rendered":"Vencedores dos pr\u00eamios SAM e Amy"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201doff|off|off\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.27.0\u2033 title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/About-Header.jpg\u201d background_position=\u201dcenter_left\u201d custom_padding=\u201d9vw||9vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201dno|desktop\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201dno|telefone\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dposi\u00e7\u00e3o de fundo: centro 18% !importante;\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h1>Pr\u00eamio SAM &amp; Amy<\/h1>\n<h1>Vencedores<\/h1>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 specialty=\u201don\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_2_tablet=\u201d|||0px\u201d padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201don|desktop\u201d module_class_1=\u201dsidebar-secondary-nav\u201d module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201don\u201d parallax_method=\u201doff\u201d largura_interna=\u201d100%\u201d largura_m\u00e1xima_interna=\u201d100%\u201d preenchimento_personalizado=\u201d0|0px|54px|0px|falso|falso\u201d z_index_tablet=\u201d500\u2033 largura_da_borda_superior=\u201d10px\u201d cor_da_borda_superior=\u201d#8fd2ed\u201d use_largura_personalizada=\u201dligado\u201d largura_unit=\u201ddesligado\u201d largura_personalizada_percent=\u201d100%\u201d informa\u00e7\u00f5es_de_cores_globais=\u201d{}\u201d][coluna_et_pb tipo=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_sidebar area=\u201det_pb_widget_area_16\u2033 disabled_on=\u201don|on|off\u201d module_class=\u201dsubpage-sidebars\u201d _builder_version=\u201d4.16\u2033 animation_style=\u201dfade\u201d z_index_tablet=\u201d500\u2033 border_width_right=\u201d5px\u201d global_colors_info=\u201d{}\u201d]<br \/>\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=\u201d3_4\u2033 specialty_columns=\u201d3\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_row_inner _builder_version=\u201d4.16\u2033 background_color=\u201d#00b2e2\u2033 custom_margin=\u201d41px||\u201d custom_margin_tablet=\u201d0px||\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201don|phone\u201d custom_padding=\u201d39.4375px|20px|35px|20px|false|true\u201d animation_style=\u201dslide\u201d animation_direction=\u201dtop\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_color_bottom=\u201d#8fd2ed\u201d box_shadow_style=\u201dpreset1\u2033 box_shadow_blur=\u201d38px\u201d box_shadow_spread=\u201d-12px\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dA Progeria Research Foundation apresenta: o pr\u00eamio SAM\u201d _builder_version=\u201d4.27.0\u2033 text_orientation=\u201dcenter\u201d background_layout=\u201ddark\u201d hover_enabled=\u201d0\u2033 z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d custom_padding=\u201d||0px||false|false\u201d sticky_enabled=\u201d0\u2033]<\/p>\n<h2>A Progeria Research Foundation apresenta: O pr\u00eamio SAM<\/h2>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|0px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dintro\u201d _builder_version=\u201d4.27.0\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d custom_padding=\u201d||53px|||\u201d z_index_tablet=\u201d500\u2033 border_width_bottom=\u201d10px\u201d border_color_bottom=\u201d#8fd2ed\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>A Progeria Research Foundation apresenta: O pr\u00eamio SAM! O pr\u00eamio Science And Medicine (SAM) da Progeria Research Foundation \u00e9 nomeado em homenagem a <a href=\"https:\/\/www.progeriaresearch.org\/pt\/meet-the-kids\/\">Sam Berns<\/a>, a inspira\u00e7\u00e3o para a cria\u00e7\u00e3o da PRF. O legado de Sam continua a inspirar todos aqueles que o conheceram e foram tocados por sua vida poderosa <a href=\"https:\/\/www.progeriaresearch.org\/pt\/tedx-talks\/\">filosofias<\/a> sobre positividade e gentileza. O Pr\u00eamio SAM \u00e9 concedido ao apoiador da PRF que demonstra dedica\u00e7\u00e3o excepcional \u00e0 ci\u00eancia e \u00e0 medicina que impulsiona o r\u00e1pido progresso da PRF em dire\u00e7\u00e3o \u00e0 cura.<\/p>\n<p><em>Os vencedores s\u00e3o escolhidos pela lideran\u00e7a da PRF e apresentados na Noite de Gala das Maravilhas da PRF, realizada a cada 2 ou 3 anos.<\/em><\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.27.0\u2033 preenchimento_personalizado=\u201d39.4375px|35px|0px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dSammy Basso\u201d _builder_version=\u201d4.27.0\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d hover_enabled=\u201d0\u2033 z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n<h4><b>Parab\u00e9ns ao nosso SAM Awa 2024<\/b><b>terceiro vencedor, SAMMY BASS<\/b><b>O<\/b><b>!<\/b><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-19425\" style=\"float: right;\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Sammy-Basso-accepts-SAM-Award_cropped-171x300.jpg\" alt=\"\" width=\"148\" height=\"260\" \/>O embaixador da PRF Sammy Basso, que era amigo pr\u00f3ximo de Sam Berns, recebeu uma ova\u00e7\u00e3o de p\u00e9 ao receber o pr\u00eamio SAM mais recente. Morador de Tezze sul Brenta, It\u00e1lia, Sammy foi diagnosticado com Progeria aos dois anos de idade e se tornou o porta-voz da Associa\u00e7\u00e3o Italiana Sammy Basso para Progeria (AIPro.SB) quando tinha apenas 10 anos de idade. Ele foi um dos primeiros a participar dos ensaios cl\u00ednicos da PRF, testando o medicamento lonafarnib, agora aprovado pela FDA, o primeiro tratamento para Progeria.<\/p>\n<div id=\"attachment_19437\" style=\"width: 277px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-19437\" class=\"wp-image-19437\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/SamSammy-wine-2-300x180.jpg\" alt=\"\" width=\"267\" height=\"160\" \/><p id=\"caption-attachment-19437\" class=\"wp-caption-text\">Sam e Sammy na It\u00e1lia, brindando sua amizade especial<\/p><\/div>\n<p>Os estudos de Sammy o levaram \u00e0 Universidade de P\u00e1dua, onde se formou em Ci\u00eancias Naturais e apresentou uma tese sobre uma abordagem de edi\u00e7\u00e3o gen\u00e9tica em camundongos HGPS. Em 2021, Sammy se formou com um segundo diploma em Biologia Molecular com uma tese sobre a intersec\u00e7\u00e3o de Lamin A e Interleucina-6, uma abordagem para tratar Progeria visando a prote\u00edna t\u00f3xica, conhecida como progerina. Sammy continua sua dedica\u00e7\u00e3o para encontrar a cura com suas colabora\u00e7\u00f5es vitais de pesquisa com a PRF e a equipe de edi\u00e7\u00e3o gen\u00e9tica. Ele tamb\u00e9m se envolve em muitas oportunidades de falar em p\u00fablico globalmente, para aumentar a conscientiza\u00e7\u00e3o sobre a Progeria e o progresso inovador da PRF em dire\u00e7\u00e3o \u00e0 cura. Sammy \u00e9 conhecido em todo o mundo por sua tremenda personalidade e brilhantismo, e temos muito orgulho de cham\u00e1-lo de nosso querido amigo.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||verdadeiro\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dTom Mathers\u201d _builder_version=\u201d4.27.0\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>O especialista farmac\u00eautico TOM MATHERS recebe o pr\u00eamio SAM 2022!<\/strong><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-19436  alignright\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/t_mathers_12-221x300.jpg\" alt=\"\" width=\"179\" height=\"243\" \/><\/p>\n<p>A amizade de Tom Mathers com os cofundadores da PRF, Drs. Leslie Gordon e Scott Berns, remonta \u00e0 \u00e9poca da faculdade, e seus s\u00e1bios conselhos como um desenvolvedor de medicamentos de sucesso no mundo farmac\u00eautico e biotecnol\u00f3gico s\u00e3o dados desde a cria\u00e7\u00e3o da PRF.<\/p>\n<p>Tom \u00e9 o fundador, presidente e CEO da Allievex, uma empresa de biotecnologia comprometida com o desenvolvimento de terap\u00eauticas para doen\u00e7as neurol\u00f3gicas pedi\u00e1tricas raras. Ele trabalhou com a PRF em sua parceria com a Eiger Biopharmaceuticals, que levou \u00e0 aprova\u00e7\u00e3o hist\u00f3rica do FDA para o lonafarnib como tratamento para a Prog\u00e9ria, e ele continua a trabalhar com a PRF em outros tratamentos potenciais. A motiva\u00e7\u00e3o de Tom \u00e9 exatamente a da PRF \u2013 salvar crian\u00e7as, e suas habilidades \u00fanicas dentro do mundo do desenvolvimento de medicamentos farmac\u00eauticos t\u00eam sido essenciais para o papel crescente da PRF nesse espa\u00e7o. Ah, e ele nunca perdeu uma Noite de Gala das Maravilhas com Sam, a quem ele amava muito. \u2665<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||verdadeiro\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dJohn Seng\u201d _builder_version=\u201d4.27.0\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>O especialista em RP JOHN SENG recebeu o Pr\u00eamio SAM 2018!\u00a0<\/strong><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-19433\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/JSeng-and-Sam-151x300.jpg\" alt=\"\" width=\"123\" height=\"244\" srcset=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/JSeng-and-Sam-151x300.jpg 151w, https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/JSeng-and-Sam.jpg 465w\" sizes=\"(max-width: 123px) 100vw, 123px\" \/><\/p>\n<p>John Seng, fundador, presidente e CEO da Spectrum Science, uma empresa de rela\u00e7\u00f5es p\u00fablicas focada em ci\u00eancias da sa\u00fade, foi reconhecido por seu comprometimento em aumentar a conscientiza\u00e7\u00e3o sobre a Progeria em todo o mundo e suas tremendas contribui\u00e7\u00f5es pro bono para a PRF por mais de uma d\u00e9cada. John foi o criador da campanha &quot;Find the Children&quot; da PRF, focada em encontrar crian\u00e7as n\u00e3o diagnosticadas com Progeria globalmente. Seu relacionamento de longo prazo com a PRF come\u00e7ou em 2003, quando ele comprometeu recursos para gerenciar as not\u00edcias sobre a descoberta de genes. Sob a lideran\u00e7a de John, a Spectrum passou a liderar os esfor\u00e7os de publicidade da PRF para muitos outros an\u00fancios importantes, e sua equipe desempenhou um papel fundamental na parceria PRF-HBO para <a href=\"https:\/\/www.progeriaresearch.org\/pt\/life-according-to-sam\/\">A vida segundo Sam<\/a>. Ex-membro do Conselho Diretor da PRF, brindamos a John por colocar essa doen\u00e7a ultrarrara no mapa mundial!<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||verdadeiro\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dMonica Kleinman\u201d _builder_version=\u201d4.27.0\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>A l\u00edder do estudo, Dra. MONICA KLEINMAN, foi homenageada com o Pr\u00eamio SAM 2016!\u00a0<\/strong><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-19434\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Monica-Sam-June07-v2-300x287.jpg\" alt=\"\" width=\"220\" height=\"211\" \/><\/p>\n<p>A Dra. Monica Kleinman dedicou seu tempo, talentos e energia para promover a pesquisa sobre Progeria de uma das formas mais importantes: como Pesquisadora Principal dos ensaios cl\u00ednicos sobre Progeria em<\/p>\n<p>Boston Children&#039;s Hospital (BCH). Com sua maneira gentil e especializada de tratar os pacientes, ela liderou com sucesso esses testes vitais e ganhou a confian\u00e7a e o respeito das fam\u00edlias e de todos os envolvidos neles. Ela tamb\u00e9m foi membro original do Conselho de Administra\u00e7\u00e3o e do Comit\u00ea de Pesquisa M\u00e9dica (MRC) da PRF. Monica desempenha muitas fun\u00e7\u00f5es importantes no BCH! Ela \u00e9 Chefe Associada da Divis\u00e3o de Medicina de Cuidados Cr\u00edticos; Diretora de Seguran\u00e7a do Programa de Seguran\u00e7a e Qualidade do Paciente; Copresidente do Programa de Qualidade de Ressuscita\u00e7\u00e3o; e tamb\u00e9m \u00e9 Professora Associada de Anestesia (Pediatria) da Harvard Medical School. Temos muita sorte de t\u00ea-la em nossa equipe!<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||verdadeiro\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dMark Kieran\u201d _builder_version=\u201d4.27.0\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>O ex-l\u00edder de testes e desenvolvedor de terapia gen\u00e9tica DR. MARK KIERAN recebe o pr\u00eamio SAM 2014!\u00a0<\/strong><\/h4>\n<p>O membro do conselho da PRF, Dr. Mark Kieran, envolveu-se com a PRF em 2006, quando o lonafarnib se tornou o medicamento alvo do primeiro<img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-19432\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Dr.-Mark-Kieran-150x150.jpg\" alt=\"\" width=\"211\" height=\"211\" \/> Ensaio cl\u00ednico do medicamento Progeria. Mark foi diretor de Neuro-Oncologia M\u00e9dica Pedi\u00e1trica no Dana Farber Cancer Institute, liderando um ensaio de lonafarnib para pacientes jovens com c\u00e2ncer. Sua vasta experi\u00eancia com lonafarnib o tornou o l\u00edder ideal desse esfor\u00e7o em parceria com a PRF e o Boston Children&#039;s Hospital, e quando perguntado, essa pessoa incrivelmente ocupada disse &quot;sim&quot; imediatamente!<\/p>\n<p>Ap\u00f3s 20 anos como Diretor de Neuro-Oncologia Pedi\u00e1trica no Dana-Farber Cancer Institute e no Boston Children&#039;s Hospital focado no desenvolvimento e tradu\u00e7\u00e3o cl\u00ednica de novas terapias gen\u00e9ticas e direcionadas para crian\u00e7as com c\u00e2ncer cerebral, progeria e outras doen\u00e7as card\u00edacas infantis, o Dr. Kieran fez a transi\u00e7\u00e3o para a ind\u00fastria e atualmente \u00e9 o VP de Desenvolvimento Cl\u00ednico na Day One Biopharmaceutics, uma empresa focada no desenvolvimento de medicamentos direcionados para crian\u00e7as. A adi\u00e7\u00e3o de Mark ao Conselho da PRF ilustra o foco crescente da PRF no desenvolvimento de medicamentos, e somos gratos por tudo o que ele continua a contribuir.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||verdadeiro\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dFrancis Collins\u201d _builder_version=\u201d4.27.0\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>O primeiro pr\u00eamio SAM vai para o DR. FRANCIS COLLINS em 2011!<\/strong><\/h4>\n<p>Francis Collins ocupa um lugar muito especial no cora\u00e7\u00e3o e na hist\u00f3ria da PRF. Ele est\u00e1 ao lado da PRF quase desde o\u00a0<img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-19435\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Sam-and-Francis-Collins-300x280.jpg\" alt=\"\" width=\"238\" height=\"222\" \/>come\u00e7ando, tornando-se amigo pr\u00f3ximo de Sam Berns e sua fam\u00edlia, e desempenhando um papel fundamental no ritmo r\u00e1pido de progresso da PRF. Quando ele era Diretor do National Human Genome Research Institute (NHGRI), seu laborat\u00f3rio liderou a descoberta do gene Progeria em 2003.<\/p>\n<p>Inspirado por sua profunda amizade com Sam, o Dr. Collins continua a dirigir seu laborat\u00f3rio no NHGRI, demonstrando seu compromisso duradouro com a pesquisa da Progeria at\u00e9 que a cura seja encontrada. Ele fez descobertas cruciais na terapia de RNA e faz parte da equipe principal que trabalha em uma terapia editada por genes que pode ser a cura para a Progeria.<\/p>\n<p>O Dr. Collins foi Conselheiro Cient\u00edfico de tr\u00eas Presidentes dos EUA e ex-Diretor do National Institutes of Health (NIH). Somos incrivelmente gratos por tudo o que ele fez e continua a fazer, For the Children \u2665 For the Cure.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=\u201d4.16\u2033 background_color=\u201d#00b2e2\u2033 custom_margin=\u201d41px||\u201d custom_margin_tablet=\u201d0px||\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201don|phone\u201d custom_padding=\u201d39.4375px|20px|35px|20px|false|true\u201d animation_style=\u201dslide\u201d animation_direction=\u201dtop\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_color_bottom=\u201d#8fd2ed\u201d box_shadow_style=\u201dpreset1\u2033 box_shadow_blur=\u201d38px\u201d box_shadow_spread=\u201d-12px\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dA Progeria Research Foundation apresenta: o pr\u00eamio Amy\u201d _builder_version=\u201d4.16\u2033 text_orientation=\u201dcenter\u201d background_layout=\u201ddark\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h2>A Progeria Research Foundation apresenta: o pr\u00eamio Amy<\/h2>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|0px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dintro\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d custom_padding=\u201d||53px|||\u201d z_index_tablet=\u201d500\u2033 border_width_bottom=\u201d10px\u201d border_color_bottom=\u201d#8fd2ed\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/meet_kids_images\/amy20.jpg\" alt=\"\" width=\"168\" height=\"214\" \/>\u00a0A Progeria Research Foundation anuncia a cria\u00e7\u00e3o do The Amy Award. Dedicado a Amy Foose, cuja personalidade alegre e amor pela vida continuam a inspirar todos aqueles que a conheceram, este pr\u00eamio \u00e9 para o apoiador da PRF que atende aos seguintes crit\u00e9rios, dos quais Amy \u00e9 mais lembrada:<b><br \/><\/b><\/p>\n<p>\u2022 Um modelo de como viver uma vida de alegria e otimismo;<br \/>\u2022 Um bom amigo, irm\u00e3o e filha\/filho;<br \/>\u2022 Uma pessoa com senso de humor e atitude positiva;<br \/>\u2022 Algu\u00e9m que se esfor\u00e7a para tirar o m\u00e1ximo proveito de cada situa\u00e7\u00e3o e enfrenta os desafios com gra\u00e7a, esperan\u00e7a e determina\u00e7\u00e3o; e<br \/>\u2022 um indiv\u00edduo que aplicou as qualidades acima dedicando incansavelmente tempo, talento e energia para promover a miss\u00e3o da PRF.<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|0px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dKevin Tierney\u201d _builder_version=\u201d4.24.3\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h4><b><span>Parab\u00e9ns aos vencedores do Pr\u00eamio Amy de 2024, Kevin Tierney e North Shore Bank!<\/span><\/b><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/Kevin-amy-award.png\" width=\"146\" height=\"190\" alt=\"\" class=\"wp-image-18877 alignnone size-full\" style=\"float: right;\" \/><\/p>\n<p>Em 2024, a PRF apresentou o Pr\u00eamio Amy \u00e0 sua primeira combina\u00e7\u00e3o de indiv\u00edduo\/empresa: o North Shore Bank (NSB) e seu CEO Kevin Tierney.<\/p>\n<p><span>Kevin foi homenageado por sua infinita generosidade, devo\u00e7\u00e3o, compaix\u00e3o e apoio extraordin\u00e1rio em todos os aspectos \u00e0 miss\u00e3o da PRF, tanto pessoalmente quanto em sua capacidade de lideran\u00e7a no NSB. O Banco tamb\u00e9m foi reconhecido por seu profundo comprometimento corporativo com a PRF.<\/span><\/p>\n<p>Kevin e a NSB t\u00eam sido apoiadores firmes e generosos da PRF por mais de 20 anos, incluindo o patroc\u00ednio de todos os eventos especiais locais da PRF. Sob a lideran\u00e7a de Kevin, a NSB apoiou mais de 200 institui\u00e7\u00f5es de caridade somente em 2023, al\u00e9m do voluntariado de funcion\u00e1rios em dezenas de outras. A NSB realmente adota uma cultura profundamente enraizada de doar seu tempo, talento e tesouro, retribuindo \u00e0s comunidades locais nas quais opera, e agradecemos especialmente a eles por sua dedica\u00e7\u00e3o \u00e0 comunidade Progeria ao redor do mundo.<\/p>\n<p>[\/et_pb_text][et_pb_text admin_label=\u201dRobyn e Tom Milbury\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h4><b>Robyn e Tom Milbury recebem o Pr\u00eamio Amy 2022!<\/b><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/05\/Robyn-and-Tom-1-150x150.jpg\" width=\"150\" height=\"150\" alt=\"\" class=\"wp-image-14991 alignright size-thumbnail\" \/>Em 2022, o Pr\u00eamio Amy foi concedido ao seu primeiro casal: Robyn e Tom. Eles est\u00e3o envolvidos com a PRF h\u00e1 25 anos e t\u00eam dedicado incansavelmente e abnegadamente seu tempo, talento e tesouro para avan\u00e7ar nossa miss\u00e3o. Entre os dois, eles ajudaram a organizar 9 galas, 3 torneios de golfe, uma d\u00fazia de corridas e muitos outros eventos de grande sucesso ao longo dos anos - UAU! Eles agora est\u00e3o inspirando a pr\u00f3xima gera\u00e7\u00e3o de Milburys a se juntar a eles em sua generosidade, devo\u00e7\u00e3o e amor sem fim por essas crian\u00e7as extraordin\u00e1rias.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d39.4375px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||verdadeiro\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dJodi Mitchell\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>Jodi Mitchell \u00e9 a ganhadora do Pr\u00eamio Amy de 2018!<\/strong><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-4052 alignright\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/05\/JMitchell-Amy-award-300x200.jpg\" alt=\"\" width=\"200\" height=\"133\" \/>Jodi est\u00e1 envolvida com a PRF desde 2004, quando correu em uma de nossas primeiras corridas de rua. Depois disso, ela ficou viciada. Desde ent\u00e3o, ela organizou uma d\u00fazia de arrecada\u00e7\u00f5es de fundos no Champions Pub e em outros lugares, reuniu a maior equipe para correr nossa Corrida Anual para Pesquisa, correu a Corrida de Rua de Falmouth na TEAM PRF, \u00e9 volunt\u00e1ria regularmente em nosso escrit\u00f3rio e basicamente nos diz: &quot;o que posso fazer para ajudar?&quot;. Tudo o que Jodi faz pela PRF \u00e9 feito com entusiasmo, gentileza e amor, o que a torna a escolha perfeita para o pr\u00eamio deste ano.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d0px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dBob Morrison\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>Bob Morrison \u2013 Apoiando a PRF desde o primeiro dia \u2013 \u00e9 o vencedor do nosso pr\u00eamio Amy de 2016!\u00a0<\/strong><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-6907 alignright\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Bob-M-2.jpg\" alt=\"\" width=\"150\" height=\"224\" \/>Bob foi um membro fundador do conselho (servindo no Conselho de Administra\u00e7\u00e3o da PRF de 1999 a 2007). Ele trouxe uma vis\u00e3o empresarial inteligente para o conselho, dando \u00e0 PRF o benef\u00edcio de sua experi\u00eancia. Um de seus \u00faltimos votos como membro do conselho foi se financiaria ou n\u00e3o o primeiro teste cl\u00ednico de medicamentos \u2014 um momento hist\u00f3rico e decisivo para a PRF porque o teste foi um grande passo \u00e0 frente em nossa miss\u00e3o, mas n\u00e3o t\u00ednhamos dinheiro para financi\u00e1-lo totalmente na \u00e9poca. Houve um breve momento de sil\u00eancio ap\u00f3s a apresenta\u00e7\u00e3o do teste, enquanto esper\u00e1vamos que algu\u00e9m fizesse uma mo\u00e7\u00e3o e Bob disse: &quot;Bem, n\u00e3o \u00e9 para isso que estamos aqui? Temos que fazer esse teste acontecer&quot;. A vota\u00e7\u00e3o ocorreu imediatamente e foi un\u00e2nime. Bob continua se disponibilizando para dar conselhos sobre uma variedade de quest\u00f5es empresariais e est\u00e1 extremamente orgulhoso de apoiar a PRF, acrescentando humildemente que est\u00e1 feliz em &quot;desempenhar um pequeno papel&quot; nisso. Por sua generosidade, compaix\u00e3o e mod\u00e9stia sem fim, ele recebeu o Pr\u00eamio Amy de 2016.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d0px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dKevin King\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>Kevin King \u2013 o vencedor de 2013 \u2013 <em>Unidades<\/em>\u00a0o Apoio \u00e0s Crian\u00e7as com Prog\u00e9ria<\/strong><\/h4>\n<p><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignright\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/KevinChipZachon-car-2013-crop.jpg\" width=\"200\" height=\"158\" \/><\/strong>Desde 2005, Kevin e sua equipe na YearOne, juntamente com o irm\u00e3o de Amy, Chip Foose, apoiam a PRF por meio de uma exposi\u00e7\u00e3o anual de carros \u201cBraselton Bash\u201d na Ge\u00f3rgia. Toda a equipe trabalha incansavelmente para garantir um fim de semana bem-sucedido. Todos eles oferecem seu tempo com alegria. Esse tipo de atitude vem do topo \u2013 de Kevin \u2013 que est\u00e1 totalmente comprometido em ajudar crian\u00e7as com Progeria tanto quanto ele e a YearOne puderem. \u00c9 um verdadeiro trabalho de amor, e ele se sente t\u00e3o honrado em poder ajudar quanto n\u00f3s nos sentimos por t\u00ea-lo em nossa equipe. Kevin exemplifica o tipo de dedica\u00e7\u00e3o incans\u00e1vel que certamente conduzir\u00e1 a cura para a Progeria.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d0px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dMaura Smith\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>Maura Smith \u00e9 a vencedora do pr\u00eamio Amy de 2011<\/strong><\/h4>\n<div class=\"wp-caption alignright\" style=\"width: 201px;\"><img loading=\"lazy\" decoding=\"async\" class=\"\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/events_images\/Amy-Award-winner-and-family.jpg\" alt=\"\" width=\"201\" height=\"106\" \/><\/div>\n<p>A volunt\u00e1ria definitiva, Maura tem sido parte integrante de cada comit\u00ea da Night of Wonder, presidiu os eventos Texas Hold &#039;Em da PRF e auxilia em eventos e trabalho de escrit\u00f3rio sempre que necess\u00e1rio. Mas ela n\u00e3o para por a\u00ed: Maura recrutou toda a sua fam\u00edlia e dezenas de amigos para apoiar crian\u00e7as com Progeria tamb\u00e9m. Sua personalidade agrad\u00e1vel e disposi\u00e7\u00e3o gentil fizeram dela a escolha perfeita para este ano!<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d0px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dDebbie Ponn\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h4><img loading=\"lazy\" decoding=\"async\" class=\"alignright\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/DebbieBernsEdit2.jpg\" width=\"150\" height=\"249\" \/><strong>Anunciando Debbie Ponn como nossa vencedora do Pr\u00eamio Amy de 2009!<\/strong><\/h4>\n<p>Debbie se envolveu pela primeira vez com a PRF quando veio para a Night of Wonder (NOW) 2003 como convidada dos apoiadores de longa data Robyn e Tom Milbury. No final da noite, ela abordou a diretora da PRF, Audrey Gordon, e disse: &quot;Se voc\u00ea precisar de ajuda com alguma coisa, por favor, me ligue&quot;. Mal sabiam eles o quanto essa oferta afetaria a vida de crian\u00e7as com Prog\u00e9ria. Desde ent\u00e3o, Debbie copresidiu as NOWs 2005, 2007 e 2011, coorganizou o evento de Chicago em junho de 2009 e continua a ajudar a PRF de muitas outras maneiras. Ela est\u00e1 SEMPRE l\u00e1 para ajudar, assim como Amy estava para seus amigos e familiares.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d0px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||verdadeiro\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dJulie Pritchard\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>Parab\u00e9ns a Julie Pritchard, vencedora do Pr\u00eamio Amy de 2007!<\/strong><\/h4>\n<div class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/Rickers.jpg\" alt=\"\" width=\"250\" height=\"158\" \/><\/div>\n<p>Julie \u00e9 uma designer gr\u00e1fica que tem se voluntariado incansavelmente para a PRF desde sua cria\u00e7\u00e3o em 1998. Ela criou folhetos, p\u00f4steres, camisetas e muitas outras pe\u00e7as da PRF que nos permitem alcan\u00e7ar e transmitir nossa mensagem.<\/p>\n<p>\u201cO que acho mais fascinante sobre Julie\u201d, diz Leslie Gordon, que apresentou o pr\u00eamio na Night of Wonder 2007, \u201c\u00e9 que, desde as primeiras 1000 vezes que ela disse &#039;Oh, posso fazer isso por voc\u00ea?&#039;, sua filantropia tem sido realmente um trabalho de amor. Ela se sente t\u00e3o honrada por poder ajudar quanto n\u00f3s nos sentimos por t\u00ea-la em nossa equipe. Julie, voc\u00ea \u00e9 o que Amy exemplificou \u2013 amor, coragem e o tipo de dedica\u00e7\u00e3o incans\u00e1vel que certamente conduzir\u00e1 \u00e0 cura da Progeria.\u201d<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner preenchimento_personalizado_\u00faltima_edi\u00e7\u00e3o=\u201dem|telefone\u201d _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d0px|35px|35px||falso|falso\u201d preenchimento_personalizado_tablet=\u201d|35px||35px||true\u201d preenchimento_personalizado_telefone=\u201d\u201d anima\u00e7\u00e3o_dire\u00e7\u00e3o=\u201dtopo\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner tipo_de_coluna_de_especialidade_salva=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dChip Foose e Kim Paratore\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d custom_margin=\u201d||50px\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h4><strong>2005: Chip Foose e Kim Paratore recebem nosso primeiro pr\u00eamio Amy<\/strong><\/h4>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignright\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/meet_kids_images\/ChipKim05.jpg\" width=\"150\" height=\"174\" \/>PRF e o Comit\u00ea The Night of Wonder 2005 entregaram o primeiro Pr\u00eamio Amy ao nosso convidado de honra, Chip Foose, irm\u00e3o de Amy. Chip est\u00e1 rapidamente se tornando n\u00e3o apenas reconhecido internacionalmente no mundo automobil\u00edstico, mas tamb\u00e9m porta-voz da PRF, envolvendo o produtor de seu show \u201cOverhaulin&#039;\u201d e muitos outros para apoiar a PRF.<\/p>\n<p>Chip diz: \u201cAs pessoas me perguntam constantemente como eu continuo com t\u00e3o pouco descanso e permane\u00e7o t\u00e3o positivo. Eu respondo dizendo: &#039;Eu vi minha irm\u00e3 Amy ir e ir e ir sem nunca ouvir uma \u00fanica reclama\u00e7\u00e3o. Ela \u00e9 minha inspira\u00e7\u00e3o e for\u00e7a constantes.&#039;\u201d<\/p>\n<p>Tamb\u00e9m recebeu o Pr\u00eamio Amy na Noite das Maravilhas de 2005 Kim Paratore, agora membro do Conselho de Administra\u00e7\u00e3o da PRF. Kim tem se envolvido como volunt\u00e1ria da PRF desde o in\u00edcio, tendo presidido as tr\u00eas primeiras galas da Noite das Maravilhas e v\u00e1rios outros eventos de arrecada\u00e7\u00e3o de fundos da PRF.<\/p>\n<p>[\/et_pb_text][et_pb_text admin_label=\u201dcomit\u00ea\u201d _builder_version=\u201d4.17.4\u2033 custom_margin=\u201d||\u201d custom_padding=\u201d25px||25px||true\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d10px\u201d border_color_top=\u201d#8fd2ed\u201d border_width_bottom=\u201d10px\u201d border_color_bottom=\u201d#29327a\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><em>Os vencedores s\u00e3o escolhidos por um comit\u00ea composto pela m\u00e3e de Amy, Terry Foose, Diretora Executiva e Diretora M\u00e9dica da PRF, e premiados anteriores. Eles s\u00e3o anunciados no PRF&#039;s Night of Wonder Gala, realizado a cada 2 anos.<\/em><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201drodap\u00e9\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row_inner column_structure=\u201d1_3,1_3,1_3\u2033 disabled_on=\u201don|on|on\u201d admin_label=\u201dLinha\u201d _builder_version=\u201d4.21.0\u2033 _module_preset=\u201ddefault\u201d min_height=\u201d277px\u201d custom_margin=\u201d|20px|30px||false|false\u201d custom_padding=\u201d0px|30px|0px||false|false\u201d disabled=\u201don\u201d 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_module_preset=\u201dpadr\u00e3o\u201d global_colors_info=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/07\/RFRFinish.png\u201d title_text=\u201dRFRFinish\u201d _builder_version=\u201d4.21.0\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d|20px||-50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201dem|\u00e1rea de trabalho\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201dem|\u00e1rea de trabalho\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201dem\u201d width_unit=\u201ddesligado\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dInscreva-se agora\u201d admin_label=\u201dInscreva-se para receber o boletim informativo\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dligado|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201dligado\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201dligado\u201d]<\/p>\n<h2>Inscrever-se<\/h2>\n<h2>para o nosso<\/h2>\n<h2>Boletim informativo!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDoe agora\u201d admin_label=\u201dJuntos, encontraremos a cura!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bot\u00e3o_bg_color__hover=\u201d#8fd2ed\u201d bot\u00e3o_border_color__hover_enabled=\u201don\u201d]<\/p>\n<h2>Juntos, n\u00f3s<\/h2>\n<h2><em>VAI<\/em><\/h2>\n<h2>encontre a cura!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column tipo=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 preenchimento_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/08\/2024-strip-footer-strip-copy.png\u201d title_text=\u201d2024 c\u00f3pia de tira de rodap\u00e9\u201d _builder_version=\u201d4.27.0\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d 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Dedicated to Amy Foose, whose sunny personality and love of life continue to inspire all those that knew her, this award is for the PRF supporter who meets the following criteria, of which Amy is most remembered for:<b>\r\n<\/b>\r\n\r\n\u2022 A role model for how to live a life of joy and optimism;\r\n\u2022 A good friend, sibling, and daughter\/son;\r\n\u2022 A person with a sense of humor and positive attitude;\r\n\u2022 Someone who strives to make the most out of every situation and takes on challenges with grace, hope and determination; and\r\n\u2022 an individual who has applied the above qualities by tirelessly devoting time, talent and energy to advancing PRF's mission.[\/vc_column_text][vc_column_text]\r\n<p style=\"font-weight: 400;\"><strong>Jodi Mitchell is our 2018 Amy Award recipient!<\/strong><\/p>\r\n<p style=\"font-weight: 400;\"><img class=\"size-full wp-image-4052 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/05\/JMitchell-Amy-award.jpg\" alt=\"\" width=\"300\" height=\"200\" \/>Jodi has been involved with PRF since 2004 when she ran in one of our first road races.\u00a0 After that, she was hooked. Since then, she\u2019s organized a dozen fundraisers at Champions Pub and elsewhere, gotten the biggest team together to run our annual Race for Research, run the Falmouth Road Race on TEAM PRF, volunteers regularly at our office, and basically says to us, \u201cwhat can I do to help?\u201d.\u00a0 Everything Jodi does for PRF is done with enthusiasm, kindness, and love which makes her the perfect choice for this year\u2019s award.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space][vc_column_text]<strong>Bob Morrison \u2013 Supporting PRF Since Day 1 - is our\u00a02016 Amy Award winner!\u00a0<img class=\"alignright\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/Bob-M-2.jpg\" width=\"200\" height=\"299\" \/><\/strong>\r\n\r\nBob was a founding board member (serving on PRF\u2019s Board of Directors from 1999-2007). He brought a savvy business outlook to the board, giving PRF the benefit of his expertise. One of his last votes as a board member was whether or not to fund the first clinical drug trial \u2013 an historic and defining moment for PRF because the trial was a big step forward in our mission, but we didn\u2019t have the money to fully fund it at the time. There was a short moment of silence after the presentation on the trial, while we waited for someone to make a motion and Bob said \u201cWell, isn\u2019t this what we\u2019re here for? We\u2019ve got to make this trial happen.\u201d The vote immediately followed, and it was unanimous. Bob continues to make himself available to give advice on a variety of business matters, and is extremely proud to support PRF, humbly adding that he\u2019s glad to \u201cplay a small part\u201d in it. For his never-ending generosity, compassion and modesty, he received the 2016 Amy Award.\r\n\r\n\u00a0\r\n\r\n[\/vc_column_text][vc_empty_space][vc_row_inner][vc_column_inner][vc_column_text]\r\n<strong><img class=\"alignleft\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/KevinChipZachon-car-2013-crop.jpg\" width=\"263\" height=\"208\" \/>Kevin King \u2013 the 2013 winner - <em>Drives<\/em> the Support for Children with Progeria<\/strong>\r\n\r\nSince 2005, Kevin and his team at YearOne, together with Amy\u2019s brother Chip Foose, have supported PRF through an annual \u201cBraselton Bash\u201d car show in Georgia. The entire staff works tirelessly to ensure a successful weekend. They all happily volunteer their time. This kind of attitude comes from the top \u2013 from Kevin \u2013 who is totally committed to helping children with Progeria as much as he and YearOne possibly can. It is a true labor of love, and he feels as honored to be able to help as we feel to have him on our team. Kevin exemplifies the kind of tireless dedication that will surely drive the cure for Progeria.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_empty_space][vc_row_inner][vc_column_inner][vc_column_text]\r\n<strong>Maura Smith is the 2011 Amy Award winner<\/strong>\r\n\r\n[caption id=\"\" align=\"alignright\" width=\"350\"]<img src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/events_images\/Amy-Award-winner-and-family.jpg\" alt=\"\" width=\"350\" height=\"185\" \/> Maura Smith, with daughters Amanda and Holly, and husband Robert.[\/caption]\r\n\r\nThe ultimate volunteer, Maura has been an integral part of every Night of Wonder committee, chaired PRF\u2019s Texas Hold \u2018Em events, and assists with events and office work whenever needed. But she doesn\u2019t stop there: Maura has recruited her entire family and dozens of friends to support children with Progeria as well. Her pleasant personality and kind disposition made her the perfect choice for this year!\r\n\r\n[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]\r\n\r\n<img class=\"alignleft\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/DebbieBernsEdit2.jpg\" width=\"175\" height=\"290\" \/>\r\n<p style=\"padding-left: 30px;\"><strong>Announcing Debbie Ponn as our 2009 Amy Award winner!<\/strong><\/p>\r\n<p style=\"padding-left: 30px;\">Debbie first became involved with PRF when she came to Night of Wonder (NOW) 2003 as the guest of long-time supporters Robyn and Tom M<\/p>\r\n<p style=\"padding-left: 30px;\">ilbury. At the end of the night, she approached PRF\u2019s director Audrey Gordon and said, \u201cIf you ever need help with anything, please call me\u201d. Little did either of them know how much that offer would affect the lives of children with Progeria. Since that time Debbie co-chaired NOWs 2005, 2007 and 2011, co-organized the Chicago event in June 2009, and continues to help PRF in many other ways. She is ALWAYS there to help, as Amy was for her friends and family.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space][vc_column_text]<strong>Congratulations to Julie Pritchard, the 2007 Amy Award winner!<\/strong>\r\n\r\n[caption id=\"\" align=\"alignright\" width=\"250\"]<img src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/Rickers.jpg\" alt=\"\" width=\"250\" height=\"158\" \/> Julie (top row, 2nd from left) and five of her sisters are all smiles at the Night of Wonder 2007.[\/caption]\r\n\r\nJulie is a graphic designer who has been volunteering tirelessly for PRF since its inception in 1998. She created PRF\u2019s brochures, posters, t-shirts and many other pieces that allow us to reach out and deliver our message.\r\n\r\n\u201cThe thing I find most fascinating about Julie\u201d, says Leslie Gordon, who presented the award at Night of Wonder 2007, \u201cis that, from the first 1000 times that she said \u2018Oh, can I do that for you?\u2019, her philanthropy has truly been a labor of love. She feels as honored to be able to help as we feel to have her on our team. Julie, you are what Amy exemplified \u2013 love, courage, and the kind of tireless dedication that will surely drive the cure for Progeria.\u201d[\/vc_column_text][\/vc_column][vc_column][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]<strong>2005: Chip Foose and Kim Paratore receive our first Amy Award<\/strong>\r\n\r\nPRF and The Night of Wonder 2005 Committee presented the first Amy Award to our honored guest, Chip Foose, Amy\u2019s brother. Chip is fast becoming not only internationally recognized in the auto world, but also a\r\n\r\n<img class=\"alignleft\" src=\"https:\/\/www.progeriaresearch.org\/assets\/images\/meet_kids_images\/ChipKim05.jpg\" width=\"150\" height=\"174\" \/>\r\n\r\nspokesman for PRF, engaging the producer of his show \u201cOverhaulin\u2019\u201d and many others to support PRF.\r\n\r\nChip says, \u201cPeople constantly ask me how I keep going with so little rest and stay so positive. I answer them by saying, \u2018I watched my sister Amy go and go and go without ever hearing a single complaint. She is my constant inspiration and strength.\u2019\u201d\r\n\r\nAlso given the Amy Award at the 2005 Night of Wonder was Kim Paratore, now a member of PRF\u2019s Board of Directors. Kim has been involved as a PRF volunteer since its inception, having chaired the first three Night of Wonder galas, and numerous other PRF fundraising events.\r\n\r\n<hr \/>\r\n\r\n<em>Winners are chosen by a committee comprised of Amy\u2019s mother Terry Foose, PRF\u2019s Executive Director and Medical Director, and past awardees. They are announced at PRF\u2019s Night of Wonder Gala, held every 2 years.<\/em>[\/vc_column_text][\/vc_column][\/vc_row]\t\t","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-966","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Amy Award | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"Amy Award Winners are for supporters that win the Amy Award dedicated to Amy Foose, whose sunny personality and love of life continue to inspire all those that knew her.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/pt\/amy-award-winners\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" 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