{"id":18802,"date":"2024-07-24T12:33:03","date_gmt":"2024-07-24T16:33:03","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=18802"},"modified":"2025-01-29T09:22:01","modified_gmt":"2025-01-29T14:22:01","slug":"nytarticle2024","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/pt\/2024\/07\/24\/nytarticle2024\/","title":{"rendered":"New York Times | 24 de julho de 2024: Uma cura para a progeria pode estar no horizonte"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/NYTarticle.png” title_text=”NYTarticle” url=”https:\/\/www.charitynavigator.org\/ein\/043460220″ align=”center” admin_label=”NYT Article photo” _builder_version=”4.24.3″ _module_preset=”default” width=”50%” max_width=”50%” global_colors_info=”{}”][\/et_pb_image][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/NY-Times-headline-screen-shot.png” align=”center” _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.24.3″ text_font_size=”18px” background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”]<\/p>\n

Em um artigo publicado hoje no New York Times<\/strong><\/a>A diretora m\u00e9dica da PRF, Dra. Leslie Gordon, e colegas compartilharam a hist\u00f3ria fenomenal de colabora\u00e7\u00f5es cient\u00edficas que levaram a avan\u00e7os recentes na edi\u00e7\u00e3o gen\u00e9tica em Prog\u00e9ria.<\/p>\n

As parcerias com amigos e colegas de longa data da PRF, o antigo diretor do NIH, Dr. Francis Collins, e o especialista em edi\u00e7\u00e3o gen\u00e9tica, Dr. David Liu, de Harvard\/MIT, produziram descobertas extraordin\u00e1rias anteriormente publicado no jornal <\/strong><\/a>Natureza<\/em><\/strong><\/a>, sobre os poderes potencialmente curativos da edi\u00e7\u00e3o de base.<\/p>\n

Veja a hist\u00f3ria completa aqui: Uma doen\u00e7a que faz as crian\u00e7as envelhecerem rapidamente est\u00e1 mais perto da cura<\/a><\/em><\/strong><\/p>\n

[\/et_pb_text][et_pb_testimonial quote_icon_color=”#8FD2ED” quote_icon_background_color=”#29327A” _builder_version=”4.27.0″ _module_preset=”default” body_font_size=”20px” background_color=”#00B2E2″ background_layout=”dark” custom_margin=”||25px||false|false” custom_padding=”0px||0px||false|false” border_radii=”on|40px|40px|40px|40px” global_colors_info=”{}”]<\/p>\n

<\/em><\/strong><\/p>\n

Os novos tipos de edi\u00e7\u00e3o gen\u00e9tica s\u00e3o \u201cpotencialmente a resposta a um sonho que todos queremos que se torne realidade\u201d,<\/em><\/strong><\/p>\n

Dr. Francisco Collins<\/em><\/strong><\/p>\n

[\/et_pb_testimonial][et_pb_testimonial quote_icon_color=”#8FD2ED” quote_icon_background_color=”#29327A” _builder_version=”4.27.0″ _module_preset=”default” body_font_size=”20px” background_color=”#00B2E2″ background_layout=”dark” custom_margin=”||0px||false|false” custom_padding=”0px||0px||false|false” border_radii=”on|40px|40px|40px|40px” global_colors_info=”{}”]<\/p>\n

<\/em><\/strong><\/p>\n

Confira alguns dos maravilhosos coment\u00e1rios dos leitores:<\/b><\/p>\n

\u201cTecnologia de edi\u00e7\u00e3o de DNA, splicing e reescrita\u2026 uma leitura de cair o queixo. Uau\u2026\u201d<\/em><\/p>\n

\u201cPara uma melhor compreens\u00e3o desta doen\u00e7a, assista ao filme \u201cLife According to Sam\u201d na HBO. Voc\u00ea ficar\u00e1 surpreso com a devo\u00e7\u00e3o dos pais de Sam em descobrir uma cura para a progeria. Voc\u00ea ficar\u00e1 surpreso com Sam, que tive a sorte de conhecer enquanto ele explorava tocar t\u00edmpanos em uma orquestra sinf\u00f4nica durante o acampamento de m\u00fasica de ver\u00e3o. Ele era um aluno multitalentoso, engajado e curioso que conquistou muito em sua vida muito curta.\u201d<\/em><\/p>\n

\u201cArtigo inspirador! Obrigado, rep\u00f3rter do Times, por direcionar nossa aten\u00e7\u00e3o para as lutas que valem a pena lutar! As boas lutas! Vamos declarar guerra \u00e0 doen\u00e7a e \u00e0 desordem em vez de humanos contra humanos. Gaste dinheiro matando v\u00edrus, n\u00e3o uns aos outros. Por favor, continue nos conscientizando sobre todas as boas lutas que est\u00e3o sendo travadas em laborat\u00f3rios e hospitais. Precisamos disso! Obrigado!\u201d<\/em><\/p>\n

\u201c\u00c9 muito emocionante ler. O Dr. Collins \u00e9 um her\u00f3i americano. Esses cientistas aqui na ponta merecem nosso financiamento e nossa admira\u00e7\u00e3o. Os pacientes, acima de tudo, merecem nosso apoio. Que grupo de pessoas corajosas para viver com essa doen\u00e7a debilitante. Esperando por um grande avan\u00e7o em breve.\u201d<\/em><\/p>\n

\u201cAdorei este artigo! Obrigado NYT. Que \u00f3timo ler sobre algo t\u00e3o promissor que ajudar\u00e1 tantos. Bravo ao Dr. Collin e colegas.\u201d<\/em><\/p>\n

\u201cQue artigo maravilhoso e que tesouro americano Francis Collins e David Liu s\u00e3o. T\u00e3o gratos por sua dedica\u00e7\u00e3o altru\u00edsta a essas doen\u00e7as gen\u00e9ticas raras.\u201d<\/em><\/p>\n

\u201cAbsolutamente fascinante. Espero que eles consigam a aprova\u00e7\u00e3o para o ensaio cl\u00ednico em breve. \u00d3timo trabalho.\u201d<\/em><\/p>\n

\u201cIsso \u00e9 simplesmente fenomenal. Eu era muito interessado em medicina quando crian\u00e7a e assistia a document\u00e1rios sobre todos os tipos de doen\u00e7as raras. A Prog\u00e9ria sempre me chamou a aten\u00e7\u00e3o. Estou feliz em ver esse tipo de trabalho sendo feito. Espero que isso seja bem-sucedido na cura de crian\u00e7as que t\u00eam essa condi\u00e7\u00e3o e que possa ser usado para curar muitas outras.\u201d<\/em><\/p>\n

\u201cNa d\u00e9cada de 1990, eu era um escritor cient\u00edfico para um laborat\u00f3rio de gen\u00e9tica de mam\u00edferos. Naquela \u00e9poca, as palavras \u201cedi\u00e7\u00e3o de base in vivo\u201d teriam me feito cair da cadeira com um grito de alegria! Compartilho o \u201cUAU\u201d do Dr. Collins e sou muito grato pela clareza e otimismo deste artigo.\u201d<\/em><\/p>\n

\u201cObrigado ao autor por cobrir esse desenvolvimento cient\u00edfico t\u00e3o importante. Grandes elogios ao Dr. Collins e a todos na PRF por seu trabalho incans\u00e1vel. Tive a sorte e a humildade de estar l\u00e1 quando a PRF come\u00e7ou e me voluntariei alegremente para muitas de suas iniciativas de arrecada\u00e7\u00e3o de fundos para ajudar a apoiar seus esfor\u00e7os incr\u00edveis. Tive a sorte de conhecer Sam v\u00e1rias vezes \u2013 ele era uma pessoa incr\u00edvel. Ver o sucesso que todo esse trabalho duro alcan\u00e7ou e continua alcan\u00e7ando \u00e9 uma verdadeira alegria.\u201d<\/em><\/p>\n

\u201cO Dr. Collins \u00e9 o tipo de cientista de que precisamos. N\u00e3o est\u00e1 procurando lucrar ganhando milh\u00f5es com um tratamento medicamentoso, mas est\u00e1 feliz em viver com seu sal\u00e1rio do NIH enquanto faz a pesquisa cr\u00edtica que salvar\u00e1 vidas. Mais como ele, por favor!\u201d<\/em><\/p>\n

\u201cIsso \u00e9 maravilhoso e esperan\u00e7oso. Tive a sorte de conhecer Sam e seus pais. Ainda penso nele, sua coragem, tenacidade e esp\u00edrito incr\u00edvel. Ele est\u00e1 torcendo por voc\u00eas de onde sua jornada o levou, com certeza!\u201d<\/em><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

A pesquisa est\u00e1 esquentando: Conforme relatado no New York Times, a cura para a Progeria pode estar no horizonte!! Nossas colabora\u00e7\u00f5es com as principais mentes em edi\u00e7\u00e3o gen\u00e9tica est\u00e3o dando resultado e, nas palavras do ex-diretor do NIH, Dr. Francis Collins, podem ser "a resposta para um sonho que todos n\u00f3s queremos que se torne realidade".<\/p>","protected":false},"author":2,"featured_media":19157,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-18802","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"\nNYT Article I The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"Remarkable Progeria gene editing progress featured in NY Times.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/NYTarticle.png\" \/>\n\t<meta property=\"og:image:width\" content=\"800\" \/>\n\t<meta property=\"og:image:height\" content=\"800\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Karen Betournay\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@Progeria\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Karen Betournay\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutos\" \/>\n<script type=\"application\/ld+json\" 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