{"id":2037,"date":"2012-09-24T12:11:18","date_gmt":"2012-09-24T12:11:18","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=2037"},"modified":"2020-12-11T11:41:51","modified_gmt":"2020-12-11T16:41:51","slug":"the-world-learns-of-progeria-treatment","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/pt\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/","title":{"rendered":"O mundo aprende sobre o tratamento da prog\u00e9ria"},"content":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinicial\u201d background_position=\u201dtopo_esquerdo\u201d background_repeat=\u201drepetir\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinicial\u201d background_position=\u201dtopo_esquerdo\u201d background_repeat=\u201drepetir\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n

Not\u00edcias sobre o primeiro tratamento para Prog\u00e9ria est\u00e3o se espalhando pelo mundo, com dezenas de ve\u00edculos de comunica\u00e7\u00e3o relatando esse avan\u00e7o not\u00e1vel. Clique aqui<\/a> para ler o an\u00fancio e ver abaixo links para dezenas de artigos, clipes de r\u00e1dio e transmiss\u00f5es de TV!<\/p>\n

Clique aqui<\/a> para ler nosso boletim especial sobre as descobertas. <\/b>Extra! Extra! Leia tudo sobre isso!<\/strong><\/p>\n

O fasc\u00ednio do p\u00fablico com a Progeria e sua rela\u00e7\u00e3o com o envelhecimento continua a crescer, \u00e0 medida que a not\u00edcia do primeiro tratamento para crian\u00e7as com Progeria se espalha. Confira essas hist\u00f3rias on-line e no ar de ve\u00edculos de primeira linha.\u00a0 Seja o primeiro a saber quando mais hist\u00f3rias aparecerem<\/strong>: 'curta' n\u00f3s em Facebook<\/a>, siga-nos em Twitter<\/a>, ou envie-nos seu endere\u00e7o de e-mail<\/a>.<\/p>\n

\"\"

Devin, do Canad\u00e1, durante uma visita ao Hospital Infantil de Boston em 2008 para o ensaio cl\u00ednico do medicamento Progeria.<\/p><\/div>\n

O que as pessoas est\u00e3o dizendo\u2026<\/p>\n

\u201co resultado de uma corrida cient\u00edfica<\/strong>" \u2013 Robert Siegel, NPR<\/em><\/p>\n

\u201cHouve uma recompensa inesperada para o resto da humanidade<\/strong>\u2026alguns\u2026estar\u00e3o procurando maneiras de usar essas novas informa\u00e7\u00f5es para afastar uma s\u00e9rie de doen\u00e7as associadas ao envelhecimento\u2026 talvez a coisa mais not\u00e1vel sobre o novo tratamento seja a rapidez com que ele foi desenvolvido.\u201d \u2013 Jon Hamilton, NPR<\/em><\/p>\n

\u201cAgora, n\u00e3o s\u00f3 temos o nosso primeiro tratamento, mas sabemos pela primeira vez que a Progeria pode ser melhorada, e isso nos inspira a trabalhar mais e mais r\u00e1pido<\/strong> para tratamentos adicionais que poderiam funcionar em conjunto com Lonafarnib para fazer a diferen\u00e7a na sa\u00fade de crian\u00e7as com Prog\u00e9ria.\u201d\u00a0 \u00a0<\/em>\u2013 Diretora M\u00e9dica da PRF, Dra. Leslie Gordon, CNN Health<\/em><\/p>\n

\u201cA primeira vez que algu\u00e9m fez algo que, de alguma forma, alterou a hist\u00f3ria natural desta doen\u00e7a<\/strong>."\u201d \u2013 Presidente do ensaio cl\u00ednico do medicamento Progeria, Dr. Mark Kieran,<\/em> O Globo de Boston<\/em><\/p>\n

\u201c[Estes resultados] mostram a dedica\u00e7\u00e3o que os pais e as organiza\u00e7\u00f5es sem fins lucrativos t\u00eam na comunidade de doen\u00e7as raras para fazer as coisas quando tudo parece perdido\u2026 este estudo \u00e9 um \u00f3timo exemplo<\/strong> de como uma pequena organiza\u00e7\u00e3o sem fins lucrativos pode ajudar a estimular e traduzir pesquisas biom\u00e9dicas e gen\u00e9ticas b\u00e1sicas em um tratamento humano.\u201d \u2013 <\/em>Doutorado James Radke<\/em>, Relat\u00f3rio de Doen\u00e7as Raras<\/em><\/p>\n

\u201c\u00c9 enorme\u00c9 um milagre<\/strong>. Devin tem novas esperan\u00e7as, sonhos, seu ditado \u00e9: \u201cSonhe alto ou v\u00e1 para casa\u201d \u2013 Jamie,<\/em> CNN Sa\u00fade<\/em><\/p>\n

\u201cA hist\u00f3ria cont\u00ednua de conquistar Prog\u00e9ria \u00e9 uma ilustra\u00e7\u00e3o gloriosa do valor da pesquisa b\u00e1sica na descoberta de como algo acontece <\/strong>\u2013 e esse \u00e9 o cora\u00e7\u00e3o e a alma da ci\u00eancia.\u201d \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>\n

\"\"

Frannie Marmorstein, da Spectrum Health, segura animadamente a edi\u00e7\u00e3o de 25 de setembro de 2012 do Wall Street Journal, mostrando o artigo com os resultados do estudo acima da dobra na primeira p\u00e1gina!<\/p><\/div>\n

Veja artigos completos aqui\u2026<\/strong><\/p>\n

\"\"<\/strong><\/p>\n

WBF 88.7 \u2013 NPR News \u2013 OU\u00c7A a entrevista de Robert Siegel \u201cAll Things Considered\u201d com a Diretora M\u00e9dica da PRF e seu filho Sam! (link n\u00e3o mais dispon\u00edvel)<\/strong><\/p>\n

\"\"<\/p>\n

ASSISTA \u00e0 reportagem da afiliada local da ABC em Boston, WCVB-TV (link n\u00e3o dispon\u00edvel mais)<\/strong><\/p>\n

\"\"<\/p>\n

Wall Street Journal \u2013 Market Watch (link n\u00e3o mais dispon\u00edvel)<\/strong><\/p>\n

Primeiro-<\/strong>Tratamento para doen\u00e7a rara do envelhecimento infantil mostra melhora em todos os participantes do estudo (link n\u00e3o mais dispon\u00edvel)<\/strong><\/p>\n

Estudo sobre doen\u00e7a rara ajuda na busca por pistas sobre envelhecimento \/ Medicamento retarda danos em crian\u00e7as que tamb\u00e9m est\u00e3o ligados a problemas card\u00edacos em outras<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

CNN Sa\u00fade<\/a><\/strong><\/p>\n

Avan\u00e7os nas doen\u00e7as do envelhecimento precoce em crian\u00e7as<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

Novo estudo tem como alvo doen\u00e7as infantis de envelhecimento r\u00e1pido (link n\u00e3o mais dispon\u00edvel) <\/strong><\/p>\n

\"\"
<\/strong>Ci\u00eancia Di\u00e1ria: <\/a><\/strong>Medicamento Originalmente Desenvolvido Para C\u00e2ncer Mostra-se Eficaz Para Crian\u00e7as Com Progeria<\/strong><\/a><\/p>\n

\"\"
90.9 WBUR Sa\u00fade Comum: <\/strong>Primeiro tratamento encontrado para doen\u00e7a de envelhecimento r\u00e1pido em crian\u00e7as (link n\u00e3o mais dispon\u00edvel) <\/strong><\/p>\n\n\n\n
\n

Somos eternamente gratos \u00e0 fant\u00e1stica equipe da Espectro<\/a> pelos seus esfor\u00e7os incans\u00e1veis para espalhar a palavra sobre o Proger<\/strong>ia e PRF's <\/strong>trabalhar.\u00a0<\/strong><\/p>\n

\u00a0<\/strong>\"\"<\/a><\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

\u00a0<\/strong>\u00a0<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to read the announcement, and see below for links on dozens of articles, radio […]<\/p>","protected":false},"author":1,"featured_media":2039,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"

News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here<\/a> to read the announcement, and see below for links on dozens of articles, radio clips and TV airings!<\/p>

Click here<\/a> to read our special newsletter on the findings. <\/b>Extra! Extra! Read All About It!<\/strong><\/p>

The public\u2019s fascination with Progeria and its relation to aging continues to rise, as word of the first treatment for children with Progeria spreads. Check out these stories on-line and on-air from top-tier outlets.\u00a0 Be the first to know as more stories appear<\/strong>: 'like' us on Facebook<\/a>, follow us on Twitter<\/a>, or send us your email address<\/a>.<\/p>[caption id=\"attachment_2038\" align=\"alignleft\" width=\"225\"]\"\" Devin from Canada during a 2008 visit to Boston Children\u2019s Hospital for the Progeria clinical drug trial.[\/caption]

What people are saying\u2026<\/p>

\u201cthe result of a scientific sprint<\/strong>\u201d \u2013 Robert Siegel, NPR<\/em><\/p>

\u201cThere\u2019s been an unexpected payoff for the rest of humanity<\/strong>...some\u2026will be looking for ways to use this new information to ward off a range of diseases associated with aging\u2026 perhaps the most remarkable thing about the new treatment is how fast it was developed.\u201d\u00a0 \u2013 Jon Hamilton, NPR<\/em><\/p>

\u201cNow, we not only have our first treatment, but we know for the first time that Progeria can be improved, and this inspires us to work harder and faster<\/strong> toward additional treatments that could work in conjunction with Lonafarnib to make a difference in the health of children with Progeria.\u201d\u00a0 \u00a0<\/em>- PRF\u2019s Medical Director Dr. Leslie Gordon, CNN Health<\/em><\/p>

\"The first time anyone has done anything that in any way, shape or form altered the natural history of this disease<\/strong>.\" \u2013 Progeria Drug trial Chair Dr. Mark Kieran,<\/em> The Boston Globe<\/em><\/p>

\"[These results] show the dedication parents and non-profits have in the rare disease community to get things done when all seems lost\u2026 this study is a great example<\/strong> of how a small non-profit can help stimulate and translate basic biomedical and genetic research into a human treatment.\" \u2013 <\/em>James Radke PhD<\/em>, Rare Disease Report<\/em><\/p>

\"It\u2019s huge, It\u2019s a miracle<\/strong>. Devin has new hope, dreams, his saying is, \u201cDream big or go home\u201d \u2013 Jamie,<\/em> CNN Health<\/em><\/p>

\u201cThe continuing story of conquering Progeria is a glorious illustration of the value of basic research in discovering how something happens <\/strong>\u2013 and that\u2019s the heart and soul of science.\u201d \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>[caption id=\"attachment_2039\" align=\"aligncenter\" width=\"432\"]\"\" Spectrum Health's Frannie Marmorstein excitedly holds the Sept. 25, 2012 edition of the Wall Street Journal, showing the trial results article above the fold on the front page![\/caption]

See complete articles here\u2026<\/strong><\/p>

\"\"<\/strong><\/p>

WBF 88.7 \u2013 NPR News \u2013<\/a>LISTEN<\/a> to Robert Siegel\u2019s \u201cAll Things Considered\u201d interview with PRF\u2019s Medical Director and her son Sam!<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

\u00a0<\/p>

WATCH the news report on Boston\u2019s local abc affiliate, WCVB-TV<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

Wall Street<\/a> Journal - Market Watch<\/a><\/strong><\/p>

First-<\/strong><\/a>Ever Treatment For Rare Childhood Aging Disease Shows Improvement In All Trial Participant<\/strong><\/a><\/p>

Study of Rare Disease Helps in Search for Clues on Aging \/\u00a0 Drug Slows Damage in Children That Also Is Linked to Heart Problems in Others<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

\u00a0<\/p>

CNN Health<\/a><\/strong><\/p>

Advances in kids' early aging disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

WCVB.com<\/a><\/strong><\/p>

New trial targets rapid-aging childhood disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

Science Daily<\/a><\/strong><\/p>

Drug Originally Developed for Cancer Proves Effective for Children With Progeria<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/p>

90.9 WBUR CommonHealth<\/a><\/strong><\/p>

First Treatment Found For Rapid-Aging Disease In Children<\/strong><\/a><\/p>

\u00a0<\/p>

\u00a0<\/p>

We are eternally grateful to the fantastic team at Spectrum<\/a> for their tireless efforts to spread the word about Proger<\/strong>ia and PRF\u2019s <\/strong>work.\u00a0<\/strong><\/p>

\u00a0<\/strong>\"\"<\/a><\/p><\/td><\/tr><\/tbody><\/table>

\u00a0<\/strong>\u00a0<\/strong><\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2037","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"\nThe World Learns of Progeria Treatment - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/pt\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The World Learns of Progeria Treatment - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to read the announcement, and see below for links on dozens of articles, radio […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/pt\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2012-09-24T12:11:18+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2020-12-11T16:41:51+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Frannnie-with-WSJ.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"432\" \/>\n\t<meta property=\"og:image:height\" content=\"324\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"gravoc\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@Progeria\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"gravoc\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\"},\"author\":{\"name\":\"gravoc\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/person\/a3c935a81e92242c6a77ae0018542928\"},\"headline\":\"The World Learns of Progeria Treatment\",\"datePublished\":\"2012-09-24T12:11:18+00:00\",\"dateModified\":\"2020-12-11T16:41:51+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\"},\"wordCount\":682,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Frannnie-with-WSJ.jpg\",\"articleSection\":[\"News\"],\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\",\"name\":\"The World Learns of Progeria Treatment - 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