{"id":4220,"date":"2018-09-11T15:29:39","date_gmt":"2018-09-11T15:29:39","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=4220"},"modified":"2020-03-10T18:38:31","modified_gmt":"2020-03-10T18:38:31","slug":"our-2018-newsletter-is-here-2","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/pt\/2018\/09\/11\/our-2018-newsletter-is-here-2\/","title":{"rendered":"Nosso boletim informativo de 2018 chegou!"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;3.22&#8243;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;3.27.4&#8243; z_index_tablet=&#8221;500&#8243;]<\/p>\n<h4>NOT\u00cdCIAS FANT\u00c1STICAS! Estudo publicado no JAMA descobre que o tratamento estende a sobreviv\u00eancia<\/h4>\n<p>Em um desenvolvimento espetacular, um novo estudo publicado no The Journal of the American Medical Association (JAMA) mostra que o tratamento com lonafarnib estende a expectativa de vida em crian\u00e7as com Progeria. Esta \u00e9 a primeira evid\u00eancia de que o lonafarnib sozinho melhora a sobreviv\u00eancia para esta doen\u00e7a fatal. Logo ap\u00f3s o estudo do JAMA, a PRF e a Eiger BioPharmaceuticals anunciaram que far\u00e3o uma parceria para buscar a aprova\u00e7\u00e3o do lonafarnib pelo FDA para que as crian\u00e7as possam acessar o medicamento com uma prescri\u00e7\u00e3o em vez de por meio de um ensaio cl\u00ednico.<\/p>\n<p>Leia mais visualizando o PDF completo abaixo.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/09\/17532-2018-NEWSLETTER_spreads_web-2.pdf&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;View the Full  2018 Newsletter&#8221; _builder_version=&#8221;3.21.1&#8243; background_layout=&#8221;dark&#8221; z_index_tablet=&#8221;500&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Leia sobre nosso progresso not\u00e1vel no ano passado, os \u00faltimos desenvolvimentos em nosso ensaio cl\u00ednico, nossos maravilhosos Cap\u00edtulos e Volunt\u00e1rios e muito mais.<\/p>","protected":false},"author":2,"featured_media":7324,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"image","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\t\t\t\t[vc_row][vc_column][vc_column_text][\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]\r\n\r\nI am text block. Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.\r\n\r\n[\/vc_column_text][\/vc_column][\/vc_row]\t\t","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-4220","post","type-post","status-publish","format-image","has-post-thumbnail","hentry","category-news","post_format-post-format-image"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Our 2018 Newsletter is Here! - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/pt\/2018\/09\/11\/our-2018-newsletter-is-here-2\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Our 2018 Newsletter is Here! - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/pt\/2018\/09\/11\/our-2018-newsletter-is-here-2\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-09-11T15:29:39+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2020-03-10T18:38:31+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/09\/2018-Newsletter.png\" \/>\n\t<meta property=\"og:image:width\" content=\"813\" \/>\n\t<meta property=\"og:image:height\" content=\"1054\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Karen Betournay\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@Progeria\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Karen Betournay\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ru\/2018\/09\/11\/our-2018-newsletter-is-here-2\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ru\/2018\/09\/11\/our-2018-newsletter-is-here-2\/\"},\"author\":{\"name\":\"Karen Betournay\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/person\/2be6cec85c11aaef7a7602636c5b9946\"},\"headline\":\"Our 2018 Newsletter is Here!\",\"datePublished\":\"2018-09-11T15:29:39+00:00\",\"dateModified\":\"2020-03-10T18:38:31+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ru\/2018\/09\/11\/our-2018-newsletter-is-here-2\/\"},\"wordCount\":197,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ru\/2018\/09\/11\/our-2018-newsletter-is-here-2\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/09\/2018-Newsletter.png\",\"articleSection\":[\"News\"],\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.progeriaresearch.org\/ru\/2018\/09\/11\/our-2018-newsletter-is-here-2\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ru\/2018\/09\/11\/our-2018-newsletter-is-here-2\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/ru\/2018\/09\/11\/our-2018-newsletter-is-here-2\/\",\"name\":\"Our 2018 Newsletter is Here! 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