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Leslie Gordon and Scott Berns\u2019 only child Sam was diagnosed with Progeria in 1998, they immediately began to collect as much information as they could find on the disease. They discovered that there wasn\u2019t much available: there was no way to definitively test for the disease, no funding for Progeria research, and no organization advocating for children with Progeria. So in 1999, they gathered family, friends and colleagues and established The Progeria Research Foundation to find the cause, treatment and cure for Progeria.\r\n\r\nSince then, hundreds of dedicated volunteers have joined the PRF team to help advance the field of Progeria research at an extraordinary rate. 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