{"id":9181,"date":"2019-12-24T19:32:53","date_gmt":"2019-12-24T19:32:53","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=9181"},"modified":"2024-04-22T09:35:55","modified_gmt":"2024-04-22T13:35:55","slug":"international-registry-2","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/ur\/international-registry-2\/","title":{"rendered":"\u0628\u06cc\u0646 \u0627\u0644\u0627\u0642\u0648\u0627\u0645\u06cc \u0631\u062c\u0633\u0679\u0631\u06cc \u067e\u0631\u0648\u06af\u0631\u0627\u0645"},"content":{"rendered":"

[et_pb_section fb_built=”1″ fullwidth=”on” disabled_on=”off|off|off” _builder_version=”4.16″ border_width_bottom=”55px” border_color_bottom=”#29327a” locked=”off” collapsed=”on” global_colors_info=”{}”][et_pb_fullwidth_header _builder_version=”4.24.0″ title_font=”||||||||” title_font_size=”55″ background_color=”#29327a” background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/12\/Prachi.jpg” background_position=”center_left” custom_padding=”9vw||9vw||true” custom_padding_tablet=”” custom_padding_phone=”|56px||” custom_padding_last_edited=”on|desktop” title_font_size_tablet=”45px” title_font_size_phone=”40px” title_font_size_last_edited=”on|phone” z_index_tablet=”500″ custom_css_main_element=”background-position: center 18% !important;” global_colors_info=”{}”]<\/p>\n

The PRF <\/span><\/span><\/h1>\n

International <\/span><\/span><\/h1>\n

Progeria Patient <\/span><\/span><\/h1>\n

Registry<\/span><\/span><\/span><\/h1>\n

<\/span><\/span><\/p>\n

 <\/p>\n

[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|54px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_sidebar area=”et_pb_widget_area_1″ disabled_on=”on|on|off” admin_label=”Science Sidebar” module_class=”subpage-sidebars” _builder_version=”4.16″ animation_style=”fade” z_index_tablet=”500″ header_text_shadow_horizontal_length_tablet=”0px” header_text_shadow_vertical_length_tablet=”0px” header_text_shadow_blur_strength_tablet=”1px” body_text_shadow_horizontal_length_tablet=”0px” body_text_shadow_vertical_length_tablet=”0px” body_text_shadow_blur_strength_tablet=”1px” border_width_right=”5px” border_width_right_tablet=”5px” border_width_right_phone=”5px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” text_shadow_horizontal_length_tablet=”0px” text_shadow_vertical_length_tablet=”0px” text_shadow_blur_strength_tablet=”1px” locked=”off” global_colors_info=”{}”]
\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner custom_padding_last_edited=”on|phone” disabled_on=”on|on|” _builder_version=”4.16″ custom_padding=”39.4375px|35px|0px||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” z_index_tablet=”500″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”RESEARCH PROGRAMS PAGE INTRO” _builder_version=”4.24.3″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ z_index_tablet=”500″ box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n

The Progeria Research Foundation is the global resource for Progeria research and education. Progeria is an ultra-rare condition. In order to better understand the pathology and natural course of the syndrome, we established an International Registry Program.<\/p>\n

The Registry provides resources for the study of Progeria and maintains a centralized database on children with Progeria from around the world, while also serving to improve communication of ideas among researchers, to assure rapid distribution of any new information that may benefit patients and their families.<\/p>\n

The Registry may be audited by governmental agencies, such as the US Food and Drug Administration, in situations such as drug development.<\/p>\n

Your cooperation in registering and in helping to contribute information on children with Progeria to the Registry is greatly appreciated. If you are the parent, physician, or other representative of a child with Progeria, please fill out a Registry Form, and submit it to\u00a0<\/span>info@progeriaresearch.org<\/a>.<\/strong><\/p>\n

Thank you in advance for participating in The PRF International Progeria Patient Registry<\/span>.<\/p>\n

[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=”1_2,1_2″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/04\/PRF-Registry-Form-English-v.March-2024.docx” button_text=”English Registry Form” button_alignment=”center” admin_label=”English Registry Form” _builder_version=”4.24.3″ background_layout=”dark” custom_margin=”||20px||false|false” custom_padding=”|25px||23px|false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/Arabic-PRF-Registry-Form-Aug-2021.docx” button_text=”Arabic Registry Form” button_alignment=”center” admin_label=”Arabic Registry Form” _builder_version=”4.19.4″ background_layout=”dark” custom_margin=”||20px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/01\/PRF-Registry-Form-Chinese-2021.docx” button_text=”Chinese Registry Form” button_alignment=”center” admin_label=”Chinese Registry Form” _builder_version=”4.16″ background_layout=”dark” custom_margin=”||20px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/01\/PRF-Registry-Form-Dutch-2021.docx” button_text=”Dutch Registry Form” button_alignment=”center” admin_label=”Dutch Registry Form” _builder_version=”4.17.3″ background_layout=”dark” custom_margin=”||20px||false|false” custom_padding=”|29px||28px|false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/01\/PRF-Registry-Form-French-2021.docx” button_text=”French Registry Form” button_alignment=”center” admin_label=”French Registry Form” _builder_version=”4.23.1″ background_layout=”dark” custom_margin=”||20px||false|false” custom_padding=”|32px||30px|false|false” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column_inner][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/01\/PRF-Registry-Form-Hindi-2021.docx” button_text=”Hindi Registry Form” button_alignment=”left” admin_label=”Hindi Registry Form” _builder_version=”4.23.1″ background_layout=”dark” custom_margin=”||20px||false|false” custom_padding=”|32px||30px|false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/04\/ITALIAN-PRF-REGISTRY-FORM-V-Aug-2021.docx” button_text=” Italian Registry Form ” button_alignment=”left” admin_label=”Russian Registry Form” _builder_version=”4.17.3″ background_layout=”dark” custom_margin=”||20px||false|false” custom_padding=”|33px|||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/PRF-Registry-Form-Russian-2023.doc” button_text=”Russian Registry Form” button_alignment=”left” admin_label=”Russian Registry Form” _builder_version=”4.22.1″ background_layout=”dark” custom_margin=”||20px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/01\/PRF-Registry-Form-Spanish-2021.docx” button_text=”Spanish Registry Form” button_alignment=”left” admin_label=”Spanish Registry Form” _builder_version=”4.16″ background_layout=”dark” custom_margin=”||20px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/01\/PRF-Registry-Form-Turkish-2021.docx” button_text=”Turkish Registry Form” button_alignment=”left” admin_label=”Turkish Registry Form” _builder_version=”4.17.3″ background_layout=”dark” custom_margin=”||20px||false|false” custom_padding=”|24px|||false|false” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”footer” _builder_version=”4.21.0″ background_color=”#29327a” custom_margin=”-2px|||||” custom_padding=”0|0px|0|0px|false|false” z_index_tablet=”500″ border_width_top=”12px” border_color_top=”#00b2e2″ global_module=”133″ locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_4,1_4,1_2″ make_equal=”on” module_class=” et_pb_row_fullwidth” _builder_version=”4.16″ width=”89%” width_tablet=”80%” width_phone=”” width_last_edited=”on|desktop” max_width=”89%” max_width_tablet=”80%” max_width_phone=”” max_width_last_edited=”on|desktop” z_index_tablet=”500″ make_fullwidth=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta button_url=”https:\/\/www.progeriaresearch.org\/newsletter-signup\/” button_text=”Sign Up Now” admin_label=”Sign Up for Newsletter” module_class=”sign-btn” _builder_version=”4.16″ header_font_size=”25px” background_color=”#29327a” animation_style=”slide” animation_direction=”left” animation_intensity_slide=”25%” header_font_size_tablet=”” header_font_size_phone=”30px” header_font_size_last_edited=”on|desktop” z_index_tablet=”500″ border_radii=”on|25px|25px|25px|25px” global_colors_info=”{}” button_bg_color__hover_enabled=”on” button_bg_color__hover=”#8fd2ed” button_border_color__hover_enabled=”on”]<\/p>\n

Sign Up<\/h2>\n

for Our<\/h2>\n

Newsletter!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta button_url=”https:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR” button_text=”Donate Now” admin_label=”Together, we will find the cure!” module_class=”sign-btn” _builder_version=”4.16″ header_font_size=”25px” background_color=”#29327a” animation_style=”slide” animation_direction=”left” animation_intensity_slide=”25%” header_font_size_tablet=”” header_font_size_phone=”30px” header_font_size_last_edited=”on|desktop” body_font_size_tablet=”” body_font_size_phone=”” body_font_size_last_edited=”on|desktop” z_index_tablet=”500″ border_radii=”on|25px|25px|25px|25px” global_colors_info=”{}” button_bg_color__hover_enabled=”on” button_bg_color__hover=”#8fd2ed” button_border_color__hover_enabled=”on”]<\/p>\n

Together, we<\/h2>\n

WILL<\/em><\/h2>\n

find the cure!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/02\/2024-strip-footer-strip-.png” title_text=”2024 strip footer strip” _builder_version=”4.24.0″ _module_preset=”default” custom_margin=”35px||||false|false” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

The PRF International Progeria Patient Registry   The Progeria Research Foundation is the global resource for Progeria research and education. Progeria is an ultra-rare condition. In order to better understand the pathology and natural course of the syndrome, we established an International Registry Program. 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