\u0688\u0627\u06a9\u0679\u0631 \u06af\u0648\u0631\u0688\u0646 \u0646\u06d2 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u0633\u06d2 \u0645\u062a\u0627\u062b\u0631\u06c1 \u0627\u0641\u0631\u0627\u062f \u06a9\u06d2 \u0639\u0644\u0627\u062c \u0627\u0648\u0631 \u0639\u0644\u0627\u062c \u062a\u0644\u0627\u0634 \u06a9\u0631\u0646\u06d2 \u06a9\u06cc \u0631\u0627\u06c1 \u06c1\u0645\u0648\u0627\u0631 \u06a9\u06cc \u06c1\u06d2\u06d4 \u0648\u06c1 2003 \u0645\u06cc\u06ba \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06d2 \u0644\u06cc\u06d2 \u062c\u06cc\u0646 \u06a9\u06cc \u062f\u0631\u06cc\u0627\u0641\u062a \u06a9\u06cc \u0634\u0631\u06cc\u06a9 \u0645\u0635\u0646\u0641 \u062a\u06be\u06cc\u06ba\u06d4 \u0641\u0637\u0631\u062a<\/em>\u060c 2012 \u0645\u06cc\u06ba \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06d2 \u0639\u0644\u0627\u062c \u06a9\u06cc \u062f\u0631\u06cc\u0627\u0641\u062a \u06a9\u06d2 \u0645\u0637\u0627\u0644\u0639\u06c1 \u06a9\u06d2 \u0645\u0631\u06a9\u0632\u06cc \u0645\u0635\u0646\u0641 \u0627\u0645\u0631\u06cc\u06a9\u0646 \u0645\u06cc\u0688\u06cc\u06a9\u0644 \u0627\u06cc\u0633\u0648\u0633\u06cc \u0627\u06cc\u0634\u0646 (\u062c\u0627\u0645\u0627) \u06a9\u0627 \u062c\u0631\u06cc\u062f\u06c1\u06d4 <\/em>\u0627\u0633 \u0646\u06d2 \u0686\u0627\u0631 \u06a9\u06cc \u0645\u0634\u062a\u0631\u06a9\u06c1 \u0635\u062f\u0627\u0631\u062a \u06a9\u06cc \u06c1\u06d2\u06d4 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u0644\u06cc\u0646\u06cc\u06a9\u0644 \u0688\u0631\u06af \u0679\u0631\u0627\u0626\u0644\u0632<\/a> \u0628\u0648\u0633\u0679\u0646 \u0686\u0644\u0688\u0631\u0646 \u06c1\u0633\u067e\u062a\u0627\u0644 \u0645\u06cc\u06ba \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u0648\u0627\u0644\u06d2 \u0628\u0686\u0648\u06ba \u06a9\u06d2 \u0644\u06cc\u06d2\u06d4<\/p>\n \u0688\u0627\u06a9\u0679\u0631 \u06af\u0648\u0631\u0688\u0646 \u0646\u06d2 \u0646\u06cc\u0648 \u06c1\u06cc\u0645\u067e\u0634\u0627\u0626\u0631 \u06cc\u0648\u0646\u06cc\u0648\u0631\u0633\u0679\u06cc \u0633\u06d2 \u0627\u067e\u0646\u06cc \u0627\u0646\u0688\u0631\u06af\u0631\u06cc\u062c\u0648\u06cc\u0679 \u0688\u06af\u0631\u06cc \u062d\u0627\u0635\u0644 \u06a9\u06cc \u0627\u0648\u0631 \u0628\u0631\u0627\u0624\u0646 \u06cc\u0648\u0646\u06cc\u0648\u0631\u0633\u0679\u06cc \u0633\u06d2 \u0627\u067e\u0646\u06d2 \u0645\u0627\u0633\u0679\u0631\u0632 \u0627\u0648\u0631 \u0627\u06cc\u0645 \u0688\u06cc\u060c \u067e\u06cc \u0627\u06cc\u0686 \u0688\u06cc \u06a9\u06cc\u06d4<\/p>\n [\/et_pb_team_member][et_pb_team_member name=”Scott D. Berns, MD, MPH, FAAP” position=”Chair, Board of Directors” image_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Scott-Berns.jpg” admin_label=”Scott D. Berns, MD, MPH, FAAP” module_class=”prf-person-module” _builder_version=”4.21.0″ position_font=”|700|||||||” position_text_color=”#00B2E2″ custom_margin=”||45px” global_colors_info=”{}”]<\/p>\n \u0645\u0627\u0631\u0686 \u0622\u0641 \u0688\u0627\u0626\u0645\u0632 \u0646\u06cc\u0634\u0646\u0644 \u0622\u0641\u0633 \u0645\u06cc\u06ba 14 \u0633\u0627\u0644 \u062e\u062f\u0645\u0627\u062a \u0627\u0646\u062c\u0627\u0645 \u062f\u06cc\u0646\u06d2 \u06a9\u06d2 \u0628\u0639\u062f\u060c \u062c\u06c1\u0627\u06ba \u0648\u06c1 \u0686\u06cc\u067e\u0679\u0631 \u067e\u0631\u0648\u06af\u0631\u0627\u0645\u0632 \u0627\u0648\u0631 \u0688\u067e\u0679\u06cc \u0645\u06cc\u0688\u06cc\u06a9\u0644 \u0622\u0641\u0633 \u06a9\u06d2 \u0633\u06cc\u0646\u0626\u0631 \u0646\u0627\u0626\u0628 \u0635\u062f\u0631 \u062a\u06be\u06d2\u060c \u0627\u06a9\u062a\u0648\u0628\u0631 2015 \u0645\u06cc\u06ba \u0688\u0627\u06a9\u0679\u0631 \u0628\u0631\u0646\u0632 NICHQ (\u0646\u06cc\u0634\u0646\u0644 \u0627\u0646\u0633\u0679\u06cc \u0679\u06cc\u0648\u0679 \u0641\u0627\u0631 \u0686\u0644\u0688\u0631\u0646 \u06c1\u06cc\u0644\u062a\u06be \u06a9\u0648\u0627\u0644\u0679\u06cc) \u06a9\u06d2 \u0635\u062f\u0631 \u0627\u0648\u0631 \u0633\u06cc \u0627\u06cc \u0627\u0648 \u0628\u0646 \u06af\u0626\u06d2\u06d4 \u0628\u0686\u0648\u06ba \u06a9\u06cc \u0635\u062d\u062a \u06a9\u0648 \u0628\u06c1\u062a\u0631 \u0628\u0646\u0627\u0646\u06d2 \u06a9\u06d2 \u0644\u06cc\u06d2 \u06a9\u0627\u0645 \u06a9\u0631\u0646\u06d2 \u0648\u0627\u0644\u06cc \u0627\u06cc\u06a9 \u0622\u0632\u0627\u062f\u060c \u063a\u06cc\u0631 \u0645\u0646\u0641\u0639\u062a\u06cc \u062a\u0646\u0638\u06cc\u0645\u06d4<\/p>\n \u0633\u06a9\u0627\u0679 \u0628\u0648\u0631\u0688 \u0633\u06d2 \u062a\u0635\u062f\u06cc\u0642 \u0634\u062f\u06c1 \u0645\u0627\u06c1\u0631 \u0627\u0637\u0641\u0627\u0644 \u0627\u0648\u0631 \u0627\u0637\u0641\u0627\u0644 \u06a9\u06d2 \u06c1\u0646\u06af\u0627\u0645\u06cc \u0637\u0628\u06cc\u0628 \u06c1\u06cc\u06ba\u06d4 \u0648\u06c1 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\u0627\u0648\u0631 \u0646\u0638\u0645 \u0648 \u0646\u0633\u0642 \u0645\u06cc\u06ba \u0627\u0631\u062a\u06a9\u0627\u0632 \u06a9\u06d2 \u0633\u0627\u062a\u06be \u06c1\u0627\u0631\u0648\u0631\u0688 \u0633\u06a9\u0648\u0644 \u0622\u0641 \u067e\u0628\u0644\u06a9 \u06c1\u06cc\u0644\u062a\u06be \u0633\u06d2 \u067e\u0628\u0644\u06a9 \u06c1\u06cc\u0644\u062a\u06be \u0645\u06cc\u06ba \u0645\u0627\u0633\u0679\u0631\u0632 \u062d\u0627\u0635\u0644 \u06a9\u06cc\u0627\u060c \u0627\u0648\u0631 \u0627\u06cc\u06a9 \u0633\u0627\u0644 \u06a9\u06cc \u0648\u0627\u0626\u0679 \u06c1\u0627\u0624\u0633 \u0641\u06cc\u0644\u0648\u0634\u067e \u0645\u06a9\u0645\u0644 \u06a9\u06cc \u062c\u06c1\u0627\u06ba \u0627\u0633 \u0646\u06d2 \u0627\u0645\u0631\u06cc\u06a9\u06cc \u0648\u0632\u06cc\u0631 \u0628\u0631\u0627\u0626\u06d2 \u0679\u0631\u0627\u0646\u0633\u067e\u0648\u0631\u0679\u06cc\u0634\u0646 \u06a9\u06d2 \u0645\u0639\u0627\u0648\u0646 \u062e\u0635\u0648\u0635\u06cc \u06a9\u06d2 \u0637\u0648\u0631 \u067e\u0631 \u062e\u062f\u0645\u0627\u062a \u0627\u0646\u062c\u0627\u0645 \u062f\u06cc\u06ba\u06d4<\/p>\n \u0633\u06a9\u0627\u0679 \u06a9\u0648 \u0627\u0645\u0631\u06cc\u06a9\u0646 \u0627\u06a9\u06cc\u0688\u0645\u06cc \u0622\u0641 \u067e\u06cc\u0688\u06cc\u0627\u0679\u0631\u06a9\u0633 \u0633\u06d2 \u0627\u0637\u0641\u0627\u0644 \u06a9\u06cc \u0627\u06cc\u0645\u0631\u062c\u0646\u0633\u06cc \u0645\u06cc\u0688\u06cc\u0633\u0646 \u0645\u06cc\u06ba \u062a\u062d\u0642\u06cc\u0642 \u0645\u06cc\u06ba \u0639\u0645\u062f\u06c1 \u06a9\u0627\u0631\u06a9\u0631\u062f\u06af\u06cc \u06a9\u06d2 \u0644\u06cc\u06d2 \u0648\u0650\u0644\u06cc\u0633 \u0648\u0650\u0646\u06af\u0631\u0679 \u0627\u06cc\u0648\u0627\u0631\u0688\u060c \u0646\u06cc\u0634\u0646\u0644 \u067e\u06cc\u0631\u06cc\u0646\u06cc\u0679\u0644 \u0627\u06cc\u0633\u0648\u0633\u06cc \u0627\u06cc\u0634\u0646 \u06a9\u0627 \u0642\u0648\u0645\u06cc \u0627\u06cc\u0648\u0627\u0631\u0688\u060c \u0627\u0645\u0631\u06cc\u06a9\u06cc \u0645\u062d\u06a9\u0645\u06c1 \u0679\u0631\u0627\u0646\u0633\u067e\u0648\u0631\u0679\u06cc\u0634\u0646 \u06a9\u0627 \u067e\u0628\u0644\u06a9 \u06c1\u06cc\u0644\u062a\u06be \u0633\u0631\u0648\u0633 \u0627\u06cc\u0648\u0627\u0631\u0688\u060c \u0627\u0648\u0631 2015 \u06a9\u0627 \u0627\u0645\u067e\u06cc\u06a9\u0679 \u0627\u06cc\u0648\u0627\u0631\u0688 \u0645\u0644\u0627 \u06c1\u06d2\u06d4 \u0648\u0627\u0626\u0679 \u06c1\u0627\u0624\u0633 \u0641\u06cc\u0644\u0648\u0632 \u0641\u0627\u0624\u0646\u0688\u06cc\u0634\u0646 \u0627\u06cc\u0646\u0688 \u0627\u06cc\u0633\u0648\u0633\u06cc \u0627\u06cc\u0634\u0646<\/p>\n [\/et_pb_team_member][et_pb_team_member name=”Carlos” position=”PRF Ambassador” image_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/03\/Carlos-WhatsApp-from-Tatiana-3-12-25.jpeg” admin_label=”Carlos” module_class=”prf-person-module” _builder_version=”4.27.4″ position_font=”|700|||||||” position_text_color=”#00B2E2″ custom_margin=”||45px” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n \u06a9\u0627\u0631\u0644\u0648\u0633 PRF \u06a9\u06d2 \u06cc\u0648\u062a\u06be \u0627\u06cc\u0645\u0628\u06cc\u0633\u06cc\u0688\u0631 \u06a9\u06d2 \u0637\u0648\u0631 \u067e\u0631 \u06a9\u0627\u0645 \u06a9\u0631\u062a\u0627 \u06c1\u06d2\u060c \u0645\u06cc\u0688\u06cc\u0627 \u06a9\u06d2 \u0645\u062e\u062a\u0644\u0641 \u0645\u0648\u0627\u0642\u0639 \u06a9\u06d2 \u0630\u0631\u06cc\u0639\u06d2 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06d2 \u0633\u0627\u062a\u06be \u0627\u067e\u0646\u06d2 \u0633\u0641\u0631 \u06a9\u06d2 \u0627\u0646\u0648\u06a9\u06be\u06d2 \u0646\u0642\u0637\u06c1 \u0646\u0638\u0631 \u06a9\u0648 \u0634\u06cc\u0626\u0631 \u06a9\u0631\u062a\u0627 \u06c1\u06d2\u06d4 4 \u0633\u0627\u0644 \u06a9\u06cc \u0639\u0645\u0631 \u0645\u06cc\u06ba \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06cc \u062a\u0634\u062e\u06cc\u0635 \u06c1\u0648\u0626\u06cc\u060c <\/span>\u0648\u06c1 \u06c1\u0645\u06cc\u0634\u06c1 \u0627\u0646 \u06a9\u06be\u0644\u0648\u0646\u0648\u06ba \u06a9\u06cc \u0637\u0631\u0641 \u0645\u062a\u0648\u062c\u06c1 \u06c1\u0648\u062a\u0627 \u062a\u06be\u0627 \u062c\u0646 \u0645\u06cc\u06ba \u0639\u0645\u0627\u0631\u062a \u0627\u0648\u0631 \u062a\u0639\u0645\u06cc\u0631 \u0634\u0627\u0645\u0644 \u062a\u06be\u06cc\u06d4 <\/span>\u06a9\u0627\u0631\u0644\u0648\u0633 \u0646\u0627\u0642\u0627\u0628\u0644 \u06cc\u0642\u06cc\u0646 \u062d\u062f \u062a\u06a9 \u0645\u06c1\u0631\u0628\u0627\u0646 \u0627\u0648\u0631 \u06c1\u0648\u0634\u06cc\u0627\u0631 \u06c1\u0648\u0646\u06d2 \u06a9\u06d2 \u0644\u06cc\u06d2 \u0645\u0634\u06c1\u0648\u0631 \u06c1\u06cc\u06ba\u060c \u0627\u0648\u0631 \u06c1\u0645\u06cc\u0634\u06c1 \u0627\u067e\u0646\u06cc \u06af\u0631\u0645\u062c\u0648\u0634\u06cc \u0627\u0648\u0631 \u0645\u0632\u0627\u062d \u0633\u06d2 \u0644\u0648\u06af\u0648\u06ba \u06a9\u06d2 \u0686\u06c1\u0631\u0648\u06ba \u067e\u0631 \u0645\u0633\u06a9\u0631\u0627\u06c1\u0679 \u0628\u06a9\u06be\u06cc\u0631\u062a\u06d2 \u06c1\u06cc\u06ba\u06d4 \u0622\u062c\u060c \u0648\u06c1 9\u0648\u06cc\u06ba \u062c\u0645\u0627\u0639\u062a \u0645\u06cc\u06ba \u06c1\u06d2\u060c \u062c\u06c1\u0627\u06ba \u0627\u0633 \u06a9\u06d2 \u067e\u0633\u0646\u062f\u06cc\u062f\u06c1 \u0645\u0636\u0627\u0645\u06cc\u0646 \u0633\u0627\u0626\u0646\u0633 \u0627\u0648\u0631 \u062a\u0627\u0631\u06cc\u062e \u06c1\u06cc\u06ba\u060c \u0633\u0627\u0626\u0646\u0633 \u06cc\u0627 \u0642\u0627\u0646\u0648\u0646 \u0645\u06cc\u06ba \u0633\u06d2 \u06a9\u0633\u06cc \u0627\u06cc\u06a9 \u0645\u06cc\u06ba \u06af\u0631\u06cc\u062c\u0648\u06cc\u0634\u0646 \u06a9\u0631\u0646\u06d2 \u06a9\u0627 \u0627\u0631\u0627\u062f\u06c1 \u0631\u06a9\u06be\u062a\u06d2 \u06c1\u06cc\u06ba\u06d4 \u06a9\u0627\u0631\u0644\u0648\u0633 \u06a9\u06cc \u06c1\u0645\u06cc\u0634\u06c1 \u0633\u06d2 \u06c1\u06cc \u0628\u06c1\u062a \u062c\u0631\u0627\u062a \u0645\u0646\u062f\u0627\u0646\u06c1 \u0627\u0648\u0631 \u0645\u0636\u0628\u0648\u0637 \u0634\u062e\u0635\u06cc\u062a \u0631\u06c1\u06cc \u06c1\u06d2\u060c \u0648\u06c1 \u06c1\u0631 \u0627\u0633 \u0686\u06cc\u0632 \u067e\u0631 \u0633\u062e\u062a \u0645\u062d\u0646\u062a \u06a9\u0631\u062a\u0627 \u06c1\u06d2 \u062c\u0633 \u06a9\u06d2 \u0644\u06cc\u06d2 \u0648\u06c1 \u0627\u067e\u0646\u06d2 \u0630\u06c1\u0646 \u06a9\u0648 \u0633\u06cc\u0679 \u06a9\u0631\u062a\u0627 \u06c1\u06d2 \u0627\u0648\u0631 \u06a9\u0628\u06be\u06cc \u0628\u06be\u06cc \u0627\u067e\u0646\u06d2 \u062e\u0648\u0627\u0628\u0648\u06ba \u06a9\u0648 \u062a\u0631\u06a9 \u0646\u06c1\u06cc\u06ba \u06a9\u0631\u062a\u0627 \u06c1\u06d2\u06d4<\/span><\/p>\n [\/et_pb_team_member][et_pb_team_member name=”In Memory of PRF Ambassador and Progeria Researcher, Sammy Basso” image_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2021\/08\/Sammybasso-headshot.jpg” admin_label=”In Memory of Sammy Basso” module_class=”prf-person-module” _builder_version=”4.27.2″ position_font=”|700|||||||” position_text_color=”#00B2E2″ custom_margin=”||45px” global_colors_info=”{}”]<\/p>\n \u0633\u06cc\u0645\u06cc \u0628\u0627\u0633\u0648 \u06a9\u0648 PRF \u0627\u0648\u0631 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u0645\u06cc\u0648\u0646\u0679\u06cc \u06a9\u06d2 \u062a\u0631\u062c\u0645\u0627\u0646 \u06a9\u06d2 \u0637\u0648\u0631 \u067e\u0631 \u067e\u0648\u0631\u06cc \u062f\u0646\u06cc\u0627 \u0645\u06cc\u06ba \u062c\u0627\u0646\u0627 \u0627\u0648\u0631 \u067e\u0633\u0646\u062f \u06a9\u06cc\u0627 \u062c\u0627\u062a\u0627 \u062a\u06be\u0627\u06d4 \u0648\u06c1 \u0627\u06a9\u062a\u0648\u0628\u0631 2024 \u0645\u06cc\u06ba 28 \u0633\u0627\u0644 \u06a9\u06cc \u0639\u0645\u0631 \u0645\u06cc\u06ba \u0627\u0646\u062a\u0642\u0627\u0644 \u06a9\u0631 \u06af\u0626\u06d2\u060c \u062c\u0648 \u06a9\u0644\u0627\u0633\u06a9 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06d2 \u0633\u0627\u062a\u06be \u0632\u0646\u062f\u06af\u06cc \u06af\u0632\u0627\u0631\u0646\u06d2 \u0648\u0627\u0644\u06d2 \u0633\u0628 \u0633\u06d2 \u0642\u062f\u06cc\u0645 \u062a\u0631\u06cc\u0646 \u0634\u062e\u0635 \u062a\u06be\u06d2\u06d4<\/p>\n 1995 \u0645\u06cc\u06ba \u067e\u06cc\u062f\u0627 \u06c1\u0648\u0626\u06d2\u060c \u0633\u06cc\u0645\u06cc \u06a9\u0648 \u062f\u0648 \u0633\u0627\u0644 \u06a9\u06cc \u0639\u0645\u0631 \u0645\u06cc\u06ba \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06cc \u062a\u0634\u062e\u06cc\u0635 \u06c1\u0648\u0626\u06cc \u062a\u06be\u06cc\u060c \u062c\u0628 \u0648\u06c1 \u062f\u0633 \u0633\u0627\u0644 \u06a9\u06cc \u0639\u0645\u0631 \u0645\u06cc\u06ba \u0633\u06cc\u0645\u06cc \u0628\u0627\u0633\u0648 \u0627\u0637\u0627\u0644\u0648\u06cc \u0627\u06cc\u0633\u0648\u0633\u06cc \u0627\u06cc\u0634\u0646 \u0641\u0627\u0631 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06d2 \u062a\u0631\u062c\u0645\u0627\u0646 \u06a9\u06d2 \u0637\u0648\u0631 \u067e\u0631 \u062e\u062f\u0645\u0627\u062a \u0627\u0646\u062c\u0627\u0645 \u062f\u06d2 \u0631\u06c1\u06d2 \u062a\u06be\u06d2\u06d4 2007 \u0645\u06cc\u06ba\u060c \u0633\u06cc\u0645\u06cc PRF \u06a9\u06d2 \u06a9\u0644\u06cc\u0646\u06cc\u06a9\u0644 \u0679\u0631\u0627\u0626\u0644\u0632 \u0645\u06cc\u06ba \u0634\u0627\u0645\u0644 \u06c1\u0648\u0646\u06d2 \u0648\u0627\u0644\u06d2 \u067e\u06c1\u0644\u06d2 \u0644\u0648\u06af\u0648\u06ba \u0645\u06cc\u06ba \u0634\u0627\u0645\u0644 \u062a\u06be\u06d2\u060c \u062c\u0646\u06c1\u0648\u06ba \u0646\u06d2 \u0627\u0628 FDA \u0633\u06d2 \u0645\u0646\u0638\u0648\u0631 \u0634\u062f\u06c1 \u062f\u0648\u0627 \u0644\u0648\u0646\u0627\u0641\u0627\u0631\u0646\u06cc\u0628 \u06a9\u0648 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06d2 \u067e\u06c1\u0644\u06d2 \u0639\u0644\u0627\u062c \u06a9\u06d2 \u0637\u0648\u0631 \u067e\u0631 \u0679\u06cc\u0633\u0679 \u06a9\u06cc\u0627\u06d4 2014 \u0645\u06cc\u06ba\u060c \u0648\u06c1 \u0646\u06cc\u0634\u0646\u0644 \u062c\u06cc\u0648\u06af\u0631\u0627\u0641\u06a9 \u06a9\u06cc \u062f\u0633\u062a\u0627\u0648\u06cc\u0632\u06cc \u0641\u0644\u0645 "Il Viaggio di Sammy" (Sammy's Travels) \u0645\u06cc\u06ba \u067e\u06cc\u0634 \u06a9\u06cc\u0627 \u06af\u06cc\u0627\u060c \u062c\u0633 \u0646\u06d2 \u0627\u0646 \u06a9\u06d2 \u062e\u0648\u0627\u0628\u0648\u06ba \u06a9\u06d2 \u0633\u0641\u0631 \u06a9\u0648 \u0628\u06cc\u0627\u0646 \u06a9\u06cc\u0627: \u0627\u0645\u0631\u06cc\u06a9\u06c1 \u0645\u06cc\u06ba \u0631\u0648\u0679 66 \u067e\u0631 \u0634\u06a9\u0627\u06af\u0648 \u0633\u06d2 \u0644\u0627\u0633 \u0627\u06cc\u0646\u062c\u0644\u0633 \u062a\u06a9 \u0627\u067e\u0646\u06d2 \u0648\u0627\u0644\u062f\u06cc\u0646 \u0627\u0648\u0631 \u062f\u0648\u0633\u062a \u06a9\u06d2 \u0633\u0627\u062a\u06be\u06d4<\/u><\/u><\/p>\n 2018 \u0645\u06cc\u06ba\u060c \u0633\u06cc\u0645\u06cc \u0646\u06d2 \u067e\u0688\u0648\u0627 \u06cc\u0648\u0646\u06cc\u0648\u0631\u0633\u0679\u06cc \u0633\u06d2 \u0646\u06cc\u0686\u0631\u0644 \u0633\u0627\u0626\u0646\u0633\u0632 \u0645\u06cc\u06ba \u0688\u06af\u0631\u06cc \u06a9\u06d2 \u0633\u0627\u062a\u06be \u06af\u0631\u06cc\u062c\u0648\u06cc\u0634\u0646 \u06a9\u06cc\u0627 \u0627\u0648\u0631 HGPS \u0686\u0648\u06c1\u0648\u06ba \u0645\u06cc\u06ba \u062c\u06cc\u0646\u06cc\u0627\u062a\u06cc \u062a\u0631\u0645\u06cc\u0645 \u06a9\u06d2 \u0637\u0631\u06cc\u0642\u06c1 \u06a9\u0627\u0631 \u067e\u0631 \u0627\u06cc\u06a9 \u0645\u0642\u0627\u0644\u06c1 \u067e\u06cc\u0634 \u06a9\u06cc\u0627\u06d4 \u0627\u0633\u06cc \u0633\u0627\u0644 \u06a9\u06d2 \u0622\u062e\u0631 \u0645\u06cc\u06ba\u060c \u0627\u0646\u06c1\u06cc\u06ba \u0645\u0639\u0630\u0648\u0631\u0648\u06ba \u0645\u06cc\u06ba \u06af\u06c1\u0631\u0627\u0626\u06cc \u0633\u06d2 \u062a\u062d\u0642\u06cc\u0642 \u06a9\u0631\u0646\u06d2 \u0627\u0648\u0631 \u0627\u0637\u0627\u0644\u0648\u06cc \u062d\u06a9\u0648\u0645\u062a \u06a9\u06d2 \u0633\u0627\u062a\u06be \u0634\u0631\u0627\u06a9\u062a \u062f\u0627\u0631\u06cc \u06a9\u06d2 \u0644\u06cc\u06d2 \u0646\u0627\u0626\u0679 \u0622\u0641 \u062f\u06cc \u0622\u0631\u0688\u0631 \u0622\u0641 \u0645\u06cc\u0631\u0679 \u0622\u0641 \u0627\u0637\u0627\u0644\u0648\u06cc \u062c\u0645\u06c1\u0648\u0631\u06cc\u06c1 \u0633\u06d2 \u0646\u0648\u0627\u0632\u0627 \u06af\u06cc\u0627\u06d4 2020 \u0645\u06cc\u06ba\u060c \u0633\u06cc\u0645\u06cc COVID-19 \u0645\u0639\u0644\u0648\u0645\u0627\u062a \u06a9\u06d2 \u0627\u0646\u06a9\u0634\u0627\u0641 (\u0633\u0627\u0626\u0646\u0633\u06cc \u0627\u0648\u0631 \u0627\u062b\u0631 \u0627\u0646\u06af\u06cc\u0632 \u062e\u0635\u0648\u0635\u06cc\u0627\u062a) \u06a9\u06d2 \u0644\u06cc\u06d2 \u0648\u06cc\u0646\u06cc\u0679\u0648 \u06a9\u06cc \u0639\u0644\u0627\u0642\u0627\u0626\u06cc \u0627\u0648\u0631 \u0642\u0648\u0645\u06cc \u0679\u0627\u0633\u06a9 \u0641\u0648\u0631\u0633 \u06a9\u0627 \u0631\u06a9\u0646 \u0628\u0646 \u06af\u06cc\u0627\u06d4 2021 \u0645\u06cc\u06ba\u060c \u0633\u06cc\u0645\u06cc \u0646\u06d2 \u0645\u0627\u0644\u06cc\u06a9\u06cc\u0648\u0644\u0631 \u0628\u0627\u0626\u06cc\u0648\u0644\u0648\u062c\u06cc \u0645\u06cc\u06ba \u062f\u0648\u0633\u0631\u06cc \u0688\u06af\u0631\u06cc \u06a9\u06d2 \u0633\u0627\u062a\u06be \u06af\u0631\u06cc\u062c\u0648\u06cc\u0634\u0646 \u06a9\u06cc\u0627 \u062c\u0633 \u0645\u06cc\u06ba Lamin A \u0627\u0648\u0631 Interleukin-6 \u06a9\u06d2 \u062a\u0642\u0627\u0637\u0639 \u067e\u0631 \u0627\u06cc\u06a9 \u062a\u06be\u06cc\u0633\u0633 \u06c1\u06d2\u060c \u062c\u0648 \u06a9\u06c1 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0646 \u06a9\u06d2 \u0646\u0627\u0645 \u0633\u06d2 \u0645\u0634\u06c1\u0648\u0631 \u0632\u06c1\u0631\u06cc\u0644\u06d2 \u067e\u0631\u0648\u0679\u06cc\u0646 \u06a9\u0648 \u0646\u0634\u0627\u0646\u06c1 \u0628\u0646\u0627 \u06a9\u0631 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u0627 \u0639\u0644\u0627\u062c \u06a9\u0631\u0646\u06d2 \u06a9\u0627 \u0637\u0631\u06cc\u0642\u06c1 \u06c1\u06d2\u06d4 <\/u><\/u><\/u><\/u>2021 \u0627\u0633\u0679\u06cc\u0679 \u0628\u0631\u06cc\u06a9 \u062a\u06be\u0631\u0648 \u0633\u0627\u0626\u0646\u0633 \u0633\u0645\u0679 \u0645\u06cc\u06ba \u0627\u06cc\u06a9 \u067e\u06cc\u0646\u0644 \u0645\u06cc\u06ba \u0633\u06cc\u0645\u06cc \u0633\u06d2 \u0633\u0646\u06cc\u06ba\u06d4 \u06cc\u06c1\u0627\u06ba<\/a>.<\/p>\n \u06c1\u0645 \u0632\u0646\u062f\u06af\u06cc \u06a9\u06d2 \u0644\u06cc\u06d2 \u0633\u06cc\u0645\u06cc \u06a9\u06d2 \u063a\u06cc\u0631 \u0645\u0639\u0645\u0648\u0644\u06cc \u062c\u0630\u0628\u06d2\u060c \u0627\u0645\u06cc\u062f \u067e\u0631\u0633\u062a\u06cc\u060c \u0645\u06c1\u0631\u0628\u0627\u0646\u06cc \u0627\u0648\u0631 \u0630\u06c1\u0627\u0646\u062a \u06a9\u06cc \u06cc\u0627\u062f\u0648\u06ba \u06a9\u0648 \u06cc\u0627\u062f \u0631\u06a9\u06be\u062a\u06d2 \u06c1\u06cc\u06ba \u06a9\u06cc\u0648\u0646\u06a9\u06c1 \u06c1\u0645 \u0648\u06c1 \u06a9\u0631\u062a\u06d2 \u06c1\u06cc\u06ba \u062c\u0648 \u0648\u06c1 \u06c1\u0645 \u0633\u06d2 \u06a9\u0631\u0646\u0627 \u0686\u0627\u06c1\u062a\u06d2 \u06c1\u06cc\u06ba: \u0639\u0644\u0627\u062c \u06a9\u06d2 \u0644\u06cc\u06d2 \u0627\u067e\u0646\u06cc \u0644\u0691\u0627\u0626\u06cc \u062c\u0627\u0631\u06cc \u0631\u06a9\u06be\u06cc\u06ba\u06d4<\/p>\n [\/et_pb_team_member][et_pb_team_member name=”In Memory of John Tacket, PRF\u2019s first Youth Ambassador” image_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/john.jpg” admin_label=”In Memory of John Tacket” module_class=”prf-person-module” _builder_version=”4.16″ custom_margin=”||45px” global_colors_info=”{}”]<\/p>\n 16 \u0633\u0627\u0644\u06c1 \u062c\u0627\u0646 \u0679\u06cc\u06a9\u0679\u060c PRF \u06a9\u0627 \u067e\u06c1\u0644\u0627 \u06cc\u0648\u062a\u06be \u0627\u06cc\u0645\u0628\u06cc\u0633\u06cc\u0688\u0631\u060c \u0628\u062f\u06be\u060c 3 \u0645\u0627\u0631\u0686 2004 \u06a9\u0648 \u0627\u0646\u062a\u0642\u0627\u0644 \u06a9\u0631 \u06af\u06cc\u0627\u06d4 \u062c\u0627\u0646 \u0627\u06cc\u06a9 \u0646\u0627\u0642\u0627\u0628\u0644 \u06cc\u0642\u06cc\u0646 \u0634\u062e\u0635 \u062a\u06be\u0627 \u062c\u0633 \u0646\u06d2 \u0627\u067e\u0646\u06cc \u062d\u0627\u0644\u062a \u06a9\u0648 \u06a9\u0628\u06be\u06cc \u0633\u0633\u062a \u0646\u06c1\u06cc\u06ba \u06c1\u0648\u0646\u06d2 \u062f\u06cc\u0627\u06d4 \u0627\u067e\u0646\u06cc \u0627\u0633\u06a9\u0648\u0644 \u06a9\u06cc \u0633\u0631\u06af\u0631\u0645\u06cc\u0648\u06ba\u060c \u06a9\u0627\u0645 \u0627\u0648\u0631 \u0688\u06be\u0648\u0644 \u06a9\u06d2 \u0634\u0648\u0642 \u06a9\u06d2 \u062f\u0631\u0645\u06cc\u0627\u0646\u060c \u0627\u0633 \u0646\u06d2 \u062f\u0648\u0633\u0631\u0648\u06ba \u0633\u06d2\u060c \u062e\u0627\u0635 \u0637\u0648\u0631 \u067e\u0631 \u0628\u0686\u0648\u06ba \u0633\u06d2\u060c \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06d2 \u0628\u0627\u0631\u06d2 \u0645\u06cc\u06ba \u0628\u0627\u062a \u06a9\u0631\u0646\u06d2 \u06a9\u0627 \u062e\u06cc\u0631\u0645\u0642\u062f\u0645 \u06a9\u06cc\u0627 \u06a9\u06cc\u0648\u0646\u06a9\u06c1 \u0627\u0633 \u0646\u06d2 \u0645\u062d\u0633\u0648\u0633 \u06a9\u06cc\u0627 \u06a9\u06c1 \u06cc\u06c1 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She is a senior in high school and she lives with her family in Massachusetts.\u00a0 Meghan now serves as spokesperson for The Progeria Research Foundation, from the perspective of a young adult with Progeria.\u00a0 In this role Meghan focuses on engaging youth around such events as Hats ON for Progeria, sharing her ideas on how to impact people through social media, and participating in PRF media outreach.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column width=\"1\/4\"][vc_empty_space][vc_column_text] Working closely with the Board of Directors, committees, staff and volunteers, Ms. Gordon is responsible for ensuring The Progeria Research Foundation\u2019s financial growth, program development and day to day management.<\/p>\r\nMs. Gordon is a graduate of Tufts University and Northeastern University School of Law, and is an attorney licensed to practice in Massachusetts since 1988 and Florida since 1990. She has extensive civil litigation experience in both states. Locally, she is a past Trustee of Temple Beth Shalom in Peabody, Massachusetts, a member of the Peabody Chamber of Commerce, and has served on the Peabody Board of Registrars since 2006. Nationally, Ms. Gordon serves on the Board of Advisors of\u00a0Global Genes|RARE Project\u00a0and the\u00a0Rare Disease Report.\u00a0\u00a0She is the 2004 winner of the North of Boston Business and Professional Women of the Year award for non-profit organizations, and the 2005 recipient of the Mary Upton Ferrin Award for leadership in her community. She was honored as a Community Hero by Jewish Family Services in April 2009. Under her leadership as PRF\u2019s founding President and Executive Director, PRF was awarded a 4-star Charity Navigator rating, and received Research!America\u2019s 2014 Paul G. Rogers Distinguished Organization Advocacy Award for bringing progeria from obscurity to the forefront of successful translational research.\r\n\r\n 16-year-old John Tacket, PRF's first Youth Ambassador, passed away Wednesday, March 3rd, 2004. John was an incredible person who never let his condition slow him down. In between his school activities, work and passion for the drums, he welcomed talking to others, especially kids, about Progeria because he felt it was important that people be educated about it. John was a key member of the panel that announced the Progeria gene finding in April 2003 in Washington, DC. He answered reporters' questions and commented that it was an exciting time for him and his friends. We are proud to have known John and PRF is forever grateful for his contributions in raising awareness about Progeria and the work of PRF. He was an inspiration to us all. John will be missed greatly.<\/p>\r\nClick here to see an interview with John, taken when he was 13 years old.<\/a>[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column width=\"1\/4\"][vc_column_text]\r\n\r\n[caption id=\"\" align=\"alignnone\" width=\"150\"]\u0633\u0627\u0626\u0646 \u0627\u067e \u06a9\u0631\u06cc\u06ba\u06d4<\/h2>\n
\u06c1\u0645\u0627\u0631\u06d2 \u0644\u06cc\u06d2<\/h2>\n
\u0627\u067e\u0688\u06cc\u0679\u0633!<\/h2>\n
\u0627\u06cc\u06a9 \u0633\u0627\u062a\u06be\u060c \u06c1\u0645<\/h2>\n
\u0645\u0631\u0636\u06cc<\/em><\/h2>\n
\u0639\u0644\u0627\u062c \u062a\u0644\u0627\u0634 \u06a9\u0631\u06cc\u06ba!<\/h2>\n
PRF Spokespeople<\/a><\/h1>\r\n
\r\n \t
![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/02\/Meghan-workshop-speech-2016-1.jpg\")
Meghan gives a captivating speech on the opening night of PRF\u2019s 2016 International Progeria Workshop.<\/span>[\/caption]\r\n\r\n[\/vc_column_text][\/vc_column][vc_column width=\"3\/4\"][vc_column_text]\r\nMeghan Waldron<\/h1>\r\nPRF\u2019s Ambassador<\/strong>\r\n
![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/Audrey-gala-09.jpg\")
[\/vc_column_text][\/vc_column][vc_column width=\"3\/4\"][vc_column_text]\r\nAudrey Gordon, Esq.<\/h1>\r\nPresident and Executive Director<\/strong>\r\n
\r\n\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column width=\"1\/4\"][vc_empty_space][vc_column_text]![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/Lelsiesp.jpg\")
[\/vc_column_text][\/vc_column][vc_column width=\"3\/4\"][vc_column_text]\r\n<\/a>Leslie Gordon, MD, PhD<\/h1>\r\nMedical Director<\/strong>\r\n\r\nLeslie Gordon is a co-founder of The Progeria Research Foundation and serves as the organization's volunteer Medical Director. Dr. Gordon is the Principal Investigator for ongoing PRF programs for Progeria, including the\u00a0PRF International Progeria Registry<\/a>,\u00a0Medical and Research Database<\/a>,\u00a0Cell and Tissue Bank<\/a>, and the\u00a0Genetic Diagnostics Program<\/a>. She has organized 8 National Institutes of Health-funded, international\u00a0scientific meetings<\/a>\u00a0on Progeria. She is Professor of Pediatrics Research at Hasbro Children\u2019s Hospital and the Alpert Medical School of Brown University in Providence, RI; Research Associate in Anesthesia at Harvard Medical School and Boston Children\u2019s Hospital and Research Scientist at Women & Infants Hospital, all in Boston, MA. She was co-author on the 2003 gene discovery for Progeria, lead author of the 2012 Progeria treatment discovery study, and is co-chair of four\u00a0Progeria clinical drug trials<\/a>\u00a0at Boston Children\u2019s Hospital.\r\n
![\"Scott](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/berns.jpg\")
[\/vc_column_text][\/vc_column][vc_column width=\"3\/4\"][vc_column_text]\r\n<\/a>Scott D. Berns, MD, MPH, FAAP<\/h1>\r\nChair, Board of Directors<\/strong>\r\n\r\nAfter serving for 14 years at the March of Dimes National Office, where he was the Senior Vice President of Chapter Programs and Deputy Medical Office, in October 2015 Dr. Berns became President and CEO of the NICHQ (National Institute for Children\u2019s Health Quality), an independent, nonprofit organization working to improve children\u2019s health.\r\n\r\nScott is a board-certified pediatrician and pediatric emergency physician. He is a Clinical Professor of Pediatrics at the Warren Alpert Medical School of Brown University and Clinical Professor of Health Services, Policy and Practice at the Brown School of Public Health in Providence, RI. He earned a masters of public health from the Harvard School of Public Health with a concentration in health, policy and management, and completed a one-year White House Fellowship where he served as a Special Assistant to the U.S. Secretary of Transportation.\r\n\r\nScott has received the Willis Wingert Award for excellence in research in pediatric emergency medicine from the American Academy of Pediatrics, a national award from the National Perinatal Association, a public health service award from the U.S. Department of Transportation, and the 2015 Impact Award from the White House Fellows Foundation & Association.\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column width=\"1\/4\"][vc_column_text]
![\"John](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/John-jpg.jpg\")
\r\n[\/vc_column_text][\/vc_column][vc_column width=\"3\/4\"][vc_column_text]\r\n<\/a>In Memory of John Tacket, PRF's first Youth Ambassador<\/h1>\r\n
![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/000_0004sm.jpg\")
Thank you to the family of Megan Nighbor, who served as PRF\u2019s first ambassador family. The Nighbors were true trailblazers in raising awareness and fundraising, and continue to support PRF in these important activities.[\/caption]\r\n\r\n[\/vc_column_text][\/vc_column][vc_column width=\"3\/4\"][vc_column_text]\r\n<\/a>Steve, Sandy, Megan, Michaela and Josh Nighbor<\/h1>\r\nPRF's\u00a0 Ambassador Family 2005 \u2013 January 2010<\/strong>[\/vc_column_text][\/vc_column][\/vc_row]\t\t","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-964","page","type-page","status-publish","hentry"],"yoast_head":"\n