{"id":20127,"date":"2025-05-27T08:31:55","date_gmt":"2025-05-27T12:31:55","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=20127"},"modified":"2025-08-07T17:44:03","modified_gmt":"2025-08-07T21:44:03","slug":"rdd-2025-cimus","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/ur\/2025\/05\/27\/rdd-2025-cimus\/","title":{"rendered":"PRF \u06a9\u06d2 \u0634\u0631\u06cc\u06a9 \u0628\u0627\u0646\u06cc Drs. \u0644\u06cc\u0633\u0644\u06cc \u06af\u0648\u0631\u0688\u0646 \u0627\u0648\u0631 \u0633\u06a9\u0627\u0679 \u0628\u0631\u0646\u0632 CIMUS\u060c \u0627\u0633\u067e\u06cc\u0646 \u0645\u06cc\u06ba \u0633\u0648\u0686\u0646\u06d2 \u0648\u0627\u0644\u06d2 \u0631\u06c1\u0646\u0645\u0627\u0624\u06ba \u06a9\u06d2 \u0637\u0648\u0631 \u067e\u0631 \u062e\u0637\u0627\u0628 \u06a9\u0631 \u0631\u06c1\u06d2 \u06c1\u06cc\u06ba\u06d4"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/02\/20250129_Poster_Progeria_final.jpg&#8221; title_text=&#8221;20250129_Poster_Progeria_final&#8221; url=&#8221;https:\/\/www.charitynavigator.org\/ein\/043460220&#8243; align=&#8221;center&#8221; admin_label=&#8221;logos&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.27.4&#8243; text_font_size=&#8221;18px&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"elementToProof\">\n<p>\u0627\u0633\u067e\u06cc\u0646 \u06a9\u06cc \u0633\u06cc\u0646\u0679\u06cc\u0627\u06af\u0648 \u06cc\u0648\u0646\u06cc\u0648\u0631\u0633\u0679\u06cc \u0645\u06cc\u06ba \u0633\u0646\u0679\u0631 \u0641\u0627\u0631 \u0631\u06cc\u0633\u0631\u0686 \u0627\u0646 \u0645\u0627\u0644\u06cc\u06a9\u06cc\u0648\u0644\u0631 \u0645\u06cc\u0688\u06cc\u0633\u0646 \u0627\u06cc\u0646\u0688 \u06a9\u0631\u0648\u0646\u06a9 \u0688\u06cc\u0632\u06cc\u0632 (CiMUS) \u0646\u06d2 PRF \u06a9\u06d2 \u0634\u0631\u06cc\u06a9 \u0628\u0627\u0646\u06cc \u06a9\u0648 \u0627\u06cc\u06a9 \u062e\u0635\u0648\u0635\u06cc Rare Disease Day 2025 \u06a9\u06cc \u062a\u0642\u0631\u06cc\u0628 \u0645\u06cc\u06ba \u0627\u067e\u0646\u06cc \u06a9\u06c1\u0627\u0646\u06cc \u0634\u06cc\u0626\u0631 \u06a9\u0631\u0646\u06d2 \u06a9\u06cc \u062f\u0639\u0648\u062a \u062f\u06cc\u06d4<\/p>\n<p>\u067e\u06cc \u0622\u0631 \u0627\u06cc\u0641 \u06a9\u06d2 \u0645\u062d\u0642\u0642\u060c \u0688\u0627\u06a9\u0679\u0631 \u0631\u06cc\u06a9\u0627\u0631\u0688\u0648 \u0648\u0644\u0627-\u0628\u06cc\u0644\u0648\u0633\u0679\u0627\u060c \u0688\u0627\u06a9\u0679\u0631\u0632 \u06a9\u06cc \u0637\u0631\u0641 \u0633\u06d2 \u0645\u0646\u0638\u0645 \u0627\u0648\u0631 \u0645\u0639\u062a\u062f\u0644\u06d4 \u06af\u0648\u0631\u0688\u0646 \u0627\u0648\u0631 \u0628\u0631\u0646\u0632 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u06cc \u062a\u062d\u0642\u06cc\u0642 \u06a9\u06d2 \u0634\u0639\u0628\u06d2 \u067e\u0631 \u0627\u062b\u0631 \u0627\u0646\u062f\u0627\u0632 \u06c1\u0648\u0646\u06d2 \u0648\u0627\u0644\u06cc \u062a\u0627\u0632\u06c1 \u062a\u0631\u06cc\u0646 \u062a\u062d\u0642\u06cc\u0642\u06cc \u067e\u06cc\u0634\u0631\u0641\u062a \u0627\u0648\u0631 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u06a9\u0648 \u0645\u0628\u06c1\u0645 \u0633\u06d2 \u062c\u06cc\u0646 \u06a9\u06cc \u062a\u0644\u0627\u0634\u060c \u0639\u0644\u0627\u062c\u060c \u0639\u0627\u0644\u0645\u06cc \u0628\u06cc\u062f\u0627\u0631\u06cc \u0627\u0648\u0631 \u0627\u0641\u0642 \u067e\u0631 \u0645\u0645\u06a9\u0646\u06c1 \u0639\u0644\u0627\u062c \u062a\u06a9 \u0644\u0627\u0646\u06d2 \u06a9\u06d2 \u0633\u0641\u0631 \u06a9\u0627 \u0627\u0634\u062a\u0631\u0627\u06a9 \u06a9\u0631\u06cc\u06ba \u06af\u06d2\u06d4 \u0627\u0646 \u06a9\u06d2 \u0633\u0627\u062a\u06be \u0627\u0644\u06cc\u06af\u0632\u06cc\u0646\u0688\u0631\u0627 \u067e\u06cc\u0631\u0648\u0644\u0679 \u06a9\u06cc \u0648\u0627\u0644\u062f\u06c1 \u0627\u0648\u0631 \u062f\u06cc\u0631\u06cc\u0646\u06c1 \u062f\u0648\u0633\u062a \u0627\u0648\u0631 PRF \u06a9\u06cc \u062d\u0627\u0645\u06cc \u0627\u06cc\u0633\u062a\u06be\u0631 \u0645\u0627\u0631\u0679\u06cc\u0646\u06cc\u0632 \u06af\u0631\u06cc\u0634\u06cc\u0627 \u0628\u06be\u06cc \u0634\u0627\u0645\u0644 \u062a\u06be\u06cc\u06ba\u06d4<\/p>\n<p>\u0627\u06cc\u0648\u0646\u0679 \u06a9\u06d2 \u0628\u0627\u0631\u06d2 \u0645\u06cc\u06ba \u0645\u0632\u06cc\u062f \u0645\u0639\u0644\u0648\u0645\u0627\u062a \u06a9\u06d2 \u0644\u06cc\u06d2\u060c<a href=\"https:\/\/cimus.usc.gal\/events\/rare-disease-day-progeria-1\"> \u06cc\u06c1\u0627\u06ba \u06a9\u0644\u06a9 \u06a9\u0631\u06cc\u06ba<\/a>.<\/p>\n<p>\u0627\u06cc\u0648\u0646\u0679 \u0646\u06d2 \u0648\u0633\u06cc\u0639 \u0645\u06cc\u0688\u06cc\u0627 \u06a9\u0648\u0631\u06cc\u062c \u06a9\u0648 \u0645\u062a\u0627\u062b\u0631 \u06a9\u06cc\u0627\u060c \u062c\u06cc\u0633\u06d2 <a href=\"https:\/\/www.antena3.com\/noticias\/sociedad\/padres-alexandra-nina-enfermedad-rara-importante-rendirse-aprovechar-cada-momento_2025030267c4b1341ba31400010be3d8.html\">\u201c&quot;\u201c<b>\u0627\u0644\u06cc\u06af\u0632\u06cc\u0646\u0688\u0631\u0627 \u06a9\u06d2 \u0648\u0627\u0644\u062f\u06cc\u0646\u060c \u0627\u06cc\u06a9 \u0646\u0627\u06cc\u0627\u0628 \u0628\u06cc\u0645\u0627\u0631\u06cc \u0645\u06cc\u06ba \u0645\u0628\u062a\u0644\u0627 \u0644\u0691\u06a9\u06cc: &quot;\u0627\u06c1\u0645 \u0628\u0627\u062a \u06cc\u06c1 \u06c1\u06d2 \u06a9\u06c1 \u06c1\u0645\u062a \u0646\u06c1 \u06c1\u0627\u0631\u06cc\u06ba \u0627\u0648\u0631 \u06c1\u0631 \u0644\u0645\u062d\u06d2 \u0633\u06d2 \u0641\u0627\u0626\u062f\u06c1 \u0627\u0679\u06be\u0627\u0626\u06cc\u06ba&quot;<\/b><\/a><\/p>\n<\/div>\n<p>[\/et_pb_text][et_pb_testimonial quote_icon_color=&#8221;#FFFFFF&#8221; quote_icon_background_color=&#8221;#00B2E2&#8243; admin_label=&#8221;quote&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_font=&#8221;|700|||||||&#8221; body_font_size=&#8221;18px&#8221; background_color=&#8221;#8FD2ED&#8221; background_layout=&#8221;dark&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>\u0627\u0633 \u06a9\u06cc \u062a\u0634\u062e\u06cc\u0635 \u06a9\u06d2 \u0628\u0639\u062f\u060c \u062e\u0627\u0646\u062f\u0627\u0646 \u0646\u06d2 \u0627\u0633 \u0628\u06cc\u0645\u0627\u0631\u06cc \u06a9\u06d2 \u0639\u0644\u0627\u062c \u06a9\u06d2 \u0644\u06cc\u06d2 \u0622\u067e\u0634\u0646\u0632 \u062a\u0644\u0627\u0634 \u06a9\u06cc\u06d2\u060c \u0627\u0648\u0631 \u0627\u0633\u06cc \u0648\u0642\u062a \u0627\u0646\u06be\u06cc\u06ba \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u0631\u06cc\u0633\u0631\u0686 \u0641\u0627\u0624\u0646\u0688\u06cc\u0634\u0646 (PRF) \u06a9\u06d2 \u0628\u0627\u0631\u06d2 \u0645\u06cc\u06ba \u0645\u0639\u0644\u0648\u0645 \u06c1\u0648\u0627\u060c \u062c\u0648 \u0627\u06cc\u06a9 \u0627\u0645\u0631\u06cc\u06a9\u06cc \u062a\u0646\u0638\u06cc\u0645 \u06c1\u06d2 \u062c\u0648 \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u067e\u0631 \u062a\u062d\u0642\u06cc\u0642 \u06a9\u06d2 \u0644\u06cc\u06d2 \u0648\u0642\u0641 \u06c1\u06d2\u06d4 \u0627\u0633 \u0641\u0627\u0624\u0646\u0688\u06cc\u0634\u0646 \u06a9\u06d2 \u0630\u0631\u06cc\u0639\u06d2\u060c 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\u0645\u0627\u0631\u0679\u0646\u06cc\u0632 \u06af\u0631\u06cc\u0634\u06cc\u0627\u060c \u0627\u0644\u06cc\u06af\u0632\u06cc\u0646\u0688\u0631\u0627 \u06a9\u06cc \u0645\u0627\u06ba \u0627\u0648\u0631 \u06c1\u0633\u067e\u0627\u0646\u0648\u06cc \u067e\u0631\u0648\u062c\u06cc\u0631\u06cc\u0627 \u0627\u06cc\u0633\u0648\u0633\u06cc \u0627\u06cc\u0634\u0646 \u06a9\u06cc \u0635\u062f\u0631<\/span><\/p>\n<p>] global_colors_info=\u201d{}\u201d][\/et_pb_image][et_pb_text _builder_version=\u201d4.27.4\u2033 _module_preset=\u201ddefault\u201d text_font_size=\u201d14px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>(\u0628\u0627\u0626\u06cc\u06ba \u0633\u06d2): David Ara\u00fajo Vilar\u060c CiMUS \u06a9\u06d2 \u0645\u062d\u0642\u0642 \u0627\u0648\u0631 Lipodystrophies \u06a9\u06cc \u06c1\u0633\u067e\u0627\u0646\u0648\u06cc \u0633\u0648\u0633\u0627\u0626\u0679\u06cc \u06a9\u06d2 \u0635\u062f\u0631-\u0628\u0627\u0646\u06cc\u061b \u0645\u06cc\u0628\u0644 \u0644\u0648\u0632\u0627 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