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The Progeria Clinical Care Handbook<\/span> Purpose<\/strong>Because most medical caretakers have never treated a child with Progeria, there are often questions about how to optimize quality of life through daily care and medical treatment. To answer that need, in April 2010, PRF published the first edition of The Progeria Clinical Care Handbook<\/em>, for families touched by Progeria and their doctors. \u00a0From basic health facts to daily care recommendations to extensive treatment guidelines, this 131-page handbook helps answer many questions for children with Progeria throughout the world.<\/p>\n
2019 Updates [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=”1_2,1_2″ custom_padding_last_edited=”on|phone” disabled_on=”on|on|off” _builder_version=”4.16″ custom_padding=”|35px|0px||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” z_index_tablet=”500″ global_colors_info=”{}”][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/03\/English-Progeria-Handbook-Edition-2.pdf” url_new_window=”on” button_text=”Download 2nd Edition – English” admin_label=”English 2nd ed” _builder_version=”4.16″ background_layout=”dark” custom_margin=”||10px” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”] When using these materials for reports or presentations, please include the following: We will continue to update these materials as more information comes in. If you have specific medical questions, please contact us at (978) 535-2594 or\u00a0info@progeriaresearch.org.<\/a><\/p>\n Thank you to every child and family who participates in these very important projects, and to the medical caretakers and other experts contributing to these recommendations.<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n Thank You to Our Volunteer Translators Our sincere thanks and appreciation to Dr. Daniel Tanure and Dr. Laura Cheib for the time and energy they devoted to the Portuguese translation of The Progeria Handbook – 2nd Edition.<\/p>\n We are grateful to Sammy Basso and the Associazione Italiana Progeria Sammy Basso<\/a> for organizing and funding the Italian translation of The Progeria Clinical Care Handbook \u2013 2nd Edition, and to Elise Treggia for the time and effort she devoted to the translation.<\/span><\/p>\n Again, we extend our thanks to Sammy Basso and the Associazione Italiana Progeria Sammy Basso<\/a> for organizing and funding the Arabic translation of The Progeria Clinical Care Handbook \u2013 2nd Edition, to Elise Treggia for coordinating with her network of translators, and to Sara Anani for her beautiful work on the translation.<\/span><\/p>\n Many thanks to<\/span>\u00a0Jieun Lee, MD, PhD, and the staff at Inha University Hospital in Incheon, South Korea, who prepared the Korean translation with support from the Korea Ministry of Health and Welfare and the Korea Health Industry Development Institute.<\/span><\/p>\n [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=”on|phone” disabled_on=”||on” admin_label=”Row (Mobile Only)” _builder_version=”4.16″ custom_padding=”39.4375px|35px|12px||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” z_index_tablet=”500″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/03\/english-front.jpg” align_tablet=”center” align_phone=”” align_last_edited=”on|desktop” admin_label=”English cover Image (mobile only)” _builder_version=”4.16″ z_index_tablet=”500″ box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”] Because most medical caretakers have never treated a child with Progeria, there are often questions about how to optimize quality of life through daily care and medical treatment. To answer that need, in April 2010, PRF published the first edition of The Progeria Handbook<\/em>, for families touched by Progeria and their doctors. \u00a0From basic health facts to daily care recommendations to extensive treatment guidelines, this 131-page handbook helps answer many questions for children with Progeria throughout the world.<\/p>\n In March 2019, PRF updated and edited every section of the first edition of the handbook. Some of the biggest changes to the second edition include a new section on genetics and genetic counseling for the health professional, and a plethora of new information from recent clinical studies stemming from the Progeria research community, including new cardiovascular, neurovascular and endocrine information as well as recommendations.<\/p>\n <\/p>\n [\/et_pb_text][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/03\/PRF_Handbook_2019_eFile.pdf” url_new_window=”on” button_text=”Download 2nd Edition – English” admin_label=”2nd Edition – English (mobile only)” _builder_version=”4.21.0″ background_layout=”dark” custom_margin=”||10px” button_text_size_tablet=”18″ button_text_size_phone=”14″ button_text_size_last_edited=”on|phone” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”] When using these materials for reports or presentations, please include the following: We will continue to update these materials as more information comes in. If you have specific medical questions, please contact us at (978) 535-2594 or info@progeriaresearch.org.<\/a><\/p>\n Thank you to every child and family who participates in these very important projects, and to the medical caretakers and other experts contributing to these recommendations.<\/p>\n <\/p>\n [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”footer” _builder_version=”4.21.0″ background_color=”#29327a” custom_margin=”-2px|||||” custom_padding=”0|0px|0|0px|false|false” z_index_tablet=”500″ border_width_top=”12px” border_color_top=”#00b2e2″ global_module=”133″ locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_4,1_4,1_2″ make_equal=”on” module_class=” et_pb_row_fullwidth” _builder_version=”4.16″ width=”89%” width_tablet=”80%” width_phone=”” width_last_edited=”on|desktop” max_width=”89%” max_width_tablet=”80%” max_width_phone=”” max_width_last_edited=”on|desktop” 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src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/05\/2025-strip-for-website-footer-no-years.png” title_text=”2025 strip for website footer no years” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”35px||||false|false” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" [et_pb_section fb_built=”1″ fullwidth=”on” disabled_on=”off|off|off” _builder_version=”4.16″ border_width_bottom=”55px” border_color_bottom=”#29327a” locked=”off” global_colors_info=”{}”][et_pb_fullwidth_header _builder_version=”4.24.3″ title_font=”||||||||” title_font_size=”55″ background_color=”#29327a” background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/parents-doctors-header-v4.jpg” custom_padding=”9vw||9vw||true” custom_padding_tablet=”” custom_padding_phone=”|56px||” custom_padding_last_edited=”on|desktop” title_font_size_tablet=”45px” title_font_size_phone=”40px” title_font_size_last_edited=”on|phone” z_index_tablet=”500″ custom_css_main_element=”background-position: center 18% !important;” global_colors_info=”{}”] Progeria Clinical Care Handbook [\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|54px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\t\t\t\t[vc_row][vc_column][vc_custom_heading text=\"Patient Care and Handbook\" font_container=\"tag:h1|text_align:center\" use_theme_fonts=\"yes\"][vc_column_text]\r\n\r\n
<\/strong>In March 2019, PRF updated and edited every section of the first edition of the handbook. Some of the biggest changes to the second edition include a new section on genetics and genetic counseling for the health professional, and a plethora of new information from recent clinical studies stemming from the Progeria research community, including new cardiovascular, neurovascular and endocrine information as well as recommendations.<\/p>\n
\n[\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/08\/PRF-Handbook-Arabic.pdf” url_new_window=”on” button_text=”Download 2nd Edition – Arabic” admin_label=”2nd Edition – Arabic” _builder_version=”4.21.0″ background_layout=”dark” custom_margin=”||10px” button_text_size_tablet=”18″ button_text_size_phone=”14″ button_text_size_last_edited=”on|phone” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]
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\n[\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/01\/Italian-Progeria-Handbook-Edition-2.pdf” url_new_window=”on” button_text=”Download 2nd Edition \u2013 Italian” admin_label=”2nd Edition \u2013 Italian” _builder_version=”4.19.4″ background_layout=”dark” custom_margin=”||10px” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]
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\n[\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/11\/250120-Korean_Progeria_Handbook_Edition_2.pdf” url_new_window=”on” button_text=”Download 2nd Edition \u2013 Korean” admin_label=”Korean 2nd ed” _builder_version=”4.27.4″ background_layout=”dark” custom_margin=”||10px” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]
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\n[\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/07\/Progeria-Handbook-Spanish.pdf” url_new_window=”on” button_text=”Download 2nd Edition – Spanish” admin_label=”Spanish 2nd ed” _builder_version=”4.16″ background_layout=”dark” custom_margin=”||10px” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]
\n[\/et_pb_button][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=”on|phone” disabled_on=”on|on|off” _builder_version=”4.16″ custom_padding=”|35px|||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” z_index_tablet=”500″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” z_index_tablet=”500″ global_colors_info=”{}”]<\/p>\n
Source:\u00a0The Progeria Clinical Care Handbook; A Guide for Families and Health Care Providers of Children with Progeria.<\/em><\/strong>
Copyright 2019 by The Progeria Research Foundation. All rights reserved.<\/p>\n
<\/strong>A special thanks to Dr. Muneaki Matsuo for organizing the translation of the 2nd<\/sup> Edition \u2013 Japanese Handbook<\/em>; to Dr. Tadashi Satoh and medical staff of Pediatrics in Saga University for their help with the translation; and to Professor Kenji Ihara, Oita University, and Dr. Rika Kozaki, National Center for Child Health and Development, for proofreading.<\/p>\n
\n[\/et_pb_image][et_pb_text admin_label=”Text (mobile only)” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” z_index_tablet=”500″ global_colors_info=”{}”]<\/p>\n
\n[\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/08\/PRF-Handbook-Arabic.pdf” url_new_window=”on” button_text=”Download 2nd Edition – Arabic” admin_label=”2nd Edition – Arabic” _builder_version=”4.21.0″ background_layout=”dark” custom_margin=”||10px” button_text_size_tablet=”18″ button_text_size_phone=”14″ button_text_size_last_edited=”on|phone” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]
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\n[\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/UPDATED-Japanese-Progeria-Handbook-Edition-2.pdf” url_new_window=”on” button_text=”Download 2nd Edition \u2013 Japanese” admin_label=”2nd Edition \u2013 Japanese (mobile only)” _builder_version=”4.16″ background_layout=”dark” custom_margin=”||10px” button_text_size_tablet=”18″ button_text_size_phone=”14″ button_text_size_last_edited=”on|phone” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]
\n[\/et_pb_button][et_pb_button button_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/11\/Manual-da-Progeria-2-ed.-Potugues-reduced-size-PDF.pdf” url_new_window=”on” button_text=”Download 2nd Edition \u2013 Portuguese” admin_label=”Japanese 2nd ed” _builder_version=”4.18.1″ background_layout=”dark” custom_margin=”||10px” z_index_tablet=”500″ button_text_shadow_horizontal_length_tablet=”0px” button_text_shadow_vertical_length_tablet=”0px” button_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]
\n[\/et_pb_button][et_pb_text admin_label=”Text (mobile only)” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” z_index_tablet=”500″ global_colors_info=”{}”]<\/p>\n
Source: The Progeria Handbook; A Guide for Families and Health Care Providers of Children with Progeria.<\/em><\/strong>
Copyright 2019 by The Progeria Research Foundation. All rights reserved.<\/p>\nSign Up<\/h2>\n
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Updates!<\/h2>\n
Together, we<\/h2>\n
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find the cure!<\/h2>\n
Because most medical caretakers have never treated a child with Progeria, there are often questions about how to optimize quality of life through daily care and medical treatment. To answer that need, in April 2010, PRF published\u00a0the first edition of The Progeria Handbook<\/em>, for families touched by Progeria and their doctors. \u00a0From basic health facts to daily care recommendations to extensive treatment guidelines, this 131-page handbook helps answer many questions for children with Progeria throughout the world.\r\n\r\nIn March 2019, PRF updated and edited every section of the first edition of the handbook. Some of the biggest changes to the second edition include a new section on genetics and genetic counseling for the health professional, and a plethora of new information from recent clinical studies stemming from the Progeria research community, including new cardiovascular, neurovascular and endocrine information as well as recommendations.\r\n\r\n![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/iconPDF.gif\")
Click here<\/a> to download the second edition of the Handbook in English.\r\n\r\nWhen using these materials for reports or presentations, please include the following:\r\nSource:\u00a0The Progeria Handbook; A Guide for Families and Health Care Providers of Children with Progeria.<\/em><\/strong>\r\nCopyright 2019 by The Progeria Research Foundation. All rights reserved.\r\n\r\nWe will continue to update these materials as more information comes in. If you have specific medical questions, please contact us at (978) 535-2594 or\u00a0info@progeriaresearch.org.<\/a>\r\n\r\nThank you to every child and family who participates in these very important projects, and to the medical caretakers and other experts contributing to these recommendations.\r\n\r\n
\r\n\r\nThe first edition of the handbook is available in Spanish and Portuguese versions. Translations of the second edition of the handbook in Spanish and Portuguese will be posted on this page when available.\r\n\r\n Click here<\/a> to download the Portuguese version.\r\n\r\n Clique aqui<\/a> para fazer o download da vers\u00e3o em Portugu\u00eas.\r\n\r\n
\r\n\r\n <\/a>Click here<\/a> to download the Spanish version.\r\n\r\n <\/a>Haga clic aqui<\/a> para descargar la versi\u00f3n en espa\u00f1ol.[\/vc_column_text][\/vc_column][\/vc_row]\t\t","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-891","page","type-page","status-publish","hentry"],"yoast_head":"\n