{"id":20127,"date":"2025-05-27T08:31:55","date_gmt":"2025-05-27T12:31:55","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=20127"},"modified":"2026-05-18T09:54:30","modified_gmt":"2026-05-18T13:54:30","slug":"rdd-2025-cimus","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/zh\/2025\/05\/27\/rdd-2025-cimus\/","title":{"rendered":"PRF \u8054\u5408\u521b\u59cb\u4eba Leslie Gordon \u535a\u58eb\u548c Scott Berns \u535a\u58eb\u5728\u897f\u73ed\u7259 CiMUS \u4f5c\u4e3a\u601d\u60f3\u9886\u8896\u53d1\u8868\u6f14\u8bb2"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; 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class=\"elementToProof\">\n<p>\u897f\u73ed\u7259\u5723\u5730\u4e9a\u54e5\u5927\u5b66\u5206\u5b50\u533b\u5b66\u548c\u6162\u6027\u75be\u75c5\u7814\u7a76\u4e2d\u5fc3 (CiMUS) \u9080\u8bf7 PRF \u8054\u5408\u521b\u59cb\u4eba\u5728 2025 \u5e74\u7f55\u89c1\u75c5\u65e5\u7279\u522b\u6d3b\u52a8\u4e0a\u5206\u4eab\u4ed6\u4eec\u7684\u6545\u4e8b\u3002<\/p>\n<p>\u7531 PRF \u7814\u7a76\u5458 Ricardo Villa-Bellosta \u535a\u58eb\u7ec4\u7ec7\u548c\u4e3b\u6301\uff0cGordon \u535a\u58eb\u548c Berns \u535a\u58eb\u5c06\u5206\u4eab\u5f71\u54cd\u65e9\u8870\u75c7\u7814\u7a76\u9886\u57df\u7684\u6700\u65b0\u7814\u7a76\u8fdb\u5c55\uff0c\u4ee5\u53ca\u5c06\u65e9\u8870\u75c7\u4ece\u9ed8\u9ed8\u65e0\u95fb\u5e26\u5230\u57fa\u56e0\u53d1\u73b0\u3001\u6cbb\u7597\u3001\u5168\u7403\u5173\u6ce8\u548c\u53ef\u80fd\u6cbb\u6108\u7684\u5386\u7a0b\uff01Alexandra Perault \u7684\u6bcd\u4eb2\u3001PRF \u7684\u957f\u671f\u670b\u53cb\u548c\u652f\u6301\u8005 Esther Martinez Gracia \u4e5f\u53c2\u52a0\u4e86\u6b64\u6b21\u6d3b\u52a8\u3002<\/p>\n<p>\u5982\u9700\u4e86\u89e3\u66f4\u591a\u6d3b\u52a8\u8be6\u60c5\uff0c<a href=\"https:\/\/cimus.usc.gal\/events\/rare-disease-day-progeria-1\"> \u70b9\u51fb\u8fd9\u91cc<\/a>.<\/p>\n<p>\u8be5\u6d3b\u52a8\u5f15\u8d77\u4e86\u5a92\u4f53\u7684\u5e7f\u6cdb\u62a5\u9053\uff0c\u4f8b\u5982 <a href=\"https:\/\/www.antena3.com\/noticias\/sociedad\/padres-alexandra-nina-enfermedad-rara-importante-rendirse-aprovechar-cada-momento_2025030267c4b1341ba31400010be3d8.html\">\u201c<b>\u8eab\u60a3\u7f55\u89c1\u75be\u75c5\u7684\u5973\u5b69\u4e9a\u5386\u5c71\u5fb7\u62c9\u7684\u7236\u6bcd\uff1a\u201c\u91cd\u8981\u7684\u662f\u4e0d\u8981\u653e\u5f03\uff0c\u8981\u6293\u4f4f\u6bcf\u4e00\u523b\u201d<\/b><\/a><\/p>\n<\/div>\n<p>[\/et_pb_text][et_pb_testimonial quote_icon_color=&#8221;#FFFFFF&#8221; quote_icon_background_color=&#8221;#00B2E2&#8243; admin_label=&#8221;quote&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_font=&#8221;|700|||||||&#8221; body_font_size=&#8221;18px&#8221; background_color=&#8221;#8FD2ED&#8221; background_layout=&#8221;dark&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>\u5728\u5979\u88ab\u8bca\u65ad\u51fa\u60a3\u6709\u65e9\u8870\u75c7\u540e\uff0c\u5979\u7684\u5bb6\u4eba\u5f00\u59cb\u5bfb\u627e\u6cbb\u7597\u8fd9\u79cd\u75be\u75c5\u7684\u65b9\u6cd5\uff0c\u8fd9\u65f6\u4ed6\u4eec\u4e86\u89e3\u5230\u4e86\u65e9\u8870\u75c7\u7814\u7a76\u57fa\u91d1\u4f1a (PRF)\uff0c\u8fd9\u662f\u4e00\u5bb6\u81f4\u529b\u4e8e\u7814\u7a76\u65e9\u8870\u75c7\u7684\u7f8e\u56fd\u7ec4\u7ec7\u3002\u901a\u8fc7\u8fd9\u4e2a\u57fa\u91d1\u4f1a\uff0c\u4e9a\u5386\u5c71\u5fb7\u62c9\u5f97\u4ee5\u53c2\u52a0\u4e00\u9879\u4e34\u5e8a\u8bd5\u9a8c\uff0c\u6d4b\u8bd5\u4e00\u79cd\u540d\u4e3a lonafarnib 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