PRF’s 2013 Scientific Workshop
April 24 – 26, 2013 in Bethesda, MD: “Hand in Hand: Basic & Clinical Science Working Together Toward the Cure” was held in Bethesda, MD. A record number of clinicians and researchers gathered from all over the world to share the latest data, and set the stage for future efforts to get us to treatments and the cure.
WE DID IT! First-ever Treatment for Progeria Discovered!!
History has been made, with every child in the first-ever Progeria clinical drug trial showing improvement in one or more areas of their condition, proving that the FTI drug lonafarnib is the first known, effective treatment for children with Progeria.
The World Learns of Progeria Treatment
News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to get to links on dozens of articles, radio clips and TV airings!
Click here to read our special newsletter on the findings.
HBO Documentary Premiering at Film Festivals, Fall Broadcast Planned
Featuring PRF founders and their son Sam, HBO’s documentary "Life According to Sam" premiered at the world-renowned Sundance Film Festival in January, receiving rave reviews and raising awareness of Progeria and PRF’s work in a whole new way. More festival showings are taking place throughout the year, culminating in the HBO broadcast this fall.
This site was last updated on May 24, 2013