MISSION: To discover treatments and the cure for Progeria and its aging-related disorders.

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Sam G. Berns 10/23/96 -  01/10/14

Sam G. Berns 10/23/96 - 01/10/14
Sam Berns, the inspiration behind the founding of PRF, passed away Friday evening, January 10, due to complications from Progeria. The outpouring of support and tributes to this remarkable young man who touched millions of people worldwide is astounding.
 
Life According to Sam Wins Peabody Award, Now Available on DVD
April 2014
Life According to Sam Wins Peabody Award, Now Available on DVD
On the heels of winning an esteemed Peabody Award, Life According to Sam is now available on DVD. Join millions who have seen Sam and his parents (PRF co-founders) Leslie and Scott in this riveting documentary about love, life and hope for children with Progeria.
 
WE DID IT! First-ever Treatment for Progeria Discovered!!
September 24, 2012
WE DID IT! First-ever Treatment for Progeria Discovered!!
History has been made, with every child in the first-ever Progeria clinical drug trial showing improvement in one or more areas of their condition, proving that the FTI drug lonafarnib is the first known, effective treatment for children with Progeria.
 
PRF On the Move: Receives Research!America Award, Achieves Highest 4-Star Rating
March 2014
PRF On the Move: Receives Research!America Award, Achieves Highest 4-Star Rating
Recognized in Washington DC for its “significant impact in advancing research”, and attaining the top score from the premier nonprofit overseer, PRF is thrilled to be recognized in such significant ways.
 

 

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This site was last updated on April 09, 2014

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