Find The Children

Public awareness of an ultra-rare disease like Progeria is critical to educating doctors, families, researchers, and the general public on the disease and PRF’s mission.

PRF’s ‘Find the Children’ campaign is a strategic awareness initiative focused on finding children in areas of the world where we believe many are living – undiagnosed and untreated.But in order to help the children, we must find the children.

To that end, we’ve created informational materials about Progeria and PRF’s exciting progress to raise awareness, educate and help the families, their doctors, researchers and the public about Hutchinson-Gilford Progeria Syndrome – available in many languages below. You can view and download an infographic on Progeria and PRF’s research-related programs, as well as a more comprehensive double-sided information sheet (for printing).

Help us make an impact! Please share these widely to inform those in your country or region about our vital mission to help all children around the world with Progeria. While we’ve made amazing progress finding, diagnosing and treating many children, there are still an estimated 150 – 250 children around the world with Progeria to be found, to be treated, and one day, to be cured. With your help, we will forge ahead until we find them all!

Arabic/عربي

Farsi/Persian فارسی/فارسی

Indonesian/bahasa Indonesia

Russian/Русский

Urdu/اردو

As of June 30, 2024, we know of 154 children and young adults with Hutchinson-Gilford Progeria Syndrome (HGPS), all with a progerin-producing mutation in the LMNA gene; and 56 people in the category of progeroid laminopathy (PL), who have mutations in the lamin pathway but do not produce progerin; in a total of 52 countries.

Read Exciting Campaign Updates

Our previous “Find the Other 150 / Find the Children” campaigns (2009, 2015 and 2019) were tremendously successful. Check out the links below for details.

September 2019 – ‘Find the Children – 60 in India With Progeria’ Campaign Reignites the Search for Children With Progeria in India (The Week)

November 2016 – ‘Finding the other 60,’ awareness campaign in India gains traction (Hindustan Times)

November 2012 – Number of Children Identified Continues to Soar as we reach 100

August 2011 – NHL hockey players from the Boston Bruins expand our reach to their home countries