MISSION: To discover treatments and the cure for Hutchinson-Gilford Progeria Syndrome
and its aging-related disorders, including heart disease.

Get Involved

zach superman small

Today, over 80 children from 30 countries are enrolled in a PRF-funded drug trial. Because of your support, the children are receiving the benefits of lonafarnib: stronger hearts and longer lives.

About PRF

Sammy-Basso- in USA

Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.

 

News

  • Eiger

May 15th, 2018|0 Comments

May 16, 2018: On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib.  

Collaboration marks first therapy submission for the treatment of Progeria. If approved, children may access drug by prescription instead of clinical trial. Click here for more details.
  • ZachHPFE

April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!

April 24th, 2018|0 Comments

A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.
  • logohp

First Children Enroll to Complete Their Final Visit

February 2nd, 2018|0 Comments

Our current trial continues, with children regularly coming to Boston from all over the world to enroll. Click here for more details.