Vision
Our vision is a world in which every child with Progeria is cured.
Mission
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.
Vision
Our vision is a world in which every child with Progeria is cured.
Mission
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.
News
Results from PRF’s 10th International Scientific Workshop published in journal Aging!
In November, 2020, PRF brought over 370 registrants from 30 countries ‘together’ in our first-ever virtual scientific workshop. Attendees were given a platform to share their expertise in Progeria research and meet some of the children who will benefit from their work. A summary of the workshop was published today in the journal Aging.
Exciting breakthroughs in RNA Therapeutics for Progeria!
We’re thrilled to share the results from two very exciting breakthrough studies on the use of RNA therapeutics in Progeria research. Both studies were co-funded by The Progeria Research Foundation (PRF) and co-authored by PRF’s Medical Director, Dr. Leslie Gordon.
Kicking off the New Year with exciting research news!
In January, the science journal Nature published breakthrough results demonstrating that genetic editing in a mouse model of Progeria corrected the mutation that causes Progeria in many cells, improved several key disease symptoms and dramatically increased lifespan in the mice.
The day has come: FDA approval for first-ever Progeria treatment!
We’re thrilled to announce that today, we achieved an important piece of PRF’s mission: lonafarnib, the first-ever treatment for Progeria, has been granted FDA approval.
PRF’s 10th International Scientific Workshop
Enjoy some clips, photos, comments, and Q&A!
Get Involved
Today, over 80 children from 30 countries are enrolled in a PRF-funded drug trial. Because of your support, the children are receiving the benefits of lonafarnib: stronger hearts and longer lives.
About PRF
Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.
Meet the Kids
We hope their stories inspire you to support PRF, so those dreams can come true.
Events
Miles for Miracles Road Rally
PRF Cure Cup Classic Golf Tournament
Team PRF Runs the Falmouth Road Race (details coming soon)
August 15, 2021
20th Annual International Race for Research (details coming soon)
Sept. 18, 2021, Peabody, MA & At-Home Edition
Miles for Miracles Road Rally (registration coming soon)
PRF Cure Cup Classic Golf Tournament
Team PRF Runs the Falmouth Road Race (details coming soon)
August 15, 2021
20th Annual International Race for Research (details coming soon)
Sept. 18, 2021, Peabody, MA & At-Home Edition