MISSION: To discover treatments and the cure for Hutchinson-Gilford Progeria Syndrome
and its aging-related disorders, including heart disease.
Get Involved
Today, over 70 children from 30 countries are enrolled in a PRF-funded drug trial. Because of your support, the children are receiving the benefits of lonafarnib: stronger hearts and longer lives.
About PRF
Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.
News
January 2018: 2-Drug Clinical Trial: Phase 1 Completed and Successful; Phase 2 has Begun
Our current trial continues, with children regularly coming to Boston from all over the world to enroll. Click here for more details.
Night of Wonder 2018: Music to your ears!
PRF’s signature event- Night of Wonder Gala: Rock the Cure is just days away! Saturday April 28, 2018 at the beautiful Renaissance Waterfront Hotel, Boston. See details on ticket purchase and our phenomenal auction HERE. We hope you’ll join us for this special evening.
Check out our 2017 Newsletter HERE! Read about our new clinical trial, remarkable program milestones, wonderful Chapters and Volunteers, and so much more.
Events
- April 15, 2018 in Mountain Lakes, NJ: Mountain Lakes High School Fashion Show
- April 28, 2018 in Boston MA: Night of Wonder 2018: Music to your ears!
- April 29, 2018 in Lexington, KY: Bowling for Zach, Kentucky Chapter Bowl-a-Thon
- May 12, 2018 in Flat Rock, MI: 13th Annual Miles for Miracles 2 Mile Walk and 3 Mile Fun Run
- September 15, 2018 in Peabody, MA: 17th Annual International Race for Research 5K & 2Mile Walk (Save the Date!)
- ANY DAY in 2018 – Anywhere: HatsON for Progeria Days 2018. Join us ANY DAY that works for you!