MISSION: To discover treatments and the cure for Hutchinson-Gilford Progeria Syndrome
and its aging-related disorders, including heart disease.
Get Involved
Today, over 80 children from 30 countries are enrolled in a PRF-funded drug trial. Because of your support, the children are receiving the benefits of lonafarnib: stronger hearts and longer lives.
About PRF
Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.
News
June 1: PRF’s 2018 ONEpossible Campaign Kicks Off! Click Here to Donate Today! Be ONE to make the cure POSSIBLE! With so much recent progress, please help keep the momentum going in our vital search for the cure.
May 16, 2018: On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib. Collaboration marks first therapy submission for the treatment of Progeria. If approved, children may access drug by prescription instead of clinical trial. Click here for more details.
April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.
Events
- July 28, 2018 in Lexington, KY: The 8th Annual Zach Attack Ride for Progeria
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August 11, 2018 in Butler, PA: The 10th and Final Cam’s Course Golf Scramble
- September 8, 2018 in Peabody, MA: 17th Annual International Race for Research 5K & 2Mile Walk (Save the Date!)
- September 9, 2018 in Flourtown, PA: Make-a-Splash Fundraiser for Nathan and Bennett
- ANY DAY in 2018 – Anywhere: HatsON for Progeria Days 2018. Join us ANY DAY that works for you!