OUR VISION: A world in which every child with Progeria is cured
OUR MISSION: To discover treatments and the cure for Progeria
and its aging-related disorders, including heart disease.
Get Involved
Today, over 80 children from 30 countries are enrolled in a PRF-funded drug trial. Because of your support, the children are receiving the benefits of lonafarnib: stronger hearts and longer lives.
About PRF
Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.
News
Our 2018 Newsletter is HERE! Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.
May 16, 2018: On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib. Collaboration marks first therapy submission for the treatment of Progeria. If approved, children may access drug by prescription instead of clinical trial. Click here for more details.
April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.
Events
- September 24, 2018 in Wayne, NJ: The 9th Annual Team Zoey Golf Outing
- October 27, 2018 in Atlantic Beach, NC: 3rd Annual Deallaney Hudson Honorary King Mackerel Tournament
- November 24, 2018 in Verona, NJ: The 8th Annual Team Zoey Turkey Trot
- October 19th or ANY DAY in 2018 – Anywhere: HatsON/Jeans Day for Progeria 2018. Join us ANY DAY that works for you!
- May 13, 2019 in Ipswich, MA: Cure Cup Classic Golf Tournament at the Ipswich Country Club (Save the Date- Details Coming Soon)