OUR VISION: A world in which every child with Progeria is cured
OUR MISSION: To discover treatments and the cure for Hutchinson-Gilford Progeria Syndrome
and its aging-related disorders, including heart disease.
Get Involved
Today, over 80 children from 30 countries are enrolled in a PRF-funded drug trial. Because of your support, the children are receiving the benefits of lonafarnib: stronger hearts and longer lives.
About PRF
Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.
News
August 1: PRF’s 2018 ONEpossible Campaign Exceeds its Goal! A huge THANK YOU to the over 1,000 PRF donors who helped us raise $159,000! All funds from our annual summer campaign go directly to our vital clinical trials. We thank each and every ONE of you for making a cure POSSIBLE.
May 16, 2018: On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib. Collaboration marks first therapy submission for the treatment of Progeria. If approved, children may access drug by prescription instead of clinical trial. Click here for more details.
April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.
Events
- September 8, 2018 in Peabody, MA: 17th Annual International Race for Research 5K & 2Mile Walk REGISTER HERE
- September 9, 2018 in Flourtown, PA: Make-a-Splash Fundraiser for Nathan and Bennett
- September 24, 2018 in Wayne, NJ: The 9th Annual Team Zoey Golf Outing
- October 27, 2018 in Atlantic Beach, NC: 3rd Annual Deallaney Hudson Honorary King Mackerel Tournament
- November 24, 2018 in Verona, NJ: The 8th Annual Team Zoey Turkey Trot (Details to follow!)
- ANY DAY in 2018 – Anywhere: HatsON/Jeans Day for Progeria 2018. Join us ANY DAY that works for you!