News
The Okie Boys Jet Ski 1,300 Miles for Progeria Research
The Okie Boys, a group of friends from Oklahoma, just rode jet skis 1,300 miles from Miami to Puerto Rico to raise money for progeria research. We’re so grateful to Derek and the Okie Boys for turning personal loss into public generosity and helping our community feel seen.
PRF’s 12th International Scientific Workshop
A landmark meeting summary from the 12th International PRF Scientific Workshop has just been published in Nature Aging.
NEWS RELEASE: FOR IMMEDIATE RELEASE
The Progeria Research Foundation Celebrates 25 Years of Racing Toward a Cure 25th Annual International Race for Research Set for September 19, 2026, in Peabody, MA.
Come join us and hit the streets for the City of Peabody’s largest annual road race. We’re excited to mark this special milestone with our incredible community.
ONEpossible 2026 Starting June 1 2026: Everywhere
Thank you to everyone who supported our 2026 ONEpossible Campaign! Every team crushed its goal, and your support is making a real difference by helping children and young adults with Progeria live longer, healthier lives. Together, we WILL find the cure.
PRF Announces Manufacturing Partnership with Forge Biologics to Advance Progeria Gene Therapy!
PRF Announces Manufacturing Partnership with Forge Biologics to Advance Progeria Gene Therapy!
This announcement marks a major milestone: PRF has entered into a manufacturing agreement with Forge Biologics to produce SamPro-2, its gene editing therapy in development for children and young adults with Progeria — an essential step toward clinical trials and, ultimately, the cure!
Get PRF’s 2025 Newletter here!
Hot off the press: PRF’s 2025 Newsletter! Get the latest scoop on the Progerinin Clinical Trial, our Path to CURE PROGERIA, and so much more!
New Yorker Features Progeria Gene Editing: PRF is on the Path to CURE PROGERIA!
On August 11, 2025, this top-tier publication featured an in-depth article detailing PRF’s history, accomplishments, and present focus on the Gene Therapy that could bring us closer to curing Progeria. Our extraordinary journey is reaching millions more throughout the world!
New clinical trial with the drug Progerinin is officially underway
PRF is thrilled to announce that the first Progerinin clinical trial patient visits are complete!
ONEpossible 2025 June 1-July 15. Everywhere
Thank you so much to everyone who helped make our 2025 ONEpossible campaign a success. Together, we WILL find the cure!
PRF Co-Founders Drs. Leslie Gordon and Scott Berns speak as thought leaders at CiMUS, Spain
The Center for Research in Molecular Medicine and Chronic Diseases (CiMUS) at the University of Santiago in Spain invited PRF co-founders to share their story at a special event on Rare Disease Day 2025.
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