News
Ted Danson and Cast of The Good Place® Support PRF!
Meghan’s March Madness!
Thank YOU for celebrating Meghan’s March Madness with us! Because of all of you we raised over $19,000, which will go directly to our mission to find the cure! We hope you enjoyed getting to know Meghan. If you haven’t seen her video – check it out now!
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Thank you for making a difference in 2018!
Find out how PRF supporters made 2018 a tremendous year of progress.
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October 2018: PRF Redesigns the Research Grant Program and is Soliciting Grant Proposals Worldwide
Our 2018 Newsletter is Here!
Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.
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August 1: PRF’s 2018 ONEpossible Campaign Exceeds its Goal!
A huge THANK YOU to the over 1,000 PRF donors who helped us raise $159,000! All funds from our annual summer campaign go directly to our vital clinical trials. We thank each and every ONE of you for making a cure POSSIBLE.
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May 16, 2018: On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib.
Collaboration marks first therapy submission for the treatment of Progeria. If approved, children may access drug by prescription instead of clinical trial. Click here for more details.
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April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.
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September 20 – 22, 2018 in Cambridge, MA: Join us for PRF’s 9th International Scientific Workshop, “MANY PATHWAYS, ONE GOAL”, the world’s largest conference of its kind .
First Children Enroll to Complete Their Final Visit
Our current trial continues, with children regularly coming to Boston from all over the world to enroll. Click here for more details.
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