News
Hot off the Presses: PRF’s 2020 Newsletter!
Read about how our progress continues despite the pandemic; the science driving PRF’s latest grant recipients to propel Progeria research to new heights; inspiring thoughts from families in our Progeria community; and so much more.
Researchers: Register now for PRF’s 10th International Scientific Workshop- Webinar Version November 2 and 3, 2020
We are proud to announce … The Progeria Research Foundation’s 10th International Scientific Workshop-Webinar Version
Researching possibilities and exTENding lives
July 20: PRF’s Annual ONEpossible Campaign a Success!
From all of us at PRF, as well as the children and their families, THANK YOU to everyone who donated to our ONEpossible campaign!!
We CRUSHED our goal – which will help to offset funds lost from cancelled events due to COVID-19 – and couldn’t have done it without your support!
A Note to our PRF Community
First and foremost, we hope you are staying well. In light of the recent progression of COVID-19, and as we all navigate this uncertain time, we want to THANK YOU for your support and let you know that our fight against Progeria remains steadfast.
Application to FDA for lonafarnib approval is COMPLETE!
During an otherwise difficult time for our world, we are happy to share a bright spot: Eiger BioPharmaceuticals has completed submission of a New Drug Application (NDA), seeking approval – in Europe and the US – of the drug lonafarnib as a first-ever treatment for Progeria.
Thank you for helping us celebrate Meghan’s 19th birthday this month!
On March 1st, PRF Ambassador Meghan Waldron turned 19, and we celebrated with March Madness 2020: Where in the world is Meghan Waldron? We've shared photos from Meghan’s travels and hope they've inspired you to think about where your next adventure will be once we're...
Submission of application to FDA for lonafarnib approval has begun!
We’re thrilled to announce a milestone in our mission to treat and cure children with Progeria: In partnership with The Progeria Research Foundation, Eiger BioPharmaceuticals has submitted to the FDA the first part of its application seeking approval of the drug lonafarnib as a treatment for Progeria.
PRF’s 2019 Newsletter
Get exciting updates on our progress over the past year, learn why we now refer to the population we serve as children – and young adults – with Progeria, check out the people, the science, and the events that got us where we are today, and SO MUCH MORE!
‘Find the Children’ campaign launches in India
Due to the incredible success of previous years’ campaigns in 2009 and 2015, we are thrilled to announce the 2019 launch our ‘Find the Children’ initiative to search globally for the undiagnosed children with Progeria so that they, too, can have access to the unique care they need.
2019 International Race for Research – Photos & Race Times
PRF’s 18th Annual International Race for Research is complete! Thank you to all who helped make it a success! Get your photos and official race times here.
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