During an otherwise difficult time for our world, we are happy to share a bright spot: Eiger BioPharmaceuticals has completed submission of a New Drug Application (NDA), seeking approval – in Europe and the US – of the drug lonafarnib as a first-ever treatment for Progeria.
Due to the success of last year’s Meghan’s March Madness, we’re fired up to get started with MMM 2020! Also, check out the great article from last week’s Boston Globe cover, featuring our girl Meghan and the tremendous progress we’ve made in partnership with Eiger to get lonafarnib as the first treatment for Progeria!
We are proud to announce … The Progeria Research Foundation’s 10th International Scientific Workshop
Researching possibilities and exTENding lives
We’re thrilled to announce a milestone in our mission to treat and cure children with Progeria: In partnership with The Progeria Research Foundation, Eiger BioPharmaceuticals has submitted to the FDA the first part of its application seeking approval of the drug lonafarnib as a treatment for Progeria.
Get exciting updates on our progress over the past year, learn why we now refer to the population we serve as children – and young adults – with Progeria, check out the people, the science, and the events that got us where we are today, and SO MUCH MORE!
Due to the incredible success of previous years’ campaigns in 2009 and 2015, we are thrilled to announce the 2019 launch our ‘Find the Children’ initiative to search globally for the undiagnosed children with Progeria so that they, too, can have access to the unique care they need.
PRF’s 18th Annual International Race for Research is complete! Thank you to all who helped make it a success! Get your photos and official race times here.
THANK YOU to all of our donors who helped us meet our goal. You are all ONE to make the cure POSSIBLE!
The Progeria Research Foundation has some exciting updates we would like to share!