News
Charity Navigator 9 Years in a Row!
We’re thrilled to share that PRF has been awarded the highest 4-star Charity Navigator rating for our 9th straight year! Charity Navigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is only awarded to 5% of the nonprofits evaluated....
November 2 – 4, 2022: PRF’s 11th International Scientific Workshop
We’re starting our engines and revving up for The Progeria Research Foundation’s 11th International Scientific Workshop – RACE Progeria to the Cure!
ONEpossible 2022
We are thrilled to let you know that this year, thanks to PRF’s many generous donors, our ONEpossible Campaign raised over $120,000!
With your generosity, children and young adults with Progeria can access the heart-strengthening, life-extending, FDA-approved drug Zokinvy, no matter where they live.
Mission Milestone! European Medicines Agency (EMA) recommends Zokinvy for approval in Europe
PRF and Eiger BioPharmaceuticals announced today that a positive opinion has been issued from the EMA recommending approval for Zokinvy, a breakthrough treatment for Progeria and processing-deficient progeroid laminopathies (PL).
International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit
In May 2022, The Progeria Research Foundation in partnership with Brigham and Women’s Hospital, and Boston Children’s Hospital convened a specialized meeting of high-level cardiologists and researchers to discuss the urgency of cardiac stenosis in children with...
Happy Heart Health Month – and Happy Valentine’s Day!
At PRF, we LOVE Heart Health Month – because treating and curing the heart disease that affects all children and young adults with Progeria is at the ‘heart’ of our mission.
Get PRF’s 2021 Annual Newsletter here!
Check out our newsletter to read about FDA approval for the first-ever treatment for Progeria, learn how the research we fund has made remarkable progress toward the cure through genetic and RNA therapies, and get the scoop on all the exciting milestones we’re celebrating right now.
Another year of top Charity Navigator ratings!
We’re thrilled to share that PRF has been awarded the highest 4-star Charity Navigator rating for our 8th straight year! CharityNavigator is the top evaluator of U.S.-based nonprofits, and this coveted 4-star rating is only awarded to 6% of the nonprofits evaluated....
THANK YOU for making our 2021 ONEpossible Campaign a huge success!
PRF is planting the seeds of research in the most cutting-edge areas of science. Your support of our ONEpossible Campaign is the sunshine needed to cultivate the cure. DONATE today and be ONE to make the cure POSSIBLE!
Results from PRF’s 10th International Scientific Workshop published in journal Aging!
In November, 2020, PRF brought over 370 registrants from 30 countries ‘together’ in our first-ever virtual scientific workshop. Attendees were given a platform to share their expertise in Progeria research and meet some of the children who will benefit from their work. A summary of the workshop was published today in the journal Aging.
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