- About Progeria
- About PRF
- Meet the Kids
- Medical Research
- Parents & Doctors
- Get Involved
- Fundraising Events
- Contact Us
- Donate Now
Sam Berns, the inspiration behind the founding of PRF, passed away Friday evening, January 10, due to complications from Progeria. The outpouring of support and tributes to this remarkable young man who touched millions of people worldwide is astounding.
Sam, age 17, was diagnosed at 22 months of age with Progeria. His parents, Drs. Leslie Gordon and Scott Berns, established The Progeria Research Foundation in 1999 to find the cause, treatment and cure. Children with Progeria live an average of 13 years.
In 2013, HBO Documentaries broadcast the story of Sam Berns in Life According to Sam , and his courage and spirit moved everyone who came to know him personally or was inspired by his story. Sam also shared his life philosophy at TEDxMidAtlantic in October 2013.
The entire PRF community mourns the loss of this remarkable young man who not only inspired PRF's creation, but also touched millions of people worldwide. To see some beautiful stories, please visit http://storify.com/progeria/remembering-sam-berns-10-23-96-01-10-14
The family requests privacy at this time. Expressions of sympathy and support may be expressed using #prfsam on Twitter and The Progeria Foundation Facebook page and/or directed to The Progeria Research Foundation at P.O. Box 3453, Peabody, MA 01961-3453.