News

Exciting Updates!
The Progeria Research Foundation has some exciting updates we would like to share!

Meghan’s March Madness!
Thank YOU for celebrating Meghan’s March Madness with us! Because of all of you we raised over $19,000, which will go directly to our mission to find the cure! We hope you enjoyed getting to know Meghan. If you haven’t seen her video – check it out now!

Thank you for making a difference in 2018!
Find out how PRF supporters made 2018 a tremendous year of progress.

October 2018: PRF Redesigns the Research Grant Program and is Soliciting Grant Proposals Worldwide

Our 2018 Newsletter is Here!
Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.

On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib
On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib.

Night of Wonder 2018: Music to your ears!
PRF’s signature event, Night of Wonder Gala: Rock the Cure, was held on Saturday April 28, 2018 at the beautiful Renaissance Waterfront Hotel, Boston. Thanks to all of our supporters we raised a RECORD-BREAKING $580,000! Check out our event page for fabulous pictures from this special evening.

April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.

First Children Enroll to Complete Their Final Visit
Our current trial continues, with children regularly coming to Boston from all over the world to enroll. Click here for more details.

Amazon Smile
December 1, 2017
Support us when you shop this holiday season – and throughout the year! Start your shopping at Amazon Smile and Amazon donates to The Progeria Research Foundation with every eligible purchase.