The Progeria Research Foundation (“PRF”) believes that addressing concerns about privacy is critical. PRF takes steps to protect the personal information provided by visitors to PRF’s website and information included on our electronic mail lists. A more detailed explanation about how we care for your personal information follows. Certain forms and agreements available on our website may be governed by separate policies and terms, as further discussed in such forms and agreements.
Collection and Use of Information:
Browser Information Collected on the Website: You can view many portions of our website without actively providing us with your personal information. However, like most websites and applications, we collect certain information from your computer or mobile device by automated means when you visit our website (such as, for example, IP address, geographic location, referral website data, domain server, software and hardware attributes, type of web browser, usage data and pages accessed) that provides us with information such as, for example, page views, unique views, unique visitors, repeat visitors, frequency of visits and peak-volume traffic periods. This data helps us to analyze and improve our website.
Other Uses of Your Personal Information: In addition to using information about you for the specific purposes set out above, from time to time we may also use your personal information to send you news about our organization and promotional materials about PRF initiatives, provided that you have not opted out of receiving such information as described below.
Sharing and Disclosure of Information:
Disclosure of Information to Third Parties. PRF respects the privacy of its financial supporters, and we will not send donor mailings on behalf of other organizations. However, PRF relies on consultants and other third parties to provide various services (such as, for example, transactions card processing, sign-up forms, advocacy actions, infrastructure hosting, performance monitoring, site maintenance and website analytics), and we may share information with these service providers to enable them to perform their respective services.
Copyright and Photo Use Policy:
All information and pages are Copyright © 2017 The Progeria Research Foundation, Inc., P.O. Box 3453, Peabody, MA 01961-3453. All rights reserved. Contact PRF for permission to reprint any portion of this website or any materials displayed on this website for purposes other than personal, non-commercial use. No works or photos displayed on this website may be reproduced in any way or form without specific written permission from PRF. All such requests for permission must be made in writing and submitted to email@example.com.
Our Commitment to Data Security:
PRF implements physical, electronic and managerial procedures to protect the personal information we collect through our website. However, we cannot ensure or warrant the security of any information you transmit to the website or to us. Donor databases are password protected; information submitted through our website is encrypted in transit through Secure Sockets Layer (SSL) software; physical documents are stored in secure locations; and our employees, volunteers and contractors are limited to necessary access to said documents.
This website includes certain information for review and use by children. We hope that children and parents will visit our website together so that they can jointly learn about Progeria and PRF’s mission. We do not knowingly collect, either online or offline, personal information from individuals under the age of 13 years old. If we learn that we have received information pertaining to children under 13 years old, we will promptly obtain parental consent or otherwise delete the information from our servers. If you want to notify us of our receipt of information in relation to children under 13 years old, please do so by emailing us at firstname.lastname@example.org.
International Information Transfers:
Any personally identifiable information that you provide to PRF will be collected directly on servers located in the United States and maintained on servers located in the United States or other countries. If you are located outside the United States, this means that any information you provide will be transferred abroad. While PRF is committed to protecting your information, you should know that the general level of protection for personal information in the United States may not be the same as that provided in other countries.
Data Quality and Access:
You have the opportunity, by contacting us as set forth below, to know about the information that PRF holds about you and to correct, amend or delete, as appropriate, any such information that is incomplete or inaccurate.
This policy was last updated on October 26, 2020.