Pennsylvania – Philadelphia Chapter

Fighting for Their Future is the Philadelphia Chapter of PRF, led by Nathan and Bennett’s parents, friends and family. The boys both have a rare form of Progeria called Mandibuloacral Dysplasia (MAD) and have similar medical conditions to children with classic Progeria. Their goal is to FIGHT FOR THEIR FUTURE, so that Nathan and Bennett can live longer, healthier lives.

Every year this amazing group organizes the fun Make a Splash outing to raise awareness and funds for PRF. They also organize smaller events throughout the year at local businesses and participate in the ONEpossible campaign with PRF.

For more information about this chapter please e-mail Nathanandbennett@gmail.com or visit their Facebook Page. See their beautiful brotherhood/friendship and meet their family in this heartwarming interview by Special Books for Special Kids.

Make a Splash brings people of all ages together!

The boys with friends and family celebrate Amy Ruhf’s Hike for Hope, which raised over $40,000 for PRF!

Special guests from Star Wars made the 2017 Make a Splash super fun!