Winning an Emmy for “Exceptional Merit in Documentary Filmmaking”. we congratulate HBO Documentary Films and the talented team who have helped raise awareness of Progeria and PRF’s work through this exceptional film. LATS continues to impact viewers...
STUDY FINDS TRIAL MEDICATIONS INCREASE LIFESPANFOR CHILDREN WITH PROGERIAFirst-Ever Study of Progeria Children Drug Treatments ShowsProtein Farnesylation Inhibition Increased Lifespan BOSTON, MA (May 6, 2014) – A new study demonstrates there is evidence that a drug...
Recognized in Washington DC for its “significant impact in advancing research”, and attaining the top score from the premier nonprofit overseer, PRF is thrilled to be recognized in such significant ways. On March 12, 2014, PRF received Research!America’s...
The family of Sam Berns confirmed today that he passed away Friday evening, January 10, 2014 due to complications from Progeria. Sam, age 17, was diagnosed at 22 months of age with Progeria. His parents, Drs. Leslie Gordon and Scott Berns, established The Progeria...
After seeing Life According to Sam, our generous friend Robert Kraft issued a Matching Gift Challenge to help Sam and his friends, up to $500,000 from October 8-23rd to jump-start our $4 million campaign for the triple trial. Thanks to thousands of generous people, we...
As if this month weren’t exciting enough, on Tuesday, Oct. 15, Sam, his parents (PRF co-founders) Leslie and Scott, and the Directors of Life According to Sam will be the leading story on Katie Couric’s daytime show! (link no longer available) Tune in for this...
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