Sep 18, 2023 | Homepage News, News
Employment at PRF Our Story Employment at PRF Quick Facts PRF By The Numbers Our Brochure and Logo Financial Profile Request Assistance for Someone with Progeria The Progeria Research Foundation’s work would not be possible without everyone who participates in...
Jul 25, 2023 | Homepage News, News, Uncategorized
PRF’s co-founder and Medical Director, Dr. Leslie Gordon, was recently invited to contribute to an educational video series produced by the National Organization for Rare Disorders (NORD), along with her colleague Dr. Francis Collins, Science Advisor to the President...
Jun 1, 2023 | Events, News
Recently published findings show the long-term benefits of lonafarnib have increased life expectancy by 35%! Thanks to YOU, PRF continues to make a dramatic impact on the length and quality of life for those with Progeria! PRF co-founder and Medical...
Apr 6, 2023 | Events, News, Uncategorized
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community: Paul Michienzie from Foxboro (right) and Bobby Nadeau (left) from Mansfield....
Mar 15, 2023 | Homepage News, News, Uncategorized
We’re excited to share two thrilling research updates with you, published online today in the world’s top cardiovascular journal, Circulation (1): Biomarker in Progeria A new way to measure progerin, the toxic protein that causes Progeria, has been developed by...
Nov 15, 2022 | Homepage News, News, Uncategorized
2022 Scientific Workshop: Race Progeria to the Cure! 2022 International Sub-specialty Meeting – Progeria Aortic Stenosis Intervention Summit 2020 International Workshop – Webinar Version: Researching Possibilities Extending Lives 2018 Scientific Workshop: “Many...
