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Hot off the press: PRF’s 2019 Newsletter

Hot off the press: PRF’s 2019 Newsletter

Lonafarnib Managed Access Program Launched! Trial participation and travel to Boston no longer required for most children in order to access this treatment. We are thrilled to announce that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and...
ONEpossible 2019 a Success!!

ONEpossible 2019 a Success!!

    PRF’s 2019 ONEpossible campaign was a success, and we’ve reached our $150,000 goal, all thanks to YOU. We hope you will join us for next year’s ONEpossible campaign!!    LEARN...
Exciting Updates!

Exciting Updates!

The Progeria Research Foundation has some exciting updates we would like to share! We are excited to present our new logo! The new logo features a modern look, while keeping the iconic bird and Sam Berns’ handprint. We are especially proud to introduce our new...