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2026년 회의 일정은 아래와 같습니다. 이사회 회의 일정은 변경될 수 있으니 참고하시기 바랍니다. 이메일로 문의하세요 또는 정기적으로 이 사이트를 다시 방문하여 회의 날짜에 대한 최신 정보를 확인하세요.

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2026년 6월 9일 화요일
화요일, 2026년 9월 29일
화요일, 2026년 12월 17일

자원봉사 이사회

The Progeria Research Foundation’s Board Members are a remarkable group of dedicated, passionate individuals who donate their talent, time and treasure in a variety of ways.  With years of experience in the fields of legal, medical, financial, business, development and public relations, each brings a unique perspective to the table. Brief biographical sketches appear in the links below.  

 

Scott D. Berns, MD, MPH, FAAP

Scott D. Berns, MD, MPH, FAAP

PRF 공동 창립자 겸 이사회 회장

2025년 9월, 번스 박사는 국립 아동 건강 품질 연구소(NICHQ)의 사장 겸 CEO로 10년간 재직한 후 은퇴했습니다. 그 전에는 마치 오브 다임스(March of Dimes) 전국 사무소에서 지부 프로그램 담당 수석 부사장 겸 의료 부책임자를 역임했습니다.

번스 박사는 소아과 전문의 자격을 갖춘 소아과 의사이자 소아 응급 전문의입니다. 그는 로드아일랜드주 프로비던스에 있는 브라운 대학교 워런 알퍼트 의과대학에서 소아과 임상 교수로 재직하고 있습니다. 그는 하버드 공중보건대학원에서 보건, 정책 및 관리 분야를 전공하여 공중보건학 석사 학위를 취득했으며, 1년간 백악관 펠로우십을 수료하여 미국 교통부 장관 특별 보좌관으로 활동했습니다.

버른스 박사는 미국 소아과 학회로부터 소아 응급 의학 연구 우수상인 윌리스 윙거트 상, 미국 주산기 협회로부터 국가상, 미국 교통부로부터 공공 보건 서비스상, 스탠 & 메이비스 그레이븐 리더십 상, 그리고 화이트하우스 펠로우 재단 및 협회 영향력 상을 수상했습니다.

Karen N. Ballack, Esq.

카렌 N. 발락 변호사

Karen Ballack is a partner in the Silicon Valley office of Weil, Gotshal & Manges, LLP. She has extensive experience as an intellectual property transactional attorney, with emphasis on representing technology companies, particularly in the computer, internet, semiconductor, biotechnology, pharmaceutical and medical device industries. Karen represents clients in connection with technology and intellectual property alliances and transactions, including research and development collaborations, licensing matters, corporate partnering transactions, and commercialization arrangements regarding products and services. Karen is often engaged as a guest speaker on these topics. She also serves on the firm’s Pro Bono Committee, Diversity Committee and Women@Weil Leadership Committee and is a member of the Hiring Committee.

Sandra Bresnick, Esq.

샌드라 브레스닉 변호사

Sandra Bresnick retired after serving as Co-Chair of the Global Life Sciences Practice for Quinn Emanuel Urquhart & Sullivan.  Based at the New York office, she specialized in patent litigation, particularly in the areas of pharmaceuticals, medical devices, and biotechnology. Ms. Bresnick also counseled clients on intellectual property management. She teaches Pharmaceutical Patent Litigation at Rutgers University School of Law and is a frequent speaker on topics pertinent to the life sciences industries. She is registered to practice before the U.S. Patent & Trademark Office.

Alan Brogdon

앨런 브로그던

앨런 브로그던은 전략적 리더십 분야에서 20년 이상의 경험을 가진 뛰어난 임원으로, 운영, 기술 및 공유 서비스를 전문으로 합니다. Mothers Against Drunk Driving(MADD)의 최고 기술 책임자로서, 앨런은 조직의 디지털 혁신 노력을 이끌고 기술 인프라, 데이터 전략 및 운영 효율성을 개선하여 미션 영향을 추진합니다.

Previously, Alan served as the Chief Operating Officer at The Progeria Research Foundation (PRF), where he spearheaded initiatives to improve operational effectiveness, optimize financial operations, and drive revenue growth through innovative fundraising strategies. Following his tenure as COO, he transitioned to the PRF Board, continuing his commitment to PRF’s mission.

Paula L. Kelly, CPA

폴라 엘 켈리, 공인회계사

귀중품 보관자

Paula is an Engagement Director within the Client Accounting and Advisory Services of CliftonLarsonAllen. She builds relationships and provides services to clients to help solve their accounting and finance issues, whether it’s project-based or as an interim role.

Paula has more than 25 years of experience in financial management operations, financial reporting, and planning within the manufacturing, private equity, and non-profit industries. She is also a former Assistant Professor of Accounting at Dean College. Paula earned an MBA from Providence College and is a member of the American Institute of Certified Public Accountants.

Mark W. Kieran, MD, PhD

Mark W. Kieran, MD, PhD

키런 박사는 20년 동안 다나-파버 암 연구소와 보스턴 소아 병원에서 소아 신경종양학과장으로 재직하며 뇌암, 조로증 및 기타 유아 심장병이 있는 어린이를 위한 새로운 표적 및 유전자 치료법의 개발과 임상 전환에 집중한 후 업계로 옮겨 현재는 어린이를 위한 표적 약물 개발에 집중하는 회사인 Day One Biopharmaceutics에서 임상 개발 부사장을 맡고 있습니다.

In addition to a PhD in Immunology from the University of Alberta, Canada and two post-doctoral fellowships in molecular biology (Paris, France) and cellular signal transduction (Harvard, Boston), Mark is also a board-certified pediatric hematologist oncologist. He helped develop and remains on the faculty of the Children’s Cancer Hospital Egypt, the largest pediatric cancer hospital in the world. Mark is also the CEO of Break-Even Therapeutics, a 501c3 working to supply essential medicines to in-need populations around the world.

John Marozzi

존 마로치

John is the President/CEO of Bell-Mark Sales Company which designs, manufactures and services high-performance coding, marking and printing equipment for the food, medical device and industrial marketplace worldwide. Founded in 1959 by John’s father, Bell-Mark is now a 3도로 generation family business headquartered in Pine Brook, New Jersey, with manufacturing facilities in Dover, PA, and sales offices around the globe.

John is a member of the Board of Preakness Hills Country Club where he chairs the Tournament Committee. He is also the grandfather of Zoey Penny, diagnosed with Progeria in March 2010 at age 5 months. He and his family formed 팀 조이  to raise funds and awareness in their community and beyond.

Larry Mills

래리 밀스

Larry Mills has been the Executive Vice President of the Holt Companies, based in San Antonio, Texas for over 40 years. These companies are comprised of HOLT CAT, one of the world’s largest Caterpillar dealers and the four-time NBA Champion San Antonio Spurs. After holding various positions with the companies in the areas of parts operations, marketing, sales and human resources, his areas of focus now include strategic planning, marketing, leadership development, and organizational development.

He is the founder of Holt Development Services, Inc., which is based on the Values Based Leadership approach to business. Larry serves on the board of directors of the San Antonio Spurs, Clarity Child Guidance Center and Children’s Hospital of San Antonio Foundation.  He is also a member of the Society of Human Resource Management, the American Society of Training and Development, and the Ethics Officers Association. 

Liza Morris

리자 모리스

Liza Morris is a 20+ year veteran of health and science communications. As a strategy and communications consultant, she has worked with organizations to build strategic partnerships; raise awareness in global markets about important science, education and human development issues; create programs to drive fundraising, change perceptions and influence behavior; implement strategies to drive digital conversations; successfully navigate through crisis situations; and establish new programs to measure results. Liza has been working with PRF since 2003 and has helped lead the communications aspect of every major milestone that PRF has achieved.

Kim Paratore

김 파라토레

사무원

Kim Paratore is the former Executive Director and Event Coordinator of Grateful Friends, a non-profit based in Gloucester, MA that provides support to adults living with, or undergoing treatment for, cancer. Kim has been involved as a PRF volunteer since its inception, having created and chaired the Night of Wonder galas (PRF’s major fundraiser), as well as numerous other PRF special events. She has also been involved in dozens of fundraising efforts for other charities and her two sons’ schools, organizing races, auctions and dinners. In 2005, Kim was honored with PRF’s coveted Amy Award for her tireless efforts and long-standing commitment to children with Progeria.

Matthew Winters, Esq.

매튜 윈터스 변호사

Matthew Winters is a Partner at the strategic advisory firm Hakluyt & Co., where he leads much of the firm’s US healthcare work out of Washington, DC. Prior to joining Hakluyt, Matt spent seven years as a Partner at PWR, a boutique law firm where he provided counsel and strategic advice to pharmaceutical and biotechnology companies, and nonprofit organizations, on an array of legal, regulatory, business, and public policy matters.

Previously, Matt served in several senior roles in the Obama Administration, including as Deputy Special Counsel to the President in the White House Counsel’s Office, and as Chief Operating Officer of the Department of Energy’s $50 billion clean energy investment fund. He also worked for several years as an associate at the law firm of Williams & Connolly.

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