Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.
A huge THANK YOU to the over 1,000 PRF donors who helped us raise $159,000! All funds from our annual summer campaign go directly to our vital clinical trials. We thank each and every ONE of you for making a cure POSSIBLE.
May 16, 2018: On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib.
Collaboration marks first therapy submission for the treatment of Progeria. If approved, children may access drug by prescription instead of clinical trial. Click here for more details.
PRF’s signature event- Night of Wonder Gala: Rock the Cure was held on Saturday April 28, 2018 at the beautiful Renaissance Waterfront Hotel, Boston. Thanks to all of our supporters we raised a RECORD BREAKING $580,000! Check out our event page for fabulous pictures from this special evening.
September 8, 2017
Sam Berns’ TEDx Talk Reaches 25 Million Views – Celebrate with Us!
Sam’s talk, “My Philosophy for a Happy Life”, has inspired over 25 Million people with its message of hope and love. Help us honor Sam’s legacy with a donation of $25 or more to PRF – the Foundation created by his family to treat and cure children with Progeria. CLICK HERE or TEXT SAM25 to 41444 to celebrate this extraordinary young man – Sam’s parents will match up to $25,000!