Rare disease affects over 250 million people worldwide. Approximately 75 percent of those affected are children, making this disease category one of the most deadly and debilitating for children. Like children with Progeria, they all have very unique needs, but many...
PRF’s global effort to find all children with Progeria throughout the world has resulted in finding an astonishing 14 more since October 2009. Now more children than ever can get the support they need. Updated September 2010: Just 10 months after the launch of this...
Awareness of Progeria continues with the airing of a 20/20 special featuring Lindsay, Kaylee and Hayley, three girls with Progeria On September 10, 2010, ABC’s 20/20 aired a 1-hour program on Progeria entitled, When Seven Looks Like 70…A Race Against Time...
Click Here to read about the show featuring Dr. Leslie Gordon, PRF’s Medical Director and Kaylee Halko. The Dr. Oz Show aired a very special segment on Progeria with Dr. Leslie Gordon, PRF’s Medical Director, Kaylee Halko and her parents, and geneticist...
Progeria and PRF’s work will be shown on Saturday, February 20th and Sunday the 21st, at 12:30 pm EST on Spike TV during the “PowerBlock” show MuscleCar. Thanks to our wonderful supporters YearOne, Chip Foose and RTM Productions, Progeria and...
It took less than 6 months to get all 45 children from 24 countries started, thanks to the remarkable teamwork of the families, their doctors, PRF and its trial partners. Click here for more details on this second Progeria clinical trial....
As of the October 27, 2009 launch of our campaign, we know of 54 children with Progeria in 30 countries, but experts believe there are 150 more. Find out what PRF is doing to “find the other 150” so they can get the support they need. To find out more, please visit...
Hayley from England and Michiel from Belgium are all smiles as they pose with their trophies for completing the first-ever Progeria clinical drug trial on Friday, August 14, 2009. They also, along with Michiel’s sister Amber (right), completed their first visit for...
Detailing presentations at the most recent scientific conference, this article shows how quickly the field of Progeria has advanced toward treatments and cure. Highlights of the 2007 Progeria Research Foundation Scientific Workshop: Progress in Translational Science....
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